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1.
Gerontol Geriatr Med ; 10: 23337214241253410, 2024.
Article in English | MEDLINE | ID: mdl-38765919

ABSTRACT

Background: Older age is associated with increased prevalence of sensory impairment and use of medicines. Objectives: To explore the daily "medicine journey" of older people with sensory impairment. Methods: The study used ethnographic-informed methods (using audio-, photo- and video-recordings, diary notes and semi-structured interviews with researchers) and involved community-dwelling adults (aged > 65) in Scotland, with visual and/or hearing impairment and using >4 medicines. Data analysis used the constant comparative method. Results: Fourteen older people with sensory impairment participated and used a mean of 11.0 (SD 5.0) medicines (range 5-22). Participants reported difficulties with medicine ordering, obtaining, storage, administration and disposal. They used elaborate strategies to manage their medicines including bespoke storage systems, fixed routines, simple aids, communication, and assistive technologies. Conclusion: Older people with sensory impairment experience substantial burden, challenges and risk with medicines management. Tailored medicine regimens and assistive technologies could provide greater support to older people with sensory impairment.

2.
Disabil Health J ; 16(4): 101500, 2023 10.
Article in English | MEDLINE | ID: mdl-37481354

ABSTRACT

BACKGROUND: Individuals with sensory impairment (visual and/or hearing) experience health inequalities and increased the risk of medication-related iatrogenic disease compared with the general population. Assistive technologies and tailored strategies could support medication management for individuals with sensory impairment to reduce harm and increase the likelihood of therapeutic benefit. OBJECTIVE: This scoping review identified assistive technologies and strategies to support medication management of/for people with hearing and/or visual impairment. METHODS: Standard scoping review methodology was used to identify studies that evaluated technologies or strategies designed to support people with sensory impairment with independent medicine management. Electronic databases were searched (MEDLINE, Embase, CINAHL, ACM, Cochrane) from inception to 18/07/22. Independent duplicate screening, selection, and data extraction were undertaken. RESULTS: Of 1231 publications identified, 18 were included, reporting 17 studies, 16 of which evaluated technologies to assist people with visual impairment and one study to assist people with hearing impairment. The range of technologies and devices included: applications for android phones (n = 6); eyedrop-assistance devices (n = 5); audio-prescription labelling/reading systems (n = 2); touch-to-speech devices (n = 2); continuous glucose monitoring system (n = 1); magnifying technology (n = 1). Ten studies tested early-stage prototypes. Most participants could operate the technologies effectively and deemed them to be useful. CONCLUSIONS: Despite the increasing number of medicine-related assistive technologies, there has been limited empirical evaluation of their effectiveness for supporting individuals with sensory impairment. Prototypes appear to be useful for people with visual or hearing impairment, however wider 'real-life' testing is needed to confirm the benefits of these technologies.


Subject(s)
Disabled Persons , Self-Help Devices , Vision, Low , Humans , Blood Glucose Self-Monitoring , Medication Therapy Management , Blood Glucose , Hearing
3.
Glob Health Sci Pract ; 11(3)2023 Jun 21.
Article in English | MEDLINE | ID: mdl-37348942

ABSTRACT

INTRODUCTION: Kangaroo mother care (KMC) scale-up is a proposed strategy to accelerate reduction in neonatal mortality rates. We aimed to identify determinants of KMC uptake for small babies (less than 2,000 g birth weight) along the health facility to community continuum in Karnataka, India. METHODS: From June 2017 to March 2020, data on characteristics of health facilities and health care workers (HCWs) from 8 purposively selected health facilities were assessed. Knowledge, attitude, and support the mothers received for KMC uptake were assessed once between 4 weeks and 8 weeks unadjusted age of the cohort of babies. Secondary data on KMC were obtained from the district-wide implementation research project database. Bivariate analysis was used to assess the association of characteristics of health facilities, HCWs, mothers, and small babies with the day of KMC initiation and its duration. Log-binomial regression analysis was then computed to identify determinants of KMC. RESULTS: We recruited 227 (91.5%) of 248 babies eligible to participate with a mean unadjusted age of 35.6 days (±7.5) and 1,693.9 g (±263.1 g) birth weight. KMC was initiated for 95.2% of 227 babies at the health facility; initiated at 3 days or earlier of life for 59.6% of 226 babies; and babies continued to receive KMC for more than 4 weeks (30.2 days [±8.4]) at home. Determinants of KMC initiation were HCWs' attitudes, initiation support at the health facility, and place of hospitalization. Determinants of KMC maintenance at the health facility were HCWs' skills and support the mother received at the facility after initiating KMC. Place of hospitalization and HCWs' knowledge determined KMC duration at home 1 week after discharge. CONCLUSION: These findings emphasize the importance of competent HCWs and support for mothers at the health facility for initiation and maintenance of KMC within the health facility and 1 week after discharge.


Subject(s)
Kangaroo-Mother Care Method , Child , Infant, Newborn , Humans , Infant, Low Birth Weight , Birth Weight , India , Health Facilities
4.
Rural Remote Health ; 21(1): 6335, 2021 03.
Article in English | MEDLINE | ID: mdl-33653078

ABSTRACT

INTRODUCTION: Due to global nursing shortages, recruitment and retention of nurses is a major international concern, exacerbated in rural and remote areas. Existing research reveals that individual factors influence healthcare professionals' decision making to work in rural and remote settings. However, existing evidence does not fully consider the multiple influences that may impact nurses' decisions to remain or leave rural and remote areas. This limits the effectiveness of recruitment and retention strategies. The objectives of this study were to explore the influences on nurses' decisions to work in rural and remote healthcare settings, using a systematic review and thematic meta-synthesis of qualitative studies. METHODS: Databases Medline, Journals@OVID Full text, PsycInfo and specialist journals were searched from January 1990 to January 2020. Inclusion criteria were applied to all records by two independent reviewers. The Critical Appraisal Skills Programme checklist for qualitative studies was used for independent quality critique by two reviewers. Thematic synthesis was conducted using a three step process: (1) the results sections of each article were extracted and inductively coded line by line; (2) master themes and subthemes were organised into tables; (3) relationships between the themes were identified and examined to develop an overarching analytical framework. RESULTS: A total of 121 articles were screened and 40 were included for data extraction and thematic synthesis. Thematic analysis identified three interrelated dimensions that influenced nurses' retention and migration decision-making, namely 'person/al', 'profession/al' and 'place' with 18 inter-related domains. The 'person/al' dimension contained five domains: a sense of belonging/connectedness, knowledge of rural culture, blurring of personal and professional lives, anonymity and job satisfaction/stress. The 'profession/al' dimension contained eight domains: expert generalist, advanced nurse practitioner, professional isolation, mentorship, education, autonomy and empowerment, role conflict, and recruitment and retention. The 'place' dimension identified five domains: terrain and weather, fewer resources, geographical isolation, safety and rural culture. The data informed the development of the MacKay's 3P (person/al, profession/al and place) model to capture the complex phenomenon of the influences on nurses' decision making to work in rural and remote settings. CONCLUSION: Multiple dimensions and domains influence nurses' decision making to work in rural and remote settings. MacKay's 3P model provides a theoretical framework to explore the complex interplay between the person/al, profession/al and place-related dimensions of rural nursing. These findings can inform the development of future recruitment and retention initiatives.


Subject(s)
Nurses , Delivery of Health Care , Humans , Job Satisfaction , Qualitative Research
5.
Wien Klin Wochenschr ; 132(5-6): 132-138, 2020 Mar.
Article in English | MEDLINE | ID: mdl-31912286

ABSTRACT

BACKGROUND: The aim of this study was to investigate the association between self-rated eyesight and handgrip strength in a large, representative population of older adults. METHODS: Data were from 7433 older adults (≥52 years) participating in the English Longitudinal Study of Ageing. Linear regression was used to analyze the association between self-rated eyesight and handgrip strength cross-sectionally in 2004/2005, and longitudinally over 4­year follow-up, adjusting for a range of sociodemographic and health-related variables. RESULTS: In cross-sectional and prospective models, poor eyesight was strongly associated with lower handgrip strength after adjustment for age, sex, ethnicity, socioeconomic status and body mass index (BMI, cross-sectional B = -1.39 kg, 95% confidence interval, CI -1.84 to -0.94, p < 0.001, prospective B = -0.68 kg, 95% CI -1.14 to -0.22, p = 0.004). The association was attenuated but remained statistically significant when health behaviours were included in the model (cross-sectional B = -0.93 kg, 95% CI -1.42 to -0.44, p < 0.001, prospective B = -0.50, 95% CI -0.99 to -0.02, p = 0.044). CONCLUSION: Older adults in England with poor self-rated eyesight have lower levels of physical function compared with those with good eyesight. This association can be predominantly explained by differences in age, sex, ethnicity, socioeconomic status, BMI, and health behaviours, as well as chronic conditions, disability and depression.


Subject(s)
Aging/physiology , Hand Strength , Vision, Ocular , Aged , Cross-Sectional Studies , England , Female , Humans , Longitudinal Studies , Male , Prospective Studies
6.
J Res Nurs ; 25(6-7): 509-520, 2020 Sep.
Article in English | MEDLINE | ID: mdl-34394668

ABSTRACT

BACKGROUND: Global nurse shortages present a threat to the sustainability of remote and rural healthcare. Interventions have been developed to support recruitment and retention of nurses that focus on providing pre-nursing experience for school pupils who intend to pursue nursing careers. However, there is a lack of evidence around how pre-nursing experience supports transition into nurse education. AIMS: This study aims to explore the impact of a pre-nursing scholarship for school pupils in remote and rural areas of Scotland on experiences of transition into nurse education. METHODS: This was a qualitative study involving semi-structured telephone and face-to-face interviews with pre-nursing scholarship participants. RESULTS: An authentic pre-nursing experience supported school pupils' transition to nurse education. First, it increased students' self-efficacy, both in their decision to choose nursing as a career and their ability to nurse. Second, it helped students to realise that the opportunity to study closer to home was available to them. Third, it supported students' educational and social integration, helping them feel prepared for university teaching and learning approaches and the social experience of being a student. CONCLUSIONS: Pre-nursing experience can support transition into nurse education and contribute to career pathways that support recruitment and retention of nurses in remote and rural areas.

7.
Age Ageing ; 48(6): 895-902, 2019 11 01.
Article in English | MEDLINE | ID: mdl-31389566

ABSTRACT

BACKGROUND: Most developed countries have increasing numbers of community dwelling older people with both multi-morbidity and sensory impairment that includes visual, hearing or dual impairment. Older people with sensory impairment are more likely to have chronic health conditions and to be in receipt of polypharmacy (>4 medicines). It is important to understand their experience of pharmaceutical care provision to facilitate a safe, appropriate and person centred approach. AIM: this study explored the pharmaceutical care experiences and perspectives of older people with sensory impairment receiving polypharmacy. DESIGN AND SETTING: exploratory qualitative study with semi-structured telephone or face-to-face interviews with community dwelling older adults with sensory impairment receiving polypharmacy in Scotland in 2016. METHODS: in total, 23 interviews were conducted with older people from seven of the 14 Scottish Health Board areas. SUBJECTS: over half the participants (n = 12) had dual sensory impairment, six had visual impairment and five had hearing impairment. RESULTS: three overarching themes were identified reflecting different stages of participants' pharmaceutical care journey: ordering and collection of prescriptions; medicine storage; and administration. At each stage of their journey, participants identified barriers and facilitators associated with their pharmaceutical care. CONCLUSIONS: this is the first comprehensive, in-depth exploration of the pharmaceutical care journey needs of older people with sensory impairment. As the number of community dwelling older people with sensory impairment and polypharmacy increases there is a requirement to identify challenges experienced by this population and offer solutions for safe and effective pharmaceutical care provision.


Subject(s)
Drug Therapy , Hearing Loss/psychology , Polypharmacy , Vision Screening/psychology , Aged , Drug Therapy/psychology , Female , Humans , Independent Living , Interviews as Topic , Male , Scotland
8.
BMJ Open ; 8(8): e023198, 2018 08 05.
Article in English | MEDLINE | ID: mdl-30082364

ABSTRACT

OBJECTIVES: To explore the pharmaceutical care needs of, and service provision to, older people with sensory impairment (visual, hearing and dual impairment) on prescribed polypharmacy (≥4 medicines) in Scotland. DESIGN: Interviews were conducted with older people with sensory impairment and community pharmacy personnel, which informed the content of a subsequent national cross-sectional survey of community pharmacists. SETTING: Scotland, 2015-2016. PARTICIPANTS: Older people with sensory impairment and community pharmacy personnel. RESULTS: Interviews were completed with 23 older people with sensory impairment (dual impairment n=13, visual or hearing impairment n=5 of each) and 30 community pharmacy personnel from eight of 14 Scottish Health Boards. A total of 171 survey responses were received.Older people reported that they did not always disclose their sensory impairment to pharmacy personnel. They also reported that medicines were difficult to identify particularly when their name, shape or colour changed. Pharmacy personnel relied on visible cues such as white canes or guide dogs to identify visual impairment and suggested that hearing loss was less visible and more difficult to identify. Many assistive aids in support of medicine management, such as dosette boxes, seemed inadequate for complex medication regimens. Few community pharmacy personnel reported receiving training in the care of people with sensory impairment. CONCLUSIONS: This is the first comprehensive, multistakeholder, in-depth exploration of the pharmaceutical care needs of older people with sensory impairment. Strategies are needed to enable people with sensory impairment to disclose their impairment to pharmacy personnel (and other healthcare providers). Community pharmacy personnel require training to deliver person-centred pharmaceutical care for older people with sensory impairment particularly regarding communication with individuals in this vulnerable population.


Subject(s)
Community Pharmacy Services/organization & administration , Disabled Persons , Health Services Needs and Demand , Hearing Disorders , Vision Disorders , Aged , Aged, 80 and over , Communication , Cross-Sectional Studies , Disabled Persons/psychology , Disclosure , Female , Hearing Disorders/complications , Humans , Interviews as Topic , Male , Polypharmacy , Prescription Drugs , Reading , Scotland , Surveys and Questionnaires , Vision Disorders/complications
9.
Rural Remote Health ; 18(3): 4548, 2018 08.
Article in English | MEDLINE | ID: mdl-30126288

ABSTRACT

INTRODUCTION: The prevalence of sensory impairment that includes sight and/or hearing impairment is projected to rise worldwide given the strong correlation between sensory impairment, older age and the demographic structure of the global population. Sensory impairment and associated disability is thus a significant global health concern. The prevalence rates for sensory impairment in Scotland are significant: as more people live into older age and as the age distribution in rural areas is markedly different with a higher proportion of older people, the extent of sensory impairment in the rural population will increase proportionally. In rural areas community nurses have a key role in recognising sensory impairment and directing people to sensory services to reduce the debilitating impact of sensory impairment. However, there is limited evidence about the utility of educational interventions to enhance healthcare professionals' knowledge, skills and attitudes about sensory impairment and subsequent impact on referral practices. The aim of this study was to evaluate the impact of a brief educational intervention with community nurses. The educational intervention was a training workshop that included simulation practice, information on assessment and referral pathways. The study was conducted in a remote island community health setting in the Western Isles of Scotland. The study evaluated nurses' perceptions of the training on their knowledge, attitudes and practice. METHODS: Mixed method, longitudinal design was implemented in three phases. Phase 1 was a pre- and post-workshop questionnaire, phase 2 a postal questionnaire 3 months post-workshop and phase 3 a qualitative focus group interview 6 months post-workshop. Kirkpatrick's model of training evaluation provided a framework for data evaluation. RESULTS: A total of 41 community based healthcare professionals who were mostly nurses participated in the study. Participants described increased awareness of the potential for their patients to have a sensory impairment, greater understanding and empathy with patients who experience sensory impairment, more robust patient assessment to identify impairment, and increased likelihood to inform of, and refer to, sensory services. CONCLUSIONS: Community nurses are often well placed to identity disabilities and patients at risk of injury because of sensory impairment. Participation in simulation training can help to develop greater awareness of the impact of that sensory impairment. Knowledge of specialist services will increase the opportunities for referral to services and impact positively on the lives of older people living in rural settings. Provision of accessible education on sensory impairment for health and social care professionals can enhance care delivery to older people.


Subject(s)
Community Health Nursing , Hearing Loss/nursing , Vision Disorders/nursing , Age Factors , Education , Focus Groups , Hearing Loss/diagnosis , Hearing Loss/epidemiology , Humans , Islands/epidemiology , Rural Nursing , Rural Population , Scotland/epidemiology , Surveys and Questionnaires , Vision Disorders/diagnosis , Vision Disorders/epidemiology
10.
Int J Pharm Pract ; 26(5): 380-386, 2018 Oct.
Article in English | MEDLINE | ID: mdl-29920822

ABSTRACT

OBJECTIVES: This scoping review collated evidence of the pharmaceutical care needs of people with sensory loss (SL). METHODS: Electronic databases were searched with no limit on year of publication: Medline (1946); Embase; Cinahl (1979); and Web of Science (1985). Search terms included the following: pharmacy; sight/hearing/dual impairment. Studies were included if they involved people with SL requiring pharmaceutical care and/or pharmacists/pharmacy support staff providing pharmaceutical care for people with SL. All study designs were eligible. This was a scoping review, and as such, the quality of studies was not formally evaluated. KEY FINDINGS: Eleven studies were included. People with SL had lower levels of medication knowledge than their peers without SL. People with SL were identified as being at higher risk of iatrogenic harm than people without SL. Communication was a barrier to the provision of pharmaceutical care for people with hearing loss, with pharmacists relying on the provision of written information. The prevalence of SL increases with age, yet only two studies included older people. No studies involved family or carers of people with SL, people with dual loss or people with SL receiving polypharmacy. CONCLUSIONS: There is a paucity of data regarding the pharmaceutical care needs of people with SL. Unmet pharmaceutical care needs put people with SL at increased risk of harm from their medicines. A detailed understanding of the needs of people with SL is required which will inform future delivery of pharmaceutical care for this vulnerable population.


Subject(s)
Blindness/complications , Communication , Health Services Needs and Demand , Hearing Loss/complications , Pharmaceutical Services/organization & administration , Humans , Pharmacists/organization & administration , Pharmacists/psychology , Professional-Patient Relations , Vision, Low
11.
Br J Nurs ; 26(19): 1057-1064, 2017 Oct 26.
Article in English | MEDLINE | ID: mdl-29068733

ABSTRACT

Sensory impairments are identified as the most common chronic and disabling conditions of later life, impacting significantly on the quality of life and safety of older adults. Hospitals and care environments can present significant challenges to older adults with sensory impairments. Therefore, it is important to raise awareness on sensory and cognitive impairments with all health professionals, and nurses in particular, both to help develop an empathetic awareness of the impact of impairment and to minimise risk of adverse events. This article reports on a pedagogical innovation on the development and use of a simulation resource-primarily on sensory impairments in older adults-with first-year nursing students in an undergraduate nursing programme in a Scottish university. The article also reports on students' reflections on their experience of participating in this simulation.


Subject(s)
Aging/physiology , Education, Nursing/methods , Sensation Disorders/physiopathology , Simulation Training , Students, Nursing/psychology , Clinical Competence , Cognitive Dysfunction/physiopathology , Empathy , Female , Humans , Male
12.
J Cancer Educ ; 31(4): 811-812, 2016 12.
Article in English | MEDLINE | ID: mdl-26007636

ABSTRACT

Patients have a right to privacy in a health care setting. This involves conversational discretion, security of medical records and physical privacy of remaining unnoticed or unidentified when using health care services other than by those who need to know or whom the patient wishes to know. However, the privacy of cancer patients who live in rural areas is more difficult to protect due to the characteristics of rural communities. The purpose of this article is to reflect on concerns relating to the lack of privacy experienced by cancer patients and health care professionals in the rural health care setting. In addition, this article suggests future research directions to provide much needed evidence for educating health care providers and guiding health care policies that can lead to better protection of privacy among cancer patients living in rural communities.


Subject(s)
Confidentiality , Health Personnel , Neoplasms/diagnosis , Privacy , Quality of Health Care , Electronic Health Records , Humans , Information Dissemination , Neoplasms/psychology , Primary Health Care , Rural Population , United Kingdom
13.
Prim Health Care Res Dev ; 17(2): 138-48, 2016 Mar.
Article in English | MEDLINE | ID: mdl-25881482

ABSTRACT

UNLABELLED: Aim The overall aim of this study was to evaluate whether attendance at a Sensory Support Centre for people with a sensory impairment living in the Western Isles of Scotland had an impact on their lives. BACKGROUND: Demographic forecasts show that the prevalence of sensory impairment in the population will increase, as a significant proportion of sensory loss is age related. People with sensory impairments are more likely to experience social exclusion, and are more at risk of injury and physical and mental illness. Therefore, strategies to improve service access and provision for people with sensory impairments are important to reduce the disability associated with sight and/or hearing loss. METHODS: All clients who accessed the service during a six-month period were invited to complete a postal questionnaire about their service experience. Semi-structured individual interviews with clients (n=12) described their experience of living with a sensory impairment and the impact (if any) that access to the Sensory Centre had on their lives. Individual interviews were also conducted with healthcare and social-care professionals (n=7) to ascertain their level of service awareness. Findings Clients who experienced sensory impairment described how the impairment negatively impacted on their activities of living, safety and independence. Following Sensory Centre assessment and support, some clients were able to identify ways in which interventions had reduced their sense of social isolation, impacted positively on self-confidence and sense of self-esteem and safety. Importantly, interventions had supported greater functional independence in their own homes. CONCLUSION: This study provides evidence that access to sensory services are important to people with sensory impairments living in remote areas, and should be considered when planning healthcare services, as they are one way of ameliorating health inequalities in this population group.


Subject(s)
Rural Health Services , Sensation Disorders , Social Support , Adult , Aged , Aged, 80 and over , Female , Humans , Interviews as Topic , Male , Middle Aged , Qualitative Research , Scotland , Self-Help Groups , Surveys and Questionnaires
14.
Qual Health Res ; 26(5): 626-39, 2016 Apr.
Article in English | MEDLINE | ID: mdl-26336896

ABSTRACT

Case study is a long-established research tradition which predates the recent surge in mixed-methods research. Although a myriad of nuanced definitions of case study exist, seminal case study authors agree that the use of multiple data sources typify this research approach. The expansive case study literature demonstrates a lack of clarity and guidance in designing and reporting this approach to research. Informed by two reviews of the current health care literature, we posit that methodological description in case studies principally focuses on description of case study typology, which impedes the construction of methodologically clear and rigorous case studies. We draw from the case study and mixed-methods literature to develop the DESCARTE model as an innovative approach to the design, conduct, and reporting of case studies in health care. We examine how case study fits within the overall enterprise of qualitatively driven mixed-methods research, and the potential strengths of the model are considered.


Subject(s)
Models, Theoretical , Qualitative Research , Research Design , Data Interpretation, Statistical , Humans
15.
Nurse Educ Pract ; 15(6): 492-7, 2015 Nov.
Article in English | MEDLINE | ID: mdl-25846703

ABSTRACT

Mentorship is an essential part of the registered nurse's role, yet few opportunities exist for student nurses to mentor others during pre-registration programmes. This paper reports student nurses' experiences of mentoring school pupils during a pre-nursing scholarship. Focus groups were conducted with fifteen final year student nurses (14 female, 1 male) in two university campuses in Scotland. Discussions were audio recorded and transcribed verbatim, and data analysed thematically. Three interconnected themes emerged: 1) stepping up; 2) stepping back; 3) stepping forward. 'Stepping up' was a process through which student nurses rapidly assumed responsibility for mentoring pupils, facilitated through the attitudes and actions of students' mentors and students' control over pupils' practice experiences. 'Stepping back' encapsulated attitudes and behaviours that enabled student nurses to mentor pupils that involved considerable judgement around how unfolding events in practice could provide learning and development opportunities, and emotional acuity to support pupils through, sometimes challenging, practice situations. 'Stepping forward' described how students' mentoring experience allowed them to appraise and affirm nursing knowledge and skills, and gain greater appreciation of the reality and complexity of mentorship in clinical practice. Peer mentoring may prepare student nurses for future mentoring roles and aid their transition into clinical practice.


Subject(s)
Education, Nursing, Baccalaureate , Mentors , Peer Group , Students, Nursing , Adolescent , Female , Focus Groups , Humans , Learning , Male , Nurse's Role , Nursing Education Research , Qualitative Research , Scotland , Students, Nursing/psychology
16.
Palliat Med ; 29(7): 605-32, 2015 Jul.
Article in English | MEDLINE | ID: mdl-25802323

ABSTRACT

BACKGROUND: Adult palliative care patients and their family members experience significant psychological distress and morbidity. Psychosocial interventions adopting a systemic approach may provide a cogent model to improve the psychosocial care of families in palliative care. To facilitate design of these interventions, the construct of psychological distress in families in palliative care should be empirically derived. AIM: To ascertain how psychological distress is conceptualised in families receiving palliative care. DESIGN: A systematic review of the literature; this was followed by a thematic analysis and narrative synthesis. DATA SOURCES: Using pre-defined search terms, four electronic databases (MEDLINE, CINAHL, PsycINFO and Behavioural Sciences collections) were searched with no date restrictions imposed. Pre-determined inclusion and exclusion criteria were then applied. RESULTS: A total of 32 papers were included in the review. Two findings emerged from data synthesis. First, distress is conceptualised as a multi-dimensional construct but little consensus exists as to how to capture and measure distress. Second, distress in the families within these studies can be conceptualised using a tiered approach, moving from individual non-interactive depictions of distress through gradations of interaction to convey a systemic account of distress within the family system. Thus, distress shifts from a unitary to a systemic construct. CONCLUSION: Currently, there is a paucity of research examining distress informed by family systems theories. This review proposes that distress in families in palliative care can be conceptualised and illustrated within a tiered model of distress. Further research is merited to advance current explanatory frameworks and theoretical models of distress.


Subject(s)
Family/psychology , Palliative Care/psychology , Stress, Psychological/psychology , Adult , Humans , Models, Psychological , Psychotherapy/methods
17.
Nurs Open ; 2(3): 105-118, 2015 Nov.
Article in English | MEDLINE | ID: mdl-27708806

ABSTRACT

AIM: To develop a model of pre-nursing experience from evaluation of a pre-nursing scholarship for school pupils in Scotland. DESIGN: Action research study. METHODS: School pupils (n = 42) completed questionnaire surveys and participated in anecdote circles. Student nurses acting as pupil 'buddies' (n = 33) participated in focus groups. Descriptive quantitative data and thematic analyses of qualitative data were integrated across cohorts and campuses. RESULTS: Ten recommended components of a model of pre-nursing experience were identified: educational experience of: (1) face-to-face on-campus teaching; (2) hands-on clinical skills sessions; and (3) andragogy, practice exposure to (4) nursing language; (5) nurses' emotional labour; (6) patients' stories; (7) pupils socializing with buddies; (8) buddies planning placement activities; and (9) supporting pupils during placements. Academic attainment was not a central component of the model due to pupils' need to (10) prioritize examined work for further/higher education entry.

18.
Nurse Educ Today ; 34(6): 894-8, 2014 Jun.
Article in English | MEDLINE | ID: mdl-24612885

ABSTRACT

BACKGROUND: Providing opportunities for aspirant nurses to obtain pre-nursing experience features prominently in the UK Government's response to The Francis Inquiry. Evidence from the USA suggests that pre-nursing experiences, such as summer camps, have the potential to contribute to effective nurse recruitment, selection and retention strategies. However, few similar pre-nursing experiences exist in the UK, and none have been evaluated. This paper reports the experiences of participation in a pilot pre-nursing scholarship among secondary school pupils in Scotland. OBJECTIVES: To explore pupils' experiences of a pre-nursing scholarship to inform future design and delivery of similar programmes in the UK and internationally. DESIGN: Qualitative focus group study. SETTINGS: Two university campuses in Scotland. PARTICIPANTS: Twenty-two secondary school students (all female, aged 15-18 years). METHODS: Two focus groups were facilitated through the use of 'anecdote circles' to elicit pupils' stories of their scholarship experience. Anecdote circles allowed each pupil to share their story in turn and then collectively assemble, figuratively and physically through interlocking written cards, shared stories of the scholarship. Discussions were audio recorded and transcribed verbatim. Data were analysed thematically. RESULTS: Three stories emerged: 1) sadness; 2) socialisation; and, 3) shifted perceptions. Sad stories were transformative affirming the pupils' desire to become a nurse. Stories of socialisation revealed how demonstrating practical skills affirmed the pupils' ability and suitability to nurse. Perceptions of the life and work of a (student) nurse, their future career, and the lives of older adults, shifted through the scholarship, especially during practice learning experience. CONCLUSIONS: Storytelling revealed how a pre-nursing scholarship helped secondary school pupils to decide whether to pursue a nursing career by providing an opportunity to explore their ability, suitability and desire for nursing. The practice learning experience emerged as an important element of this decision-making process and should be integrated into similar pre-nursing experiences.


Subject(s)
Career Choice , Emotions , Nursing , Socialization , Adolescent , Female , Focus Groups , Humans , Motivation , Qualitative Research , Scotland , Students/psychology
19.
Nurse Educ Pract ; 14(2): 176-82, 2014 Mar.
Article in English | MEDLINE | ID: mdl-24055490

ABSTRACT

The Scottish National Blood Transfusion service have developed an educational programme aimed at ensuring a high standard of care for blood transfusions to minimise risk to patients and healthcare practitioners. This paper investigates whether knowledge and understanding of, and attitudes towards, safe practice declined over time following completion of module 1 of the programme. An online survey was administered to a range of healthcare practitioners who had completed the module. The survey tool tested knowledge and ascertained views on blood transfusion practice and perceptions of the module's importance. Comparisons were made between participants 6-8 weeks, 12-14 months and 22-24 months since module completion. In-depth interviews were conducted with a sub-sample of survey respondents to explore attitudes in more detail. Findings indicate evidence of a slight though statistically significant reduction in the degree of emphasis respondents placed on the importance of understanding aspects of transfusions as time lapsed, but no difference was found in knowledge between those who took the course more recently and those who were up to two years post-module. The study's findings indicate that recognition of the importance of safe practice declines over time and thus also suggests that frequent refresher courses are important to maintain safe practice.


Subject(s)
Attitude of Health Personnel , Blood Transfusion/standards , Clinical Competence , Education, Nursing, Continuing/standards , Health Knowledge, Attitudes, Practice , Blood Transfusion/methods , Blood Transfusion/nursing , Education, Nursing, Continuing/methods , Humans , Interviews as Topic , Models, Educational , Program Evaluation , Qualitative Research , Scotland , Telephone , Time Factors
20.
Br J Community Nurs ; 18(9): 452-4, 456-8, 2013 Sep.
Article in English | MEDLINE | ID: mdl-24005490

ABSTRACT

This article is a report of an action research study carried out with community nurses to help develop case management within their practice. Using action research principles, nurses reviewed and analysed their current practice and developed recommendations for further embedding case management as a means of supporting patients with complex care needs in their own homes. Findings indicate that a number of factors can influence the community nurse's ability to implement case management. These factors include approaches to case finding, availability of resources and interprofessional working. Important considerations for nurses were the influence of the context of care, the geographical location and the health needs of the local patient population, which meant that case management may need to be adapted to meet local circumstances.


Subject(s)
Case Management/organization & administration , Chronic Disease/nursing , Community Health Nursing/organization & administration , Community Participation , Health Services Research/methods , Attitude of Health Personnel , Consensus , Health Plan Implementation , Humans , Interprofessional Relations , United Kingdom
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