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Zhongguo Dang Dai Er Ke Za Zhi ; 26(4): 420-424, 2024 Apr 15.
Article in Chinese | MEDLINE | ID: mdl-38660908

ABSTRACT

Spinal muscular atrophy (SMA) is an autosomal recessive neuromuscular disorder. With the emergence of disease-modifying therapies, the prognosis of SMA has significantly improved, drawing increased attention to the importance of home rehabilitation and nursing management. Long-term, standardized home rehabilitation and nursing can delay the progression of SMA, enhance the psychological well-being, and improve the quality of life of both patients and caregivers. This article provides an overview of the goals of home rehabilitation, basic functional training methods, respiratory management, and nutritional management for SMA patients, as well as psychological health issues, emphasizing the significance of obtaining appropriate home rehabilitation and support during the care process.


Subject(s)
Muscular Atrophy, Spinal , Humans , Muscular Atrophy, Spinal/rehabilitation , Muscular Atrophy, Spinal/therapy , Home Care Services , Quality of Life
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