ABSTRACT
BACKGROUND: Online consumer health information addresses health problems, self-care, disease prevention, and health care services and is intended for the general public. Using this information, people can improve their knowledge, participation in health decision-making, and health. However, there are no comprehensive instruments to evaluate the value of health information from a consumer perspective. OBJECTIVE: We collaborated with information providers to develop and validate the Information Assessment Method for all (IAM4all) that can be used to collect feedback from information consumers (including patients), and to enable a two-way knowledge translation between information providers and consumers. METHODS: Content validation steps were followed to develop the IAM4all questionnaire. The first version was based on a theoretical framework from information science, a critical literature review and prior work. Then, 16 laypersons were interviewed on their experience with online health information and specifically their impression of the IAM4all questionnaire. Based on the summaries and interpretations of interviews, questionnaire items were revised, added, and excluded, thus creating the second version of the questionnaire. Subsequently, a panel of 12 information specialists and 8 health researchers participated in an online survey to rate each questionnaire item for relevance, clarity, representativeness, and specificity. The result of this expert panel contributed to the third, current, version of the questionnaire. RESULTS: The current version of the IAM4all questionnaire is structured by four levels of outcomes of information seeking/receiving: situational relevance, cognitive impact, information use, and health benefits. Following the interviews and the expert panel survey, 9 questionnaire items were confirmed as relevant, clear, representative, and specific. To improve readability and accessibility for users with a lower level of literacy, 19 items were reworded and all inconsistencies in using a passive or active voice have been solved. One item was removed due to redundancy. The current version of the IAM4all questionnaire contains 28 items. CONCLUSIONS: We developed and content validated the IAM4all in partnership with information providers, information specialists, researchers and representatives of information consumers. This questionnaire can be integrated within electronic knowledge resources to stimulate users' reflection (eg, their intention to use information). We claim that any organization (eg, publishers, community organizations, or patient associations), can evaluate and improve their online consumer health information from a consumers' perspective using this method.
ABSTRACT
From a holistic perspective, health literacy is a requirement for the well-being of entire populations. It moves beyond the focus on individuals to consider the role of organizations and systems. This perspective offers a context for discussing best practices in health literacy, and implications for research and policy development. This paper offers an overview of the best practices that were presented at the Second Canadian Conference on Literacy and Health. It discusses clear writing in some detail because it was emphasized at the conference. It also considers practices that were addressed less emphatically, such as oral communication between patients and health care professionals, training for health care professionals, non-written means of communication (such as video), and building capacity through action-research. The paper critiques some practices. It also notes the lack of research on the links between health literacy and oral understanding, on the impact of verbal and non-written interventions, and on the effectiveness of these practices on the health outcomes of the population. It briefly discusses policy issues and suggests some future directions.
Subject(s)
Educational Status , Health Education , Health Priorities , Public Health , Benchmarking , Canada , Communication , Comprehension , Cultural Diversity , Ethnicity/education , Health Knowledge, Attitudes, Practice , Health Services Research , Humans , Physician-Patient Relations , WritingABSTRACT
OBJECTIVE: To evaluate the efficacy of audiotapes as a health information exchange intervention, specifically looking for use with the "hard-to-reach" population. METHODS: Examined electronic databases and journals for articles that evaluated potential of audiotapes as an educational tool within diverse populations. The systematic review included randomized controlled trials, surveys and exploratory articles. Primary outcome variables analyzed were knowledge and recall, behavioral change, anxiety, self-care, and satisfaction. RESULTS: Audiotapes were used to record consultations and health-related information in specific health situations. No studies were found that targeted the needs of the "hard-to-reach" population. With the exception of positive patient satisfaction, the benefits of audio taped messages remain unclear. PRACTICE IMPLICATIONS: If even the average person is compromised in the context of information exchange, populations with communication barriers are at even greater risk. Research needs to be conducted, aimed at determining whether audiotapes enhance communication between the "hard-to-reach" population and health professionals.