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1.
Int J Transgend Health ; 25(2): 167-186, 2024.
Article in English | MEDLINE | ID: mdl-38681496

ABSTRACT

Background: Incarcerated trans women experience significant victimization, mistreatment, barriers to gender-affirming care, and human rights violations, conferring high risk for trauma, psychological distress, self-harm, and suicide. Across the globe, most carceral settings are segregated by sex assigned at birth and governed by housing policies that restrict gender expression-elevating 'safety and security' above the housing preferences of incarcerated people. Aim/methods: Drawing upon the lived experiences of 24 formerly incarcerated trans women in Australia and the United States and employing Elizabeth Freeman's notion of chrononormativity, Rae Rosenberg's concept of heteronormative time, and Kadji Amin's use of queer temporality, this paper explores trans women's carceral housing preferences and contextual experiences, including how housing preferences challenge governing chrononormative and reformist carceral housing systems. Findings: Participants freely discussed their perspectives regarding housing options which through thematic analysis generated four options for housing: 1) men's carceral settings; 2) women's carceral settings; 3) trans- and gay-specific housing blocks; and 4) being housed in protective custody or other settings. There appeared to be a relationship between the number of times the person had been incarcerated, the duration of their incarceration, and where they preferred to be housed. Conclusions: This analysis contributes to richer understandings regarding trans women's experiences while incarcerated. This paper also informs the complexities and nuances surrounding housing preferences from the perspectives of trans women themselves and considers possible opportunities to enhance human rights, health and wellbeing when engaging in transformative approaches to incarceration.

2.
J Geriatr Phys Ther ; 46(2): 139-148, 2023.
Article in English | MEDLINE | ID: mdl-34292258

ABSTRACT

BACKGROUND AND PURPOSE: With an aging population, falls have become an increasing public health concern. While face-to-face exercise programs have demonstrated efficacy in reducing falls, their effectiveness is hampered by low participation and adherence. Digital technologies are a novel and potentially effective method for delivering tailored fall prevention exercise programs to older adults. In addition, they may increase the reach, uptake, and sustainability of fall prevention programs. Therefore, understanding older adults' experiences of using technology-driven methods is essential. This study explored the user experience of StandingTall , a home-based fall prevention program delivered through a tablet computer. METHODS: Fifty participants were recruited using purposive sampling, from a larger randomized controlled trial. Participants were selected to ensure maximum variability with respect to age, gender, experience with technology, and adherence to the program. Participants undertook a one-on-one structured interview. We followed an iterative approach to develop themes. RESULTS AND DISCUSSION: Eight themes were identified. These fall under 2 categories: user experience and program design. Participants found StandingTall enjoyable, and while its flexible delivery facilitated exercise, some participants found the technology challenging. Some participants expressed frustration with technological literacy, but most demonstrated an ability to overcome these challenges, and learn a new skill. Older adults who engaged in a technology-driven fall prevention program found it enjoyable, with the flexibility provided by the online delivery central to this experience. While the overall experience was positive, participants expressed mixed feelings about key design features. The embedded behavior change strategies were not considered motivating by most participants. Furthermore, some older adults associated the illustrated characters with gender-based stereotypes and negative views of aging, which can impact on motivation and preventive behavior. CONCLUSION: This study found digital technologies are an effective and enjoyable method for delivering a fall prevention program. This study highlights that older adults are interested in learning how to engage successfully with novel technologies.


Subject(s)
Exercise Therapy , Exercise , Humans , Aged , Exercise Therapy/methods , Qualitative Research , Technology
3.
PLoS One ; 11(8): e0161382, 2016.
Article in English | MEDLINE | ID: mdl-27537395

ABSTRACT

OBJECTIVE: To evaluate a holistic multidisciplinary outpatient model of care on hospital readmission, length of stay and mortality in older patients with multimorbidity following discharge from hospital. DESIGN AND PARTICIPANTS: A pilot case-control study between March 2006 and June 2009 of patients referred on discharge to a multidisciplinary, integrated outpatient model of care that includes outpatient follow-up, timely GP communication and dial-in service compared with usual care following discharge, within a metropolitan, tertiary referral, public teaching hospital. Controls were matched in a 4:1 ratio with cases for age, gender, index admission diagnosis and length of stay. MAIN OUTCOME MEASURES: Non-elective readmission rates, total readmission length of stay and overall survival. RESULTS: A total of 252 cases and 1008 control patients were included in the study. Despite the patients referred to the multidisciplinary model of care had slightly more comorbid conditions, significantly higher total length of hospital stay in the previous 12 months and increased prevalence of diabetes and heart failure by comparison to those who received usual care, they had significantly improved survival (adjusted hazard ratio 0.70 95% CI 0.51-0.96, p = 0.029) and no excess in the number of hospitalisations observed. CONCLUSION: Following discharge from hospital, holistic multidisciplinary outpatient management is associated with improved survival in older patients with multimorbidity. The findings of this study warrant further examination in randomised and cost-effectiveness trials.


Subject(s)
Ambulatory Care/methods , Delivery of Health Care, Integrated/methods , Aged , Aged, 80 and over , Ambulatory Care/statistics & numerical data , Case-Control Studies , Comorbidity , Delivery of Health Care, Integrated/statistics & numerical data , Female , Humans , Interdisciplinary Communication , Length of Stay/statistics & numerical data , Male , Mortality , Patient Readmission/statistics & numerical data , Retrospective Studies , Treatment Outcome
4.
BMJ Open ; 6(3): e009781, 2016 Mar 10.
Article in English | MEDLINE | ID: mdl-26966056

ABSTRACT

OBJECTIVES: Polypharmacy and multimorbidity are common in long-term care facilities (LTCFs). Reducing polypharmacy may reduce adverse events and maintain quality of life. Deprescribing refers to reducing medications after consideration of therapeutic goals, benefits and risks, and medical ethics. The objective was to use nominal group technique (NGT) to generate then rank factors that general medical practitioners (GPs), nurses, pharmacists and residents or their representatives perceive are most important when deciding whether or not to deprescribe medications. DESIGN: Qualitative research using NGT. SETTING: Participants were invited if they worked with, or resided in LTCFs across metropolitan and regional South Australia. PARTICIPANTS: 11 residents/representatives, 19 GPs, 12 nurses and 14 pharmacists participated across six separate groups. METHODS: Individual groups of GPs, nurses, pharmacists and residents/representatives were convened. Using NGT each group ranked factors perceived to be most important when deciding whether or not to deprescribe. Then, using NGT, the prioritised factors from individual groups were discussed and prioritised by a multidisciplinary metropolitan and regional group comprised of resident representatives, GPs, nurses and pharmacists. RESULTS: No two groups had the same priorities. GPs ranked 'evidence for deprescribing' and 'communication with family/resident' as most important factors. Nurses ranked 'GP receptivity to deprescribing' and 'nurses ability to advocate for residents' as most important. Pharmacists ranked 'clinical appropriateness of therapy' and 'identifying residents' goals of care' as most important. Residents ranked 'wellbeing of the resident' and 'continuity of nursing staff' as most important. The multidisciplinary groups ranked 'adequacy of medical and medication history' and 'identifying residents' goals of care' as most important. CONCLUSIONS: While each group prioritised different factors, common and contrasting factors emerged. Future deprescribing interventions need to consider the similarities and differences within the range of factors prioritised by residents and health professionals.


Subject(s)
Attitude of Health Personnel , Deprescriptions , Health Personnel/statistics & numerical data , Long-Term Care/standards , Residence Characteristics , Skilled Nursing Facilities/organization & administration , Adult , Aged , Aged, 80 and over , Female , Humans , Male , Middle Aged , Qualitative Research , Quality of Life , South Australia , Young Adult
5.
Women Birth ; 28(3): 252-8, 2015 Sep.
Article in English | MEDLINE | ID: mdl-25956972

ABSTRACT

PROBLEM: Parental stress in the neonatal intensive care unit (NICU) has been reported, however identifying modifiable stress factors and looking for demographic parent factors related to stress has not been well researched. AIM: This study aims to identify the most stressful elements for parents in the neonatal intensive care unit. METHODS: Parents of babies in an Australian neonatal intensive care unit (N=73) completed both the Parent Stress Scale - Neonatal Intensive Care Unit and a survey of parent and baby demographic and support experience variables (Parent Survey) over an 18-month period. FINDINGS: Older parental age, very premature birth and twin birth were significantly associated with a higher Parent Stress Scale - Neonatal Intensive Care Unit score. Having a high score in the Relationship and Parental Role scale was strongly associated with attendance at the parent support group. CONCLUSION: These results indicate the variables associated with stress and this knowledge can be used by teams within hospitals to provide better supportive emotional care for parents.


Subject(s)
Critical Illness/psychology , Parent-Child Relations , Parents/psychology , Premature Birth/psychology , Stress, Psychological/diagnosis , Adaptation, Psychological , Adult , Australia , Female , Humans , Infant , Infant, Newborn , Intensive Care Units, Neonatal , Male , Parenting/psychology , Pregnancy , Surveys and Questionnaires
6.
BMC Fam Pract ; 15: 124, 2014 Jun 19.
Article in English | MEDLINE | ID: mdl-24947875

ABSTRACT

BACKGROUND: We explored experiences of depression diagnosis and treatment amongst multimorbid patients referred to a metropolitan multidisciplinary outpatient clinic to identify commonalities across this patient group. METHODS: Patients with two or more chronic conditions and a diagnosis of depression participated in semi-structured interviews that were digitally recorded and transcribed. Thematic analysis was performed on the transcriptions. RESULTS: Multimorbid patients attributed depressive symptoms to the loss of 'normal' roles and functionality and struggled to reconcile the depression diagnosis with their sense of identity. Beliefs about themselves and depression affected their receptivity to diagnosis and intervention strategies. These included prescribed interventions, such as psychotherapy or pharmacotherapy, and patient-developed strategies. CONCLUSIONS: Functional and social role losses present a clear context in which GPs should raise the subject of mood, with the situational attribution of depression suggesting that psychotherapy, which is rarely offered, should be prioritised in these circumstances.


Subject(s)
Chronic Disease/psychology , Depression/psychology , Depressive Disorder/psychology , Adaptation, Psychological , Aged , Aged, 80 and over , Antidepressive Agents/therapeutic use , Comorbidity , Depression/diagnosis , Depression/therapy , Depressive Disorder/diagnosis , Depressive Disorder/therapy , Female , Humans , Male , Middle Aged , Psychotherapy , Qualitative Research , Self Efficacy , Social Stigma
7.
Twin Res Hum Genet ; 15(3): 419-41, 2012 Jun.
Article in English | MEDLINE | ID: mdl-22856376

ABSTRACT

Despite the significant advancements being made in the neurogenetics for mental health, the identification and validation of potential endophenotype markers of risk and resilience remain to be confirmed. The TWIN-E study (The Twin study in Wellbeing using Integrative Neuroscience of Emotion) aims to validate endophenotype markers of mental health across cognitive, brain, and autonomic measures by testing the heritability, clinical plausibility, and reliability of each of these measures in a large adult twin cohort. The specific gene and environmental mechanisms that moderate prospective links between endophenotype-phenotype markers and the final outcome of wellbeing will also be identified. TWIN-E is a national prospective study with three phases: I) baseline testing on a battery of online questionnaires and cognitive tasks, and EEG, MRI, and autonomic testing; II) 12-month follow-up testing on the online assessments; and III) randomized controlled trial of brain training. Minimum target numbers include 1,500 male/female twins (18-65 years) for the online assessments (Phase I and II), 300 twins for the EEG testing component, and 244 twins for the MRI testing component. For Phase III, each twin out of the pair will be randomized to either the treatment or waitlist control group to test the effects of brain training on mental health over a 30-day period, and to confirm the gene-environment and endophenotype contributions to treatment response. Preliminary heritability results are provided for the first 50% of the MRI subgroup (n = 142) for the grey matter volume, thickness, and surface area measures, and white matter diffuse tensor imaging fractional anisotropy.


Subject(s)
Brain/physiology , Diffusion Tensor Imaging , Emotions , Magnetic Resonance Imaging , Mental Health , Twins/genetics , Adolescent , Adult , Aged , Brain/anatomy & histology , Brain Mapping , Electroencephalography , Evoked Potentials/genetics , Female , Humans , Male , Middle Aged , Phenotype , Quantitative Trait, Heritable , Research Design , Young Adult
8.
Aging Ment Health ; 16(8): 1058-64, 2012.
Article in English | MEDLINE | ID: mdl-22838401

ABSTRACT

Primary care providers often struggle to identify depression, with patients with multiple chronic conditions presenting additional unique challenges. Whilst the diagnosis and treatment of depression has been explored in a range of contexts in the literature, there is a paucity of information on the impact of multimorbidity on general practitioners (GPs) attempting to diagnose and manage depression in primary care. Eight GPs with multiple referrals to a multidisciplinary clinic engaged in a semi-structured interview to discuss the impact of multimorbidity on the diagnosis and detection of depression. Interviews were transcribed and thematic analysis was used to identify key themes. Grounded theory was generated from data relating to the role of multimorbidity. Participants described multimorbidity as obscuring symptom causation, but also creating time to investigate causation and negotiate the depression diagnosis with the patient, and generating relationship through frequent presentations. Knowledge of the patient impacted on intervention recommendations, and trust facilitated patient receptivity. Treatment was affected by a range of variables, and included medical and social interventions. GP process for multimorbid patients is similar to that of patients with chronic illness. Further research is needed to know whether different processes or diagnostic categories are warranted where multiple chronic illnesses are present. Also, GPs recommend social interventions where medical interventions are perceived as inappropriate. Research into the efficacy of social interventions in multimorbid patients is needed.


Subject(s)
Depression/diagnosis , Depression/therapy , General Practitioners , Practice Patterns, Physicians' , Primary Health Care/methods , Aged , Antidepressive Agents/therapeutic use , Attitude of Health Personnel , Australia/epidemiology , Chronic Disease/epidemiology , Comorbidity , Counseling , Depression/epidemiology , Depression/psychology , Female , Humans , Interviews as Topic , Male , Middle Aged , Models, Theoretical , Physician-Patient Relations , Qualitative Research
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