Electronic Patient Reported Outcomes Measures (e-PROMs) in Pediatric Palliative Oncology Care: A Scoping Review.

Objective: Research findings regarding child-centered care and electronic patient reported outcome measures (e-PROMs) within pediatric palliative oncology care reveal an intricate field of study. This study aimed to map innovations in e-PROMs for the pediatric cancer population in palliative care and their impact on symptom management, and communication with healthcare professionals. Methods: A scoping review was designed following the Arksey and O'Malley framework. Literature searches were conducted in CINAHL, Embase, MEDLINE, PsycINFO, SCOPUS, and Web of Science. Inclusion criteria targeted children aged 0-18 years with cancer, receiving palliative and/or end-of-life care, and using e-PROMs. Results: Twelve articles were included: 10 quantitative studies, one qualitative study, and one mixed-method study. A narrative synthesis approach was used to summarize the findings, categorized into three sections: (a) technological innovation of e-PROMs in pediatric palliative oncology care; (b) the impact of e-PROMs on symptom monitoring, management, and children's care; (c) the effects of e-PROMs on communication between children and healthcare professionals in pediatric palliative oncology care. Conclusion: e-PROMs have proven effective in empowering children to express their perspectives and actively engage in their end-of-life care. Due to flexible software and devices designed for various age groups, these tools fit seamlessly into children's daily routines and preferences, including the use of play-oriented applications. They facilitate a deeper understanding, and management of physical and emotional symptoms while ensuring care remains child-centered. This emphasizes the importance of preserving the essence of childhood and addressing the unique needs and experiences of young patients in pediatric palliative oncology care.

[The participation of italian nurses in the spanish civil war (1936-1939): identity, ideals and motivations]. / La partecipazione delle infermiere italianealla guerra civile spagnola (1936-1939):identità, ideali e motivazioni.

. The participation of italian nurses in the spanish civil war (1936-1939): identity, ideals and motivations. INTRODUCTION: The Spanish Civil War broke out in July 1936 as a result of social and political tensions. It saw the nationalists and republicans of the Popular Front clash. The conflict ended in April 1939, when the Franco regime began and lasted until 1975. AIM: The research aims at investigating the training, organization, identity, ideals and motivations of the Italian nurses who participated as volunteers in this conflict. METHODS: The research was divided in phases according to Prosopography as a historical research method. Materials from secondary sources were analyzed at cultural sector libraries. Primary sources were then sought from national and international archives. Finally, experts in contemporary history were consulted. RESULTS: During the Spanish civil war, about 1000 Italian nurses participated in the conflict, giving their contribution in the two distinct factions. The anti-fascist volunteers, often not professionally trained, provided assistance throughout the war front while the nurses of the Italian Red Cross, graduated and supported by a militarized health care facility, created a unique and well-organized sector. CONCLUSIONS: Despite the limits due to the difficulty of finding the sources, the research shows that both bodies were moved by personal and political motivations. The analysis of personal data and the testimonies outlined important differences in education and social extraction, but also interesting similar elements that they shared in their humanitarian ideals.