ABSTRACT
BACKGROUND: The Quality of Life Evaluation in Epidermolysis Bullosa (QoLEB) questionnaire was developed for use in English-speaking individuals. OBJECTIVES: The aims of this study were to translate the QoLEB into Brazilian Portuguese, to culturally adapt it, and to verify its reliability and validity. METHODS: The study followed the steps proposed by the World Health Organization, which include: translation; evaluation by a panel of experts and patients; back translation; and linguistic and cultural adaptation. All subjects were examined and assessed using the QoLEB and the Dermatology Life Quality Index (DLQI) or the Children's Dermatology Life Quality Index (CDLQI). Translation and cultural and linguistic adaptation were conducted by 10 patients, three translators, and the bilingual authors. RESULTS: The population was composed of 40 children (mean age: 8,15 years) and 17 adults (mean age: 33 years). Among the children, eight had epidermolysis bullosa (EB) simplex (EBS), one had junctional EB (JEB), and 31 had dystrophic EB (DEB). In the adult group, four of the subjects had EBS, one had JEB, and 12 had DEB. Mean ± standard deviation (SD) scores on the QoLEB in children were 10.60 ± 7.13 in EBS subjects, 9.71 ± 7.87 in children with dominant DEB (DDEB), and 14.25 ± 9.67 in children with recessive DEB (RDEB). Mean ± SD scores in adults were 12.50 ± 9.95 in EBS subjects, 12.00 ± 5.83 in DDEB subjects, and 20.20 ± 9.21 in RDEB subjects. The QoLEB-BP (Brazilian Portuguese) showed high internal consistency (Cronbach's α = 0.88) and high test-retest reliability (intraclass correlation coefficient: 0.70), confirming the internal consistency and reproducibility of this Portuguese version. There were significant correlations between QoLEB scores and both CDLQI (Pearson's r = 0.688, P < 0.002) and DLQI (Pearson's r = 0.807, P < 0.001) scores. CONCLUSIONS: Epidermolysis bullosa has marked impacts on the lives of EB patients and their families, which are strongly correlated with disease severity. The Brazilian Portuguese version of the QoLEB is validated and can be recommended for use in subsequent studies.
Subject(s)
Epidermolysis Bullosa , Quality of Life , Surveys and Questionnaires , Translations , Adolescent , Adult , Brazil , Child , Child, Preschool , Cultural Competency , Epidermolysis Bullosa/psychology , Female , Humans , Male , Reproducibility of Results , Severity of Illness Index , Young AdultABSTRACT
BACKGROUND: Psoriasis is a chronic disease with worldwide prevalences of 0.6-4.8%. Its inherent chronic inflammatory component predisposes patients to cardiovascular and metabolic diseases. OBJECTIVES: This study aimed to evaluate the associations of psoriasis with comorbidities and health risk factors such as smoking and alcohol intake, and to examine demographic differences in its occurrence in a southern Brazil population. METHODS: A case-control study was conducted at the Hospital de Clínicas de Porto Alegre between April 2009 and March 2011. The sample comprised 350 patients with psoriasis and 346 healthy control subjects. Data were collected using a standardized questionnaire. Tobacco load and alcohol consumption per person were investigated. Physical examination included blood pressure, waist circumference (WC), and body mass index (BMI) calculation. Clinical evaluation investigated whether psoriasis was localized or widespread and the percentage of body surface area (BSA) affected. RESULTS: Psoriasis patients exhibited an increased WC (P < 0.01) and BMI (P = 0.01) and higher incidences of smoking (P < 0.01) and depression (P < 0.01) than control subjects. A comparison of patients with involvement of <20% and >20% of BSA revealed significant differences in prevalences of hypertension (P = 0.03) and diabetes (P < 0.01). CONCLUSIONS: The present study demonstrated higher incidences of depression, increased WC, overweight, obesity, and smoking in psoriasis patients compared with controls. Patients with >20% of BSA affected were 1.69 times more likely to have hypertension and 2.9 times more likely to have diabetes. Healthcare providers should be alert to the increased cardiovascular risk and metabolic specificities of patients with psoriasis. Appropriate information on healthy lifestyle habits, including maintenance of a healthy weight and participation in physical exercise, and avoidance of alcohol and smoking are fundamental.
Subject(s)
Depression/epidemiology , Diabetes Mellitus/epidemiology , Hypertension/epidemiology , Obesity/epidemiology , Psoriasis/epidemiology , Smoking/epidemiology , Adult , Alcohol Drinking/epidemiology , Body Mass Index , Brazil/epidemiology , Case-Control Studies , Comorbidity , Female , Humans , Incidence , Male , Middle Aged , Risk Factors , Severity of Illness Index , Waist CircumferenceABSTRACT
Trata-se de um estudo que verificou a relação entre as características demográficas e clínicas com os diagnósticos de enfermagem definidos durante a consulta com enfermeira em ambulatório de um hospital geral. É um estudo transversal, que avaliou 237 consultas de enfermagem de pacientes atendidos no Programa de Saúde da Mulher (46 em enfermagem obstétrica e 24 em enfermagem em mastologia) e 167 no Programa de Educação em Diabetes Melito. Foram identificados 49 diagnósticos de enfermagem. Os mais frequentes no programa de saúde da mulher foram: Conhecimento deficiente, Conforto prejudicado, Integridade tissular prejudicada e Ansiedade. No programa de educação em diabetes: Controle ineficaz do regime terapêutico e Nutrição desequilibrada: mais do que as necessidades corporais. Foi encontrada associação significativa entre os diagnósticos mais frequentes com determinadas características demográficas e clínicas. Os resultados confirmaram que a identificação dos diagnósticos de enfermagem durante a consulta pode propiciar acurácia nos focos de cuidado ambulatorial.
El objetivo de este estudio fue verificar la relación entre las características demográficas y clínicas con diagnósticos de enfermería definidos durante la consulta con una enfermera en un ambulatorio de un hospital general. Este es un estudio transversal que evaluó 237 consultas de enfermería de los pacientes atendidos en el Programa de Salud de la Mujer (46 en enfermería obstétrica y 24 en enfermería en mastología) y 167 en Programa de Educación en Diabetes Mellitus. Se identificó un total de 49 diagnósticos de enfermería. Los más frecuentes en el Programa de Salud de la Mujer fueron: Déficit de conocimientos, Deterioro de la comodidad, Deterioro de la integridad del tejido y Ansiedad; y en el programa de Educación en Diabetes Mellitus fueron: Manejo inefectivo del régimen terapéutico y Nutrición alterada: más que las necesidades corpóreas. Se encontró una asociación significativa entre los diagnósticos más frecuentes con algunas características demográficas y clínicas. Este estudio confirma que la definición de los diagnósticos de enfermería durante la consulta puede proporcionar exactitud en el foco de la atención en el ambulatorio.
This study was aimed at verifying the relationship between demographic and clinical features and nursing diagnoses established during a nurse consultation in a general hospital. This is a cross-sectional study that assessed 237 nursing consultations of patients in two different programs: Women's Health (46 in obstetrical nursing and 24 in mastology nursing) and 167 in Diabetes Mellitus Education. A total of 49 nursing diagnoses were identified. The most frequent in the women's health program were: Knowledge Deficit, Impaired Comfort, Impaired Tissue Integrity and Anxiety; in the program of diabetes education were: Ineffective Therapeutic Regimen Management, and Imbalanced Nutrition: more than body requirements. There was a significant association between the most common diagnoses with certain demographic and clinical features. The results confirmed that the identification of the nursing diagnoses during the consultation may provide accuracy in the focus of outpatient care.
Subject(s)
Adult , Female , Humans , Male , Middle Aged , Ambulatory Care , Nursing Diagnosis , Referral and Consultation , Cross-Sectional Studies , DemographyABSTRACT
This study was aimed at verifyjing the relationship between demographic and clinicalfeatures and nursing diagnoses established during a nurse consultation in a general hospital. This is a cross-sectional study that assessed 237 nursing consultations of patients in two different programs Women's Health (46 in obstetrical nursing and 24 in mastology nursing) and 167 in diabetes mellitus education. A total of 49 nursing diagnoses were identified. The most frequent in the women's health program were: knowledge deficit, impaired comfort, impaired tissue, integrity and anxiety; in the program of diabetes education were: ineffective therapeutic regimen management, and imbalanced nutrition: more than body requirements. There was a significant association between the most common diagnoses with certain demographic and clinical features. The results confirmed that the identification of the nursing diagnoses during the consultation may provide accuracy in the focus of outpatient care.
