Your browser doesn't support javascript.
loading
Show: 20 | 50 | 100
Results 1 - 20 de 35
Filter
1.
Adm Policy Ment Health ; 48(6): 1034-1045, 2021 11.
Article in English | MEDLINE | ID: mdl-33655461

ABSTRACT

The employment of peer providers (people who draw on their lived experience of mental health challenges) has grown in conjunction with the increased acceptance of recovery as a key principle in mental health policy and practice. Barriers to the integration of peer providers in mental health services have been well documented. This review addresses an under-explored area by consolidating strategies undertaken by mental health organizations for the successful implementation of peer provision. A scoping review was chosen to facilitate the rapid summary and dissemination of research findings that are relevant to policymakers and practitioners. Peer-reviewed articles and grey literature were sourced from three databases, key peer support websites and a hand search of the included studies. Following screening, data were extracted from 28 studies: 25 qualitative and three mixed methods studies. The data were analyzed using thematic analysis and organized into themes. Four themes emerged from the data. Championing of peer provision initiatives by organizational leadership is central to the success and sustainability of peer provision. Leadership undergirds three strategies that were discussed: organizational preparation, recruitment, training and induction, and support and development. When peer provision is championed by organizational leadership, measures can be undertaken to prepare the organization for peer provision; recruit, train and induce peer providers successfully into the organization; and support peer providers on the job.


Subject(s)
Mental Health Services , Mental Health , Humans , Leadership , Organizations , Peer Group
2.
J Health Organ Manag ; ahead-of-print(ahead-of-print)2020 Jun 09.
Article in English | MEDLINE | ID: mdl-32520471

ABSTRACT

PURPOSE: Over the past decade, the push for recovery-oriented services has birthed a growth in the recruitment of peer providers in mental health services: Persons who live with and manage their mental health challenges and are employed to support persons currently using mental health services. The aim of this paper is to compare the responses of government and non-government organisations to the implementation of peer provision. DESIGN/METHODOLOGY/APPROACH: Employing a qualitative study design, 15 people who supervised peer providers or who were strategically involved in peer provision were recruited using snowball sampling. Participants completed an in-depth interview that explored how peer provision services operated at their organisation and factors that shaped the way peer provision operates. The interviews were transcribed and analysed using Moore's Strategic Triangle. Synthesised member checking and researcher triangulation ensued to establish trustworthiness. FINDINGS: The way in which peer provision operated sat along a continuum ranging from adoption (where practices are shaped by the recovery ethos) to co-option (where recovery work may be undertaken, but not shaped by the recovery ethos). Political and legal mandates that affected the operational capacities of each organisation shaped the way peer provision services operated. RESEARCH LIMITATIONS/IMPLICATIONS: The findings of the study highlight the need to reconsider where peer provision services fit in the mental health system. Research investigating the value of peer provision services may attract the support of funders, service users and policy makers alike. ORIGINALITY/VALUE: In employing Moore's strategic triangle to evaluate the alignment of policy (the authorising environment) with the operational capacity and practice of peer provision services (the task environment), this study found that organisational response to peer provision is largely influenced by political and legal mandates externally. The successful implementation of peer provision is mediated by effective supervision of peer providers.


Subject(s)
Mental Health , Organizations , Peer Group , Humans , Interviews as Topic , Mental Disorders/rehabilitation , Qualitative Research , Social Support , Western Australia
3.
J Intellect Disabil ; 24(4): 543-558, 2020 Dec.
Article in English | MEDLINE | ID: mdl-30727802

ABSTRACT

BACKGROUND: People with intellectual disabilities at the end of life are at risk of receiving inadequate and inequitable end-of-life care. This study explores their unmet needs, opportunities for person-centred care and experiences of health service use. METHODS: Qualitative interviews with 26 experienced health professionals and carers were used to explore their patients' and residents' unmet needs and end-of-life care options and to outline strategies to support them. RESULTS: A range of challenges and unmet needs experienced by people with intellectual disabilities are presented in themes: (1) accommodation setting at the end of life: dying 'at home'; (2) personal factors and networks: a circle of support; (3) end-of-life medical care and decision-making. Strategies to facilitate good end-of-life care and a model of care are presented. CONCLUSIONS: Well-prepared and collaborative disability and health service workforces are needed, together with flexible and adequate end-of-life funding to ensure compassionate and person-centred care.


Subject(s)
Intellectual Disability/therapy , Needs Assessment , Palliative Care , Patient-Centered Care , Terminal Care , Australia , Caregivers , Health Personnel , Humans , Qualitative Research
4.
Women Health ; 59(4): 406-419, 2019 04.
Article in English | MEDLINE | ID: mdl-29920180

ABSTRACT

Survivorship is an under-recognized period in the care of women with breast cancer. This paper aimed to determine if supports provided by health services were adequate in meeting the expressed needs of women and partners during survivorship. A mixed-method study consisted of: (1) in-depth interviews with women (n = 18) and partners (n = 8) (completed June 2014-November 2014) and (2) a questionnaire with health providers (n = 34) (completed April 2015) regarding services offered, needs addressed, and barriers to service delivery. Both were completed in Perth, Western Australia. Findings were determined using thematic analysis and descriptive statistics. Many unmet needs were identified by women and partners, including: pain, fatigue, fear of recurrence, employment, leisure, and social and intimacy difficulties. Participants did not receive a formal plan to assist them. Health providers reported a range of supports, including cancer surveillance and management of physical, psychological, emotional, and relationship concerns. However, many barriers concerning service delivery were identified. Despite services reporting that they provided various supports, interview participants did not appear to use and benefit from these. Coordination of service delivery was identified as requiring improvement. The use of survivorship care plans also needs refinement to determine suitability for use during survivorship.


Subject(s)
Breast Neoplasms/psychology , Breast Neoplasms/therapy , Cancer Survivors/psychology , Continuity of Patient Care/organization & administration , Health Services Needs and Demand , Needs Assessment , Patient Care Planning , Spouses/psychology , Survivorship , Adaptation, Psychological , Adult , Female , Humans , Interviews as Topic , Qualitative Research , Quality of Life/psychology , Sexual Partners , Social Support , Surveys and Questionnaires
5.
BMC Palliat Care ; 17(1): 53, 2018 Mar 27.
Article in English | MEDLINE | ID: mdl-29580230

ABSTRACT

BACKGROUND: People with schizophrenia are at risk of receiving poorer end of life care than other patients. They are often undertreated, avoid treatment and are about half as likely to access palliative care. There are limited options for end of life care for this under-serviced group in need. This study aims to address the paucity of research by documenting possible need, experiences of health care service use and factors affecting palliative care use for people with schizophrenia who have advanced life limiting illness. METHODS: Semi-structured interviews were undertaken with 16 experienced health professionals caring for people with schizophrenia in Western Australia. The interviews focussed on their perceptions and experiences of end of life care, their patients' unmet needs, palliative care options, and suggested services to support this vulnerable group and improve health care provision. The research used a qualitative design and thematic analyses. RESULTS: The participants all advocated strongly for their patients and recognised their extreme vulnerability. They identified a range of challenges and unmet needs experienced by people with schizophrenia at the end of life including: illness factors such as the impact of schizophrenia on information processing and communication; social factors such as stigma, isolation and the absence of a carer; and health care factors such as late diagnosis, delayed access to care, and mismanagement in care. Four themes were organised into two domains with the first exploring the individual and social circumstances of people with schizophrenia, including the challenges they experience in the health care system. The second domain covers themes that discuss barriers and facilitators to people with schizophrenia receiving palliative care and key features in palliative care provision, including recognising declining health, communication and planning, and collaboration and capacity building in the broader health, mental health and palliative care sectors. CONCLUSIONS: To ensure people with schizophrenia are well supported at the end of life a model of palliative care is required that offers both specialised services and capacity building within the pre-existing health workforce. Resources are needed to address the stigma and lack of services faced by this vulnerable group.


Subject(s)
Health Personnel/psychology , Palliative Care/methods , Schizophrenia/therapy , Adult , Attitude of Health Personnel , Capacity Building/methods , Female , Health Services Accessibility/standards , Humans , Male , Middle Aged , Qualitative Research , Social Isolation/psychology , Social Stigma , Social Support , Western Australia
6.
Womens Health (Lond) ; 14: 1745505718756381, 2018.
Article in English | MEDLINE | ID: mdl-29409399

ABSTRACT

Early survivorship is a time of critical transition for women survivors of breast cancer as they attempt to resume functional activities and important life roles. This study aimed to explore the challenges of women and their partners as they attempted to resume activities and roles, identify unmet needs and make recommendations regarding a suitable framework to support women and partners to recommence valued activities and important roles during early survivorship. Qualitative methods utilising in-depth interviews of women (n = 18) and their partners (n = 8), and two focus groups (n = 10) were completed in Perth, Western Australia, between June 2014 and April 2015. These methods were used to facilitate women and partners' views regarding the resumption of previously meaningful activities and important life roles during early survivorship. Questions addressed their individual and shared experiences concerning self-care, leisure, social and productive activities and important roles. Thematic analysis was employed to determine themes. Women and partners reported significant impact on their ability to engage in valued activities, resulting in changes to participation in meaningful roles. Three themes were determined: (1) ambiguity regarding survivorship prevents resumption of activities and previous roles, (2) breast cancer continues to impact a couples' relationship during survivorship, and (3) support is needed to assist women and partners to resume activities and important roles. This research provides evidence suggesting that the ongoing symptoms of breast cancer treatment continue to impact many women and their partners, as they attempt to resume functional activities and important life roles during early survivorship. Disruption to these valued activities and roles may influence women and their partner's health and well-being during early survivorship and extend beyond this period. Rehabilitation following cessation of treatment could be offered as required to facilitate access to multi-disciplinary services and supports for both individuals and couples.


Subject(s)
Breast Neoplasms/psychology , Cancer Survivors/psychology , Quality of Life/psychology , Spouses/psychology , Survivorship , Adaptation, Psychological , Adult , Australia , Female , Focus Groups , Humans , Male , Middle Aged , Social Support
7.
Am J Hosp Palliat Care ; 34(3): 275-281, 2017 Apr.
Article in English | MEDLINE | ID: mdl-26566928

ABSTRACT

BACKGROUND: Most bereaved people do not require specialist intervention, yet building community capacity in providing bereavement support is underdeveloped. While family caregivers indicate a need for more information about bereavement, there is little evidence to guide what this information might contain. OBJECTIVE: The study's purpose was to inform bereavement support by determining the advice people bereaved through expected deaths in palliative care have for others in that situation. DESIGN: Four funeral providers posted a questionnaire to previous clients who had used their services 6 to 24 months prior and 678 bereaved people responded. SETTING/PARTICIPANTS: The sample size for this study comprised 265 bereaved people whose relative used palliative care services. MEASUREMENTS: The questionnaire comprised 82 questions about caregiving, bereavement support, current bereavement-related distress, and 2 open-ended questions concerning their bereavement, one of them on advice they have to other people in the same situation. RESULTS: Family caregivers (n = 140) of people who received palliative care responded to the open-ended question about advice for others. An open content analysis yielded 3 themes-preparations for bereavement, utilizing social networks, and strategies for dealing with grief. CONCLUSIONS: Bereaved family caregivers' experiential knowledge can be harnessed to progress the development of bereavement care strategies for the good of the community. These responses could be incorporated into information brochures, posters, and other community education avenues in order to upskill palliative care bereavement volunteers and the wider community so that bereaved family caregivers are best supported.


Subject(s)
Bereavement , Caregivers/psychology , Family/psychology , Palliative Care/organization & administration , Social Support , Aged , Consumer Health Information/organization & administration , Health Knowledge, Attitudes, Practice , Humans , Male , Middle Aged , Stress, Psychological/psychology
8.
Scand J Occup Ther ; 24(4): 269-280, 2017 Jul.
Article in English | MEDLINE | ID: mdl-27734712

ABSTRACT

BACKGROUND/AIM: People with severe mental illness (SMI) do not receive adequate attention in research or clinical practice. They are considered hard to reach and difficult to engage. Information is needed to help provide support for this vulnerable population. This paper aims to investigate the well-being of adults diagnosed with SMI and receiving Assertive Community Treatment (ACT) by applying the occupational well-being framework to the everyday activities of this vulnerable group of people. MATERIALS AND METHODS: Eleven adults diagnosed with an SMI, living in the community, participated in semi-structured interviews over a 12-month period. A longitudinal design was used to collect data through using field notes and audio recordings. For this paper, secondary analysis was conducted by coding the data deductively thereby investigating the participants' experiences in relation to the seven Occupational Well-being framework descriptors (accomplishment, affirmation, agency, coherence, companionship, pleasure and renewal). RESULTS: Participants' everyday activities and occupational well-being appeared severely restricted and largely determined by the type of care they received. There was minimal evidence of the well-being descriptors, though all the participants reported experiencing some form of pleasure, even though some of the pleasurable experiences negatively impacted their health. CONCLUSION/SIGNIFICANCE: The episodic nature of SMI means that people living with an SMI require continuity in key relationships and support to achieve Occupational Well-being. Occupational therapists working with mental health consumers need to facilitate the types of activities that foster well-being through accomplishment, affirmation, agency and companionship, and that derive pleasure in healthy and positive ways.


Subject(s)
Mental Disorders/psychology , Mental Disorders/therapy , Occupational Therapy , Social Support , Adult , Community Mental Health Services , Female , Humans , Interpersonal Relations , Longitudinal Studies , Male , Middle Aged , Qualitative Research
9.
Home Health Care Manag Pract ; 28(4): 256-261, 2016 Nov.
Article in English | MEDLINE | ID: mdl-27746669

ABSTRACT

Little is known about the significance of gardening services for frail elderly people. This study explored the value of a gardening service for frail older people and people with a disability living in the community. Using qualitative and quantitative data collected from pre-gardening (n = 38) and post-gardening service delivery interviews (n = 35) and the Housing Enabler, the value of a gardening service was examined. Findings suggest that the service had a positive impact on the independence and emotional well-being of frail aged people and younger people with a functional disability, with little impact on physical health. Results indicate that gardening services should be fundamental to planning for these populations to remain or return to living in the community.

10.
BMC Womens Health ; 16: 57, 2016 08 25.
Article in English | MEDLINE | ID: mdl-27561256

ABSTRACT

BACKGROUND: The shared impact of breast cancer for women and their male partners is emerging as an important consideration during the experience of a breast cancer diagnosis, particularly during survivorship. This study aimed to explore the experiences of women and their partners during early survivorship and contributes a range of insights into the lives of those intimately affected by breast cancer. METHODS: In-depth interviews were completed with Australian women survivors of breast cancer (n = 8) and their partners (n = 8), between six months and five years following cessation of treatment. Questions included a focus on the women and their partners' daily experiences during early survivorship, including the management of ongoing symptoms, engagement in leisure and social interests, returning to work, communicating with each other, maintenance of the current relationship and other important roles and responsibilities. Thematic analysis was employed to determine key themes arising from the dyadic accounts of women and their partners' experiences during early breast cancer survivorship. RESULTS: Women and their partners experienced many changes to their previous roles, responsibilities and relationships during early breast cancer survivorship. Couples also reported a range of communication, intimacy and sexuality concerns which greatly impacted their interactions with each other, adding further demands on the relationship. Three significant themes were determined: (1) a disconnection within the relationship - this was expressed as the woman survivor of breast cancer needing to prioritise her own needs, sometimes at the expense of her partner and the relationship; (2) reformulating the relationship - this reflects the strategies used by couples to negotiate changes within the relationship; and (3) support is needed to negotiate the future of the relationship - couples emphasised the need for additional support and resources to assist them in maintaining their relationship during early survivorship. CONCLUSION: It can be concluded that the early survivorship period represents a crucial time for both women and their partners and there are currently limited options available to meet their shared needs and preferences for support. Findings indicate that a suitable model of care underpinned by a biopsychosocial framework, access to comprehensive assessment, timely support and the provision of targeted resources are urgently needed to assist women and their partners during this critical time.


Subject(s)
Breast Neoplasms/psychology , Communication , Interpersonal Relations , Social Change , Survivors/psychology , Adult , Australia , Family Characteristics , Female , Humans , Male , Middle Aged , Qualitative Research , Social Support
11.
Aust Occup Ther J ; 63(4): 257-65, 2016 Aug.
Article in English | MEDLINE | ID: mdl-27250775

ABSTRACT

BACKGROUND/AIM: Ongoing changes to health-care funding Australia wide continue to influence how occupational therapists practise in acute hospitals. This study describes the practice challenges experienced by Western Australian acute care occupational therapists. Then, it explores if and how acute care occupational therapists are modifying their practice in response to these practice changes. METHODOLOGY: This study used a qualitative grounded theory approach. Semi-structured interviews were completed with 13 purposively selected acute care occupational therapists from four Western Australian metropolitan hospitals. Data were analysed using a constant comparative method to provide detailed descriptions of acute care occupational therapy practice and to generate theory. FINDINGS: Five conceptual categories were developed. The first two addressed practice challenges: pragmatic organisational influences on client care and establishing a professional identity within the multidisciplinary team. Three categories related to therapist responses are as follows: becoming the client advocate, being the facilitator and applying clinical reasoning. Finally, modified practice was identified as the core category which explains the process whereby acute care occupational therapists are ensuring they remain relevant and authentic in the acute care context. CONCLUSION: Western Australian acute care occupational therapists are practising in a highly complex health context that presents many challenges. They are responding by using a modified form of practice that ensures occupational therapy skills remain relevant within the narrow confines of this health setting.


Subject(s)
Hospital Administration , Occupational Therapy/organization & administration , Professional Role , Social Identification , Attitude of Health Personnel , Clinical Competence , Communication , Environment , Humans , Interviews as Topic , Patient Advocacy , Patient Care Team/organization & administration , Qualitative Research , Western Australia
12.
BMC Pregnancy Childbirth ; 16(1): 131, 2016 06 02.
Article in English | MEDLINE | ID: mdl-27256279

ABSTRACT

BACKGROUND: Postpartum women's recovery from birth can be assisted through increased physical activity (PA). However, women face substantial barriers to participating in exercise and require support to enable them to benefit from increased PA. METHODS: This study sought to explore women's beliefs about and experiences of PA and exercise during the 6 weeks to 12 months postpartum period. A cohort of 14 postpartum women from a survey study of the barriers and enablers to exercise participation agreed to take part in interview sessions to provide an in-depth understanding of the women's perceptions of the postpartum period and their physical activity during this time. RESULTS: Findings are presented with reference to the social ecological framework and indicate postpartum women face substantial personal and environmental barriers to PA and exercise participation: fatigue, a lack of motivation and confidence, substantial time constraints, lack of access to affordable and appropriate activities and poor access to public transport. In contrast, enablers such as possessing greater social support, in particular partner support, improved PA and exercise participation. CONCLUSIONS: The findings encourage facilitation of exercise through mothers' groups, mothers' exercise clubs or postnatal classes suggesting behavioral and social change is needed. Interaction between individuals, community, organizations and policy makers is required. In addition, the provision of specifically tailored and appropriate exercise programs could potentially enable increased PA in postpartum women, thereby improving their health.


Subject(s)
Exercise/psychology , Postpartum Period/psychology , Adolescent , Adult , Attitude to Health , Fatigue/psychology , Female , Health Services Accessibility , Humans , Motivation , Pregnancy , Qualitative Research , Social Support , Time Factors , Young Adult
13.
BMC Palliat Care ; 15: 46, 2016 May 10.
Article in English | MEDLINE | ID: mdl-27165411

ABSTRACT

BACKGROUND: Historically, specialist palliative care has been accessed by a greater proportion of people dying with cancer compared to people with other life-limiting conditions. More recently, a variety of measures to improve access to palliative care for people dying from non-cancer conditions have been implemented. There are few rigorous population-based studies that document changes in palliative care service delivery relative to the number of patients who could benefit from such services. METHOD: A retrospective cohort study of the last year of life of persons with an underlying cause of death in 2009-10 from cancer, heart failure, renal failure, liver failure, chronic obstructive pulmonary disease, Alzheimer's disease, motor neurone disease, Parkinson's disease, Huntington's disease and/or HIV/AIDS. The proportion of decedents receiving specialist palliative care was compared to a 2000-02 cohort. Logistic regression models were used identify social and demographic factors associated with accessing specialist palliative care. RESULTS: There were 12,817 deaths included into the cohort; 7166 (56 %) from cancer, 527 (4 %) from both cancer and non-cancer conditions and 5124 (40 %) from non-cancer conditions. Overall, 46.3 % of decedents received community and/or hospital based specialist palliative care; a 3.5 % (95 % CI 2.3-4.7) increase on specialist palliative care access reported ten years earlier. The majority (69 %; n = 4928) of decedents with cancer accessed palliative care during the last year of life. Only 14 % (n = 729) of decedents with non-cancer conditions accessed specialist palliative care, however, this represented a 6.1 % (95 % CI 4.9-7.3) increase on the specialist palliative care access reported for the same decedent group ten years earlier. Compared to decedents with heart failure, increased odds of palliative care access was observed for decedents with cancer (OR 10.5; 95 % CI 9.1-12.2), renal failure (OR 1.5; 95 % CI 1.3-1.9), liver failure (OR 2.3; 95 % CI 1.7-3.3) or motor neurone disease (OR 4.5; 95 % CI 3.1-6.6). Living in major cities, being female, having a partner and living in a private residence was associated with increased odds of access to specialist palliative care. CONCLUSION: There is small but significant increase in access to specialist palliative care services in Western Australia, specifically in patients dying with non-cancer conditions.


Subject(s)
Health Services Accessibility/statistics & numerical data , Health Status Disparities , Home Care Services/statistics & numerical data , Hospitalization/statistics & numerical data , Palliative Care/statistics & numerical data , Patient Selection , Terminally Ill/statistics & numerical data , Aged , Death Certificates , Female , Humans , Male , Retrospective Studies , Western Australia/epidemiology
14.
Australas J Ageing ; 35(1): 30-5, 2016 Mar.
Article in English | MEDLINE | ID: mdl-25472546

ABSTRACT

AIM: To evaluate a healthy ageing intervention in the form of a program of physical and social activity for frail older people living in the community. METHODS: New members of an activity program were surveyed before and after attending the program and interviewed face-to-face prior to the program, immediately after the program and through a telephone interview two months following the program. RESULTS: Program participants reported better health, social function and mental well-being; greater engagement in household and leisure activities; and increased enjoyment and confidence through participating in the program. Some participants could not attend the whole program due to poor health or difficulties securing transport. CONCLUSION: The results suggest the program was successful in enhancing the health and well-being of those community-dwelling older adults who stayed in the program. However, the high drop-out rate suggests that flexibility is required in community-based healthy ageing programs.


Subject(s)
Aging , Exercise , Frail Elderly , Health Promotion/methods , Health Services for the Aged , Healthy Lifestyle , Independent Living , Social Behavior , Age Factors , Aged , Aging/physiology , Aging/psychology , Female , Geriatric Assessment , Health Services Research , Humans , Interviews as Topic , Male , Mental Health , Middle Aged , Patient Dropouts , Program Evaluation , Quality of Life , Telephone , Time Factors
15.
Aust Occup Ther J ; 62(6): 370-7, 2015 Dec.
Article in English | MEDLINE | ID: mdl-26358525

ABSTRACT

BACKGROUND/AIM: Increased accountability and growing fiscal limitations in global health care continue to challenge how occupational therapy practices are undertaken. Little is known about how these changes affect current practice in acute hospital settings. This article reviews the relevant literature to further understanding of occupational therapy practice in acute physical hospital settings. METHOD: A scoping review of five electronic databases was completed using the keywords Occupational therapy, acute hospital settings/acute physical hospital settings, acute care setting/acute care hospital setting, general medicine/general medical wards, occupational therapy service provision/teaching hospitals/tertiary care hospitals. Criteria were applied to determine suitability for inclusion and the articles were analysed to uncover key themes. RESULTS: In total 34 publications were included in the review. Analysis of the publications revealed four themes: (1) Comparisons between the practice of novice and experienced occupational therapists in acute care (2) Occupational therapists and the discharge planning process (3) Role of occupation in the acute care setting and (4) Personal skills needed and organisation factors affecting acute care practice. CONCLUSION: The current literature has highlighted the challenges occupational therapists face in practicing within an acute setting. Findings from this review enhance understanding of how occupational therapy department managers and educators can best support staff that practise in acute hospital settings.


Subject(s)
Hospital Administration , Occupational Therapy/organization & administration , Acute Disease , Clinical Competence , Humans , Patient Discharge , Professional Role
16.
PLoS One ; 10(3): e0121101, 2015.
Article in English | MEDLINE | ID: mdl-25811912

ABSTRACT

This study identifies and describes the profiles of bereavement risk and support needs of a community sample in Australia and tests the fit of the data with the three-tiered public health model for bereavement support. Family members who were bereaved 6-24 months prior to the survey and who were clients of four funeral providers participated (May-July 2013). A postal survey was used to collect information about bereaved people's experience of caring and perceived satisfaction with any bereavement support provided. The questionnaire included a validated risk assessment screening measure for Prolonged Grief Disorder (PG-13). A total of 678 bereaved people responded. The model predicted that 60% of the sample would be low risk, 30% moderate risk, and 10% high risk. Actual figures were very close at 58.4%, 35.2% and 6.4% respectively. The analysis of the demographic characteristics, experience and impact of caring and bereavement, and satisfaction with support received from a variety of sources revealed differential experiences and needs that align with the expectation of low, moderate, and high bereavement support need, as articulated in the public health model. This is the first empirical test of the public health model of bereavement support. As there is a lack of clear evidence to guide development and allocation of bereavement support programs, the findings have the potential to inform the ability of services, community organizations and informal networks to prioritize care according to each level of bereavement need. This is essential to achieve cost-effective and equitable resource allocation.


Subject(s)
Bereavement , Population Surveillance , Social Support , Adult , Aged , Aged, 80 and over , Australia , Cross-Sectional Studies , Female , Grief , Humans , Male , Middle Aged , Models, Theoretical , Risk , Surveys and Questionnaires , Young Adult
17.
J Cancer Surviv ; 9(2): 260-8, 2015 Jun.
Article in English | MEDLINE | ID: mdl-25343971

ABSTRACT

PURPOSE: Cancer survivorship care plans (SCPs) are currently used in care settings to assist survivors during the transition from treatment to survivorship. In this paper, the experiences of cancer survivors are examined to provide their perspective of how survivorship care plans are used in practice. METHODS: A systematic review and critical review of the qualitative literature regarding the experiences of cancer survivors using survivorship care plans was completed. Databases reviewed included CINAHL, AMED, Embase, MEDLINE, Informit, ProQuest, PsycINFO, ScienceDirect, Wiley Online Library, Scopus and Web of Science from 2000 to 2014. RESULTS: Eleven qualitative studies were appraised for methodological quality and content. They revealed four key themes: stakeholders agreed that SCPs should be used as a key strategy for cancer survivors; there was a lack of consensus on the format, content and who should develop the SCP; cancer survivors do not consistently receive SCPs; and there was a lack of evidence to support the use of SCPs in practice. CONCLUSIONS: There is great potential for SCPs to assist cancer survivors and this is supported by the range of qualitative literature examined in this study. Further research is required to examine the many practical issues relating to the delivery of SCPs and how they may be used across a variety of care contexts as well as providing further evidence to support their use. IMPLICATIONS FOR CANCER SURVIVORS: With further research, refinement and contributions made by survivors, health researchers and health care professionals, the survivorship care plan is proposed to be a useful and practical tool aimed at supporting the survivorship continuum of care.


Subject(s)
Neoplasms/rehabilitation , Patient Care Planning , Perception , Survivors , Health Personnel/standards , Humans , Neoplasms/mortality , Neoplasms/psychology , Patient Care Planning/standards , Qualitative Research , Survivors/psychology , Survivors/statistics & numerical data
18.
J Ment Health ; 23(5): 241-5, 2014 Oct.
Article in English | MEDLINE | ID: mdl-25222366

ABSTRACT

BACKGROUND: Recovery experiences should bring hope, identity, meaning and personal responsibility to the lives of people experiencing severe mental illness (SMI). AIMS: To describe the recovery experiences of individuals experiencing SMI who are labelled "hard to engage" and who receive mental health assertive community treatment (ACT). METHODS: A qualitative approach was used to gather descriptive data from 11 adults diagnosed with SMI who live in the community. Data were gathered over 12 months through one-to-one meetings using field notes and audio recordings. RESULTS: Longitudinal findings provided insight into the everyday experiences and include the themes of: personal understandings of recovery, potential for agency and everyday routine. CONCLUSIONS: Opportunities for recovery experiences that hold purpose and meaning are limited for individuals receiving ACT and do not reflect definitions of personal recovery within contemporary literature. Further debate is required to address the gap between theory and the reality of recovery experiences.


Subject(s)
Activities of Daily Living/psychology , Community Mental Health Services , Mental Disorders/psychology , Mental Disorders/therapy , Adult , Female , Humans , Male , Middle Aged , Treatment Outcome
19.
Can J Occup Ther ; 81(3): 144-53, 2014 Jun.
Article in English | MEDLINE | ID: mdl-25154128

ABSTRACT

BACKGROUND: The concept "everyday" appears unchallenged and problematic when applied to people who experience disrupted lives through illness or disability. PURPOSE: This study draws upon social and philosophical theory to review the relevance of the concept "everyday" when applied to contemporary occupational therapy and the lives of individuals who experience biographical disruption. METHOD: A literature review guided by a scoping framework was undertaken followed by a critical analysis drawing on Bauman to determine the frequency and meaning of the concept "everyday" used in the occupational therapy and occupational science literature. FINDINGS: Definitions of the "everyday" are used infrequently despite recurrent use of the concept. A large proportion of literature reviewed in this manuscript does not acknowledge or discuss the philosophical and sociological influences that contribute to an understanding of the "everyday," leaving the reader to make her or his own interpretations. IMPLICATIONS: Reconceptualizing lived "everyday" experience within the contextual "here and now" provides a postmodern "episodic" lens for occupational therapists working with individuals who experience biographical disruption.


Subject(s)
Human Activities , Life Change Events , Occupational Therapy , Humans , Philosophy , Social Adjustment
20.
Front Psychol ; 5: 597, 2014.
Article in English | MEDLINE | ID: mdl-25071618

ABSTRACT

BACKGROUND: postnatal depression (PND) is defined as a psychological mood disorder that occurs in a mother within 6 weeks of her giving birth. It refers to an episode that causes mood disturbance and it could begin in, or extend into, the postpartum period. It is thought to have a high impact upon the mother's health as well as the family's functioning and the child's development. Socio-demographic, psych-social, and physical activity factors may all contribute to postpartum mood and ability to cope with responsibilities. The primary aim of this study was to determine which of these factors predicted PND in postpartum women. A secondary aim was to identify the socio-demographic and psycho-social predictors of physical activity in postpartum women. METHODS: The study used a cross-sectional correlational design. A sample of 150 postpartum women was sent a package of six standardized questionnaires. RESULTS: There was no association between physical activity and PND; however, older mothers, mothers of younger children, mothers who are less reluctant to ask for help, and mothers who are more satisfied with the help they get experience lower levels of PND. Mothers of older babies, mothers with more children, and less educated mothers are more likely to engage in caregiving activities, whereas mothers with fewer children and higher levels of partner support are more likely to engage in occupational activities. None of the socio-demographic factors or any of the parenting factors predicted levels of sporting activity.

SELECTION OF CITATIONS
SEARCH DETAIL