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1.
J Gynecol Obstet Hum Reprod ; 51(4): 102353, 2022 Apr.
Article in English | MEDLINE | ID: mdl-35247609

ABSTRACT

PURPOSE: To evaluate emotional distress and prenatal attachment throughout a subsequent pregnancy after Termination of Pregnancy (TOP) for fetal abnormality. METHODS: Observational study, in a French Tertiary Maternity. POPULATION: 25 women in a subsequent pregnancy after a medical termination of pregnancy for foetal abnormality, 18-year-old and older. Prenatal Interviews at 20 Gestationnal weeks (GW), 27 GW and 35 GW and Postnatal at 3 months and at each time self-administered questionnaires of anxiety, post-traumatic stress syndrome (PCLS) depressive symptoms (EPDS), prenatal attachment (PAI) and Perinatal Grief Scale (PGS). RESULTS: Pregnancy onset, i.e. before 20 GW, showed increased prevalence of anxiety (16/23, 66.7%), depression (7/23, 30.4%) and post-traumatic stress symptoms (4/16, 25%). Total score on PGS is higher in onset of pregnancy than in the third trimester (p = 0.005). Prenatal attachment was lower during early pregnancy (p = 0.003) and correlated inversely with grief intensity (p = 0.022). During late pregnancy, emotional symptoms decrease, and prenatal attachment stopped increase positively, specifically among women whose foetal abnormality in previous pregnancies were diagnosed late, at an average of 25 GW. CONCLUSION: This research shows the specific dynamics of pregnancies following TOP and highlights the necessity for early prenatal psychological support. One should also pay special attention to prenatal attachment during late pregnancy even after knowing that the fetus is healthy.


Subject(s)
Anxiety , Grief , Abortion, Eugenic/psychology , Adolescent , Adult , Anxiety/epidemiology , Anxiety/psychology , Family , Female , Fetus/abnormalities , Humans , Pregnancy/psychology , Pregnancy Trimester, Third , Surveys and Questionnaires
2.
J Perinat Med ; 49(7): 837-846, 2021 Sep 27.
Article in English | MEDLINE | ID: mdl-33882202

ABSTRACT

Brain injury of the surviving twin from monochorionic pregnancies following intrauterine fetal demise during the second and third trimesters is a rare but severe complication. Monochorionicity and gestational age at the time of stillbirth seem to be decisive factors in terms of long-term neurologic outcome prediction for the survivor. Magnetic resonance imaging (MRI), diffusion weighted imaging (DWI) in particular, seem to bring the earliest and most accurate diagnosis. Ultrasound detection of brain damage is possible in later stages of fetal brain injury. It is essential to provide early diagnosis and multidisciplinary counsel to the parents to ensure informed decision making. For couples who choose to terminate pregnancy legislation related to late abortion might lead to further distress. Our paper aims to stress the importance of MRI DWI in the evaluation of surviving twins following single intrauterine fetal demise in monochorionic pregnancies and the delicate context of the medical professionals and parents facing this clinical situation, sometimes complicated by legal constraints.


Subject(s)
Abortion, Eugenic/legislation & jurisprudence , Brain Injuries/diagnostic imaging , Diseases in Twins/diagnostic imaging , Fetal Death , Prenatal Diagnosis/methods , Twins, Monozygotic , Abortion, Eugenic/ethics , Abortion, Eugenic/psychology , Decision Making , Diffusion Magnetic Resonance Imaging , Female , Global Health , Humans , Parents/psychology , Pregnancy , Pregnancy, Twin , Ultrasonography, Prenatal
3.
BJOG ; 128(4): 676-684, 2021 Mar.
Article in English | MEDLINE | ID: mdl-32935467

ABSTRACT

OBJECTIVE: To explore fetal medicine specialists' experiences of caring for parents following a diagnosis of fatal fetal anomaly (FFA) during the implementation of termination of pregnancy (TOP) for FFA for the first time. DESIGN: Qualitative study. SETTING: Fetal medicine units in the Republic of Ireland. POPULATION: Ten fetal medicine specialists from five of the six fetal medicine units. METHODS: nvivo 12 assisted in the thematic analysis of semi-structured in-depth face-to-face interviews. MAIN OUTCOME MEASURES: Fetal medicine specialists' experiences of prenatal diagnosis and holistic management of pregnancies complicated by FFA. RESULTS: Four themes were identified: 'not fatal enough', 'interactions with colleagues', 'supporting pregnant women' and 'internal conflict and emotional challenges'. Fetal medicine specialists feared getting an FFA diagnosis incorrect because of media scrutiny and criminal liability associated with the TOP for FFA legislation. Challenges with the ambiguous and 'restrictive' legislation were identified that 'ostracised' severe anomalies. Teamwork was essential to facilitate opportunities for learning and peer support; however, conflict with colleagues was experienced regarding the diagnosis of FFA, the provision of feticide and palliative care to infants born alive following TOP for FFA. Participants reported challenges implementing TOP for FFA, including the absence of institutional support and 'stretched' resources. Fetal medicine specialists experienced internal conflict and a psychological burden providing TOP for FFA, but did so to 'provide full care for women'. CONCLUSIONS: Our study identified challenges regarding the suitability of the Irish legislation for TOP for FFA and its rapid introduction into clinical practice. It illustrates the importance of institutional and peer support, as well as the need for supportive management, in the provision of a new service. TWEETABLE ABSTRACT: The implementation of termination services for fatal fetal anomaly is complex and requires institutional support.


Subject(s)
Abortion, Eugenic , Attitude of Health Personnel , Congenital Abnormalities , Perinatology , Prenatal Care , Professional-Patient Relations , Abortion, Eugenic/ethics , Abortion, Eugenic/psychology , Female , Humans , Interprofessional Relations , Interviews as Topic , Ireland , Perinatology/ethics , Pregnancy , Prenatal Care/ethics , Prenatal Care/organization & administration , Prenatal Care/psychology , Professional-Patient Relations/ethics , Qualitative Research
4.
Cien Saude Colet ; 25(2): 429-438, 2020 Feb.
Article in Portuguese, English | MEDLINE | ID: mdl-32022184

ABSTRACT

Anencephaly is a malformation characterized by the total or partial absence of the brain, and Brazil records the fourth largest number of births of anencephalic fetuses in the world. Fetal anencephaly is associated with a more significant number of maternal complications. As of 2012, women with anencephalic gestation were empowered with the right to carry the pregnancy to term or terminate it, if they so desired, without any judicial authorization. Objectives: to understand the experiences of women with fetal anencephaly and to identify the determinant factors for interrupting the gestation or not. This is a qualitative study using the Life Narratives method with 12 women over 18 years old diagnosed with an anencephalic fetus, who interrupted gestation or delivery in a public maternity hospital in Rio de Janeiro. Data were collected between June and November 2016, and the process was finalized when the narrative patterns reached progressive saturation from the recurrences. The statements that emerged following floating and in-depth reading were articulated in Narrative Nuclei, and data comparative and comprehensive analysis was performed. The reports brought to light the intense experiences of these women, as well as the weaknesses existing concerning care and the pregnancy termination issue.


A anencefalia é uma malformação caracterizada pela ausência total ou parcial do encéfalo e o Brasil é o quarto colocado em número de nascimentos de fetos anencéfalos no mundo. Existe associação entre anencefalia fetal e maior número de complicações maternas. A partir de 2012 a mulher com gestação de anencéfalo poderá manter ou interromper a gestação, se assim o desejar, sem necessidade de autorização judicial. Objetivos: compreender as vivências das mulheres de fetos com anencefalia e identificar os fatores determinantes para a escolha de interromper ou não interromper a gestação. Estudo qualitativo e método das narrativas de vida, com 12 mulheres, maiores de 18 anos e com diagnóstico de feto anencéfalo, que realizaram a interrupção da gestação ou o parto em uma maternidade pública do Rio de Janeiro. A coleta dos dados foi entre junho e novembro de 2016 e encerrada quando os padrões narrativos alcançaram a saturação progressiva, a partir das recorrências. Os enunciados emergidos após leitura flutuante e aprofundada foram articulados em Núcleos Narrativos e realizada análise comparativa e compreensiva dos dados. Os relatos trouxeram à tona as vivências intensas dessas mulheres, como também as fragilidades existentes em relação ao cuidado e a problemática da interrupção da gestação.


Subject(s)
Abortion, Eugenic/statistics & numerical data , Anencephaly , Abortion, Eugenic/legislation & jurisprudence , Abortion, Eugenic/psychology , Abortion, Legal/psychology , Abortion, Legal/statistics & numerical data , Adult , Brazil , Female , Humans , Pregnancy , Young Adult
5.
Ciênc. Saúde Colet. (Impr.) ; 25(2): 429-438, Feb. 2020.
Article in Portuguese | LILACS | ID: biblio-1055819

ABSTRACT

Resumo A anencefalia é uma malformação caracterizada pela ausência total ou parcial do encéfalo e o Brasil é o quarto colocado em número de nascimentos de fetos anencéfalos no mundo. Existe associação entre anencefalia fetal e maior número de complicações maternas. A partir de 2012 a mulher com gestação de anencéfalo poderá manter ou interromper a gestação, se assim o desejar, sem necessidade de autorização judicial. Objetivos: compreender as vivências das mulheres de fetos com anencefalia e identificar os fatores determinantes para a escolha de interromper ou não interromper a gestação. Estudo qualitativo e método das narrativas de vida, com 12 mulheres, maiores de 18 anos e com diagnóstico de feto anencéfalo, que realizaram a interrupção da gestação ou o parto em uma maternidade pública do Rio de Janeiro. A coleta dos dados foi entre junho e novembro de 2016 e encerrada quando os padrões narrativos alcançaram a saturação progressiva, a partir das recorrências. Os enunciados emergidos após leitura flutuante e aprofundada foram articulados em Núcleos Narrativos e realizada análise comparativa e compreensiva dos dados. Os relatos trouxeram à tona as vivências intensas dessas mulheres, como também as fragilidades existentes em relação ao cuidado e a problemática da interrupção da gestação.


Abstract Anencephaly is a malformation characterized by the total or partial absence of the brain, and Brazil records the fourth largest number of births of anencephalic fetuses in the world. Fetal anencephaly is associated with a more significant number of maternal complications. As of 2012, women with anencephalic gestation were empowered with the right to carry the pregnancy to term or terminate it, if they so desired, without any judicial authorization. Objectives: to understand the experiences of women with fetal anencephaly and to identify the determinant factors for interrupting the gestation or not. This is a qualitative study using the Life Narratives method with 12 women over 18 years old diagnosed with an anencephalic fetus, who interrupted gestation or delivery in a public maternity hospital in Rio de Janeiro. Data were collected between June and November 2016, and the process was finalized when the narrative patterns reached progressive saturation from the recurrences. The statements that emerged following floating and in-depth reading were articulated in Narrative Nuclei, and data comparative and comprehensive analysis was performed. The reports brought to light the intense experiences of these women, as well as the weaknesses existing concerning care and the pregnancy termination issue.


Subject(s)
Humans , Female , Pregnancy , Adult , Young Adult , Abortion, Eugenic/statistics & numerical data , Anencephaly , Brazil , Abortion, Eugenic/legislation & jurisprudence , Abortion, Eugenic/psychology , Abortion, Legal/psychology , Abortion, Legal/statistics & numerical data
6.
Sex Health ; 17(1): 77-86, 2020 02.
Article in English | MEDLINE | ID: mdl-31958397

ABSTRACT

Background Research focused on adolescents' attitudes towards abortion is limited, and validated scales are not routinely used. A greater understanding of adolescents' attitudes towards abortion could better inform the sexuality education strategies targeted at this age group. METHODS: A cross-sectional survey was completed by 1470 adolescents (437 males, 1033 females) aged 12-19 years and living in Perth, Australia. Participants were recruited from secondary schools, antenatal clinics and termination clinics to capture varying experiences of sexual activity and pregnancy. Survey items investigated abortion attitudes, sexual behaviour and pregnancy history alongside other demographic and psychosocial factors. Analyses included comparative means and adjusted linear regressions. RESULTS: Sexually active participants (n = 554) and females reporting a previous abortion (n = 196) held more supportive attitudes towards abortion (P < 0.001 for both). Among sexually active females, more supportive attitudes were held by those reporting a previous abortion (ß = 2.60, 95% confidence interval 0.93-4.27, P = 0.002), later age (≥16 years) at first vaginal intercourse (P < 0.001), use of oral contraception at last sex (P = 0.029), previous condom use (P < 0.001) and/or three or more oral sex partners in the previous 12 months (P = 0.005). For sexually active males, more supportive attitudes were reported by those whose female partners had used oral contraception at last sex (P = 0.013) or ever (P = 0.017). Multivariable analyses indicated that other correlates, including risky sexual behaviour, had minimal or no effect on attitudes. CONCLUSIONS: Adolescents' attitudes towards abortion appear to be influenced by their ability to personalise and contextualise the effect of a pregnancy. Associations between less-effective contraceptive use and reduced support for abortion may be explained by a diminished perceived risk of parenthood. Educational strategies should acknowledge and respond to differences in abortion attitudes as adolescents commence and navigate sexual relationships.


Subject(s)
Abortion, Eugenic/psychology , Abortion, Induced/psychology , Adolescent Behavior/psychology , Attitude to Health , Pregnancy, Unwanted/psychology , Psychology, Adolescent , Sexual Behavior/psychology , Abortion, Eugenic/statistics & numerical data , Abortion, Induced/statistics & numerical data , Adolescent , Adult , Australia , Child , Cross-Sectional Studies , Female , Humans , Male , Pregnancy , Surveys and Questionnaires , Young Adult
7.
J Clin Nurs ; 29(7-8): 1220-1237, 2020 Apr.
Article in English | MEDLINE | ID: mdl-31887230

ABSTRACT

AIM: To determine and describe the experiences of pregnant women who receive a diagnosis of chromosomopathy and/or foetal malformation during a prenatal check-up and who decide to legally terminate the pregnancy. BACKGROUND: When a pregnancy is terminated, the woman must cope with frustrated motherhood. The psychological consequences of this will largely depend on the care and support provided by health professionals. When a congenital anomaly is diagnosed, a patient-centred communication helps understanding, influences adaptation to the new situation and ensures the person concerned has sufficient (autonomy or independence or ability) to make appropriate decisions. METHODS: A qualitative study, based on a phenomenological approach, was carried out through nonparticipant observation and semi-structured interviews with 27 obstetric patients. NVivo 11 software was used, and content analysis was performed. The manuscript was developed using the COREQ guidelines to inform qualitative studies. RESULTS: The clinical relationship may be affected by communication problems such as patients' perceptions of scarce emotional involvement by obstetricians, by poor psychosocial support during the termination of the pregnancy and by insufficient follow-up after discharge. CONCLUSION: Nurses are in a privileged position to promote the empowerment of affected women. It is necessary to improve aspects related to the privacy of patients and the awareness and training of the interdisciplinary team in interpersonal communication. Post-loss follow-up is recommended to assess individual needs, thus facilitating an optimal approach to ease the grieving process. RELEVANCE TO CLINICAL PRACTICE: During the prenatal diagnosis, the existence of a fetal anomaly is emphasized, but support and follow up of the mother may be neglected; therefore, exhaustive knowledge about the obstetric history, the state of health and the expectations of patients is as important as a multidisciplinary team trained in counseling strategies and with a comprehensive care plan that covers all areas, especially those that control maternal emotions.


Subject(s)
Patient-Centered Care/methods , Pregnant Women/psychology , Prenatal Diagnosis/psychology , Abortion, Eugenic/psychology , Adult , Counseling , Decision Making , Female , Humans , Mothers/psychology , Nurse-Patient Relations , Pregnancy , Qualitative Research , Young Adult
8.
Prenat Diagn ; 39(8): 595-602, 2019 07.
Article in English | MEDLINE | ID: mdl-31063215

ABSTRACT

OBJECTIVE: As prenatal diagnostic services expand throughout low-income countries, an important consideration is the appropriateness of these services for patients. In these countries, services now include prenatal ultrasound and occasionally genetic testing. To assess patient interest, we surveyed pregnant patients at a hospital in Addis Ababa, Ethiopia, on their preferences for prenatal testing and termination of affected pregnancies for congenital anomalies and genetic diseases. METHOD: One hundred one pregnant patients were surveyed on their preferences for prenatal testing and termination of affected pregnancies using a survey covering various congenital anomalies and genetic diseases. RESULTS: Eighty-nine percent of patients reported interest in testing for all conditions. Three percent of patients were not interested in any testing. Over 60% of patients reported interest in termination for anencephaly, early infant death, severe intellectual disability, hemoglobinopathy, and amelia. Patients were more likely to express interest in prenatal testing and termination for conditions associated with a shortened lifespan. CONCLUSION: Ethiopian patients were interested in prenatal testing and termination of pregnancy for many conditions. Advancing prenatal diagnostic capacities is a potential strategy for addressing the incidence of congenital anomalies and genetic disease in Ethiopia. Importantly, there exist many factors and technological limitations to consider before implementation.


Subject(s)
Abortion, Eugenic , Congenital Abnormalities/therapy , Fetus/abnormalities , Genetic Diseases, Inborn/therapy , Patient Preference , Prenatal Diagnosis , Abortion, Eugenic/methods , Abortion, Eugenic/psychology , Abortion, Eugenic/statistics & numerical data , Adult , Congenital Abnormalities/epidemiology , Congenital Abnormalities/psychology , Ethiopia/epidemiology , Female , Fetus/diagnostic imaging , Genetic Diseases, Inborn/diagnosis , Genetic Diseases, Inborn/epidemiology , Genetic Testing/methods , Genetic Testing/statistics & numerical data , Humans , Infant, Newborn , Male , Patient Preference/psychology , Patient Preference/statistics & numerical data , Pregnancy , Pregnancy Outcome/epidemiology , Prenatal Diagnosis/methods , Prenatal Diagnosis/psychology , Prenatal Diagnosis/statistics & numerical data , Surveys and Questionnaires , Young Adult
9.
BMJ Open ; 9(3): e026825, 2019 03 13.
Article in English | MEDLINE | ID: mdl-30867204

ABSTRACT

OBJECTIVES: To examine how pregnant couples experience receiving a prenatal diagnosis of Down syndrome (DS) by phone-a practice that has been routine care in the Central Denmark Region for years. DESIGN: Qualitative interview study. SETTING: Participants were recruited from hospitals in Central Denmark Region, Denmark. PARTICIPANTS: Couples who had received a prenatal diagnosis of DS by phone and decided to terminate the pregnancy. They were recruited from the obstetric department where the termination was undertaken. During the study period (February 2016 to July 2017), 21 semistructured, audio-recorded interviews were conducted by an experienced anthropologist. Interviews were conducted 4-22 weeks after the diagnosis and analysed using thematic analysis. RESULTS: A prearranged phone call was considered an acceptable practice. However, the first theme 'Expected but unexpected' shows how the call often came earlier than expected. Consequently, most women were not with their partner and were thus initially alone with their grief and furthermore responsible for informing their partner, which some considered difficult. The second theme 'Now what?' shows how during the phone calls, physicians were quick to enquire about the couples' agendas. As the majority had already decided to seek termination of pregnancy, the dialogue focused on related questions and arrangements. Only half of the couples received additional counselling. CONCLUSION: A prearranged phone call was considered an acceptable and appropriate practice. However, some aspects of this practice (particularly related to the context of the call) showed to be less than optimal for the couples. To make sure that a diagnostic result is delivered in accordance with the couples' needs and requests, the context of the call could be addressed and agreed on in advance by physicians and couples.


Subject(s)
Abortion, Eugenic , Decision Making , Down Syndrome/diagnosis , Pregnant Women/psychology , Prenatal Diagnosis/psychology , Spouses/psychology , Abortion, Eugenic/psychology , Adult , Denmark/epidemiology , Educational Status , Female , Humans , Interviews as Topic , Life Change Events , Male , Pregnancy , Qualitative Research , Telephone
10.
Patient Educ Couns ; 101(10): 1859-1864, 2018 10.
Article in English | MEDLINE | ID: mdl-29980336

ABSTRACT

OBJECTIVE: The decision to undergo a surgical or medical method of second-trimester termination for pregnancy complications should be preference-sensitive. Decision satisfaction has not been described in this population; understanding how women describe decision satisfaction in this setting could inform decision support efforts. METHODS: We conducted qualitative interviews with women one to three weeks after termination who chose either a surgical or medical termination for fetal anomalies, pregnancy complications or fetal demise. We analyzed transcripts using modified grounded theory in an iterative manner with a generative thematic approach. RESULTS: We interviewed 36 women (24 surgical and 12 medical). Subjects connected decision satisfaction with counseling experiences and their personal values, including (1) importance of adequate information, (2) autonomous decision making, and (3) choosing the method that facilitates coping. CONCLUSION: Offering women a choice between surgical and medical termination procedures in the setting of pregnancy complications is integral to decision satisfaction. Women in our study reported wanting this decision to be driven by their personal values. PRACTICE IMPLICATIONS: Women should be able to choose between surgical and medical termination based on preference and not availability of services. Decision support from women's health providers should be based on values clarification and providing accurate information.


Subject(s)
Abortion, Eugenic/psychology , Abortion, Induced/psychology , Choice Behavior , Congenital Abnormalities , Decision Making , Patient Satisfaction , Pregnancy Complications , Pregnant Women/psychology , Abortifacient Agents/administration & dosage , Abortion, Eugenic/methods , Abortion, Induced/methods , Adaptation, Psychological , Adult , Counseling , Dilatation and Curettage , Female , Humans , Interviews as Topic , Patient Participation , Patient Preference , Pregnancy , Pregnancy Trimester, First , Qualitative Research
11.
Acta Obstet Gynecol Scand ; 97(10): 1228-1236, 2018 Oct.
Article in English | MEDLINE | ID: mdl-29791717

ABSTRACT

INTRODUCTION: In Denmark, first trimester screening has a very high uptake (>90%). If Down syndrome is diagnosed, termination rates are high (>95%). The aim of this study was to investigate the timing of the decision to terminate pregnancy following a diagnosis of Down syndrome and the factors influencing this decision. MATERIAL AND METHODS: Semi-structured, qualitative interview study with 21 couples who had received a prenatal diagnosis of Down syndrome and decided to terminate the pregnancy. Participants were recruited from obstetric departments between February 2016 and July 2017. Data were analyzed using thematic analysis. RESULTS: Five themes were identified: "initial decision-making", "consolidating the decision", "reasons and concerns shaping the termination of pregnancy decision", "the right decision is also burdensome", and "perceived influences in decision-making". For most couples, the initial decision to terminate pregnancy was made before or during the diagnostic process, but it was re-addressed and consolidated following the actual diagnosis. Imagining a family future with a severely affected Down syndrome child was the main factor influencing the termination of pregnancy decision. The decision was articulated as "right" but also as existentially burdensome for some, due to fear of regret and concern about ending a potential life. The decision to terminate pregnancy was considered a private matter between the couple, but was refined through interactions with clinicians and social networks. CONCLUSION: All couples made an initial decision prior to receiving the Down syndrome diagnosis. Knowledge of the couple's initial decision may facilitate patient-centered communication during and after the diagnostic process. Couples may benefit from counseling to deal with grief and existential concerns.


Subject(s)
Abortion, Eugenic/psychology , Down Syndrome/psychology , Pregnant Women/psychology , Prenatal Care/psychology , Prenatal Diagnosis/psychology , Adult , Decision Making , Denmark , Female , Humans , Patient Acceptance of Health Care/psychology , Pregnancy , Pregnancy Trimester, First
12.
Arch Womens Ment Health ; 21(4): 453-459, 2018 08.
Article in English | MEDLINE | ID: mdl-29502281

ABSTRACT

We have defined a psychological intervention based on cognitive narrative therapy and the Ottawa decision framework to reduce adjustment problems following a termination of pregnancy (TOP) after a positive prenatal diagnosis (PND). The intervention is composed of four sessions: decision, subjectivation, metaphorization, and projecting. This study aims to assess the effectiveness of a cognitive narrative intervention to prevent depression and anxiety symptoms after TOP. The intervention was accepted by 24 participants. The outcome is compared with a control group of 67 women who also terminated a pregnancy after PND. Participants were from several Portuguese institutions; 64.4% had a genetic and 35.6% had ultrasound diagnosis; the mean age was 30.0 years and the mean gestational age was 19 weeks. There are two evaluations: a baseline at the 15th day and a sixth month follow-up after TOP, using Beck Depression Inventory, Zung Anxiety Scale, Perinatal Grief Scale, and an instrument capturing participant satisfaction. Six months after TOP, there is a lower mean of anxiety and depression (p < 0.05), between groups, with effect sizes on the follow-up of 0.54 for depression, 0.41 for anxiety, and 0.23 for perinatal grief. This intervention has very positive effects on women mental health, and we emphasize the importance of the meaning-making process in the context of terminating a wanted pregnancy.


Subject(s)
Abortion, Eugenic/psychology , Anxiety/prevention & control , Cognitive Behavioral Therapy/methods , Depression/prevention & control , Narrative Therapy/methods , Prenatal Diagnosis/psychology , Adult , Female , Grief , Humans , Longitudinal Studies , Portugal , Pregnancy , Treatment Outcome
13.
Arch Womens Ment Health ; 21(4): 391-399, 2018 08.
Article in English | MEDLINE | ID: mdl-29288285

ABSTRACT

Termination of pregnancy after diagnosis of fetal anomaly (TOPFA) is a contested issue and stigma may negatively impact affected women's psychological reactions. This study examined the influence of perceived and internalized stigma on women's long-term adjustment to a TOPFA. One hundred forty-eight women whose TOPFA dated back 1 to 7 years responded to self-report questionnaires. The associations between perceived stigma at the time of the TOPFA, current internalized stigma and symptoms of grief, trauma and depression were modeled using multiple linear regression. The proportion of participants reporting scores above the cutoffs on the respective scale was 17.6% for grief, 18.9% for posttraumatic stress, and 10.8% for depression. After controlling for time since the TOPFA, pre-TOPFA mental health and obstetric variables, higher levels of current internalized stigma were related to higher levels of grief, trauma, and depression. Mediation analyses suggested that the effect of perceived stigma at the time of the TOPFA on symptoms of grief and trauma was mediated by current internalized stigma, but the cross-sectional design limited causal interpretation of results. Internalized stigma is associated with long-term psychological distress following a TOPFA. Perceived stigma at the time of the TOPFA may contribute to increased trauma and grief symptomatology, but results need to be validated in longitudinal studies. Health care providers and public initiatives should aim at reducing stigma among affected women.


Subject(s)
Abortion, Eugenic/psychology , Depression/etiology , Fetus/abnormalities , Grief , Prenatal Diagnosis/psychology , Social Stigma , Stress Disorders, Post-Traumatic/etiology , Adult , Cross-Sectional Studies , Depression/psychology , Female , Germany , Humans , Pregnancy , Socioeconomic Factors , Stress Disorders, Post-Traumatic/psychology , Stress, Psychological/etiology , Stress, Psychological/psychology , Surveys and Questionnaires
14.
Psychotherapy (Chic) ; 54(4): 394-399, 2017 Dec.
Article in English | MEDLINE | ID: mdl-29251959

ABSTRACT

Pregnancy termination for fetal anomaly is a unique reproductive loss with many issues distinct from spontaneous pregnancy loss, as typically addressed in the current literature. After providing a brief overview of this loss and the impact of stigma, some of the therapeutic tasks particular to this loss will be identified, including absorbing the impact of learning about the anomaly, defining what or who has been lost, deciding whether to continue or terminate the pregnancy, and deciding who to tell what. These therapeutic tasks are discussed using the available research literature, but primarily illustrated through clinical vignettes and therapist-client dialogue. Therapeutic empathy will be demonstrated as both an instrument of healing in itself, as well as a means of realizing other therapeutic goals and interventions such as empowerment, normalization, validation and processing grief and trauma, all crucial elements of doing therapy with this population. Contrasting perspectives of this loss in therapy and the role of the therapist are discussed. (PsycINFO Database Record


Subject(s)
Abortion, Eugenic/psychology , Empathy , Grief , Psychotherapy/methods , Humans
15.
Qual Health Res ; 27(5): 665-676, 2017 Apr.
Article in English | MEDLINE | ID: mdl-26631684

ABSTRACT

The nature of the ongoing bond maintained by the bereaved with the deceased has attracted considerable attention, but studies have generally ignored postdeath relationships when loss occurs in utero. The goal of this research was to reach an interpretive understanding of the continuing bond experience among Israeli mothers who underwent feticide, examining the strategies they use in maintaining a postdeath relationship with a child they did not know, whose death they chose and witnessed, within a social context that ignores their loss and forces them to silence their grief. The results highlight two themes: (a) strategies for relinquishing connection with the baby and (b) strategies for maintaining a postdeath relationship. These processes partially correspond with two theoretical views that shed light on interpretation of the results: the dual process of coping with bereavement and relational dialectic theory. Implications of the results to the practice of health providers are outlined.


Subject(s)
Abortion, Eugenic/psychology , Adaptation, Psychological , Bereavement , Grief , Mother-Child Relations/psychology , Mothers/psychology , Pregnant Women/psychology , Adult , Female , Humans , Middle Aged , Pregnancy
16.
Reprod Health Matters ; 24(47): 168-77, 2016 May.
Article in English | MEDLINE | ID: mdl-27578350

ABSTRACT

Pregnant women routinely undergo prenatal screening in Australia and this has become a common experience of motherhood. When prenatal screening or prenatal testing results in diagnosis of a serious fetal abnormality, women are presented with a decision to continue or terminate their pregnancy. Few recent studies have explored women's psychosocial experience of prenatal diagnosis and pregnancy termination for fetal abnormality, and within this small group of studies it is rare for research to consider the embodied aspect of women's experiences. This paper reports on qualitative findings from in-depth interviews with 59 women in Melbourne, Australia who received a prenatal diagnosis of a significant abnormality and decided to terminate the pregnancy. Interview transcripts were coded inductively through thematic analysis. Two themes about embodiment were generated from the interviews: transitioning embodiment, and vulnerable bodies in un/comfortable spaces. Theory of pregnant embodiment was drawn on in interpreting women's narratives. Recommendations arising from the analysis include health professionals recognising, acknowledging and accommodating the transitioning embodied state of women as they consider, prepare for, undergo and recover from pregnancy termination for fetal abnormality. Further recommendations address the connections and disconnections between this transitioning embodied state and the spaces of clinics, hospitals and home.


Subject(s)
Abortion, Eugenic/psychology , Congenital Abnormalities/diagnosis , Pregnant Women/psychology , Prenatal Diagnosis , Adult , Australia , Decision Making , Female , Humans , Interviews as Topic , Pregnancy
17.
Midwifery ; 41: 54-60, 2016 Oct.
Article in English | MEDLINE | ID: mdl-27543968

ABSTRACT

OBJECTIVE: to explore experiences described by posters in Swedish virtual communities before, during and after termination of pregnancy due to a fetal anomaly. DESIGN: cross-sectional qualitative study of messages in virtual communities. The messages were purposefully selected in 2014 and analyzed with inductive qualitative manifest content analysis. SETTING: two large and active Swedish virtual communities. SAMPLE: 1623 messages from 122 posters (112 females, 1 male, and 9 did not disclose their sex), written between 2008 and 2014. The majority of the posters were females (91%) with recent experience of termination of pregnancy following different prenatal diagnoses (63% less than one year since the termination). MEASUREMENTS AND FINDINGS: before the termination, posters experienced an emotional shock and a difficult decision. During the termination, they needed compassionate care from present caregivers, experienced intense emotional and physical pain, lacked an understanding about the abortion, and expressed varied feelings about the option to view the fetus. After the termination, posters used different strategies to come to terms with and accept the decision, experienced a perinatal loss, expressed fears of recurrence, and longed for a new child. KEY CONCLUSIONS: spanning across the time before, during and after the abortion, women who terminate a pregnancy due to a fetal anomaly express considerable physical and emotional pain, with psychosocial and reproductive consequences. IMPLICATIONS FOR PRACTICE: information and preparation, including the decision whether or not to view the fetus, are important aspects to consider when caring for individuals who have decided to terminate a pregnancy for a fetal anomaly. The findings indicate a need for structures that offer support to women who suffer from fears of recurrence in future pregnancies.


Subject(s)
Abortion, Eugenic/psychology , Community-Institutional Relations/standards , Social Media/standards , Adult , Female , Fetus/abnormalities , Humans , Male , Pregnancy , Qualitative Research , Social Support , Sweden
18.
Am J Orthopsychiatry ; 86(6): 704-712, 2016.
Article in English | MEDLINE | ID: mdl-26821072

ABSTRACT

This qualitative research explores the justifications that Israeli women provided for their decision to end their late-stage pregnancies, or in other words to undergo feticide. A constructivist approach was used, as it recognizes the significance of sociocultural narratives in the construction of people's experiences. Data from in-depth interviews were analyzed using an adapted version of constant comparative analysis to identify and develop categories and thematic patterns. Three main themes were identified, which incorporated the various justifications women use in explaining their decision to undergo feticide: justifications related to the mother and her family; justifications related to the fetus; and justifications related to the views of medical professionals and society at large. The analysis process further revealed an overall conceptualization: wrongful life and a wrongful birth, which underlie the 3 themes. In the justification process, the women drew on a number of strategies to uphold their positions as moral caring human beings and good mothers, including denial of injury, appeal to higher loyalties, and defense of necessity. These justifications seem to have failed, as the women continued to struggle with the morality of their decision. Women's difficulties were grounded in contradicting social messages concerning feticide, as feticide is a relatively common yet socially unrecognized and undiscussed procedure in Israel. The findings highlight the interface between personal experience and social phenomena and call for an open social discourse on feticide. (PsycINFO Database Record


Subject(s)
Abortion, Eugenic/psychology , Fetus/abnormalities , Mothers/psychology , Adult , Decision Making , Female , Humans , Israel , Middle Aged , Pregnancy , Pregnancy Trimester, Second , Pregnancy Trimester, Third , Qualitative Research
19.
Prenat Diagn ; 36(1): 92-9, 2016 Jan.
Article in English | MEDLINE | ID: mdl-26531671

ABSTRACT

OBJECTIVES: This study aimed to explore maternal-fetal medicine specialists' experiences of conducting feticide in late termination of pregnancy. METHODS: Participants were recruited via email. Purposeful sampling resulted in ten maternal-fetal specialists. Semistructured interviews were used to examine their experiences of conducting feticide. Interviews occurred across four English National Health Service hospitals. Interpretative phenomenological analysis was used. RESULTS: An ongoing doctor-patient relationship when conducting feticide facilitated participants' self-image as clinicians rather than technicians. Coping involved rationalisation, with feticide viewed as 'part of the job'. Supportive team relationships helped keep emotional expression within control. Participants were not distressed if they felt, through relationship-based decision-making, that the feticide aligned with their values and legal interpretation. To avoid negative judgements, they disclosed selectively, only telling trusted individuals that they conducted feticides. CONCLUSIONS: Participants experienced conducting feticides as difficult but necessary, eliciting pride from the skills involved. Some noted management of personal distress. Optimal conditions were involvement in the process from the initial decision-making and team support. Providing feticides was deemed as potentially stigmatising, with selective disclosure employed. Training in managing feticides and guidance on providing optimal service conditions may decrease selectivity of disclosures and enhance staff well-being and the quality of feticide provisions. © 2015 John Wiley & Sons, Ltd.


Subject(s)
Abortion, Eugenic/psychology , Abortion, Therapeutic/psychology , Attitude of Health Personnel , Perinatology , Pregnancy Trimester, Second , Abortion, Eugenic/ethics , Abortion, Eugenic/methods , Abortion, Therapeutic/ethics , Abortion, Therapeutic/methods , England , Female , Humans , Interviews as Topic , Male , Physician-Patient Relations , Pregnancy , Qualitative Research
20.
Z Psychosom Med Psychother ; 61(4): 309-26, 2015.
Article in German | MEDLINE | ID: mdl-26646911

ABSTRACT

INTRODUCTION: Since the development of assisted reproduction technology in the 1970s, assisted reproduction has become increasingly used by couples for various reasons. Concurrently, the diagnostic possibilities regarding the health of the unborn child have been elaborated. METHODS/RESULTS: The present literature review describes and discusses the possibilities of assisted reproduction (in-vitro fertilization (IVF), intracytoplasmic sperm injection ICSI, cryopreservation, conception of children with the help of a third person) with respect to their psychosocial meaning for those affected and for the children conceived in this manner. The psychological strain pairs experience in the context of prenatal diagnostics and the resulting decisions are illustrated by a case study. CONCLUSIONS: The continued progression in the possibilities and resulting conflicts and decision- making processes in reproductive medicine confronts clinicians and psychosomatic/psychotherapeutic practitioners with many new challenges. In conclusion clinical recommendations for the psychosocial counseling of couples are given.


Subject(s)
Infertility/psychology , Infertility/therapy , Prenatal Diagnosis/psychology , Reproductive Techniques, Assisted/psychology , Stress, Psychological/complications , Abortion, Eugenic/psychology , Decision Making , Female , Humans , Infant, Newborn , Male , Oocyte Donation/psychology , Pregnancy , Pregnancy Outcome/psychology , Social Support
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