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1.
JAMA Netw Open ; 4(5): e2111600, 2021 05 03.
Article in English | MEDLINE | ID: mdl-34042993

ABSTRACT

Importance: Outpatient postpartum recovery is an underexplored area of obstetrics. There is currently no consensus regarding which patient-reported outcome measure (PROM) clinicians and researchers should use to evaluate postpartum recovery. Objective: To evaluate PROMs of outpatient postpartum recovery using Consensus-Based Standards for the Selection of Health Measurement Instruments (COSMIN) guidelines. Evidence Review: An initial literature search performed in July 2019 identified postpartum recovery PROMs and validation studies. A secondary search in July 2020 identified additional validation studies. Both searches were performed using 4 databases (Web of Science, Embase, PubMed, and CINAHL), with no date limiters. Studies with PROMs evaluating more than 3 proposed outpatient postpartum recovery domains were considered. Studies were included if they assessed any psychometric measurement property of the included PROMs in the outpatient postpartum setting. The PROMs were assessed for the following 8 psychometric measurement properties, as defined by COSMIN: content validity, structural validity, internal consistency, cross-cultural validity and measurement invariance, reliability, measurement error, hypothesis testing, and responsiveness. Psychometric measurement properties were evaluated in each included study using the COSMIN criteria by assessing (1) the quality of the methods (very good, adequate, doubtful, inadequate, or not assessed); (2) overall rating of results (sufficient, insufficient, inconsistent, or indeterminate); (3) level of evidence assessed using the Grading of Recommendations, Assessment, Development and Evaluations assessment tool; and (4) level of recommendation, which included class A (recommended for use; showed adequate content validity with at least low-quality evidence for sufficient internal consistency), class B (not class A or class C), or class C (not recommended). Findings: In total, 15 PROMs (7 obstetric specific and 8 non-obstetric specific) were identified, evaluating outpatient postpartum recovery in 46 studies involving 19 165 women. The majority of psychometric measurement properties of the included PROMs were graded as having very-low-level or low-level evidence. The best-performing PROMs that received class A recommendations were the Maternal Concerns Questionnaire, the Postpartum Quality of Life tool, and the World Health Organization Quality of Life-BREF. The remainder of the evaluated PROMs had insufficient evidence to make recommendations regarding their use (and received class B recommendations). Conclusions and Relevance: This review found that the best-performing PROMs currently available to evaluate outpatient postpartum recovery were the Maternal Concerns Questionnaire, the Postpartum Quality of Life tool, and the World Health Organization Quality of Life-BREF; however, these tools all had significant limitations. This study highlights the need to focus future efforts on robustly developing and validating a new PROM that may comprehensively evaluate outpatient postpartum recovery.


Subject(s)
Convalescence/psychology , Outpatients/psychology , Patient Reported Outcome Measures , Postpartum Period/psychology , Quality of Life/psychology , Adult , Female , Humans , Pregnancy , Reproducibility of Results , Surveys and Questionnaires
2.
JAMA Surg ; 156(8): 758-765, 2021 08 01.
Article in English | MEDLINE | ID: mdl-33978692

ABSTRACT

Importance: Postoperative recovery is difficult to define or measure. Research addressing interventions aimed to improve recovery after abdominal surgery often focuses on measures such as duration of hospital stay and complication rates. Although these clinical parameters are relevant, understanding patients' perspectives regarding postoperative recovery is fundamental to guiding patient-centered care. Objective: To elucidate the meaning of recovery from the perspective of patients undergoing abdominal surgery. Design, Setting, and Participants: This international qualitative study involved semistructured interviews with patients recovering from abdominal surgery from October 2016 to November 2018 in tertiary hospitals in 4 countries (Canada, Italy, Brazil, and Japan). A purposive maximal variation sampling method was used to ensure the recruitment of patients with varying demographic, clinical, and surgical characteristics. Data on race were not collected. Each interview lasted between 1 and 2 hours. Interviews were recorded and then transcribed verbatim. Transcripts were then analyzed using an inductive thematic analysis approach. Data analysis was conducted from July 2019 to September 2019. Main Outcomes and Measures: The qualitative analysis revealed themes reflecting the meaning of recovery from the perspective of patients undergoing abdominal surgery. Results: Thirty patients recovering from abdominal surgery were interviewed (15 [50%] female; mean [SD] age, 57 [18] years; 10 [33%] underwent major surgery; 16 [53%] underwent laparoscopic surgery). The interviews revealed that for patients undergoing abdominal surgery, the meaning of recovery embodied 5 overarching themes: (1) returning to habits and routines, (2) resolution of symptoms, (3) overcoming mental strains, (4) regaining independence, and (5) enjoying life. Themes associating the meaning of recovery to traditional parameters, such as earlier hospital discharge or absence of complications, were not identified in the interviews. Conclusions and Relevance: This qualitative study suggests that the meaning of recovery from the perspective of patients undergoing abdominal surgery goes beyond traditional clinical parameters. The elements of recovery identified in this study should be taken into account in patient-surgeon discussions about recovery and when developing patient-centered strategies to improve postoperative outcomes.


Subject(s)
Abdomen/surgery , Convalescence/psychology , Surgical Procedures, Operative , Adult , Aged , Female , Functional Status , Humans , Interviews as Topic , Laparoscopy , Leisure Activities , Life Style , Male , Middle Aged , Patient-Centered Care , Pleasure , Postoperative Period , Qualitative Research , Quality of Life , Recovery of Function , Stress, Psychological/etiology , Surgical Procedures, Operative/adverse effects , Surgical Procedures, Operative/psychology
3.
Transfus Clin Biol ; 28(3): 254-257, 2021 Aug.
Article in English | MEDLINE | ID: mdl-33895379

ABSTRACT

BACKGROUND: Increasingly, it has been seen that patients recovering from COVID-19 may face a second battle of coping with its mental health ramifications. These psychological issues can even be experienced by patients who were asymptomatic or had mild to moderate symptoms, potentially impacting their quality of life. METHODOLOGY: This was a prospective observational study to analyse the psychological impact of COVID-19 in recovered patients who presented as prospective convalescent plasma (CP) donors. An interview for the psychological assessment of the prospective donors was carried out. Depression and anxiety in the participants were assessed by HAM-A, and HAM-D scores and Quality of Life were assessed using the WHOQOL-BREF scale. RESULTS: A total of 51 prospective donors were assessed, with a mean age of 34.37 (±9.08) years, with the majority being males (46). No clinically significant depression and anxiety were found on the basis of HAM-D and HAM-A scores. The worst affected quality of life parameter, based on the WHOQOL-BREF scale, was physical quality of life followed by environmental, psychological, and social relationships. Moreover, due to infection, social stigma was experienced by 49.02% of the donors, while 21.97% had anxiety related to convalescent plasma donation as a common livid experience. CONCLUSION: Poor quality of life and social stigma during the recovery phase is prevalent in COVID-19 recovered patients, for which formulation of holistic support strategies are the need of the hour.


Subject(s)
Blood Donors/psychology , COVID-19/psychology , COVID-19/therapy , Convalescence/psychology , SARS-CoV-2 , Adult , Altruism , Anxiety/epidemiology , Anxiety/etiology , Attitude to Health , Depression/epidemiology , Depression/etiology , Female , Humans , Immunization, Passive/psychology , India , Interpersonal Relations , Interview, Psychological , Male , Middle Aged , Prospective Studies , Psychological Tests , Quality of Life , Randomized Controlled Trials as Topic , Social Stigma , Survivors/psychology , Young Adult , COVID-19 Serotherapy
4.
PLoS One ; 15(7): e0235274, 2020.
Article in English | MEDLINE | ID: mdl-32628688

ABSTRACT

The aim of this study is to explore participants' views and experiences of an eHealth phase 3 cardiac rehabilitation (CR) intervention: Physical Activity Towards Health (PATHway). Sixty participants took part in the PATHway intervention. Debriefs were conducted after the six-month intervention. All interviews were audio recorded and transcribed verbatim. Transcripts were analysed with Braun and Clarke's thematic analysis. Forty-four (71%) debriefs were conducted (n = 34 male, mean (SD) age 61 (10) years). Five key themes were identified: (1) Feedback on the components of the PATHway system, (2) Motivation, (3) Barriers to using PATHway, (4) Enablers to using PATHway, and (5) Post programme reflection. There were a number of subthemes within each theme, for example motivation explores participants motivation to take part in PATHway and participants motivation to sustain engagement with PATHway throughout the intervention period. Participant engagement with the components of the PATHway system was variable. Future research should focus on optimising participant familiarisation with eHealth systems and employ an iterative approach to development and evaluation.


Subject(s)
Cardiac Rehabilitation/psychology , Cardiovascular Diseases/psychology , Exercise/psychology , Telemedicine/methods , Aged , Cardiac Rehabilitation/methods , Convalescence/psychology , Feedback , Female , Humans , Male , Middle Aged , Motivation/physiology , Qualitative Research , Surveys and Questionnaires
5.
Urology ; 144: 123-129, 2020 10.
Article in English | MEDLINE | ID: mdl-32603743

ABSTRACT

OBJECTIVE: To better characterize recovery after minimally invasive kidney surgery, we present a study describing patient-reported health-related quality of life (HRQOL) following minimally invasive radical nephrectomy (RN) and partial nephrectomy (PN). METHODS: Patients who underwent minimally invasive PN or RN for renal cancer were invited to enroll in a prospective, patient-reported HRQOL study using the Convalescence and Recovery Evaluation (CARE) instrument and Short Form-12. Patients completed questionnaires at baseline, 2, 4, 8, and 12 weeks after surgery. Mixed repeated measures model were used to assess time effect on HRQOL scores and predictors of scores within each surgery groups. RESULTS: One hundred seventy-seven patients were included in the study: 50 had RN and 127 had PN. At 2 weeks, both groups had significant decreases in Overall CARE, as well as the Pain, Gastrointestinal, and Activity domain scores which remained slightly below baseline at 4 weeks. At 4 weeks only 50% of patients in both the RN and PN cohorts returned to baseline overall CARE score. By 12 weeks 82% returned to baseline overall CARE score in the RN group while 76% of patients did so in the PN group. CONCLUSION: Convalescence after minimally invasive renal surgery can often extend beyond 4 weeks post-treatment in PN and RN subjects. This information may be used to provide more accurate preoperative counseling in an attempt to improve overall patient satisfaction.


Subject(s)
Convalescence/psychology , Kidney Neoplasms/surgery , Laparoscopy/adverse effects , Nephrectomy/adverse effects , Patient Reported Outcome Measures , Adult , Aged , Counseling , Female , Humans , Kidney Neoplasms/psychology , Male , Middle Aged , Nephrectomy/methods , Patient Satisfaction , Prospective Studies , Quality of Life , Time Factors
6.
Brain Behav Immun ; 88: 39-43, 2020 08.
Article in English | MEDLINE | ID: mdl-32464158

ABSTRACT

Self-reported depression has been observed in coronavirus disease-2019 (COVID-19) patients, infected with severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), during discharge from the hospital. However, the cause of this self-reported depression during the convalescent period remains unclear. Here, we report the mental health status of 96 convalescent COVID-19 patients who were surveyed using an online questionnaire at the Shenzhen Samii Medical Center from March 2 to March 12, 2020 in Shenzhen, China. After obtaining their informed consent, we retrospectively analyzed the clinical characteristics of patients, including routine blood and biochemical data. The results suggested that patients with self-reported depression exhibited increased immune response, as indicated by increased white blood cell and neutrophil counts, as well as neutrophil-to-lymphocyte ratio. However, the mechanism linking self-reported depression to these cellular changes needs further study. In conclusion, self-reported depression occurred at an early stage in convalescent COVID-19 patients, and changes in immune function were apparent during short-term follow-up of these patients after discharge. Appropriate psychological interventions are necessary, and changes in immune function should be emphasized during long-term follow up of these patients.


Subject(s)
Convalescence/psychology , Coronavirus Infections/psychology , Depression/psychology , Depressive Disorder/psychology , Pneumonia, Viral/psychology , Adult , Basophils , Betacoronavirus , C-Reactive Protein/immunology , COVID-19 , China , Coronavirus Infections/immunology , Depression/immunology , Depressive Disorder/immunology , Eosinophils , Female , Humans , Interleukin-6/immunology , Length of Stay , Leukocyte Count , Lymphocyte Count , Male , Middle Aged , Monocytes , Neutrophils , Pandemics , Pneumonia, Viral/immunology , SARS-CoV-2 , Self Report , Severity of Illness Index , Young Adult
7.
J Gerontol B Psychol Sci Soc Sci ; 75(10): 2170-2180, 2020 11 13.
Article in English | MEDLINE | ID: mdl-31501869

ABSTRACT

OBJECTIVE: How does caregivers' life satisfaction shift upon the recovery of an ill spouse? Paradoxically, there is a greater increase in life satisfaction upon death than recovery of a spouse. Our analysis explores this paradox. METHOD: We follow the two groups of exiting caregivers longitudinally for 4 years from when the partner is still in need of care until the death (N = 152) or recovery (N = 112) of a previously ill partner, comparing their trajectory of life satisfaction. We use the years 2001-2016 of the German-Socio-Economic Panel Study and a growth curve analysis. RESULTS: Contrary to our expectations, bereaved caregivers experience a significantly stronger increase in life satisfaction than spouses whose partners recover from a serious illness, even when we stratify by age, gender and initial life satisfaction to account for significantly different subsample composition. Surprisingly, life satisfaction remains unchanged when the partner recovers. Only if a heavy burden in terms of unpaid care and housework hours or prior care need is lifted, do we observe an increase in life satisfaction among spouses with recovering partners, which is like the one experienced by bereaved caregivers. DISCUSSION: More support for caregivers with high caregiving burdens may alleviate some of the strain associated with spousal caregiving, as-even if the partner dies-a decrease in spousal caregiving hours results in an uplift in life satisfaction.


Subject(s)
Adaptation, Psychological , Bereavement , Caregiver Burden/psychology , Caregivers/psychology , Personal Satisfaction , Widowhood/psychology , Aged , Convalescence/psychology , Female , Humans , Male
8.
Brain Dev ; 41(7): 614-617, 2019 Aug.
Article in English | MEDLINE | ID: mdl-30902357

ABSTRACT

BACKGROUND: This study aimed to analyze clinical and imaging features of children with severe Japanese encephalitis (JE), and to analyze causes and solutions for psychiatric symptoms of JE during the convalescent period. METHODS: We analyzed clinical information for 78 children with severe JE at the Department of Neurology, Department of Infection, and Department of Rehabilitation in our hospital during 2014-2016. Seventy-eight cases of severe JE were divided into patients with psychiatric symptoms and no psychiatric symptoms groups. We focused on analysis of the patients with psychiatric symptoms group. RESULTS: The incidence of psychiatric symptoms during the convalescent period was 46.15% (36/78). Antipsychotic drugs can effectively control psychiatric symptoms and shorten duration of symptoms. Seventy-one patients underwent reexamination with a head MRI. Of these, 8 cases (8/36 = 22.22%) in patients with psychiatric symptoms group showed new lesions in the basal ganglia, insula, and hippocampus. During the 12-month follow-up, two cases showed reappearance of psychiatric symptoms that had been relieved previously. CONCLUSION: This study found that severe JE cases revealed a considerable proportion with psychiatric symptoms during the convalescent period.


Subject(s)
Convalescence/psychology , Encephalitis, Japanese/physiopathology , Mental Disorders/etiology , Child , Child, Preschool , China/epidemiology , Encephalitis, Japanese/complications , Female , Humans , Incidence , Magnetic Resonance Imaging/methods , Male
9.
Spinal Cord ; 57(6): 501-508, 2019 Jun.
Article in English | MEDLINE | ID: mdl-30700852

ABSTRACT

STUDY DESIGN: Retrospective cohort study. OBJECTIVES: To investigate the relationship of nutritional status with improvement of activities of daily living in individuals with cervical spinal cord injury. SETTING: A convalescent rehabilitation ward at the Toyama Prefectural Rehabilitation Hospital and Support Center for Children with Disabilities in Japan. METHODS: This retrospective analysis investigated adults (age ≥20 years) with cervical spinal cord injury who were consecutively admitted to a convalescent rehabilitation ward between 2006 and 2015. Data of 154 patients were analyzed. Nutritional status was evaluated using the Subjective Global Assessment (SGA; 3 groups: well-nourished, suspected of being malnourished or moderately malnourished, severely malnourished) and body mass index (BMI; 3 groups: underweight, standard, and overweight and obese). The main outcome was functional independence measure (FIM) efficiency. Multiple regression analysis was performed to investigate the relationship of SGA and BMI to FIM efficiency. RESULTS: FIM efficiency was significantly higher in the well-nourished group based on the SGA than in the two groups with malnutrition (P = .007: 0.32 vs. 0.26 vs. 0.10). Multivariate regression analysis revealed that FIM efficiency was similar in the underweight and standard group, but was significantly higher in the overweight and obese group (P = .006: 0.20 vs. 0.21 vs. 0.31). CONCLUSIONS: SGA and BMI on admission may be independently associated with FIM efficiency in patients with cervical spinal cord injury.


Subject(s)
Activities of Daily Living , Body Mass Index , Nutritional Status/physiology , Recovery of Function/physiology , Rehabilitation Centers/trends , Spinal Cord Injuries/rehabilitation , Activities of Daily Living/psychology , Aged , Aged, 80 and over , Cervical Vertebrae , Cohort Studies , Convalescence/psychology , Female , Humans , Male , Middle Aged , Retrospective Studies , Spinal Cord Injuries/physiopathology , Spinal Cord Injuries/psychology
10.
Dement Geriatr Cogn Disord ; 48(5-6): 317-329, 2019.
Article in English | MEDLINE | ID: mdl-32224608

ABSTRACT

OBJECTIVE: Studies that investigate predictive factors for spontaneous recovery (reversion) from mild cognitive impairment (MCI) are only beginning to emerge, and the long-term course of MCI is not properly understood. We aimed to investigate stability of the MCI diagnosis, predictors for reversion, as well as the trajectory of MCI over the course of 12 years. MATERIALS AND METHODS: Data were drawn from the Swedish population study: Good Aging in Skåne with MCI defined according to the expanded Mayo Clinic criteria. A total of 331 participants, aged 60-95 years with MCI, were used to investigate 6-year MCI stability and reversion, and 410 participants were used to inspect 12-year MCI trajectory. Predictors for reversion included demographical factors, psychological status, and factors tied to the cognitive testing session and the operationalization of the MCI criteria. RESULTS: Over half (58%, 95% CI 52.7-63.3) of the participants reverted back to normal cognitive functioning at 6-year follow-up. Of those with stable MCI, 56.5% (95% CI 48.2-64.8) changed subtype. A total of 23.9% (95% CI 13.7-34.1) of the 6-year follow-up reverters re-transitioned back to MCI at 12-year follow-up. ORs for reversion were significantly higher in participants with lower age (60-year-olds: OR 2.19, 95% CI 1.08-4.43, 70-year-olds: OR 3.11, 95% CI 1.27-7.62), better global cognitive functioning (OR 1.15, 95% CI 1.03-1.29), good concentration (OR 2.53, 95% CI 1.06-6.05), and single-domain subtype (OR 2.68, 95% CI 1.51-4.75). CONCLUSION: Our findings provide further support that MCI reversion to normal cognitive functioning as well as re-transitioning to MCI is fairly common, suggesting that the MCI trajectory does not necessarily lead straight to dementia. Additionally, assessment of factors associated with reversion can aid clinicians to make accurate MCI progression prognosis.


Subject(s)
Aging/psychology , Cognition , Cognitive Dysfunction , Convalescence/psychology , Aged , Aged, 80 and over , Cognitive Dysfunction/diagnosis , Cognitive Dysfunction/psychology , Diagnostic Errors/prevention & control , Disease Progression , Female , Humans , Male , Middle Aged , Neuropsychological Tests , Prognosis , Sweden
11.
Gastrointest Endosc ; 89(3): 533-544, 2019 03.
Article in English | MEDLINE | ID: mdl-30273589

ABSTRACT

BACKGROUND AND AIMS: To optimize therapeutic decision-making in early invasive colorectal cancer (T1 CRC) patients, it is important to elicit the patient's perspective next to considering medical outcome. Because empirical data on patient-reported impact of different treatment options are lacking, we evaluated patients' quality of life, perceived time to recovery, and fear of cancer recurrence after endoscopic or surgical treatment for T1 CRC. METHODS: In this cross-sectional study, we selected patients with histologically confirmed T1 CRC who participated in the Dutch Bowel Cancer Screening Programme and received endoscopic or surgical treatment between January 2014 and July 2017. Quality of life was measured using the European Organization for Research and Treatment 30-item Core Quality of Life Questionnaire and the 5-level EuroQoL 5-dimension questionnaire. We used the Cancer Worry Scale (CWS) to evaluate patients' fear of cancer recurrence. A question on perceived time to recovery after treatment was also included in the set of questionnaires sent to patients. RESULTS: Of all 119 eligible patients, 92.4% responded to the questionnaire (endoscopy group, 55/62; surgery group, 55/57). Compared with the surgery group, perceived time to recovery was on average 3 months shorter in endoscopically treated patients after adjustment for confounders (19.9 days vs 111.3 days; P = .001). The 2 treatment groups were comparable with regard to global quality of life, functioning domains, and symptom severity scores. Moreover, patients in the endoscopy group did not report more fear of cancer recurrence than those in the surgery group (CWS score, 0-40; endoscopy 7.6 vs surgery 9.7; P = .140). CONCLUSIONS: From the patient's perspective, endoscopic treatment provides a quicker recovery than surgery, without provoking more fear of cancer recurrence or any deterioration in quality of life. These results contribute to the shared therapeutic decision-making process of clinicians and T1 CRC patients.


Subject(s)
Carcinoma/psychology , Colonoscopy/psychology , Colorectal Neoplasms/psychology , Convalescence/psychology , Digestive System Surgical Procedures/psychology , Fear/psychology , Neoplasm Recurrence, Local/psychology , Quality of Life/psychology , Aged , Carcinoma/pathology , Carcinoma/surgery , Clinical Decision-Making , Colonoscopy/methods , Colorectal Neoplasms/pathology , Colorectal Neoplasms/surgery , Cross-Sectional Studies , Digestive System Surgical Procedures/methods , Female , Humans , Linear Models , Male , Middle Aged , Multivariate Analysis , Neoplasm Staging , Time Factors , Transanal Endoscopic Microsurgery/methods , Transanal Endoscopic Microsurgery/psychology
12.
Musculoskelet Surg ; 102(3): 231-240, 2018 Dec.
Article in English | MEDLINE | ID: mdl-29168164

ABSTRACT

BACKGROUND: Although patient-centred care could help increase the value of healthcare, practice variations in hip and knee surgery suggest that physicians guide clinical decisions more than patients do. This raises the question whether treatment outcomes still meet patients' expectations. This study investigated whether treatment outcomes measured by patient-reported outcome measures fulfil patients' main expectations (i.e. decreased pain or improved functioning). METHODS: Patients who underwent hip or knee surgery in 20 Dutch hospitals in 2014 were invited to a survey consisting of the KOOS Physical Function Short Form or the HOOS Physical Function Short Form, the NRS pain and the EQ-5D. Patients were asked their main reason for surgery and whether the expectations regarding this reason were fulfilled. RESULTS: A total of 2776 patients completed the survey. The most common reason for surgery was improved functioning (43.7%). Patients who were unable to choose between pain relief and improved functioning and patients who aimed for pain relief experienced more problems before surgery. However, patients who were unable to choose improved more than patients who wanted to improve their functioning on the NRS pain during use and the EQ-5D. More patients who aimed for pain relief felt that their expectations were fulfilled compared to other patients. CONCLUSIONS: Although an expectation for an outcome was not related to a greater improvement on that outcome, patient expectations were an indication of patients' improvement due to surgery. Differences in expectation fulfilment may be due to unrealistic expectations. To achieve optimal value, tailoring treatment using patient preferences and managing patient expectations is vital.


Subject(s)
Arthroplasty, Replacement, Hip/psychology , Arthroplasty, Replacement, Knee/psychology , Motivation , Patient Satisfaction , Adult , Aged , Convalescence/psychology , Educational Status , Female , Humans , Male , Middle Aged , Pain Management , Pain, Postoperative/psychology , Patient-Centered Care , Quality of Life , Recovery of Function
13.
Soins Psychiatr ; 38(310): 23-25, 2017.
Article in French | MEDLINE | ID: mdl-28476252

ABSTRACT

Some institutions do not have an isolation room. Agitation is managed otherwise, with the idea that restraint or isolation can only be a terrible experience. The care pathway is therefore designed to favour autonomy and to limit restrictions of freedom. In this context, professionals are in constant contact with the user. Example of a unit which advocates this concept of rehabilitation.


Subject(s)
Convalescence/psychology , Mental Disorders/nursing , Mental Disorders/rehabilitation , Patient Advocacy/legislation & jurisprudence , Patient Advocacy/psychology , Patient Isolation/legislation & jurisprudence , Patient Isolation/psychology , Personal Autonomy , Restraint, Physical/legislation & jurisprudence , Restraint, Physical/psychology , France , Health Services Accessibility , Hospitals, Psychiatric , Humans , Mental Disorders/psychology , Mental Healing , Nurse-Patient Relations
14.
J Clin Nurs ; 26(23-24): 4498-4505, 2017 Dec.
Article in English | MEDLINE | ID: mdl-28231628

ABSTRACT

AIMS AND OBJECTIVES: To describe the lived experience of recovery during the first 6 months after colorectal cancer surgery. BACKGROUND: Colorectal cancer is the third most common cancer diagnosis worldwide. Early discharge places demands on healthcare professionals to prepare patients for their return home and to provide them with appropriate support throughout the recovery process. This requires knowledge of what it is like to recover from colorectal cancer surgery. DESIGN: A qualitative phenomenological design was used to describe the structure of recovery after colorectal cancer surgery. METHODS: Ten patients recovering from colorectal cancer surgery were interviewed at one month and six months after surgery. The descriptive phenomenological method by Giorgi was used throughout the study. RESULTS: Postoperative recovery was described as a progressive process. This process was accompanied by experiences of physical powerlessness, difficulties with food intake, altered bowel function and dependency on others. The experiences were most intense at the beginning of the recovery but disappeared as time went by and normality in life returned. CONCLUSION: While recovering from colorectal cancer surgery, patients experience obstacles that impede their ability to live life as normal. Six months after surgery, those experiences disappear or become adjusted to being part of normal life. RELEVANCE TO CLINICAL PRACTICE: Patients should be provided with information about the expected postoperative recovery before discharge from hospital. The need for professional support appears to be most frequently needed in early recovery, but it should be considered on an individual basis.


Subject(s)
Colorectal Neoplasms/surgery , Convalescence , Aged , Colorectal Neoplasms/psychology , Convalescence/psychology , Female , Humans , Interviews as Topic , Male , Middle Aged , Postoperative Period , Quality of Life , Time Factors
15.
Zhonghua Nan Ke Xue ; 23(4): 319-322, 2017 Apr.
Article in Chinese | MEDLINE | ID: mdl-29714416

ABSTRACT

OBJECTIVE: To investigate the attitudes of the parents toward circumcision for 6-14 years old children and their satisfaction with the results. METHODS: We performed circumcision in the Department of Urology of Zhongda Hospital for 220 children aged 6-14 years from 220 families between January 2010 and August 2016, including 70 cases of traditional and 150 cases of Shang Ring circumcision. We conducted telephone follow-ups among the parents of the patients concerning the decision-maker, reasons and regret for circumcision, acceptance of a second operation, source of information, satisfaction with surgical results, and reasons for dissatisfaction. RESULTS: Most decisions for circumcision were made by the father, chiefly for health and hygiene. Their main sources of information on circumcision were Internet and friends. The parents of 29 patients were dissatisfied for long recovery or peri- and post-operative pain, including 19 cases (27.1%, 19/70) of traditional and 10 cases (6.7%, 10/150) of Shang Ring circumcision, with statistically significant differences between the two groups (P <0.05). CONCLUSIONS: Most parents were satisfied with circumcision, and the main reasons for dissatisfaction were long recovery and pain. The rate of satisfaction with Shang Ring circumcision was higher than that with traditional circumcision. Shang Ring circumcision is recommended for children aged 6-14 years old.


Subject(s)
Attitude , Circumcision, Male/psychology , Parents/psychology , Personal Satisfaction , Adolescent , Asian People , Child , China , Circumcision, Male/methods , Convalescence/psychology , Fathers , Humans , Male , Pain, Postoperative/psychology , Phimosis , Time Factors
17.
Surg Innov ; 23(6): 598-605, 2016 Dec.
Article in English | MEDLINE | ID: mdl-27354552

ABSTRACT

Background Robotic-assisted radical cystectomy (RARC) is gaining traction as a surgical approach, but there are limited data on patient-reported outcomes for this technique compared to open radical cystectomy (ORC). Objective To compare health-related quality of life (HRQoL) and short-term convalescence among bladder cancer patients who underwent ORC and RARC. Methods Review of a single-institution bladder cancer database was conducted. Baseline and postoperative HRQoL was evaluated using the Bladder Cancer Index (BCI) for 324 patients who had ORC (n = 267) or RARC (n = 57) between 2008 and 2012. The BCI assesses function and bother in urinary, bowel, and sexual domains. Among 87 distinct patients (ORC n = 67, RARC n = 20), we also evaluated short-term postoperative convalescence using the Convalescence and Recovery Evaluation (CARE) questionnaire. Our primary outcomes were HRQoL within 12 months and short-term convalescence within 6 weeks following cystectomy. We fit generalized estimating equation regression models to estimate longitudinal changes in BCI scores within domains, and CARE domain score differences were tested with Wilcoxon rank-sum tests. Results Clinical characteristics and baseline BCI/CARE scores were similar between the 2 groups (all P > .05). Within 1 year after surgery, recovery of HRQoL across all BCI domains was comparable, with scores nearly returning to baseline at 1 year for all patients. CARE scores at 4 weeks revealed that patients treated with ORC had better pain (29.1 vs 20.0, P = .02) domain scores compared to RARC. These differences abated by week 6. Conclusions HRQoL recovery and short-term convalescence were similar in this cohort following ORC and RARC.


Subject(s)
Convalescence/psychology , Cystectomy/methods , Patient Reported Outcome Measures , Quality of Life , Robotic Surgical Procedures/methods , Urinary Bladder Neoplasms/surgery , Adult , Aged , Cohort Studies , Cystectomy/adverse effects , Databases, Factual , Female , Humans , Laparotomy/methods , Male , Middle Aged , Pain Measurement , Pain, Postoperative/physiopathology , Recovery of Function , Retrospective Studies , Risk Assessment , Urinary Bladder Neoplasms/mortality , Urinary Bladder Neoplasms/pathology
18.
Aust Crit Care ; 29(4): 224-234, 2016 Nov.
Article in English | MEDLINE | ID: mdl-27240937

ABSTRACT

OBJECTIVE: Intensive care unit diaries have been shown to improve post-critical illness recovery, however, prior reports of diary implementation are heterogeneous. We sought to construct a common framework for designing and implementing Intensive Care Unit diaries based on prior studies. REVIEW METHOD USED/DATA SOURCES: We conducted a focused review of the literature regarding intensive care diaries based on a systematic search of several databases. Two reviewers assessed 56 studies and data were abstracted from a total of 25 eligible studies conducted between 1990 and 2014. We identified key information regarding the development, design, and implementation of the journals. We then grouped elements that appeared consistently across these studies within three main categories: (1) diary target populations; (2) diary format and content; and (3) the manner of diary return and follow-up. RESULTS: Most studies were conducted in European countries in adult intensive care units and targeted patients in both medical and surgical units. The timing of diary initiation was based on the elapsed length of stay or duration of mechanical ventilation. We categorised diary format and content as: entry content, authors, use of standardised headings, type of language, initiation, frequency of entries, and physical location of diaries. Diaries were hand written and many studies found that photographs were an essential element in ICU diaries. We categorised the manner of diary return and follow-up. The context in which intensive care unit diaries were returned were felt to be important factors in improving the use of diaries in recovery. CONCLUSIONS: In conclusion, we describe a common framework for the future development of intensive care unit diaries that revolves around the target population for the diaries, their format and content, and the timing of their use. Future studies should address how these elements impact the mechanisms by which intensive are diaries exert beneficial effects.


Subject(s)
Convalescence/psychology , Critical Care/psychology , Critical Illness/psychology , Intensive Care Units , Writing , Humans , Outcome Assessment, Health Care , Stress Disorders, Post-Traumatic/psychology
19.
Inf. psiquiátr ; (224): 93-102, abr.-jun. 2016. tab
Article in Spanish | IBECS | ID: ibc-153555

ABSTRACT

Objetivo: La rehabilitación de las personas mayores es una intervención compleja, en la cual intervienen múltiples componentes (clínica, cognitiva, anímica etc.). Nuestro estudio pretende comprobar si la entrevista motivacional (EM) (basada en una atención centrada en la persona), con adaptaciones, es aplicable en pacientes con fractura de fémur o ictus que realizan rehabilitación en una unidad de convalecencia. Metodología: Se realizan entrevistas motivacionales a 20 pacientes > 65 años (10 con fractura de fémur y 10 con ictus). Un geriatra formado en EM realiza dos entrevistas a cada paciente, una inicial en < 72 horas del ingreso y otra de seguimiento la semana siguiente. Para que los pacientes recuerden los ejercicios acordados, se entregan trípticos adaptados. Resultados: Todos los pacientes aceptaron y valoraron satisfactoriamente las dos entrevistas. La segunda entrevista mostraba mejor aceptación si realizada antes del 6è día, porqué se recordaba mejor al profesional y los objetivos acordados. La demanda de esta intervención fue alta (4-5 pacientes/semana). El mejor momento per realizar la entrevista es por la tarde, evitando interferir en el funcionamiento de la planta. La EM en pacientes con deterioro cognitivo leu presenta mayor dificultad, y en 3 ocasiones se incorporó a la entrevista al cuidador principal, con muy buena respuesta. La motivación de los pacientes para realizar rehabilitación fue alta (poca ambivalencia), por ello durante las entrevistas no se trabajó tanto la ambivalencia, sino en empoderar a los pacientes y ayudarlos a encontrar herramientas para aumentar las probabilidades de éxito. Conclusiones: La EM es una herramienta fácilmente aplicable dentro del entorno socio sanitario, realizando algunas adaptaciones. La motivación de los pacientes es alta y la EM se centra sobre todo en empoderar al paciente. Este estudio abre la puerta a evaluar, en un futuro, si la intervención es efectiva en este ámbito


Objective: Our main objective was to test the feasibility of adding a patient centered motivational intervention to the usual rehabilitation in an Intermediate Care (IC) Hospital for patients admitted after a hip fracture or stroke. Methods: 20 patients>65 years (10 hip fracture;10 stroke) participated in the study, receiving two motivational interviewing sessions by a trained geriatrician, the first within the 72 hours after admission, the second one week later. All patients were given leaflets informing about different rehabilitation exercises to perform besides formal physical therapy provided in the hospital, among which they could choose those they felt more suitable. Data collected included socio-demographics, comorbidity, and clinical, cognitive and functional status. Results: The motivational intervention was accepted by all patients and all felt it to be appropriate. Opportunities for this intervention were high,4-5 patients per week, best time for the interventions was in the afternoons, which avoided interferences with hospital activities. In patients with mild cognitive impairment the intervention was harder, and in 3 occasions the primary caregiver was invited to participate, with high acceptance and enthusiasm. Patients at baseline were already highly motivated to do rehabilitation, and ambivalence was not big. Therefore most of the interviews focussed on empowering patients and helping them to identify and set their own goals during rehabilitation. Conclusions: Adding specific motivational interventions to usual rehabilitation treatment in older patients admitted after a hip fracture or stroke, is feasible and acceptable in our IC Hospital. Since patients are quite prone to rehabilitation, interviews tend to focus on empowerment. Further, rigorous research is needed


Subject(s)
Humans , Aged , Convalescence/psychology , Aftercare/methods , Rehabilitation/psychology , Motivation , Fractures, Bone/rehabilitation , Stroke/rehabilitation , Halfway Houses/organization & administration , Recovery of Function , Interview, Psychological
20.
Rehabil Psychol ; 61(2): 141-150, 2016 05.
Article in English | MEDLINE | ID: mdl-27196857

ABSTRACT

PURPOSE/OBJECTIVE: To explore demographic, clinical, and psychological factors in intensive care unit (ICU), including self-reported sleep quality and experiences that were associated with posttraumatic stress (PTS) symptoms 6 months after discharge from hospital. RESEARCH METHOD/DESIGN: A prospective survey was conducted (N = 222). On the day of transfer to the hospital ward, ICU patients reported pain and state-anxiety levels, as well as ICU and prehospital sleep quality. Two months after hospital discharge, they reported sleep quality at home and experiences in ICU. Six months after hospital discharge, sleep quality, PTS symptoms (measured with the Posttraumatic Stress Disorder Checklist-Specific; PCL-S; VA National Center for PTSD, 2014) and psychological well-being (using Depression, Anxiety and Stress Scales-21; DASS-21; Ware, Kosinski, & Keller, 1994) were reported. Descriptive data analyses were performed and factors associated with PTS symptoms were explored with multiple linear regression. RESULTS: The sample was predominately male (65%), with a mean age 57 years. At baseline, pain intensity was low (M ± SD; 2.25 ± 1.14) and state-anxiety levels were moderate (2.50 ± 2.90). At 6 months, 30% of the sample demonstrated depression, and 13.5% (mean PCL-S score: 26.54 ± 10.52) reported symptoms reflective of PTS. The regression model explained 68.2% of the variance in the PCL-S score. Higher PTS scores were independently associated with frightening experiences in ICU, higher stress and depression scores, pain intensity at baseline, and sleep quality at 6 months. CONCLUSION/IMPLICATIONS: Continuing symptoms of PTS were evident in 14% of the cohort. Screening for prevention and treatment of delirium while a patient is in ICU is essential, and psychological screening and follow-up during recovery would therefore also be beneficial for many patients. (PsycINFO Database Record


Subject(s)
Critical Care/psychology , Intensive Care Units , Stress Disorders, Post-Traumatic/diagnosis , Stress Disorders, Post-Traumatic/psychology , Survivors/psychology , APACHE , Adaptation, Psychological , Adult , Aged , Aged, 80 and over , Comorbidity , Convalescence/psychology , Depressive Disorder/diagnosis , Depressive Disorder/psychology , Depressive Disorder/therapy , Fear , Female , Follow-Up Studies , Humans , Male , Mental Recall , Middle Aged , New South Wales , Pain/psychology , Patient Discharge , Sleep Wake Disorders/diagnosis , Sleep Wake Disorders/psychology , Stress Disorders, Post-Traumatic/therapy , Surveys and Questionnaires
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