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1.
Prostate Cancer Prostatic Dis ; 25(4): 791-793, 2022 04.
Article in English | MEDLINE | ID: mdl-34853412

ABSTRACT

BACKGROUND: The quality of prostate cancer (PCa) content on Instagram is unknown. METHODS: We examined 62 still-images and 64 video Instagram posts using #prostatecancer on 5/18/20. Results were assessed with validated tools. RESULTS: Most content focused on raising awareness or sharing patient stories (46%); only 9% was created by physicians. 90% of content was low-to-moderate quality and most was understandable, but actionability was 0%. Of the 30% of content including objective information, 40% contained significant misinformation. Most posts had comments offering social support. CONCLUSIONS: Instagram is a source of understandable PCa content and social support; however, information was poorly actionable and had some misinformation.


Subject(s)
Prostatic Neoplasms , Social Media , Male , Humans , Prostatic Neoplasms/diagnosis , Prostatic Neoplasms/therapy
2.
Eur Urol Open Sci ; 25: 1-4, 2021 Mar.
Article in English | MEDLINE | ID: mdl-34337497

ABSTRACT

The COVID-19 pandemic dramatically impacted society and health care on a global scale. To capture the lived experience of patients with prostate cancer and family members/caregivers during the COVID-19 pandemic, we performed a mixed-methods study of posts to two online networks. We compared all 6187 posts to the Inspire Us TOO Prostate Cancer online support and discussion community from December 2019 to April 2020, to 6926 posts from the same interval in 2019, applying a linguistic ethnography method. A similar analysis was performed using data from the Reddit discussion website (246 posts from 2019 and 260 posts from 2020). Manual qualitative analysis was performed for all 207 posts that mentioned COVID, COVID-19, or coronavirus. The computational linguistic ethnography analysis revealed a more collective tone in 2020, with increased concern about death. Our qualitative analysis showed that patients with prostate cancer and caregivers have concern about a variety of COVID-19-related impacts on care, including delays in testing and treatment. There was also substantial concern about the impact of having cancer on COVID-19 risk and access to COVID-19 care. Misinformation was present in 7% of COVID-19-related posts. In conclusion, online networks provide a useful source of real-world data from patients and their families, and analysis of these data highlighted a substantial impact of COVID-19 on prostate cancer care. PATIENT SUMMARY: We performed a study of online posts by patients with prostate cancer and their families on their perspectives about COVID-19. Concerns about the impact of COVID-19 included worry about delays in testing and treatment. Our research also revealed misinformation in COVID-19-related posts.

4.
Eur Urol Focus ; 6(3): 437-439, 2020 05 15.
Article in English | MEDLINE | ID: mdl-31874796

ABSTRACT

Although there is a large amount of user-generated content about urological health issues on social media, much of this content has not been vetted for information accuracy. In this article, we review the literature on the quality and balance of information on urological health conditions on social networks. Across a wide range of benign and malignant urological conditions, studies show a substantial amount of commercial, biased and/or inaccurate information present on popular social networking sites. The healthcare community should take proactive steps to improve the quality of medical information on social networks. PATIENT SUMMARY: In this review, we examined the spread of misinformation about urological health conditions on social media. We found that a significant amount of the circulating information is commercial, biased or misinformative.


Subject(s)
Communication , Deception , Social Media , Urologic Diseases , Humans
5.
Pediatr Clin North Am ; 63(3): 539-62, 2016 06.
Article in English | MEDLINE | ID: mdl-27261549

ABSTRACT

Rates of childhood obesity in the United States remain at historic highs. The pediatric primary care office represents an important yet underused setting to intervene with families. One factor contributing to underuse of the primary care setting is lack of effective available interventions. One evidence-based method to help engage and motivate patients is motivational interviewing, a client-centered and goal-oriented style of counseling used extensively to increase autonomous motivation and modify health behaviors. This article summarizes the methods and results from a large trial implemented in primary care pediatric office and concludes with recommendations for improving the intervention and increasing its dissemination.


Subject(s)
Clinical Trials as Topic , Health Promotion/trends , Motivational Interviewing/trends , Pediatric Obesity/therapy , Psychotherapy, Brief/trends , Adolescent , Body Mass Index , Child , Child Nutritional Physiological Phenomena , Child Welfare/trends , Female , Humans , Male , Pediatric Obesity/complications , Primary Health Care/trends , United States
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