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1.
JMIR Ment Health ; 11: e48147, 2024 Feb 28.
Article in English | MEDLINE | ID: mdl-38416547

ABSTRACT

BACKGROUND: Responsible digital care refers to any intentional systematic effort designed to increase the likelihood of a digital care technology developed through ethical decision-making, being socially responsible and aligned with the values and well-being of those impacted by it. OBJECTIVE: We aimed to present examples of action opportunities for (1) designing "technology"; (2) shaping the "context" of use; and (3) adjusting the behavior of "users" to guide responsible digital care for people with intellectual disabilities. METHODS: Three cases were considered: (1) design of a web application to support the preparation of meals for groups of people with intellectual disabilities, (2) implementation of an app to help people with intellectual disabilities regulate their stress independently, and (3) implementation of a social robot to stimulate interaction and physical activity among people with intellectual disabilities. Overall, 26 stakeholders participated in 3 multistakeholder workshops (case 1: 10/26, 38%; case 2: 10/26, 38%; case 3: 6/26, 23%) based on the "guidance ethics approach." We identified stakeholders' values based on bottom-up exploration of experienced and expected effects of using the technology, and we formulated action opportunities for these values in the specific context of use. Qualitative data were analyzed thematically. RESULTS: Overall, 232 effects, 33 values, and 156 action opportunities were collected. General and case-specific themes were identified. Important stakeholder values included quality of care, autonomy, efficiency, health, enjoyment, reliability, and privacy. Both positive and negative effects could underlie stakeholders' values and influence the development of action opportunities. Action opportunities comprised the following: (1) technology: development of the technology (eg, user experience and customization), technology input (eg, recipes for meals, intervention options for reducing stress, and activities), and technology output (eg, storage and use of data); (2) context: guidelines, training and support, policy or agreements, and adjusting the physical environment in which the technology is used; and (3) users: integrating the technology into daily care practice, by diminishing (eg, "letting go" to increase the autonomy of people with intellectual disabilities), retaining (eg, face-to-face contact), and adding (eg, evaluation moments) certain behaviors of care professionals. CONCLUSIONS: This is the first study to provide insight into responsible digital care for people with intellectual disabilities by means of bottom-up exploration of action opportunities to take account of stakeholders' values in designing technology, shaping the context of use, and adjusting the behavior of users. Although part of the findings may be generalized, case-specific insights and a complementary top-down approach (eg, predefined ethical frameworks) are essential. The findings represent a part of an ethical discourse that requires follow-up to meet the dynamism of stakeholders' values and further develop and implement action opportunities to achieve socially desirable, ethically acceptable, and sustainable digital care that improves the lives of people with intellectual disabilities.


Subject(s)
Intellectual Disability , Robotics , Humans , Intellectual Disability/therapy , Reproducibility of Results , Social Interaction , Qualitative Research
2.
J Appl Res Intellect Disabil ; 36(6): 1276-1287, 2023 Nov.
Article in English | MEDLINE | ID: mdl-37489295

ABSTRACT

BACKGROUND: Gaining insight into sleep-wake patterns of persons with intellectual disabilities is commonly done using wrist actigraphy. For some people, contactless alternatives are needed. This study compares a contactless bed sensor with wrist actigraphy to monitor sleep-wake patterns of people with moderate to profound intellectual disabilities. METHOD: Data were collected with EMFIT QS (activity and presence) and MotionWatch 8/Actiwatch 2 (activity, ambient light, and event marker/sleep diary) for 14 nights in 13 adults with moderate-profound intellectual disabilities residing in intramural care. RESULTS: In a care-as-usual setting, EMFIT QS and actigraphy assessment show little agreement on sleep-wake variables. CONCLUSION: Currently, EMFIT QS should not be considered an alternative to wrist actigraphy for sleep-wake monitoring. Further research is needed into assessing sleep-wake variables using (contactless) technological devices and how the data should be interpreted within the care context to achieve reliable and valid information on sleep-wake patterns of people with intellectual disabilities.

3.
Disabil Rehabil Assist Technol ; : 1-10, 2023 Jan 10.
Article in English | MEDLINE | ID: mdl-36628433

ABSTRACT

PURPOSE: People with physical disabilities often require lifetime support and experience challenges to maintain or (re)define their level of independence. Assistive living technologies (ALT) are promising to increase independent living and execution of activities of daily living (ADL). This paper provides a systematic literature review that aims to analyse the present state of the literature about the impact of ALT on perceived independence of people with a physical disability receiving long-term care. MATERIALS AND METHODS: Databases Embase, Medline, and Web of Science were searched for eligible studies from 2010 or later. RESULTS: Nine studies were included, of which seven qualitative, one quantitative, and one mixed methods. Quality was generally high. ALT enabled participants to execute ADL. We found six themes for the impact of ALT on perceived independence: feeling enabled, choice and control, feeling secure, time alone, feeling less needy, and participation. CONCLUSIONS: ALT appears to impact perceived independence in many ways, exceeding merely the executional aspect of independence. Existing research is limited and quite one-sided. More large-scale studies are needed in order to inform care organisations how to implement ALT, especially considering societal developments and challenges impacting long-term care.IMPLICATIONS FOR REHABILITATIONPeople with a physical disability receiving long-term care experience that assistive living technology impacted their independence.Their independence is increased by making them feel enabled, secure, and less needy and increasing their choice and control, time alone, and participation.Most studies focused on the use of environmental control systems by people with spinal cord injury.More research is needed to evaluate long-term effects of diverse assistive living technologies used by people with a physical disability receiving long-term care.

4.
JMIR Rehabil Assist Technol ; 9(4): e41313, 2022 Nov 03.
Article in English | MEDLINE | ID: mdl-36326800

ABSTRACT

BACKGROUND: Executive functions are essential for independently navigating nearly all of our daily activities. Executive dysfunction often occurs as a result of a neurodevelopmental disorder. Persons with executive dysfunction experience challenges regarding independent execution of daily tasks. Social robots might support persons with executive dysfunction to execute daily tasks and promote their feeling of independence. OBJECTIVE: This study aimed to study the impact of interacting with social robot Tessa on goal attainment in the execution of daily tasks and perceived independence of persons with executive dysfunction. METHODS: In this multiple-case study, 18 participant-caregiver couples were followed up while using Tessa in the home environment for 3 months. Goal attainment on independently performing a self-determined goal was measured by the Goal Attainment Scale, and participant-caregiver couples were interviewed about their experience with their interaction with Tessa and how they perceived Tessa's impact on their independence. RESULTS: In total, 11 (61%) participants reached their goal after 6 weeks and maintained their goal after 3 months. During the study period, 2 participant-caregiver couples withdrew because of mismatch with Tessa. Participants set goals in the following domains: execution of household tasks; intake of food, water, or medication; being ready in time for an appointment; going to bed or getting out of bed on time; personal care; and exercise. Participants perceived that Tessa increased the feeling of independence by generating more structure, stimulation, and self-direction. Participant-caregiver couples reported that the auditive information provided by Tessa was more effective in coping with executive dysfunction compared to their initial approaches using visual information, and the use of Tessa had a positive impact on their relationship. CONCLUSIONS: This study paid ample time and attention to the implementation of a social robot in daily care practice. The encouraging findings support the use of social robot Tessa for the execution of daily tasks and increasing independence of persons with executive dysfunction in disability care.

5.
BMC Prim Care ; 23(1): 205, 2022 08 11.
Article in English | MEDLINE | ID: mdl-35948866

ABSTRACT

BACKGROUND: Depression is a major public health concern, which is most pronounced in population segments with a lower social-economic status (SES). E-health interventions for depressive complaints are proven to be effective, but their reach needs to be improved, especially among people with a lower socioeconomic status (SES). Implementing e-health interventions in the primary care setting with SES-sensitive guidance from General Practice nurses (GP nurses) may be a useful strategy to increase the reach of e-health in lower SES groups. We implemented an evidence-based online intervention that targets depressive complaints in primary care. METHODS: A pragmatic cluster-randomised trial was conducted in two parallel groups where a SES sensitive (SES-sens) implementation strategy with additional face-to-face guidance by GP nurses was compared to an all-SES implementation strategy. The primary outcome was the percentage of lower SES participants in either condition. Participation was defined as completing at least 1 face-to-face session and 2 online exercises. Participation rates were evaluated using logistic mixed modelling. RESULTS: In both conditions, the participation rates of lower SES participants were quite high, but were notably lower in the SES-sens implementation condition (44%) than in the all-SES implementation condition (58%). This unexpected outcome remained statistically significant even after adjusting for potential confounders between the conditions (Odds Ratio 0.43, 95%-CI 0.22 to 0.81). Less guidance was provided by the GP nurses in the SES-sens group, contrary to the implementation instructions. CONCLUSIONS: From a public health point of view, it is good news that a substantial number of primary care patients with a lower SES level used the implemented e-health intervention. It is also positive that an all-SES implementation strategy performed well, and even outperformed a SES-sensitive strategy. However, this was an unexpected finding, warranting further research into tailoring implementation strategies of e-health interventions towards specific target groups in the primary care setting. TRIAL REGISTRATION: Netherlands Trial Register, identifier: NL6595 , registered on 12 November 2017.


Subject(s)
Internet-Based Intervention , Exercise , Humans , Netherlands/epidemiology , Primary Health Care , Social Class
6.
TSG ; 100(3): 122-126, 2022.
Article in Dutch | MEDLINE | ID: mdl-35669981

ABSTRACT

Covid-19 accelerated the implementation of digital care in three organisations in disability care. From 2021, they exchanged experiences in the program 'Innovatie-impuls Gehandicaptenzorg'. We examined how professionals, clients and family experienced digital care. The interviews showed that they are happy with the possibilities that digital care offer, but also that they mainly see it as back-up. For sustainable implementation of digital care, a vision is needed on the future of care and the role of digital care therein-these results are helpful for that.

7.
Trials ; 21(1): 64, 2020 Jan 10.
Article in English | MEDLINE | ID: mdl-31924275

ABSTRACT

BACKGROUND: Depression is a major public health concern. E-health interventions for preventing and reducing depressive complaints have proven to be effective, and have the potential to make (mental) health care more accessible and efficient. However, the reach of these interventions needs to be improved, especially among people with a lower socioeconomic status (SES). Stimulating and supporting implementation of e-health in primary care, and offering guidance from general practice nurses (GP nurses) may be important strategies to achieve this. METHODS/DESIGN: The online 'Complaint Directed Mini-Interventions' (CDMIs) for stress, sleep and worry complaints, which were found to be (cost-)effective in a self-guided format, will be implemented in the primary care setting using a blended care format (i.e. combining e-health with face-to-face sessions) with minimal guidance provided by the GP nurse. The main aim is to evaluate whether a SES-sensitive implementation strategy improves the participation rate (i.e. reach) of lower-SES patients in the blended online CDMIs as compared to a regular implementation strategy in a cluster randomised controlled trial. Randomisation will occur at the level of the GP nurse, and 228 patients will be included in the study. The primary outcome is the participation rate (completing at least one face-to-face session and two online exercises) of the lower-SES target group. It is hypothesised that this percentage will be higher in the SES-sensitive group as compared to the regular group. Secondary objectives are to evaluate the implementation process, to monitor and evaluate psychological complaints (depression, sleep, stress, worry and anxiety) and well-being over time. Patient assessments will take place at baseline, 3 and 12 months post baseline. DISCUSSION: This study should contribute to our knowledge of reaching the lower-SES groups with a brief and complaint-specific blended approach for depressive complaints in primary care. It should also further our knowledge on successful strategies to implement depression prevention in primary care. TRIAL REGISTRATION: Netherlands Trial Register, ID: NL6595. Registered on 12 November 2017.


Subject(s)
Depressive Disorder/therapy , Patient Participation , Primary Health Care , Social Class , Telemedicine , Depressive Disorder/diagnosis , Depressive Disorder/psychology , Humans , Mental Health , Netherlands , Pragmatic Clinical Trials as Topic , Time Factors , Treatment Outcome
8.
Harm Reduct J ; 16(1): 45, 2019 07 15.
Article in English | MEDLINE | ID: mdl-31307470

ABSTRACT

BACKGROUND: People who inject drugs (PWID) are disproportionally affected by the hepatitis C virus (HCV) infection. In the Netherlands, active HCV transmission in PWID has practically been halted but uptake of HCV testing and linkage to care remains insufficient in this risk group. A national HCV in Addiction Care (HAC) quality improvement project based on the Breakthrough methodology (i.e. Breakthrough project) aimed to secure proper linkage to care in PWID by introducing local HCV healthcare screening and treatment pathways in addiction care units. AIM: To qualitatively appraise the local HCV healthcare pathways; to evaluate the yield in terms of number of PWID screened, diagnosed, referred, and treated; and to identify best practices and barriers to successful participation in the HAC Breakthrough project. METHODS: Between 2013 and 2016, 12 units of addiction care centers throughout the Netherlands participated in two series of a HAC Breakthrough project. Local multidisciplinary teams created HCV healthcare pathways. Quality assessment of HCV healthcare pathways was performed retrospectively and data on screening results was collected. In-depth interviews were conducted to elucidate best practices and essential elements for successful participation. RESULTS: In total, six HCV healthcare pathways were submitted by ten teams of which 83% was judged to be of "good" or "sufficient" quality. Uptake of HCV-antibody screening was 40% (N = 487/1219) and uptake of HCV-RNA in HCV-antibody positives was 59% (N = 107/181). The project resulted in 76 (6%) newly detected cases of persistent HCV viremia. Of all HCV-RNA positives, 92% was referred to a hepatitis treatment center. In 39% (N = 27/70) of those referred, treatment initiation was documented and 82% (N = 22/27) achieved a sustained virological response. Teams identified several best practices including motivational counseling training, oral swabs for anti-HCV testing, facilitating complementary HCV RNA testing, and supervised hospital visits. CONCLUSION: The HAC Breakthrough project has brought about good quality HCV healthcare pathways in the majority of participating addiction care centers and has successfully linked PWID with ongoing HCV viremia to care. Uptake of HCV screening and treatment after referral were identified as the main gaps to be closed in the HCV cascade of care to achieve final HCV elimination in Dutch PWID (i.e. micro-elimination).


Subject(s)
Critical Pathways , Delivery of Health Care/organization & administration , Hepatitis C/rehabilitation , Substance Abuse, Intravenous/complications , Substance Abuse, Intravenous/rehabilitation , Adult , Aged , Benchmarking , Data Collection , Female , Heroin Dependence/complications , Heroin Dependence/rehabilitation , Humans , Interdisciplinary Communication , Intersectoral Collaboration , Male , Middle Aged , Netherlands , Patient Care Team/organization & administration , Qualitative Research , Quality Improvement/organization & administration
9.
J Med Internet Res ; 19(1): e4, 2017 01 04.
Article in English | MEDLINE | ID: mdl-28052840

ABSTRACT

BACKGROUND: Prevention of depression is important due to the substantial burden of disease associated with it. To this end, we developed a novel, brief, and low-threshold Web-based self-help approach for depressive complaints called complaint-directed mini-interventions (CDMIs). These CDMIs focus on highly prevalent complaints that are demonstrably associated with depression and have a substantial economic impact: stress, sleep problems, and worry. OBJECTIVE: The aim was to evaluate the effectiveness of the Web-based self-help CDMIs in a sample of adults with mild-to-moderate depressive symptoms compared to a wait-list control group. METHODS: A two-armed randomized controlled trial was conducted. An open recruitment strategy was used. Participants were randomized to either the Web-based CDMIs or the no-intervention wait-list control group. The CDMIs are online, unguided, self-help interventions, largely based on cognitive behavioral techniques, which consist of 3 to 4 modules with up to 6 exercises per module. Participants are free to choose between the modules and exercises. Assessments, using self-report questionnaires, took place at baseline and at 3 and 6 months after baseline. The control group was given access to the intervention following the 3-month assessment. The primary goal of the CDMIs is to reduce depressive complaints. The primary outcome of the study was a reduction in depressive complaints as measured by the Inventory of Depressive Symptomatology Self-Report (IDS-SR). Secondary outcomes included reductions in stress, worry, sleep problems, and anxiety complaints, and improvements in well-being. Data were analyzed using linear mixed models. RESULTS: In total, 329 participants enrolled in the trial, of which 165 were randomized to the intervention group and 164 to the control group. Approximately three-quarters of the intervention group actually created an account. Of these participants, 91.3% (116/127) logged into their chosen CDMI at least once during the 3-month intervention period (median 3, range 0-166). After 3 months, there was a significant reduction in depressive symptomatology for participants in the intervention group compared to participants in the wait-list control group (reduction in depression: mean -4.47, 95% CI -6.54 to -2.40; Cohen d=-0.70). Furthermore, significant effects were observed for sleep problems, worry, anxiety, and well-being, with effect sizes ranging from -0.29 to -0.40. The intervention did not significantly reduce stress. At 6-month follow-up, the improvements in the intervention group were generally sustained. CONCLUSIONS: This study shows that the online self-help CDMIs have a positive impact on various mental health outcomes. Future research should focus on which specific strategies may boost adherence, and increase the reach of the CDMIs among people with low socioeconomic status. CLINICALTRIAL: Netherlands Trial Register (NTR): NTR4612; http://www.trialregister.nl/trialreg/admin/rctview.asp?TC=4612 (Archived by WebCite at http://www.webcitation.org/6n4PVYddM).


Subject(s)
Depression/psychology , Depression/therapy , Internet , Adolescent , Adult , Aged , Depression/prevention & control , Female , Health Behavior , Humans , Male , Middle Aged , Self-Help Groups , Surveys and Questionnaires , Telemedicine/methods , Young Adult
10.
Crisis ; 36(1): 38-45, 2015.
Article in English | MEDLINE | ID: mdl-25410257

ABSTRACT

BACKGROUND: Persons bereaved by suicide are reluctant to ask for social support when they experience feelings of guilt and blame. A web-based peer forum may provide a safe and anonymous place for mutual support. AIMS: This study examined the mental health changes of visitors of two online support forums for persons bereaved by suicide and their experiences with the forum over 1 year. METHOD: Visitors of two forums completed self-report measures at baseline and at 6 and 12 months' follow-up. Repeated measures analyses were used to study changes in well-being, depressive symptoms, and complicated grief. Additionally, participants were interviewed about their experiences with the forum. RESULTS: The 270 participants were mostly female, low in well-being, with high levels of depressive symptoms and complicated grief. Suicidal risk was high for 5.9%. At 12 months, there were small to medium-sized significant improvements in well-being and depressive symptoms (p < .001) and nearly as much for grief (p = .08). About two thirds reported benefit from visiting the forum. Because of the pre-post design we cannot determine whether a causal relationship exists between the form and changes in mental health. CONCLUSION: After 1 year some positive changes but a large group was still struggling with their mental health. Interviews indicate that the forum was valued for finding recognition.


Subject(s)
Bereavement , Depression/psychology , Depressive Disorder/psychology , Family/psychology , Internet , Self-Help Groups , Suicide , Adult , Belgium , Female , Grief , Humans , Male , Mental Health , Middle Aged , Netherlands , Social Support , Surveys and Questionnaires
11.
Harm Reduct J ; 11: 6, 2014 Feb 13.
Article in English | MEDLINE | ID: mdl-24524263

ABSTRACT

BACKGROUND: Injecting drug users are at increased risk for harmful effects compared to non-injecting drug users. Some studies have focused on differences in characteristics between these two groups (e.g., housing, overall health). However, no study has investigated the specific Dutch situation which in the last years has seen a decrease in homelessness among problematic hard-drug users and an increasing focus on physical health in low-threshold addiction care. The purpose of this study was to determine differences in sociodemographic, drug use and health characteristics between never-injecting (NIDUs), former-injecting (FIDUs) and current-injecting drug users (IDUs) and describe injecting practices. METHODS: A total of 202 problematic hard-drug users (NIDU = 64; FIDU = 76; IDU = 62) were recruited from 22 low-threshold care facilities, including drug consumption rooms, methadone maintenance treatment, heroin-assisted therapy, day shelter and/or night shelter, supported housing and day activity centres. Data were collected on-site through structured face-to-face interviews. RESULTS: Results indicate that IDUs represented a separate group of problematic hard-drug users, with distinct sociodemographic and drug use characteristics. Overall, IDUs appeared to be the group with least favourable characteristics (unstable housing/homelessness, illegal activities, polydrug use) and NIDUs appeared to have the most favourable characteristics (stable housing, help with debts, less polydrug use). The FIDU group lies somewhere in between. The three groups did not differ significantly in terms of health. Regarding injecting practices, results showed that majority of IDUs had injected drugs for over 10 years and IDUs injected heroin, cocaine, amphetamine and/or methadone in the past 6 months. Sharing syringes was not common. A quarter reported public injecting. CONCLUSIONS: Unstable housing and homelessness are related to (former) injecting drug use, and stable housing is related to never-injecting drug use. Our study suggests that the number of 'new' IDUs is low. However, public injecting among IDUs is not uncommon and is associated with unstable housing. This emphasizes the potential of housing projects as a component of harm reduction measures. Therefore, prevention of (risks associated with) injecting drug use and supported housing programmes for problematic hard-drug users deserve the continuous attention of policymakers and professionals in low-threshold addiction care.


Subject(s)
Substance Abuse, Intravenous/epidemiology , Adult , Aged , Female , Health Knowledge, Attitudes, Practice , Health Status , Ill-Housed Persons/psychology , Ill-Housed Persons/statistics & numerical data , Humans , Male , Middle Aged , Needle Sharing , Netherlands/epidemiology , Socioeconomic Factors , Substance Abuse, Intravenous/psychology , Young Adult
12.
Gerontologist ; 53(5): 839-49, 2013 Oct.
Article in English | MEDLINE | ID: mdl-23135419

ABSTRACT

PURPOSE OF THE STUDY: Concerns about falls and related activity avoidance are common in older people. A multicomponent program reduced these concerns and increased daily activity among older people in a randomized controlled trial. This study explored whether the effects and acceptability of the program maintain after its implementation into home care organizations. DESIGN AND METHODS: In a pretest-post-test study, the effects and acceptability of the 8-week cognitive behavioral program was evaluated in 125 community-living older adults. Data on concerns about falls, related avoidance behavior, falls, fall-related medical attention, feelings of loneliness and anxiety, and symptoms of depression were collected prior to the start of the program and at 2 and 4 months. RESULTS: Pretest-post-test analyses showed significant improvements at 4 months for concerns about falls, activity avoidance, number of falls in the past 2 months, feelings of anxiety, and symptoms of depression. No significant differences were shown for daily activity, feelings of loneliness, and fall-related medical attention. IMPLICATIONS: After implementation in home care organizations, the program reduced concerns about falls, avoidance behavior, and falls in community-living older adults. These findings are highly consistent with the outcomes of a previously performed randomized controlled trial, indicating that the program can be successfully implemented in practice. Further dissemination of the program is recommended to reduce concerns about falls and related activity avoidance in community-living older people.


Subject(s)
Accidental Falls , Activities of Daily Living/psychology , Cognitive Behavioral Therapy/methods , Home Care Services , Patient Acceptance of Health Care , Aged , Aged, 80 and over , Anxiety/psychology , Depression/psychology , Evidence-Based Practice , Female , Humans , Male , Middle Aged , Mobility Limitation , Self Efficacy
13.
Int J Drug Policy ; 20(2): 143-51, 2009 Mar.
Article in English | MEDLINE | ID: mdl-18554894

ABSTRACT

BACKGROUND: In recent years the use of powder cocaine among socially integrated adolescents and young adults has normalised. It is no longer an extraordinary drug to use in trendy/innovative as well as mainstreams clubs. Not much research has been done on motivations for and settings in which this cocaine use takes place. METHODS: To gain insight in normalisation and trends in cocaine use, we used quantitative data from the National Prevalence Study on Substance Use (NPS) 1997, 2001 and 2005. To gain insight in social settings and motivations (initiation and continuation), and in the combined use of cocaine with alcohol and/or other drugs, we analysed mostly qualitative data from in-depth interviews with 55 adolescents and young adults who used cocaine in the past year. RESULTS: The NPS studies show a rising trend in lifetime cocaine use, a fall in incidence, and a fall in continuation rates. From the interviews we learn that cocaine has further normalised. Cocaine is - and stays - attractive because of the ritual of snorting (the route of administration). Initiation is often planned. Effects play a role in the continuation of use, not in initiation. Motivations for use are divided into three categories: physical, mental and social. Cocaine is used in nightlife and home settings, together with friends, and it is often combined with alcohol (on the same occasion), because of feeling mentally clear and being able to drink more. CONCLUSION: About 5% of adolescents have used cocaine at least once in their lives. They feel it can be used in every setting, since it leaves a user in control. While acknowledging the negative side effects, young users try to regulate their cocaine use in order to regulate these effects. Although high frequent use is an exception in our sample, we cannot foretell how many might develop a pattern of problematic use.


Subject(s)
Alcohol Drinking/psychology , Cocaine-Related Disorders/psychology , Motivation , Adolescent , Adult , Alcohol Drinking/epidemiology , Cocaine-Related Disorders/complications , Cocaine-Related Disorders/epidemiology , Data Collection , Female , Humans , Illicit Drugs , Male , Netherlands/epidemiology , Social Behavior , Young Adult
14.
J Psychoactive Drugs ; 39(2): 191-9, 2007 Jun.
Article in English | MEDLINE | ID: mdl-17703714

ABSTRACT

Mobility is related to problematic hard drug use. It remains unclear, however, to what extent the availability of care facilities attracts drug users. The aim of the study is to gain insight into the mobility of problematic hard drug users, with particular focus on the possibilities for deconcentration of facilities. Quantitative and qualitative methods were used: a survey and in-depth interviews with problematic hard drug users. The results show that the extent of mobility is not related to specific characteristics of the target group. The most relevant concepts related to possible deconcentration/displacement of problematic drug users are the nature of mobility and visibility of the users. A high level of mobility does not necessarily lead to more visibility and nuisance. Having a structured daily pattern (housing and/or working) largely determines visibility. More purposeful movement of drug users is associated with a lower level of visibility and nuisance. Mobility of users is strongly determined by the need to buy drugs. Low-threshold facilities are not a trigger for mobility as such, and need to be located near places where drug users stay and/or close to well-known dealing areas.


Subject(s)
Health Services Needs and Demand , Illicit Drugs , Substance Abuse Treatment Centers/supply & distribution , Substance-Related Disorders/psychology , Activities of Daily Living , Adult , Data Collection , Female , Humans , Male , Netherlands , Population Dynamics
15.
J Psychoactive Drugs ; 38(2): 123-32, 2006 Jun.
Article in English | MEDLINE | ID: mdl-16903451

ABSTRACT

This study allocated 201 (nearly) daily users of heroin and/or crack into four groups, depending on their addiction care participation. Earlier studies have compared treatment groups and nontreatment groups. In this study the treatment group is divided into three categories: (1) drug users in contact with only treatment agencies--i.e., methadone maintenance, clinical and ambulant drug treatment; (2) drugs users in contact with only care agencies--i.e., day and night shelters and drug consumption rooms, which have no explicit aims to change patterns of drug use; and (3) drug users in contact with both treatment and care agencies. This allocation intro three different groups fits the notion of harm reduction, one of the policy aims in The Netherlands. The fourth group consists of drug users in contact with neither treatment nor care agencies. The results show that it is useful to distinguish these four categories, instead of two. The four groups are different from each other with respect to some of their characteristics (e.g. debt situation, prostitution, homelessness) and their drug use (e.g. drug use in public, use of crack, and use of other drugs). A much clearer distinction can be made between the "care" group and the "treatment and care" group. Treatment and care agencies can thus better match their services to their clients or patients.


Subject(s)
Substance-Related Disorders/rehabilitation , Adult , Health Surveys , Helping Behavior , Ill-Housed Persons , Humans , Illicit Drugs , Interpersonal Relations , Male , Methadone/therapeutic use , Netherlands , Rehabilitation Centers , Substance Abuse Treatment Centers , Substance-Related Disorders/psychology
16.
J Psychoactive Drugs ; 38(1): 77-87, 2006 Mar.
Article in English | MEDLINE | ID: mdl-16681178

ABSTRACT

The rise of mobile phone dealing in the retail market of heroin and cocaine in the city of Rotterdam is described. Multiple methods were used for the study, including analysis of street survey data (1998, 2000, 2003), qualitative and quantitative analysis of fieldwork data, and semi-open interviews with drug users and key informants. In 2000, 70% of the respondents to a street survey bought drugs from a mobile dealer. Qualitative data showed that the majority of mobile dealers have an ethnic Moroccan background; the reasons for this may include the ambiguous attitude of the Moroccan community towards drug crime, and repressive legislation causing the market to find alternatives for basic street dealing. The rise of mobile dealing is discussed as a form of reshaping of the drug market under prohibition.


Subject(s)
Cell Phone/statistics & numerical data , Psychotropic Drugs/administration & dosage , Substance-Related Disorders/epidemiology , Cell Phone/trends , Drug Delivery Systems/methods , Health Surveys , Humans , Netherlands/epidemiology , Time Factors , Urban Population
17.
Eur Addict Res ; 11(3): 124-31, 2005.
Article in English | MEDLINE | ID: mdl-15990429

ABSTRACT

Snowball sampling and targeted sampling are widely applied techniques to recruit samples from hidden populations, such as problematic drug users. The disadvantage is that they yield non-probability samples which cannot be generalised to the population. Despite thorough preparatory mapping procedures, selection effects continue to occur. This paper proposes an interpretation frame that allows estimating the direction of selection bias after data collection. Critical examination of the recruitment procedure and comparison with statistical and non-statistical external data sources are the core features of the interpretation frame. Applying the interpretation frame increases insight into the reliability of the results and allows to estimate where selection bias may have occurred.


Subject(s)
Data Interpretation, Statistical , Illicit Drugs , Substance-Related Disorders/epidemiology , Adult , Data Collection , Demography , Female , Ill-Housed Persons/statistics & numerical data , Humans , Incidence , Male , Prevalence , Sampling Studies
18.
Eur Addict Res ; 9(2): 94-100, 2003 Apr.
Article in English | MEDLINE | ID: mdl-12644736

ABSTRACT

The Rotterdam Drug Monitoring System used survey data, fieldnotes and interviews with staff to investigate the functioning of four (out of six) consumption rooms in Rotterdam. The results show that for most drug users, access to the drug consumption room results in less frequent drug use in public places and more time and rest. Pass holders value being able to use drugs safely inside, and make use of the additional services provided, such as refreshments, washing/showering facilities and talking with others about their personal problems. Two 'weak points' reported by the drug users are discussed in relation to their personal health situation and public nuisance reduction.


Subject(s)
Needle-Exchange Programs/organization & administration , Patient Admission/statistics & numerical data , Public Facilities , Public Health , Public Policy , Substance-Related Disorders/epidemiology , Urban Population/statistics & numerical data , Adult , Cocaine-Related Disorders/epidemiology , Cocaine-Related Disorders/prevention & control , Cocaine-Related Disorders/rehabilitation , Cross-Sectional Studies , Female , Humans , Male , Needle-Exchange Programs/statistics & numerical data , Netherlands/epidemiology , Patient Care Team/organization & administration , Patient Care Team/statistics & numerical data , Public Assistance/organization & administration , Public Assistance/statistics & numerical data , Social Environment , Substance Abuse, Intravenous/epidemiology , Substance Abuse, Intravenous/prevention & control , Substance Abuse, Intravenous/rehabilitation , Substance-Related Disorders/prevention & control , Substance-Related Disorders/rehabilitation
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