Dental Profile of Brazilian Patients with Rare Skeletal Genetic Disorders: Clinical Features and Associated Factors.

The aim of this study is to compare the dental profiles of Brazilian patients with rare genetic skeletal disorders and normotypical patients. A cross-sectional study was carried out with 210 individuals aged between 2 and 54 years old [105 with rare diseases (Mucopolysaccharidosis/MPS n = 27 and Osteogenesis Imperfecta/OI n = 78) and 105 without rare diseases] and their parents/caregivers. The parents/caregivers answered a questionnaire about individual aspects of their child and the dental profile was identified from questions related to dental history and the presence/absence of dental problems. The patients' oral cavity was also examined by three examiners for dental caries, malocclusion, gingivitis, and dental anomalies. The average age of individuals with a rare disease was 14.1 years (±12.2) and the median was 9.5 years. Participants who had already used the public health system (SUS) dental care services had a 2.24 times higher chance of belonging to the group with a rare disease (OR = 2.24; 95% CI: 1.07-4.89). Patients with rare diseases are 14.86 times more likely to have difficulty receiving dental treatment (OR = 14.86; 95% CI: 5.96-27.03) and 10.38 times more likely to have one or more dental problems (OR = 10.38; 95% CI: 1.95-35.17). Individuals with rare disorders have a greater history of difficulty in accessing dental treatment, using the SUS, and were diagnosed with more dental problems compared to normotypical individuals.

Avaliação de um material educativo sobre higiene bucal e transtorno do espectro autista sob a ótica dos critérios do BR-CDC-CCI / Evaluation of an educational material on oral hygiene and autism spectrum disorder from the perspective of the BR-CDC-CCI criteria

Objetivo: avaliar a clareza e a qualidade das informações de um material educativo sobre higiene bucal voltado para pacientes com Transtorno do Espectro Autista (TEA) sob a ótica de critérios preconizados da versão brasileira do Índice de Comunicação Clara em Saúde (BR-CDC-CCI). Materiais e Métodos: foi realizada uma busca no sítio de busca Google (www.google.com) no dia 4 de março de 2023, utilizando os unitermos "cartilha", "higiene bucal" e "pessoa com deficiência". O critério de inclusão envolveu material educativo direcionado a cuidadores de pessoas com TEA desenvolvido por instituição brasileira. Foram excluídos materiais educativos direcionados para profissionais de saúde ou educação, bem como materiais não disponibilizados online. A primeira página de busca revelou um material educativo em saúde bucal para cuidadores de pessoas com TEA, disponibilizado online. O BR-CDC-CCI foi utilizado de forma independente, por duas cirurgiãs-dentistas, para se avaliar o material a partir dos critérios de "Mensagem principal e chamada para ação", "Linguagem", "Design da informação", "Estado da ciência (conhecimento científico), "Recomendações de comportamento", "Números" e "Riscos". Os escores obtidos pelo consenso das avaliadoras para o material, em uma escala de zero a vinte, foram alcançados em uma reunião. Resultados: o material apresentou 100% de conformidade com os critérios exigidos pelo instrumento como mensagem principal destacada, linguagem simples, design atraente, recomendações comportamentais, evidência científica atual, riscos e abordagem adequada da numeracia, demonstrando clareza e qualidade das informações. Conclusão: o material educativo intitulado "Higiene Bucal Para Pessoas Com TEA", apresentou excelente qualidade de acordo com os critérios utilizados. O mesmo cumpre seu objetivo de ajudar pais e profissionais nos cuidados à higiene bucal das pessoas com TEA.

Objective: to evaluate the clarity and quality of information in one educational material on oral hygiene aimed at patients with Autism Spectrum Disorder (ASD) according to the criteria recommended by the Brazilian version of the Clear Communication in Health Index (BR-CDC-CCI). Materials and Methods: a electronic search was carried out on the Google search site (www.google.com) on March 4th, 2023, using the keywords "cartilha", "higiene bucal" and "pessoa com deficiência". The inclusion criterion involved educational material directed to caregivers of people with ASD developed by a Brazilian institution. Educational materials directed to health or education professionals were excluded, as well as materials not available online. The first search page revealed one oral health educational material for caregivers of people with ASD, available online. The BR-CDC-CCI was used independently by two dentists to assess the material using the criteria of "Main message and call to action", "Language", "Information design", "State of the science (scientific knowledge)", "Behavior recommendations", "Numbers", and "Risks". The scores obtained by the consensus of the evaluators for the material, on a scale of zero to twenty, were reached in a meeting. Results: the material showed 100% compliance with the criteria required by the instrument as highlighted main message, simple language, attractive design, behavioral recommendations, current scientific evidence, risks and appropriate approach to numeracy, demonstrating clarity and quality of information. Conclusion: the educational material entitled "Oral Hygiene for People with Autism" proved to be excellent material and could fulfill its goal of helping parents and professionals in the oral hygiene of people with ASD.

Association between management, human resources, and care provided to patients with special healthcare needs in dental specialty centers in Brazil: A cross-sectional study.

AIMS: This study aimed to identify the association between management and human resource factors with the performance of dental care provided to patients with special health care needs (SHCN) in secondary care in Brazil in the second cycle of the Program for Quality Improvement and Access to Dental Specialty Centers (PMAQ-CEO). METHODS AND RESULTS: This study is a secondary data analysis from the second cycle from PMAQ-CEO, which evaluated 1097 Dental Specialty Centers (DSCs), conducted in 2018. Seventeen independent variables taken from dentists' training, and dental team management characteristics were analyzed to assess their influence on the reported "Performance of care for SHCN patients". An estimated score was generated from their performance on 23 questions related to the physical and human structure and work processes in the oral health care of SHCN patients in the DSCs. Negative binomial regression model with values p ≤ 0.05 were considered significant. Data analysis included residual deviation to the degree of freedom and the chi-square test. The patient care performance score with SHCN increases significantly when the DSC has a manager (RR = 1.019; CI = 1.011-1.026) and goal monitoring and analysis (RR = 1.012; CI = 1.007-1.005). By contrast, the DSCs in which the dentist is a statutory public servant (RR = 0.998; CI = 0.997-1.000) and performs additional unhealthy or hazardous duties (RR = 0.998; CI = 0.996-0.999) are less likely to provide a higher quality care. CONCLUSION: The heterogeneity and low-performance scores for dental care provided to SHCN was identified in Brazilian health services. It was possible to verify that management and human resource factors of the DSCs were associated with the performance of dental care provided to SHCN patients.