ABSTRACT
OBJECTIVES: Clinical practice guidelines (CPGs) are often created through collaboration among organizations. The use of inconsistent terminology may cause poor communication and delays. This study aimed to develop a glossary of terms related to collaboration in guideline development. STUDY DESIGN AND SETTING: A literature review of collaborative guidelines was performed to develop an initial list of terms related to guideline collaboration. The list of terms was presented to the members of the Guideline International Network Guidelines Collaboration Working Group, who provided presumptive definitions for each term and proposed additional terms to be included. The revised list was subsequently reviewed by an international, multidisciplinary panel of expert stakeholders. Recommendations received during this pre-Delphi review were implemented to augment an initial draft glossary. The glossary was then critically evaluated and refined through two rounds of Delphi surveys and a virtual consensus meeting with all panel members as Delphi participants. RESULTS: Forty-nine experts participated in the pre-Delphi survey, and 44 participated in the two-round Delphi process. Consensus was reached for 37 terms and definitions. CONCLUSION: Uptake and utilization of this guideline collaboration glossary by key organizations and stakeholder groups may facilitate collaboration among guideline-producing organizations by improving communication, minimizing conflicts, and increasing guideline development efficiency.
Subject(s)
Communication , Humans , Consensus , Delphi TechniqueSubject(s)
General Practice , Heart Failure , Patient Care Management , General Practice/methods , General Practice/standards , Heart Failure/diagnosis , Heart Failure/therapy , Humans , Patient Care Management/methods , Patient Care Management/standards , Severity of Illness Index , State Medicine , United KingdomSubject(s)
Lyme Neuroborreliosis , Anti-Bacterial Agents , Antibodies, Bacterial , Cohort Studies , Humans , OptimismSubject(s)
Anti-Bacterial Agents/therapeutic use , Lyme Disease/diagnosis , Academies and Institutes , Animals , Borrelia burgdorferi , Counseling , Fatigue/microbiology , Health Knowledge, Attitudes, Practice , Humans , Lyme Disease/epidemiology , Lyme Disease Vaccines , Patient Education as Topic , United KingdomSubject(s)
Cardiovascular Diseases , Hypolipidemic Agents/therapeutic use , Lipids/blood , Practice Guidelines as Topic , Primary Prevention/methods , Risk Assessment/standards , Cardiovascular Diseases/blood , Cardiovascular Diseases/epidemiology , Cardiovascular Diseases/prevention & control , Global Health , Humans , Morbidity/trends , Risk FactorsSubject(s)
Cardiovascular Diseases/prevention & control , Hydroxymethylglutaryl-CoA Reductase Inhibitors/therapeutic use , Lipids/blood , Risk Assessment , Anion Exchange Resins/administration & dosage , Cardiovascular Diseases/blood , Diabetes Complications , Diet , Fatty Acids, Omega-3/administration & dosage , Fibric Acids/administration & dosage , Glomerular Filtration Rate , Humans , Hyperlipidemias/drug therapy , Hypolipidemic Agents/administration & dosage , Nicotinic Acids/administration & dosage , Practice Guidelines as Topic , Primary Prevention , Renal Insufficiency, Chronic/complications , Secondary PreventionSubject(s)
Practice Guidelines as Topic , Sclerotherapy/standards , Varicose Veins/diagnosis , Varicose Veins/therapy , Venous Thrombosis/therapy , Compression Bandages , Humans , Laser Therapy/methods , Laser Therapy/standards , Patient Education as Topic , Prognosis , Risk Assessment , Sclerotherapy/methods , Severity of Illness Index , Treatment Outcome , Ultrasonography, Doppler, Duplex , Varicose Veins/complications , Venous Thrombosis/etiology , Venous Thrombosis/physiopathologyABSTRACT
OBJECTIVE: This paper presents the development of the Warwick Patient Experiences Framework (WaPEF) and describes how it informed the development of the NICE Guidance and Quality Standard, 'Patient experience in adult NHS services: improving the experience of care for people using adult NHS services'. DESIGN: The WaPEF was developed using a thematic qualitative overview that utilized a systematic review approach. Search strategies were developed, inclusion and exclusion criteria developed and data extracted from papers. RESULTS: The WaPEF identifies seven key generic themes that are important to a high-quality patient experience: patient as active participant, responsiveness of services, an individualized approach, lived experience, continuity of care and relationships, communication, information and support. CONCLUSIONS: The WaPEF is the first patient experiences framework with an explicit link to an underpinning patient evidence base, linking themes and sub-themes with specific references. The WaPEF informed the structure and content of the NICE Patient Experiences Guidance. The guidance, published in February 2012, will form a key part of the NHS Outcomes Framework in the UK for the future evaluation of health and social care. The proposed framework could be adapted to other country contexts and settings.