ABSTRACT
The American Cancer Society (ACS) defines cancer survivorship as beginning at diagnosis with cancer and continuing for the balance of life and views quality of life (QOL) as a key outcome. In this article, the authors describe the rationale, methodology, and sample characteristics of the 2 ACS Studies of Cancer Survivors (SCS): 1) a longitudinal study identifying and surveying survivors approximately 1 year postdiagnosis that includes plans to resurvey the panel at 2 years, 7 years, and 12 years postdiagnosis to identify predictors of QOL; and 2) a cross-sectional study of QOL among 3 separate cohorts of survivors who were approximately 3 years, 6 years, and 11 years postdiagnosis at the time of data collection. Survivors of prostate, breast, lung, colorectal, bladder, skin, kidney, ovarian, and uterine cancers and of non-Hodgkin lymphoma were sampled from 25 different central cancer registries, with African-American and Hispanic survivors over sampled. Survivors completed either mail or telephone surveys that described their physical, psychological, social, and spiritual functioning. The overall recruitment rate was 34.0%; 15411 participants completed surveys, of whom 40.1% had a high school education or less and 19.4% were racial/ethnic minorities. The SCS surveys provide a large diagnostically, geographically, and demographically diverse database on cancer survivorship that was designed to overcome some of the limitations of past research. Future reports will compare QOL of survivors at different well-defined times postdiagnosis, investigate the issues of understudied populations and diagnostic groups, and describe survivor QOL at state levels. Insights valuable to those considering registry-based studies are offered on issues of ascertainment, sampling, and recruitment.
Subject(s)
Neoplasms/mortality , Survivors , Adolescent , Adult , American Cancer Society , Cross-Sectional Studies , Female , Humans , Longitudinal Studies , Male , Middle Aged , Minority Groups , Patient Selection , Quality of Life , Racial Groups , Registries , Surveys and Questionnaires , United States/epidemiologySubject(s)
American Cancer Society , Neoplasms , Research/organization & administration , Survivors , Adaptation, Psychological , Attitude to Health , Caregivers/psychology , Cost of Illness , Cross-Sectional Studies , Family/psychology , Female , Health Services Needs and Demand , Health Status , Humans , Longitudinal Studies , Male , Neoplasms/complications , Neoplasms/psychology , Neoplasms/therapy , Registries , Sickness Impact Profile , Survivors/psychology , Survivors/statistics & numerical data , United StatesSubject(s)
Health Status , Neoplasms , Quality of Life , Survivors , Adult , American Cancer Society , Caregivers/psychology , Female , Humans , Longitudinal Studies , Male , Middle Aged , Research Design , United StatesABSTRACT
The growth of research in behavioral, psychosocial, and policy aspects of cancer is quite evident through examination of the literature. Although it is necessary to recognize the importance of past achievements in these areas, it is equally essential to identify the current interests and future areas that will form a new research agenda. The present study is the first attempt to shed light on these issues by surveying a group of behavioral, psychosocial and policy researchers from 1997 (n=714) and 2002 (n=1102). Questions were posed that dealt with current and future research interests. Results indicate a stable core of research interests in the field, as well as changing trends in interest that may affect the direction of future research. Prevention and detection, psychosocial issues, and quality of life were clearly the most recognized research interests. Emerging areas of research interest seem to be special populations and health care delivery. Examination of these findings may help with research planning, funding allocation, management, beginning researcher education, and practice.
Subject(s)
Behavioral Medicine/trends , Neoplasms/psychology , Research/trends , Data Collection , Humans , Public Policy , Research Personnel , Surveys and QuestionnairesABSTRACT
The present study surveyed 930 high school students regarding self-reported alcohol use, their perceptions of parents and peers, and the negative consequences of drinking. Two-fifths of males and one-fifth of females reported frequent problem (binge) drinking. Problem drinkers reported more negative consequences associated with drinking. In addition, problem drinkers reported greater susceptibility to peer pressure, perceived their peers as drinking more, and reported less parental monitoring and more use of alcohol by parents. The results demonstrate the importance of both parent and peer variables in adolescent substance use and highlight the negative consequences of drinking reported by high school students.