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1.
Anim Welf ; 33: e25, 2024.
Article in English | MEDLINE | ID: mdl-38721624

ABSTRACT

Drawing upon data from a study examining experiences of accessing support for pets from the UK animal welfare charity Blue Cross, this paper illuminates reasons why people might not seek support when they need it. This applies to those who are struggling financially and are eligible for, but do not take, free/reduced cost veterinary care, or are having other problems (e.g. the animal's disruptive behaviour or ill health, struggling to care for the pet due to changing circumstances or health problems, or coping with pet loss). Twenty Blue Cross service users (15 female, five male, age 29-67) took part in individual online interviews using a semi-guided narrative approach, where they were encouraged to share their experiences of reaching out. They were also asked to reflect upon why others may not do the same, and if they had any recommendations for organisations to help them reach these people. Findings echo other studies that highlight a fear of being judged, disclosure and stigma. Guilt, shame, lack of awareness, financial concerns, and wanting to manage independently, all play important roles. These factors have implications for the way support services are advertised and delivered to ensure animals receive the care needed. We describe these reflections and recommendations and identify three broader ideological narratives underpinning participants' stories: 'giving back'; 'equity', and 'sacrifice'. These reveal how wider societal attitudes and values shape identities and behaviours. It is vital that support on offer is reframed to explicitly counteract these influences to ensure optimal animal and human welfare.

2.
Psychol Res Behav Manag ; 17: 1703-1716, 2024.
Article in English | MEDLINE | ID: mdl-38660459

ABSTRACT

Purpose: With the rapid development of information, digital networks, and artificial intelligence technologies, the new generation of children growing up with electronic products faces the dilemma of addiction to online games. There is a significant correlation between the addiction of rural children to online games and the lack of proper parental upbringing. Patients and Methods: Based on purposive sampling, the research selected 41 sixth-grade rural children, 20 parents, and 14 teachers from three cities in Zhejiang Province, China. Three rounds of semi-structured, in-depth interviews were conducted. Results: The research portrayed that the parental upbringing styles of rural children addicted to online games could be categorized into four types: conflict and chaos type, indulgent and permissive type, disciplinary neglect type, and coercive and brutal type. All four parenting styles were related to emotional involvement and value guidance. Discussion: Both the parenting styles of rural parents and the children's addiction to online games were difficult to self-update and change, and they mutually "affirmed" and even reinforced each other. Insufficient cultural capital was found in rural families, resulting in a closed loop between parental upbringing and online game addiction. Introducing professional expertise, increasing cultural capital, and promoting improvement in rural parenting styles are crucial.

3.
Front Oral Health ; 5: 1306421, 2024.
Article in English | MEDLINE | ID: mdl-38529212

ABSTRACT

This paper describes some of the lessons learned during the COVID-19 pandemic from a study conducted with a group of clinical teachers and undergraduate dental students at the Faculty of Dentistry, Oral & Craniofacial Sciences (FoDOCS) at King's College London about the use of a combination of remote, online and in-person teaching methods that resumed from June 2020. In the narrative research, participants shared their experiences delivering online clinical workshops and their previous experiences delivering face-to-face sessions online, both during and before the pandemic. We conducted remote interviews with the participants via video conferencing, which were recorded, transcribed, and analysed using thematic analysis. Narrative accounts revealed commonalities organised into seven themes, highlighting some of the challenges encountered during the pandemic and providing insights into addressing different curricular constraints and concerns when utilising various delivery modes during emergency situations, such as pandemics. In our study, we concluded that students and teachers benefit from dissociating clinical learning from clinical treatment sessions to focus on the educational intent and content before applying them chairside with patients. Throughout the course, students and teachers were challenged by a lack of engagement. In addition, it is important to examine the online fatigue highlighted by both students and teachers and identify ways to improve time, literacy, and facilitation to create a more conducive learning environment.

4.
BMC Oral Health ; 24(1): 22, 2024 01 04.
Article in English | MEDLINE | ID: mdl-38178030

ABSTRACT

The aims of this qualitative research were (1) to gain more insight in the diagnostic and treatment history of patients with chronic temporomandibular disorder (TMD) pain; (2) to get a deeper understanding of possible factors that are involved in the possible delay in setting a TMD-pain diagnosis and receiving appropriate treatment; and (3) to get a deeper understanding of the perspectives and experiences of chronic TMD-pain patients on the possible improvement of various aspects of their diagnostic and treatment journey.MethodsIn this narrative research, semi-structured interviews took place with patients who experienced chronic orofacial pain (OFP) for at least three years before getting diagnosed with, and treated for, TMD pain by an OFP specialist in an interprofessional setting.ResultsIn total, ten patients were interviewed in-depth. Patients experienced their chronic OFP in different ways, but all reported a significant impact of their pain on their quality of life. All patients visited numerous health care professionals before their TMD diagnosis was set. Among others, they underwent anti-neuropathic pain medication therapies and invasive surgeries, which did not significantly reduce their chronic OFP. The interprofessional TMD-pain treatment reduced the suffering of the chronic OFP substantially, also 6 months after the start of therapy, and improved the quality of life for all patients. In most of them, the OFP intensity was also decreased.ConclusionChronic TMD-pain patients with a history of neuropathic pain treatment may experience a long journey until receiving the appropriate diagnosis and treatment. This stresses the need to improve the implementation of chronic TMD-pain guidelines.


Subject(s)
Chronic Pain , Neuralgia , Temporomandibular Joint Disorders , Humans , Quality of Life , Facial Pain/diagnosis , Facial Pain/etiology , Facial Pain/therapy , Neuralgia/diagnosis , Neuralgia/therapy , Chronic Pain/diagnosis , Chronic Pain/therapy , Temporomandibular Joint Disorders/complications , Temporomandibular Joint Disorders/diagnosis , Temporomandibular Joint Disorders/therapy
5.
Article in Spanish | LILACS-Express | LILACS | ID: biblio-1536554

ABSTRACT

(analítico) Se presenta una reflexión teórico-metodológica derivada de una investigación sobre experiencias de participación y subjetividades en niños y niñas, ubicados en contextos institucionales y comunitarios de tres países de la región. En oposición a los enfoques que asumen a estas personas como sujetos receptores per se, la metodología de este estudio adoptó la investigación narrativa, dada su potencialidad para que los participantes logren narrarse, conocerse y transformarse. De esta manera, en la primera parte, se propone un acercamiento ontológico, epistémico y metodológico a la investigación narrativa con niños y niñas. Luego, basados en el trabajo de campo del estudio, se abordan técnicas de investigación que favorecen la interacción horizontal para la generación de conocimiento con estas personas, desde lo dialógico y lo estético. Al final, se presentan las conclusiones.


(analytical) The article presents a theoretical-methodological reflection derived from research on experiences of participation and subjectivities in boys and girls, located in institutional and community contexts in three countries of the region. In opposition to the approaches that assume these people as receiving subjects per se, methodology of this study adopted narrative research, given its potential for the participants to narrate themselves, to know themselves and to transform themselves. Thus, in the first part, an ontological, epistemic and methodological approach to narrative research with children is proposed. Then, based on the field work of the study, research techniques that favor horizontal interaction for the generation of knowledge with these people are addressed, through the dialogic and the aesthetic. Finally, the conclusions are presented.


(analítico) O artigo apresenta uma reflexão teórico-metodológica derivada de pesquisas sobre experiências de participação e subjetividades em meninos e meninas, localizadas em contextos institucionais e comunitários em três países da região. Em oposição às abordagens que assumem essas pessoas como sujeitos receptores per se, a metodologia deste estudo adotou a pesquisa narrativa, dada a sua potencialidade de os participantes narrarem, conhecerem e se transformarem. Assim, na primeira parte, propõe-se uma abordagem ontológica, epistêmica e metodológica da pesquisa narrativa com crianças. Em seguida, com base no trabalho de campo do estudo, são abordadas técnicas de pesquisa que favorecem a interação horizontal para a geração de conhecimento com essas pessoas, a partir da dialógica e da estética. Ao final, são apresentadas as conclusões.

6.
NIHR Open Res ; 3: 57, 2023.
Article in English | MEDLINE | ID: mdl-37994320

ABSTRACT

Stories can be a powerful method of exploring complexity, and the factors affecting everyday physical activity within a modern urban setting are nothing if not complex. The first part of our How Do You Move? study focused on the communication of physical activity guidelines to under-served communities. A key finding was that adults especially wanted physical activity messages to come from 'everyday people, people like us'. This finding also reflects a wider move to use more relatable imagery in health promotion campaigns. Using a portrait vignette approach to create monologues, we set out to explore the experiences of people from diverse backgrounds living in Bristol, all of whom took part in varied leisure time physical activities but would also be considered to lead 'normal' lives. We aim to demonstrate that stories of such 'experts by experience' can contribute to how physical activity is perceived and elucidate the complex interplay of barriers and enablers in everyday experiences of physical activity.


The UK government has guidelines about how much physical activity people should do to stay healthy. However, many people don't manage to do as much physical activity as the government recommends. There are many reasons why people don't do enough physical activity. Reasons include where people live, what work they do or how much spare time they have. In the How Do You Move? project, we explored the messaging about physical activity guidelines. Many people told us that they wanted to hear physical activity advice from 'people like me'. We set out to find people who managed to stay active, despite how difficult that can sometimes be in modern life. We interviewed them about their physical activity. We then worked with them to write their experiences as personal stories. These stories are presented in this paper.

7.
Int J Qual Stud Health Well-being ; 18(1): 2240576, 2023 Dec.
Article in English | MEDLINE | ID: mdl-37506373

ABSTRACT

Family members' problematic drug use is challenging for siblings affecting their well-being and their relationships within the family. Research about siblings living with brothers or sisters' problematic drug use and research on bereaved siblings' experiences indicates that life situations and support needs for both minor siblings and adult siblings can easily be overlooked, both in practice and in research. This article contributes to this knowledge gap by examining how siblings provide meaning to their sibling's drug use problem and how they position themselves and other family members accordingly. Qualitative semi-structured interviews were used for data collection, and fourteen bereaved siblings were interviewed. A narrative thematic analysis was chosen, and four themes were generated. These four themes, (1) Surviving difficult family life, (2) The relationships in continuous change, (3) It's worse for the parents, and (4) "We", as a synonym for the family, are presented in this article. Our findings demonstrated how complex and multifaceted siblings' stories about living with their brothers or sisters' ongoing drug use are. This study calls for more attention to siblings' situations. Siblings' lives are affected by their brothers or sisters' problems, and siblings should also be involved in routine support and treatment practices.


Subject(s)
Siblings , Substance-Related Disorders , Male , Adult , Humans , Family Relations , Parents
8.
Nurs Sci Q ; 36(3): 221-231, 2023 07.
Article in English | MEDLINE | ID: mdl-37309145

ABSTRACT

Narrating or storytelling is a fundamental practice for human survival and a means for finding meaning in experiences and for enhancing self-understanding. The use of story has been present in nursing since its origins. Biographical narrative has rarely been used as a research method in nursing, and there are no examples conceptualizing biographical narrative research methods within a unitary science perspective. The purpose of this paper is to describe one specific narrative methodological approach-the biographical narrative research method-and to link the method to the science of unitary human beings as a means of creating a unitary understanding of the storied nature of human-health experiences.


Subject(s)
Communication , Research Design , Humans
9.
Womens Stud Int Forum ; 98: 102755, 2023.
Article in English | MEDLINE | ID: mdl-37214194

ABSTRACT

Beginning in 2020, the COVID-19 pandemic disrupted familiar rhythms of work and life when academic women from the United States sheltered-in-place in their homes. The pandemic brought forth challenges which accentuated that caregiving with little or no support disproportionately affected mothers' abilities to navigate their new lives inside the home, where work and caregiving abruptly collided. This article takes on the (in)visible labor of academic mothers during this time-the labor mothers saw and viscerally experienced, yet that which was often unseen/unexperienced by others. Using Ursula K. Le Guin's Carrier Bag Theory as a conceptual framework, the authors engage with interviews of 54 academic mothers through a feminist-narrative lens. They craft stories of carrying (in)visible labor, isolation, simultaneity, and list-keeping as they navigate the mundaneness of everyday pandemic home/work/life. Through unrelenting responsibilities and expectations, they each find ways to carry it all, as they carry on.

10.
JMIR Ment Health ; 10: e44601, 2023 Apr 17.
Article in English | MEDLINE | ID: mdl-37067882

ABSTRACT

Demand for digital health interventions is increasing in many countries. The use of recorded mental health recovery narratives in digital health interventions is becoming more widespread in clinical practice. Mental health recovery narratives are first-person lived experience accounts of recovery from mental health problems, including struggles and successes over time. Helpful impacts of recorded mental health recovery narratives include connectedness with the narrative and validation of experiences. Possible harms include feeling disconnected and excluded from others. Diverse narrative collections from many types of narrators and describing multiple ways to recover are important to maximize the opportunity for service users to benefit through connection and to minimize the likelihood of harm. Mental health clinicians need to know whether narrative collections are sufficiently diverse to recommend to service users. However, no method exists for assessing the diversity and inclusivity of existing or new narrative collections. We argue that assessing diversity and inclusivity is the next frontier in mental health recovery narrative research and practice. This is important, but methodologically and ethically complex. In this viewpoint, we propose and evaluate one diversity and two inclusivity assessment methods. The diversity assessment method involves use of the Simpson Diversity Index. The two inclusivity assessment methods are based on comparator demographic rates and arbitrary thresholds, respectively. These methods were applied to four narrative collections as a case study. Refinements are needed regarding a narrative assessment tool in terms of its practicality and cultural adaptation.

11.
Article in English | MEDLINE | ID: mdl-36833623

ABSTRACT

This perspectives article considers the challenges posed by anti-science and how we can use research to respond more effectively. In public health, the challenges were more visible and the impact more serious during the COVID-19 pandemic. In part, this was due to a more organized anti-science and effective use of narrative methods. Regarding climate change, the role of anti-science represents a critical issue, but perhaps more recognized in environmental research and practice. The article draws on a narrative review to show some of the research into the nature of anti-science and the challenges it poses. It proposes that, as researchers, practitioners, and educationalists, we can be more effective if we make more use of recent research in the sciences of communications, behavior, and implementation, and shows some of the resources we can use to help our work be more relevant in the new era in which we are living.


Subject(s)
COVID-19 , Public Health , Humans , Pandemics , Climate Change , Communication
12.
Autism ; 27(2): 489-499, 2023 02.
Article in English | MEDLINE | ID: mdl-35757980

ABSTRACT

LAY ABSTRACT: Recent research suggests many autistic people experience homelessness. However, little is known about the types of homelessness autistic people experience and what barriers autistic people face when trying to exit homelessness. This study involved gathering life stories of autistic people who had experienced homelessness. Ten autistic participants talked about their pathways through homelessness and the difficulties they had in accessing support. After first becoming homeless, participants tended to experience rough sleeping and sofa surfing. When participants approached housing and homelessness services, they were often told they were not eligible for support. This could happen when support workers were not aware of autism, or when autism was not considered 'severe' enough. Overcrowding, confrontation and lack of control over routine and environment were particular issues for participants when they entered homelessness hostels. Some participants chose to sleep on the streets rather than stay in environments which increased social anxiety and sensory difficulties. This study discusses ways in which homelessness and housing services can increase accessibility and improve engagement for autistic people. It is important to increase awareness of autism while understanding that autistic people who experience homelessness may have complex needs. In addition, services need to listen to autistic people with lived experience of homelessness to decide what changes will have the most impact.


Subject(s)
Autism Spectrum Disorder , Autistic Disorder , Ill-Housed Persons , Humans , Housing , Narration
13.
J Cancer Educ ; 38(2): 513-521, 2023 04.
Article in English | MEDLINE | ID: mdl-35178683

ABSTRACT

Kentucky has the highest cancer incidence and mortality rates in the nation with the Appalachian region of the state being most affected. These rates are driven by health behaviors and inequities in social determinants of health. Herein, Appalachian Kentucky students with the University of Kentucky's Appalachian Career Training in Oncology (ACTION) program were engaged in a storytelling exercise by writing culturally framed essays. Students discussed their personal experiences with cancer and their thoughts on the causes of and potential solutions to Appalachian Kentucky's cancer disparities. Content analysis was used to identify common themes, subthemes, and subtopics in the essays regarding cancer types, causes of cancer in Appalachia, and solutions to the high cancer rates. Common cancer types experienced by the students included breast, lung, and prostate. The most frequently identified themes that drive cancer rates in Appalachian Kentucky were identified as geography, environmental factors, tobacco use, education, poverty, prevention, and mistrust. Common proposed solutions to decrease cancer rates were to increase education and awareness, screening, and tobacco cessation. Overall, through storytelling, youth gained a better understanding of cancer in their communities and envisioned culturally tailored, community-based intervention strategies that can aid in reducing the cancer burden in Appalachian Kentucky.


Subject(s)
Neoplasms , Male , Humans , Adolescent , Kentucky/epidemiology , Appalachian Region/epidemiology , Neoplasms/epidemiology , Neoplasms/prevention & control , Neoplasms/diagnosis , Poverty , Students
14.
Clin Child Psychol Psychiatry ; 28(4): 1291-1304, 2023 Oct.
Article in English | MEDLINE | ID: mdl-36127317

ABSTRACT

This study investigates the self-reported impact of children's psychiatric disorders on their siblings and assesses what forms of support such children most value. We used a qualitative research design with open interviews to stimulate children between 8 and 15 years old to talk about their experiences living with a brother or sister with a psychiatric disorder. Their stories were analysed within a hermeneutic phenomenological framework in order to identify narrative themes and interpret the meaning of shared experiences. From our analysis, nine shared narrative themes emerge. Overall, siblings report feeling conflicted about adapting their lives to their brother's or sister's disorder and signal a need for personalized attention from parents. They also indicate that being involved in the care for their brother or sister helps them to better understand their behaviour. Finally, siblings reveal that, in their experience, formal, protocolized forms of support foreground family problems and stress. Thus, we recommend to involve children in the care process; to acknowledge their personal needs and conflicts; and to be mindful of the style of support: help offered in an informal or playful way, instead of formal and protocolized, could be a more effective way of meeting siblings' needs.


Subject(s)
Mental Disorders , Siblings , Male , Humans , Child , Adolescent , Siblings/psychology , Adaptation, Psychological , Emotions , Mental Disorders/therapy , Qualitative Research , Sibling Relations
15.
Psicol. soc. (Online) ; 35: e277129, 2023. tab
Article in Portuguese | LILACS-Express | LILACS, Index Psychology - journals | ID: biblio-1521405

ABSTRACT

Resumo Neste estudo tivemos como objetivo investigar experiências racializadas com docentes e/ou pesquisadoras/es que atuam ou atuaram com Psicologia Social. O enfoque metodológico foi colaborativo com o apoio de elementos da pesquisa narrativa, o que implica um tipo de relação de pesquisa em que as pessoas entrevistadas e a pesquisadora se tornam cocontadoras de histórias em busca de compreender como construíram a experiência racial. Foram realizadas 15 entrevistas narrativas sem restrições de gênero, raça/etnia, idade, com o objetivo de alcançar maior diversidade de histórias. A análise dialógico-performativa foi utilizada como ferramenta para interpretação do material empírico das entrevistas. As experiências narradas são racializadas, entretanto, existem nuances, que se relacionam à singularidade da vida das/os participantes. As narrativas expuseram que aspectos como território, classe, gênero, idade refletem na experiência com a raça. A mestiçagem ainda é um território em construção, ambíguo, mas com potencial de expansão para além da binaridade negro/branco.


Resumen En este estudio tuvimos como objetivo investigar experiencias racializadas con profesoras e investigadoras que trabajan o han trabajado con Psicología Social. El enfoque metodológico fue colaborativo, apoyado en elementos de investigación narrativa, o que implica un tipo de relación de investigación en la que las personas entrevistadas y el investigador se convierten en co-narradores de historias. Se realizaron quince entrevistas narrativas sin restricción de género, raza/etnia, edad, para lograr una mayor diversidad de relatos. Se utilizó como herramienta de interpretación del material empírico de las entrevistas el análisis dialógico-performativo. Las experiencias narradas son racializadas, sin embargo, existen matices, que se relacionan con la singularidad de la vida de los participantes. Las narrativas expusieron que aspectos como el territorio, la clase, el género, la edad reflexionan sobre la experiencia con la raza. El mestizaje es todavía un territorio ambiguo en construcción, pero con el potencial de expandirse más allá del binario blanco/negro.


Abstract In this study we aimed to investigate racialized experiences with professors and/or researchers who work or have worked with Social Psychology. The methodological approach was collaborative, supported by elements of narrative research, which implies a type of research relationship in which the people interviewed and the researcher become co-tellers of stories, seeking to understand how they built the racial experience. Fifteen narrative interviews were carried out with no restriction on gender, race/ethnicity, age, to achieve greater diversity of stories. Dialogic-performative analysis was used as a tool for interpreting the empirical material of the interviews. The narrated experiences are racialized, however, there are nuances, which are related to the singularity of the participants' life. The narratives exposed that aspects such as territory, class, gender, age reflect on the experience with race. Moreover, miscegenation is an ambiguous territory under construction, but with the potential to expand beyond the black/white binary.

16.
Psicol. ciênc. prof ; 43: e250670, 2023.
Article in Portuguese | LILACS, Index Psychology - journals | ID: biblio-1448949

ABSTRACT

Este artigo refere-se à parte de uma pesquisa de doutorado, realizada em hospital de alta complexidade do Sistema Único de Saúde, cujos participantes são os profissionais de saúde. O objetivo deste artigo é analisar o potencial da abordagem das narrativas como método de pesquisa e intervenção nos serviços de saúde, traçando aproximações com a teoria psicanalítica. Sua relevância no campo da Saúde Pública está calcada no reconhecimento do papel do sujeito como agente de mudanças. O texto divide-se em duas partes: na primeira, explora as especificidades do trabalho na área da saúde, o paradigma da saúde pública no que concerne à gestão e possíveis contribuições da clínica ampliada para esse modelo. Na segunda parte, analisa o uso das narrativas como método de pesquisa nesse campo e as aproximações conceituais entre a narrativa em Walter Benjamin e a psicanálise em Freud. Busca na literatura referências sobre experiências análogas que fundamentem a proposta ora realizada e conclui pela importância de, no momento atual, apostar na força germinativa das narrativas como fonte criativa de novas formas de cuidar.(AU)


This article derives from a PhD research conducted with health professionals at a high-complexity public hospital from the Brazilian Unified Health System (SUS). It analyzes the potential of the narrative as a research and intervention method in health services, outlining approximations with psychoanalysis. In the field of Public Health, the narrative approach acknowledges the individual as an agent of change. The text is divided into two parts. The first presents an overview of the peculiarities involved in healthcare, the Public Health paradigm regarding service management and possible contributions from the expanded clinic to this model. The second analyzes the use of narratives as a research method in this field and the conceptual approximations between Benjamin's narrative and Freud's psychoanalysis. It searches the literature for references on similar experiences to support the present proposal and concludes by highlighting the importance of betting on the creative power of narratives as a source for new ways to care.(AU)


Este artículo es parte de una investigación doctoral, realizada con los profesionales de la salud de un hospital de alta complejidad del Sistema Único de Salud de Brasil. Su propósito es analizar el potencial del enfoque en narrativas como método de investigación e intervención en los servicios de salud, esbozando aproximaciones entre las narrativas y la teoría del psicoanálisis. Su relevancia en el campo de la salud pública se basa en el reconocimiento del rol del sujeto como agente de cambio. El texto se divide en dos partes: La primera investiga las especificidades del trabajo en el área de la salud, el paradigma de la salud pública en la gestión de los servicios y las posibles contribuciones de la clínica ampliada a este modelo. En la segunda parte, analiza el uso de narrativas como método de investigación en este campo y las aproximaciones conceptuales entre la narrativa de Walter Benjamin y el psicoanálisis de Freud. Este estudio busca en la literatura referencias sobre experiencias similares que apoyen la propuesta ahora realizada y concluye con la importancia de, en el momento actual, apostar por el poder de las narrativas como fuente creadora de nuevas formas de cuidar.(AU)


Subject(s)
Humans , Male , Female , Psychoanalysis , Health Policy, Planning and Management , Narration , Qualitative Research , Education, Public Health Professional , Policy , Anxiety , Pain , Parapsychology , Personality , Politics , Psychoanalytic Interpretation , Psychology , Psychopathology , Psychotherapy , Public Health Administration , Quality of Health Care , Regional Health Planning , Social Change , Social Conditions , Socioeconomic Factors , Sociology , Superego , Technology Assessment, Biomedical , Unconscious, Psychology , Behavior , Behavioral Symptoms , Technical Cooperation , Burnout, Professional , Activities of Daily Living , Mental Health , Disease , Psychological Techniques , Health Strategies , Efficiency, Organizational , Life , Health Equity , Organizational Modernization , Biomedical Technology , Disaster Vulnerability , Culture , Capitalism , Value of Life , Death , Depression , Economics , Ego , Health Sciences, Technology, and Innovation Management , Scientific and Technical Activities , Essential Public Health Functions , Humanization of Assistance , Ethics, Institutional , Information Technology , Narrative Therapy , Social Determinants of Health , Integrality in Health , Ambulatory Care , Psychological Trauma , Emotion-Focused Therapy , Occupational Stress , Fascism , Burnout, Psychological , Interpersonal Psychotherapy , Psychological Distress , Sociodemographic Factors , Social Vulnerability , Health Occupations , Health Services Accessibility , History , Human Rights , Id , Mental Health Services , Morals
17.
S Afr J Commun Disord ; 69(2): e1-e10, 2022 Sep 09.
Article in English | MEDLINE | ID: mdl-36226973

ABSTRACT

BACKGROUND:  Universities across the world experienced lockdown and closure of all learning institutions around March 2020 because of the advent of the coronavirus disease 2019 (COVID-19). This lockdown and closure presented challenges to the traditional pedagogical approaches in the health sciences, which typically include both campus-based and clinical site-focused activities involving face-to-face interactions and work integrated learning. The onset of the COVID-19 pandemic resulted in a shift to emergency remote teaching (ERT) and learning. OBJECTIVES:  This study aimed to explore speech-language pathology (SLP) educators' experiences of the planning and implementation of ERT and learning during the COVID-19 pandemic. METHOD:  A qualitative, descriptive narrative design was adopted to meet the objectives of the study. Seven SLP educators from a single university in South Africa participated in this study by constructing narratives on their experiences. The narratives were analysed using thematic analysis. RESULTS:  Five themes emerged from the data analysis, and these included (1) uncertainty, (2) educator feelings, (3) capacity development, (4) influence of circumstances on teaching, learning and assessment and (5) troubleshooting. Current findings provide insight into the challenges encountered and strategies utilised by educators in planning and implementing ERT and learning. CONCLUSION:  Beyond the COVID-19 pandemic, most educators believe that a hybrid model would address some concerns identified, such as that of missing face-to-face contact, but that it would still allow for the full exploitation of online activities for teaching, learning and assessment required during clinical training.


Subject(s)
COVID-19 , Pandemics , COVID-19/epidemiology , Communicable Disease Control , Humans , Language Therapy , Speech
18.
J Res Nurs ; 27(4): 343-354, 2022 Jun.
Article in English | MEDLINE | ID: mdl-35832877

ABSTRACT

Background: Secondary traumatic stress (STS) has been defined as the stress resulting from helping or wanting to help a traumatised or suffering person. The hyperacute nature of stroke specialist nurses' work places them at risk of developing STS. Aims: To explore the factors that are influential in stroke specialist nurses' experience of STS development within hyperacute practice. Methods: This study is qualitative with a narrative design. Data were collected from a purposive sample of stroke specialist nurses (20 female and 2 male) working in hyperacute services during the years 2016 and 2017. Data were analysed using Polkinghorne's approach. Results: This research identified four themes: exposure to acute suffering and death- young presentations; moral distress; interactions with relatives and problematic healthcare systems. Conclusion: The findings from this study suggest that stroke specialist nurses are exposed to multiple triggers which are commensurate with the potential for STS development. The findings contribute a new understanding of the emotional burden of hyperacute specialist stroke nursing that has implications for patient safety and satisfaction, services provision and staff well-being.

19.
Nurs Health Sci ; 24(2): 405-413, 2022 Jun.
Article in English | MEDLINE | ID: mdl-35238460

ABSTRACT

The COVID-19 pandemic has caused health professionals to deal with new situations they have not encountered before. Nurses were forced to cope with increased workloads, seriously ill patients, numerous patient deaths, and unresolved ethical dilemmas. This study aimed to examine the lived experiences of nurses across Europe during the first wave of the COVID-19 pandemic. This was a qualitative narrative research study. Eighteen nurses from eight European countries (four each from the UK and Israel, three from Portugal, two each from the Netherlands and Ireland, and one each from Belgium, Italy, and Sweden) submitted narratives about their professional experiences during May-June 2020. The narratives were analyzed using thematic analysis. Seven categories across the narratives were condensed and interpreted into three themes: opportunities and growth, care management, and emotional and ethical challenges. The COVID-19 pandemic has affected nurses emotionally and provided an opportunity to actively develop systems and skills needed to minimize harm and maximize benefits to patients and nurses.


Subject(s)
COVID-19 , Adaptation, Psychological , Health Personnel , Humans , Pandemics , Qualitative Research
20.
Adv Simul (Lond) ; 7(1): 1, 2022 Jan 10.
Article in English | MEDLINE | ID: mdl-35012689

ABSTRACT

BACKGROUND: In the simulation community, colleagues who are no longer clinically practicing were often proximal to the COVID-19 response, not working in the frontlines of patient care. At the same time, their work as simulationists changed dramatically or was halted. This research explored the experiences of those simulationists who have clinical backgrounds but did not provide direct patient care during the initial pandemic response. The aim of this study was to allow those simulationists to share and have their stories heard. METHODS: This qualitative research used a narrative approach to answer the research question: What were the experiences of those in the simulation community who did not contribute to the frontline patient care response during the early stages of the pandemic? A semi-structured questionnaire aimed at eliciting a story was disseminated through online simulation discussion boards. Data was collected through PHONIC with options to type or speak responses. Responses were analyzed using an inductive analytical process to identify themes or patterns in the narratives. RESULTS: Thirty-six respondents completed the survey between August 1, 2020 and November 30, 2020. Narrative arcs were identified that illustrated the events, actions, thoughts and feelings representative of experiences shared by many simulationists. Two major themes emerged: Challenges and Opportunities. Challenges included feelings of guilt; frustration; overwhelmed, stressed and exhausted; being away from the action, being unused and underappreciated. Opportunities included leadership (evolution and innovation), personal development, and being a part of something. CONCLUSIONS: The findings reflect a snapshot in time of how simulation was viewed and used in the world during a pandemic through the personal stories of simulationists with clinical backgrounds who did not provide direct patient care. Sharing these narratives may inform future simulation development; however, it is vitally important that the emotions are recognized and acknowledged. Managers should ensure mental health resources and support are available to all staff, including those not deployed to the frontline.

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