Your browser doesn't support javascript.
loading
Show: 20 | 50 | 100
Results 1 - 20 de 29
Filter
1.
Rev Neurol ; 71(1): 1-10, 2020 Jul 01.
Article in Spanish | MEDLINE | ID: mdl-32583409

ABSTRACT

INTRODUCTION: Obstetric brachial palsy is involved with affected upper limb, resulting in permanent structural and function sequelae that limit the motion articular range and reduce independence in daily activities, as well as the children participation in their natural environment. AIM: To describe the physiotherapy treatments currently used to increase the affected upper limb functionality in children from 0 to 10 years diagnosed with obstetric brachial palsy. PATIENTS AND METHODS: A bibliographic search of published studies between 2009 and 2018 was carried out in the PubMed, PEDro, ScienceDirect and The Cochrane Library databases. RESULTS: After applying the inclusion/exclusion criteria, ten studies were obtained with favorable results for the affected upper limb functionality and bone mineralization density, regardless of the technique of choice used during the intervention. The used physiotherapy programs in the different studies such as Constraint Induced movement therapy, kinesiotape, electrotherapy, virtual reality and use of splints or orthotics were analyzed. CONCLUSION: All the described techniques suggest favorable results for the affected upper limb functionality in obstetric brachial palsy from 0 to 10 years.


TITLE: Fisioterapia aplicada en la extremidad superior a niños de 0 a 10 años con parálisis braquial obstétrica: revisión sistemática.Introducción. La parálisis braquial obstétrica cursa con afectación del miembro superior y da lugar a secuelas estructurales y de la función permanentes que limitan el rango articular de movimiento y reducen la independencia en las actividades cotidianas, así como la participación del niño dentro de su entorno natural. Objetivo. Describir los tratamientos de fisioterapia empleados en la actualidad para incrementar la funcionalidad de la extremidad superior afectada en niños de 0 a 10 años diagnosticados de parálisis braquial obstétrica. Pacientes y métodos. Se realizó una búsqueda bibliográfica de los trabajos publicados entre 2009 y 2018 en las bases de datos PubMed, PEDro, ScienceDirect y Cochrane Library. Resultados. Tras aplicar los criterios de inclusión/exclusión, se obtuvieron diez estudios con resultados favorables para la funcionalidad de la extremidad superior afectada y la densidad de mineralización ósea, independientemente de la técnica de elección utilizada durante la intervención. Se analizaron los programas de fisioterapia empleados en los diferentes estudios, como la terapia de movimiento inducido por restricción, el kinesiotape, la electroterapia, la realidad virtual y el uso de férulas u ortesis. Conclusión. Todas las técnicas descritas sugieren resultados favorables para la funcionalidad del miembro superior en niños de 0 a 10 años con parálisis braquial obstétrica.


Subject(s)
Brachial Plexus Neuropathies/therapy , Paralysis, Obstetric/therapy , Physical Therapy Modalities , Arm/physiopathology , Bone Density , Brachial Plexus Neuropathies/congenital , Brachial Plexus Neuropathies/psychology , Brachial Plexus Neuropathies/rehabilitation , Child , Child, Preschool , Female , Humans , Infant , Infant, Newborn , Male , Paralysis, Obstetric/psychology , Paralysis, Obstetric/rehabilitation , Quality of Life , Secondary Prevention
2.
J Hand Ther ; 33(4): 593-597, 2020.
Article in English | MEDLINE | ID: mdl-30975622

ABSTRACT

STUDY DESIGN: This is a qualitative case study. INTRODUCTION: Considering individual patient's perception is an important aspect of rehabilitation according to International Classification of Functioning model (Geneva, 2002). PURPOSE OF STUDY: The report highlights the importance of patient education and considering individual's perception to achieve rehabilitation outcomes. METHOD: A written informed consent for case report was given by a 24-year-old male, a mass media graduate student diagnosed with global brachial plexus injury. Detailed evaluation by a senior therapist was conducted in a tertiary government hospital using the following tools: RESULT: Patient education and rehabilitation led to signs of clinical improvement at the end of 5 months. In spite of this clinical signs of recovery, patient showed lack of satisfaction in terms of his appearance and body image. DISCUSSION: As employment and social life determined our patient's satisfaction level, a negative impact was seen on functional recovery. CONCLUSION: Considering an individual's perception regarding the condition in terms of their contextual and personal factors is an important aspect of rehabilitation according to International Classification of Functioning model (Geneva, 2002).


Subject(s)
Body Image , Brachial Plexus Neuropathies/psychology , Brachial Plexus Neuropathies/rehabilitation , Brachial Plexus/injuries , Patient Satisfaction , Disability Evaluation , Humans , Male , Young Adult
3.
J Hand Surg Am ; 43(10): 950.e1-950.e6, 2018 10.
Article in English | MEDLINE | ID: mdl-29678427

ABSTRACT

PURPOSE: There is a high incidence of posttraumatic stress disorder (PTSD), depression, suicide risk, and psychological distress after orthopedic trauma and hand and upper-extremity injury. Although patients with traumatic adult brachial plexus injury are particularly vulnerable to psychologic distress, minimal clinical data exist about this cohort of patients. In this study, we sought to discover the prevalence of depression, PTSD, suicidal ideation, and substance abuse. METHODS: Between February, 2013 and July, 2014, during scheduled preoperative and/or postoperative appointments, the social worker at a metropolitan brachial plexus center conducted psychosocial assessments and questionnaire assessments of 21 patients evaluating for PTSD, depression, and substance use using 3 validated scales: PTSD Checklist-Specific, Patient Health Questionnaire-8, and National Institute on Drug Abuse Quick Screen. RESULTS: Brachial plexus injury strongly affected self-reported psychological well-being; 7 of 21 (33.3%) divulged suicidal ideation. Diagnosticand Statistical Manual of Mental Disorders, Fifth Edition (DSM-V) diagnosis was supported by PTSD Checklist-Specific and Patient Health Questionnaire-8 results: 4 of 21 (19.0%) met criteria for PTSD and 4 of 21 (19.0%) exhibited clinical depression. Patients reported no changes in social alcohol and tobacco use or substance abuse. CONCLUSIONS: Brachial plexus injury significantly influences psychological well-being and daily functioning. As a result, patients experience a high prevalence of PTSD, depression, and suicidal ideation. Patients with brachial plexus injury have a high prevalence of psychological concerns and challenges that require continued attention throughout treatment. TYPE OF STUDY/LEVEL OF EVIDENCE: Prognostic IV.


Subject(s)
Brachial Plexus Neuropathies/psychology , Brachial Plexus/injuries , Depression/diagnosis , Stress Disorders, Post-Traumatic/diagnosis , Suicidal Ideation , Adult , Brachial Plexus Neuropathies/etiology , Depression/etiology , Female , Humans , Male , Retrospective Studies , Stress Disorders, Post-Traumatic/etiology , Surveys and Questionnaires
4.
Disabil Rehabil ; 40(26): 3147-3155, 2018 12.
Article in English | MEDLINE | ID: mdl-28944700

ABSTRACT

PURPOSE: To examine the impact of neonatal brachial plexus palsy (NBPP) on societal participation of adolescents and adults. METHODS: This cross-sectional study was conducted among patients with NBPP, aged ≥16 years, who had visited our NBPP clinic. Patients completed questions on the influence of NBPP on their choices regarding education/work and their work-performance, the Impact on Participation/Autonomy questionnaire and the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-P). In addition, health-related quality of life (HRQoL) was assessed. RESULTS: Seventy-five patients participated (median age 20, inter quartile range 17-27). Twenty were full-time students, 28 students with a job, 21 employed, two unemployed, and four work-disabled. Sixty-six patients had had a job at some stage. Patients' overall HRQoL was comparable to the general population. 27/75 patients reported that NBPP had affected their choices regarding education and 26/75 those regarding work. 33/66 reported impact on their work performance. On the Impact on Participation/Autonomy questionnaire, 80% (49/61) reported restrictions in the work-and-education domain, 74% in social-relations and 67% in autonomy-outdoors. 37/61 reported participation restrictions on the USER-P. CONCLUSIONS: Although their overall HRQoL was not impaired, a substantial proportion of adolescent/adult patients reported that NBPP had an impact on choices regarding education and profession, as well as on work-performance. Restrictions in participation, especially in work and education were also reported. Guiding patients in making choices on education and work at an early stage and providing tailored physical as well as psychosocial care may prevent or address restrictions, which may improve participation. Implications for Rehabilitation Adolescent and adult patients with neonatal brachial plexus palsy perceive restrictions in societal participation, especially regarding the work-and-education domain. All patients with neonatal brachial plexus palsy may perceive restrictions in societal participation regardless of lesion severity, treatment history and side of the lesion. Adolescents and adults with neonatal brachial plexus palsy report that their choices regarding education and work, as well as their work-performance are influenced by their neonatal brachial plexus palsy. Patients with neonatal brachial plexus palsy should be followed throughout their life in order to provide them with appropriate information and treatment when health- or participation-related issues arise. Rehabilitation treatment is the best option to address all of the aforementioned issues, as surgical options in adolescents and adults are limited.


Subject(s)
Brachial Plexus Neuropathies , Career Choice , Disabled Persons , Neonatal Brachial Plexus Palsy/complications , Patient Participation , Quality of Life , Adolescent , Adult , Brachial Plexus Neuropathies/etiology , Brachial Plexus Neuropathies/psychology , Brachial Plexus Neuropathies/rehabilitation , Cross-Sectional Studies , Disabled Persons/psychology , Disabled Persons/rehabilitation , Female , Humans , Male , Netherlands , Patient Participation/psychology , Patient Participation/statistics & numerical data , Surveys and Questionnaires , Work Performance
5.
J Pediatr Orthop ; 37(6): e364-e368, 2017 Sep.
Article in English | MEDLINE | ID: mdl-28719549

ABSTRACT

PURPOSE: The prevalence of neonatal brachial plexus palsy (NBPP) has been increasing since the early 1980s. No known studies have examined long-term psychological health and quality of life (QOL) in young adults. The purpose of this study was to investigate the psychosocial and intellectual aspects of NBPP during adolescence into young adulthood. METHODS: A total of 31 patients were enrolled in the adolescent group (16 to 18 y) and 25 in the young adult group (23 to 28 y). Clinical assessment included functional ability, range of motion and strength, weight and body mass index, and education level. Patients were administered measures of psychiatric symptomatology, self-concept, QOL, and cognitive function. RESULTS: Narakas injury level for the adolescent group included 11 level I, 6 level II, 8 level III, and 6 level IV. The young adult group had 10 level I, 2 level II, 9 level III, and 4 level IV. The degree of physical impairment determined by the Modified Mallet Classification showed persistent impairment in both groups. The average DASH scores were higher than the normal range for the adolescent and young adult groups. Forty-five percent of the adolescents and 68% of the young adults were either overweight or obese. All received high school diplomas with 20 of the young adults pursuing higher education.Scores on measures of psychiatric symptomatology and self-concept showed that both groups fell within the normal range. QOL for both groups was also within the normal range. All participants scored average to above average on the cognitive assessment. All measurements were patient reported. CONCLUSIONS: Patients with NBPP can adapt and participate in most activities. This patient sample demonstrated persistent functional limitations and a higher rate of comorbid obesity. However, these patients function psychologically and cognitively within the normal range and many have pursued higher education. LEVEL OF EVIDENCE: Level IV.


Subject(s)
Adaptation, Physiological , Adaptation, Psychological , Brachial Plexus Neuropathies/psychology , Quality of Life , Activities of Daily Living , Adolescent , Adult , Birth Injuries/psychology , Brachial Plexus/injuries , Brachial Plexus Neuropathies/physiopathology , Female , Follow-Up Studies , Humans , Male , Range of Motion, Articular , Young Adult
6.
PM R ; 9(4): 383-391, 2017 Apr.
Article in English | MEDLINE | ID: mdl-27519824

ABSTRACT

BACKGROUND: Currently, no published, validated patient-reported outcome (PRO) measures of health-related quality of life (HRQOL) exist for use with neonatal brachial plexus palsy (NBPP). NBPP is a debilitating condition that occurs during the perinatal period, resulting in paralysis/paresis and loss of sensation in the affected arm. Commonly used NBPP measures are not comprehensive and do not fully account for clinically meaningful changes in function or progression of the disorder. OBJECTIVE: To evaluate important components of HRQOL for children with NBPP and identify where new PRO measures are needed. DESIGN: Eleven focus groups comprising children with NBPP (4), family members (6), and professional providers (1) to assess HRQOL. SETTING: Brachial plexus clinic. PARTICIPANTS: Children with NBPP, their parents, and professional providers. INCLUSION CRITERIA: Children 7-17 years old with NBPP; parents/caregivers at least 18 years of age; professionals with ≥2 years' experience providing NBPP clinical care; ability to read and speak English fluently. METHODS: Focus group sessions were recorded, transcribed verbatim, and deidentified. Qualitative frequency analysis identified different aspects of HRQOL relevant to NBPP. This analysis expands on the grounded-theory approach to qualitative analysis, including development of a domain framework, open and axial coding, selective coding, and descriptive analysis. The resulting HRQOL domain framework (and frequency analysis) was then compared to the domain framework for existing PRO measures (PROMIS and Neuro-QoL) to identify components of HRQOL where new PRO measures are needed for NBPP. MAIN OUTCOME MEASURES: Not applicable. RESULTS: Although many physical, social, and emotional health domains were captured by existing PRO measures, some significant NBPP-specific topics emerged from qualitative analysis-functionality, sensory, physical appearance, arm/hand compensation and preference, explaining functionality/appearance to others, and self-esteem and body image concerns. CONCLUSIONS: Development of sensitive and specific measures capturing arm/hand function and body image would improve the clinical care of patients with NBPP. LEVEL OF EVIDENCE: Not applicable.


Subject(s)
Body Image , Brachial Plexus Neuropathies/diagnosis , Brachial Plexus Neuropathies/rehabilitation , Physical Therapy Modalities , Quality of Life , Adaptation, Physiological , Adaptation, Psychological , Adolescent , Ambulatory Care/methods , Brachial Plexus Neuropathies/psychology , Child , Female , Focus Groups , Follow-Up Studies , Humans , Male , Patient Care Team/organization & administration , Qualitative Research , Recovery of Function , Self Concept , Severity of Illness Index , Sickness Impact Profile , Treatment Outcome
7.
Pediatr Neurol ; 62: 34-42, 2016 09.
Article in English | MEDLINE | ID: mdl-27473649

ABSTRACT

BACKGROUND: To investigate whether parents perceive impact of neonatal brachial plexus palsy on family and quality of life and upper extremity functioning in children less than 2.5 years. METHODS: This cross-sectional study used the PedsQL Family Impact Module (36 items/one total/four scales/scores 0 to 100), TNO-AZL (Dutch Organisation of Applied Natural Science and Academic Hospital Leiden) Preschool Children Quality of Life (43 items/12 scales/scores 0 to 100) and 21 upper extremity functioning questions. Associations between neonatal brachial plexus palsy/patient characteristics and family impact, perceived quality of life, and upper extremity functioning were investigated using regression analysis. RESULTS: Parents of 59 children (median age, 18 months) participated, 49 with C5-C6/C5-C7 lesions. Median Family Impact Module and TNO-AZL Preschool Children Quality of Life scores were 81.3 to 100.0/100.0 and 78.6 to 100.0/100.0. TNO-AZL Preschool Children Quality of Life scores did not differ significantly to healthy references except for stomach, skin, communication, and motor functioning problems. Parents reported around three upper extremity functioning problems. Greater lesion extent, lower age, still being in follow-up, and right-sided lesions were associated with greater family impact (P < 0.01 to P < 0.1). No clinically relevant associations were found for perceived quality of life. Greater lesion extent and nerve surgery history were associated with more upper extremity functioning problems (P < 0.01). Problems were associated with parental worrying (P < 0.05). CONCLUSIONS: Parents perceive having a child with neonatal brachial plexus palsy as impacting on their family depending on the side and severity of the lesion, treatment history, still being in follow-up, and age. They perceive the child's quality of life as relatively normal and not significantly different to healthy peers. However, parents noticed upper extremity functioning problems which increased parental worrying. Health care specialists should take these findings into account to better inform or counsel parents in an early stage during treatment.


Subject(s)
Brachial Plexus Neuropathies/physiopathology , Brachial Plexus Neuropathies/psychology , Family/psychology , Quality of Life , Upper Extremity/physiopathology , Brachial Plexus Neuropathies/therapy , Child, Preschool , Cross-Sectional Studies , Female , Humans , Infant , Infant, Newborn , Male
8.
Injury ; 47(8): 1719-24, 2016 Aug.
Article in English | MEDLINE | ID: mdl-27287738

ABSTRACT

UNLABELLED: Neuropathic pain in patients with total brachial plexus avulsion has always been a sophisticated problem in clinical practice. OBJECTIVES: For further researches on objective diagnosis, alleviation or even cure of neuropathic pain, we need to conclude the basic clinical features including pain intensity, distribution, type and possible risk factors. METHODS: Thirty cases of patients with total brachial plexus avulsion were included and their baseline information was collected. Pain was evaluated by Present Pain Index using a visual analog scale; Douleur Neuropathique 4 was used for screening neuropathic pain. For more detailed pain description, the Neuropathic Pain Symptoms Inventory questionnaire and a picture showing the exact pain district were both fulfilled by all the eligible participants. The relationship between neuropathic pain and basic information, injury conditions, accompanied conditions and quality of life was tested. RESULTS: All the participants were male in both groups. The neuropathic pain group contained 22 patients (73.33%) with the mean age of 30.18±9.47; while 29.00±7.95 in the other group. Patients with neuropathic pain presented variously in pain degree, location, type and time phase, according to the results of the Neuropathic Pain Symptoms Inventory questionnaire. Nevertheless, most pain distributed on the region of hand. Among several related factors, alcohol abuse may be possible risk factors of neuropathic pain (p=0.03). Quality of life was significantly affected by pain (p<0.01). CONCLUSION: Neuropathic pain in patients with total brachial avulsion was characterized with heterogeneity in pain distribution, intensity, type and also time phase. Bad life habits might be risk factors associated with neuropathic pain. Neuropathic pain might affect quality of life of the patients with total brachial plexus avulsion remarkably.


Subject(s)
Brachial Plexus Neuropathies/complications , Brachial Plexus/injuries , Neuralgia/complications , Neuralgia/physiopathology , Adult , Brachial Plexus Neuropathies/physiopathology , Brachial Plexus Neuropathies/psychology , China/epidemiology , Disability Evaluation , Humans , Male , Neuralgia/psychology , Pain Measurement , Quality of Life , Visual Analog Scale
9.
Int J Orthop Trauma Nurs ; 22: 29-35, 2016 Aug.
Article in English | MEDLINE | ID: mdl-27091305

ABSTRACT

There is limited qualitative research available that explores the impact of a traumatic brachial plexus injury on patients and their quality of life experiences. This paper builds upon previous work on this subject by this author. Patients were selected from those who were on the database for the Scottish National Brachial Plexus Injury Service between 2011 and 2013. The World Health Organization (WHO) Quality of Life (QoL) - BREF questionnaire was used and 47 questionnaires were distributed with 22 returned. Findings included patients' ratings of their quality of life, physical and psychological health along with their perceived satisfaction with social relationships.


Subject(s)
Brachial Plexus Neuropathies/psychology , Brachial Plexus/injuries , Disabled Persons/psychology , Patient Satisfaction , Adaptation, Psychological , Brachial Plexus Neuropathies/etiology , Brachial Plexus Neuropathies/rehabilitation , Female , Humans , Male , Quality of Life , Surveys and Questionnaires
10.
Neurosurgery ; 78(6): 844-50, 2016 Jun.
Article in English | MEDLINE | ID: mdl-26516821

ABSTRACT

BACKGROUND: Depression has been associated with poor outcomes in neurosurgical patients, including increased pain, poorer functional recovery, delayed return to work, and decreased patient satisfaction. No reports exist regarding an association of psychiatric diagnoses with outcomes after brachial plexus reconstruction. As outcomes and patient satisfaction become increasingly important to payers and physician reimbursement, assessing modifiable preoperative risk factors for their association with poor outcome and patient satisfaction is imperative. OBJECTIVE: To analyze patients undergoing brachial plexus reconstruction to assess the relationship of depression/anxiety with functional outcome. METHODS: Data were collected retrospectively on all patients who underwent brachial plexus reconstruction to restore elbow flexion between 2005 and 2013. Elbow flexion, graded via the Medical Research Council scale, was assessed at latest follow-up. Multiple variables, including the presence of Axis I psychiatric diagnoses, were assessed for their association with the dichotomous outcome of Medical Research Council scale score ≥3 (antigravity) vs <3 elbow flexion. Standard statistical methods were used. RESULTS: Thirty-seven patients met inclusion criteria. The median postsurgical follow-up time was 21 months. Operations included neurolysis (n = 3), nerve graft repair (n = 6), and nerve transfer (n = 28). Depression was present in 10 of 37 patients (27%). Of variables tested, only depression was associated with poor elbow flexion outcome (odds ratio: 6.038; P = .04). CONCLUSION: Preoperative depression is common after brachial plexus injury. The presence of depression is associated with reduced elbow flexion recovery after reconstruction. Our data suggest assessment and treatment of preoperative mental health is important in designing a comprehensive postoperative management plan to optimize outcomes and patient satisfaction. ABBREVIATIONS: MRC, Medical Research CouncilTBI, traumatic brain injury.


Subject(s)
Brachial Plexus Neuropathies/psychology , Brachial Plexus Neuropathies/surgery , Depression/etiology , Neurosurgical Procedures , Recovery of Function , Adult , Anxiety/etiology , Brachial Plexus/injuries , Brachial Plexus/surgery , Elbow Joint/surgery , Female , Humans , Male , Middle Aged , Neurosurgical Procedures/methods , Neurosurgical Procedures/psychology , Postoperative Period , Range of Motion, Articular , Plastic Surgery Procedures/psychology , Recovery of Function/physiology , Retrospective Studies , Treatment Outcome , Young Adult
11.
Int J Orthop Trauma Nurs ; 19(1): 15-23, 2015 Feb.
Article in English | MEDLINE | ID: mdl-25787813

ABSTRACT

This paper presents a case study that demonstrates how collaborative working between professionals enhanced the holistic care for a patient following a traumatic brachial plexus injury. The paper will describe the patient's journey of care from initial presentation, diagnosis and assessment, acute care provision, discharge & rehabilitation to ongoing supportive counselling. The care encompasses input from both a nursing and occupational therapy perspective.


Subject(s)
Brachial Plexus Neuropathies/psychology , Brachial Plexus Neuropathies/rehabilitation , Brachial Plexus/injuries , Occupational Therapy/methods , Accidents, Traffic , Activities of Daily Living , Brachial Plexus Neuropathies/nursing , Female , Humans , Interprofessional Relations , Middle Aged , Treatment Outcome
12.
J Clin Psychol Med Settings ; 21(3): 244-52, 2014 Sep.
Article in English | MEDLINE | ID: mdl-25038749

ABSTRACT

This study aimed to identify risk and resistance factors associated with the psychological adjustment of fathers of children with obstetrical brachial plexus injuries (OBPI). Participants were 34 fathers of children with OBPI recruited from an Australian OBPI clinic. Measures completed were OBPI severity, disability related stress, family functioning and social support. Together the risk and resistance factors of severity and family functioning accounted for 28% of the total variance in paternal psychological adjustment. Family functioning explained 12% of the variance in psychological adjustment in addition to that explained by severity. These findings highlight the importance of considering paternal perceptions of OBPI severity and family functioning when providing health care to families of children with OBPI.


Subject(s)
Adaptation, Psychological/physiology , Attitude to Health , Birth Injuries/psychology , Brachial Plexus Neuropathies/psychology , Delivery, Obstetric/adverse effects , Fathers/psychology , Adolescent , Adult , Australia , Brachial Plexus/injuries , Child , Child, Preschool , Father-Child Relations , Female , Humans , Infant , Male , Middle Aged , Risk Factors , Severity of Illness Index , Social Support , Surveys and Questionnaires , Young Adult
13.
Dev Med Child Neurol ; 55(12): 1136-42, 2013 Dec.
Article in English | MEDLINE | ID: mdl-24127685

ABSTRACT

AIMS: The aims of this study were to explore and understand the perspectives of children with an obstetric brachial plexus injury (OBPI) regarding functioning and health, and to create an overview of problems and difficulties that patients encounter in daily life. METHOD: We conducted a focus group study with 48 children (25 male, 23 female), aged 8 to 18 years, with an OBPI. Eleven open-ended questions regarding problems or difficulties in daily life were asked in group sessions with 4 to 7 children within the same age range. These group sessions were tape-recorded and transcribed verbatim. All problems and difficulties mentioned in each focus group were linked to corresponding categories of the International Classification of Functioning, Disability and Health - Children & Youth Version (ICF-CY). RESULTS: Eight focus groups were conducted. A total of 143 unique ICF-CY categories were identified. Of these categories, 61 (43%) were related to the ICF-CY component 'activities and participation', 31 (22%) were related to 'body functions', 29 (20%) were related to 'environmental factors', and 22 (15%) were related to 'body structures'. INTERPRETATION: This study shows that children with OBPI experience difficulties in all areas of functioning, as well as in both environmental and personal factors.


Subject(s)
Activities of Daily Living , Brachial Plexus Neuropathies/physiopathology , Brachial Plexus Neuropathies/psychology , Disability Evaluation , Social Behavior , Adolescent , Age Factors , Child , Disabled Children , Female , Focus Groups , Humans , International Classification of Diseases , Male , Qualitative Research
14.
Dev Med Child Neurol ; 55(12): 1075-88, 2013 Dec.
Article in English | MEDLINE | ID: mdl-23808952

ABSTRACT

AIM: The aim of this review was to evaluate the psychometric properties of outcome measures used to quantify upper limb function in children and adolescents with brachial plexus birth palsy (BPBP). METHOD: Eleven electronic databases were searched to identify studies on the effects of conservative management to improve upper limb function in young people with BPBP. Outcome measures used in these studies were extracted and used in a subsequent search to identify studies that evaluated the psychometric properties of these measures. The methodological quality of these studies was rated using a standardized critical appraisal tool. RESULTS: Thirty-three outcome measures and 12 psychometric studies were identified. Nine outcome measures had some psychometric evidence, which was variable in quality. The outcome measures which seem to have the most robust psychometric properties include the Active Movement Scale, Assisting Hand Assessment, Pediatric Evaluation of Disability Index, and the Pediatric Outcomes Data Collection Instrument. INTERPRETATION: Further research is required to determine the psychometric properties of outcome measures used for children and adolescents with BPBP. Caution is required when interpreting the results of commonly used outcome measures in this population owing to their relatively unknown psychometric properties.


Subject(s)
Birth Injuries/diagnosis , Birth Injuries/psychology , Brachial Plexus Neuropathies/diagnosis , Brachial Plexus Neuropathies/psychology , Psychometrics/methods , Adolescent , Birth Injuries/complications , Brachial Plexus Neuropathies/complications , Child , Databases, Factual/statistics & numerical data , Humans , Outcome Assessment, Health Care
15.
Qual Life Res ; 22(9): 2617-24, 2013 Nov.
Article in English | MEDLINE | ID: mdl-23423758

ABSTRACT

PURPOSE: We aimed to determine the health-related quality of life (HRQL) of children with obstetrical brachial plexus palsy (OBPP) and examine its association with gender, age, injury level, injured side, and functional status. METHODS: We conducted a controlled, cross-sectional study including 70 children with OBPP. Fifty-two age-matched children without any health problems were included as controls. HRQL was assessed with the short parent form of the Child Health Questionnaire (CHQ-PF28), and functional status was measured using the active movement scale (AMS). RESULTS: Children with OBPP scored significantly lower on most of the CHQ-PF28 subscales than the healthy controls (p < 0.05). Gender or age did not significantly affect scores in any domain (p > 0.05). CHQ-PF28 scores showed that there were significant differences according to the side of injury between groups, especially in the "parental impact-time" and "family activities" domains (p < 0.05). There were no statistically significant differences in CHQ-PF28 scores between groups that had an upper trunk involvement and total injury groups (p > 0.05), except in the "bodily pain/discomfort" domain (p < 0.05). The AMS score was weakly to moderately correlated with the "mental health" and "parental impact-time" and "general health perceptions" domains. CONCLUSION: The study demonstrated that children with OBPP have a poorer HRQL than their healthy peers. Side of injury, limitations in shoulder flexion, shoulder internal rotation, elbow flexion, elbow extension, and forearm supination were important factors affecting the HRQL of the children. The health concepts and factors discussed in the study can guide clinicians aiming to improve QoL of children with OBPP.


Subject(s)
Brachial Plexus Neuropathies/physiopathology , Health Status , Quality of Life , Adolescent , Birth Injuries , Brachial Plexus Neuropathies/complications , Brachial Plexus Neuropathies/psychology , Case-Control Studies , Child , Child Welfare , Cross-Sectional Studies , Female , Humans , Male , Mental Health , Pain/etiology , Parent-Child Relations , Surveys and Questionnaires
16.
J Hand Surg Am ; 38(12): 2387-2397.e2, 2013 Dec.
Article in English | MEDLINE | ID: mdl-24416766

ABSTRACT

PURPOSE: To explore the quality of life (QOL) and patient expectations among adolescents with neonatal brachial plexus palsy (NBPP)and their parents using qualitative and quantitative approaches. METHODS: A total of 18 adolescents (10-17 y) with residual NBPP impairment and their parents under went separate 1-hour tape-recorded semistructured interviews. We also collected quantitative physical examination measures and patient-rated outcome scores, specifically the Pediatric Outcomes Data Collection Instrument and the Child Health Questionnaire, to quantify the severity of each adolescent's functional deficit and increase our understanding of QOL and patient expectations. RESULTS: Through qualitative analysis, we identified several patient- and system-dependent factors contributing to QOL, such as social impact and peer acceptance, emotional adjustment,aesthetic concerns and body image, functional limitations, physical and occupational therapy, finances, pain, and family dynamics. Despite residual impairment, most adolescents and their parents reported a good overall QOL according to quantitative outcome measures. Our study results showed that functional and aesthetic factors were responsible for most observed differences in QOL among NBPP adolescents. We also found that the Pediatric Outcomes Data Collection Instrument might be more sensitive than the Child Health Questionnaire in assessing patient expectations and QOL among this patient population. CONCLUSIONS: Understanding patient expectations and QOL in NBPP adolescents is essential for medical decision making and advancing care. Physical examination measurements alone may not be sufficient for measuring outcome, and knowledge regarding environmental factors and family dynamics is important for clinicians to consider when counseling families of children with NBPP and improving overall outcome. TYPE OF STUDY/LEVEL OF EVIDENCE: Prognostic IV.


Subject(s)
Birth Injuries/psychology , Brachial Plexus Neuropathies/psychology , Patient Preference/psychology , Quality of Life , Adolescent , Birth Injuries/diagnosis , Birth Injuries/therapy , Brachial Plexus Neuropathies/diagnosis , Brachial Plexus Neuropathies/therapy , Child , Comprehension , Disability Evaluation , Evaluation Studies as Topic , Female , Humans , Infant, Newborn , Interviews as Topic , Pilot Projects
17.
MCN Am J Matern Child Nurs ; 38(1): 34-40, 2013.
Article in English | MEDLINE | ID: mdl-23232777

ABSTRACT

PURPOSE: Shoulder dystocia is one of the most terrifying of obstetric emergencies. In this secondary analysis of two qualitative studies, the experiences of shoulder dystocia are compared and contrasted from two perspectives: the mothers and the labor and delivery nurses. METHOD: In the first study mothers' experiences of shoulder dystocia and caring for their children with obstetric brachial plexus injuries were explored. The second study explored secondary traumatic stress in labor and delivery nurses due to exposure to traumatic births. Krippendorff's content analysis technique of clustering was used to identify data that could be grouped together into themes. RESULTS: It was striking how similar the perspectives of mothers and their nurses were regarding a shoulder dystocia birth. Four themes emerged from the content analysis of these two data sets: (1) in the midst of the obstetric nightmare; (2) reeling from the trauma that just transpired; (3) enduring heartbreak: the heavy toll on mothers; and (4) haunted by memories: the heavy toll on nurses. CLINICAL IMPLICATIONS: Providing emotional support to the mother during shoulder dystocia births and afterward in the postpartum period has been acknowledged. What now needs to be added to best practices for shoulder dystocia are interventions for the nurses themselves. Support for labor and delivery nurses who are involved in this obstetric nightmare is critical.


Subject(s)
Dystocia/psychology , Nurses/psychology , Social Support , Stress, Psychological , Birth Injuries/nursing , Birth Injuries/psychology , Brachial Plexus Neuropathies/nursing , Brachial Plexus Neuropathies/psychology , Dystocia/nursing , Female , Humans , Obstetric Nursing , Pregnancy
18.
J Hand Surg Am ; 38(1): 137-42, 2013 Jan.
Article in English | MEDLINE | ID: mdl-23218557

ABSTRACT

PURPOSE: To examine emotional and behavioral characteristics of children with obstetrical brachial plexus palsy (OBPP), psychological distress of their mothers and their family functioning, and compare them with healthy peers. METHODS: Participants included 42 children with OBPP (22 boys, 20 girls; age range, 4-16 y; mean, 7 y 0 mo; SD, 3 y 3 mo) and 43 healthy controls (24 boys, 19 girls; age range, 4-15 y; mean, 8 y 0 m; SD, 3 y 0 mo). Childhood Behavior Checklist, Symptom Checklist 90, and Family Assessment Device were filled in by the mothers. RESULTS: Participants with OBPP displayed higher problem scores than the comparison children in most of the domains, including internalizing and externalizing problems. Maternal distress was higher in the OBPP group, and few differences in family functioning were noted. Maternal distress and having the diagnosis of OBPP were the strongest predictors of children's total problem scores and explained 26% of the variance when the effect of age, sex, and family functioning were controlled. CONCLUSIONS: Children with OBPP and their mothers are at increased risk for a variety of psychological problems. Professionals should be aware of these children's and their caregivers' psychological adjustment and refer them for further psychological support when needed. TYPE OF STUDY/LEVEL OF EVIDENCE: Prognostic II.


Subject(s)
Adaptation, Psychological , Birth Injuries/psychology , Brachial Plexus Neuropathies/psychology , Family Health , Mothers/psychology , Adolescent , Birth Injuries/complications , Child , Child, Preschool , Female , Humans , Male , Surveys and Questionnaires
19.
Fam Syst Health ; 29(3): 206-14, 2011 Sep.
Article in English | MEDLINE | ID: mdl-21842995

ABSTRACT

Children with obstetrical brachial plexus palsy may have chronic physical impairment in their affected upper extremity. Affected children and their families may benefit from psychosocial interventions including therapeutic relationships with health professionals, meeting other families living with obstetrical brachial plexus palsy, support groups, and social work. One method of addressing psychosocial needs is through a support and education day. The purpose of this quality improvement project is to evaluate parental perceptions of a support and education day called the "Brachial Plexus Family Day." Families of children with obstetrical brachial plexus palsy who attended the Brachial Plexus Family Day completed a questionnaire to evaluate the different programs offered during the day. The families also ranked the importance of different psychosocial supports offered in the clinic. Sixty-three out of 69 families completed the questionnaire. Each program of the Brachial Plexus Family Day was rated as good or excellent by the respondents. Ninety-seven percent of respondents rated meeting other families and children with obstetrical brachial plexus palsy as helpful supports. Attending a Brachial Plexus Family day event (86%), followed by connecting with a doctor (60%), and physical or occupational therapist (59%) were the highest ranked supports reported by the families. The parents and caregivers that attended the Brachial Plexus Family Day rated the program highly. This group also valued the opportunity to connect with other families and children affected with the same condition.


Subject(s)
Brachial Plexus Neuropathies/psychology , Brachial Plexus/injuries , Paralysis, Obstetric , Parents/psychology , Social Support , Adolescent , Brachial Plexus Neuropathies/etiology , Brachial Plexus Neuropathies/physiopathology , Child , Child, Preschool , Family Therapy/methods , Female , Humans , Infant , Infant, Newborn , Male , Parents/education , Professional-Family Relations , Program Evaluation , Quality Improvement , Surveys and Questionnaires
20.
Eur J Obstet Gynecol Reprod Biol ; 157(1): 43-7, 2011 Jul.
Article in English | MEDLINE | ID: mdl-21470762

ABSTRACT

OBJECTIVE: To evaluate depression, anxiety and burnout in mothers of infants with brachial plexus injury and assess the effects of the severity of injury on the mothers' mental health, as the literature provides no information on this topic. STUDY DESIGN: The study was based on eighteen mothers without psychiatric antecedents who had infants with perinatal brachial plexus paralysis (PBPP). The severity of the brachial plexus injury was classified according to the Narakas classification system. The recovery rate following conservative treatment was classified according to the Modified Mallet Classification System. The Maslach burnout inventory, Beck depression inventory, and Beck anxiety inventory were administered to the mothers. RESULTS: The mothers whose infants were in the third Narakas group were mildly depressed and the depression scores of the mothers in Narakas groups II and III were regularly increased. Mothers in the first and second groups reported a minimal level of anxiety scores. There was no statistically significant difference between the depression, anxiety, emotional exhaustion, depersonalization, and personal accomplishment scores of the mothers in relation to the severity of the injury in the child (p=0.218, p=0.078, p=0.149, p=0.138, and p=0.246). In addition, the depression and anxiety levels of the mothers whose infants recovered fully or partially showed a statistically significant decrease when compared to the mothers of infants with no recovery (p=0.003, p=0.015). There was, however, no statistically significant difference between the emotional exhaustion, depersonalization, and personal accomplishment scores of the mothers of infants with full recovery, partial recovery and no recovery (p=0.591, p=0591, p=0.062). CONCLUSION: Infants' disability may cause psychological distress in their mothers. When brachial plexus injury is predicted in infants, more mothers may become depressed.


Subject(s)
Anxiety/epidemiology , Birth Injuries/rehabilitation , Brachial Plexus Neuropathies/rehabilitation , Brachial Plexus/injuries , Depression/epidemiology , Mothers/psychology , Stress, Psychological/epidemiology , Adult , Birth Injuries/psychology , Brachial Plexus Neuropathies/etiology , Brachial Plexus Neuropathies/psychology , Child Rearing/psychology , Disabled Children/psychology , Disabled Children/rehabilitation , Female , Humans , Incidence , Infant, Newborn , Male , Pilot Projects , Prospective Studies , Psychiatric Status Rating Scales , Severity of Illness Index , Turkey/epidemiology
SELECTION OF CITATIONS
SEARCH DETAIL
...