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1.
J Soc Work End Life Palliat Care ; 20(2): 201-216, 2024.
Article in English | MEDLINE | ID: mdl-38557360

ABSTRACT

Racial disparities in hospice use are a longstanding concern in the U.S. Asian Americans are among the least likely to receive hospice care and to be included in studies on this topic. This study examined the knowledge, attitudes, and preferences related to hospice care among older Chinese immigrants and associated factors. A sample of 262 Chinese immigrants age 60+ was recruited from six older adult centers in NYC. In-person interviews were conducted in Mandarin and Cantonese. Non-English-speaking older Chinese immigrants had very limited knowledge about hospice care. Only 26% of respondents had heard of hospice, and a few could correctly define any components. After receiving a comprehensive definition of hospice care, study participants expressed a positive attitude and a strong willingness to use hospice if near the end of life. Notably, some respondents still held misconceptions about hospice and were less positive in their attitude and preference for hospice care. These findings underscore the necessity for clear and accessible information about hospice among this population throughout the trajectory from good health to end of life. Further research is needed to identify the range of factors that influence the attitudes and preferences of older Chinese immigrants toward hospice care.


Subject(s)
Asian , Emigrants and Immigrants , Health Knowledge, Attitudes, Practice , Hospice Care , Humans , Female , Male , Aged , Emigrants and Immigrants/psychology , Emigrants and Immigrants/statistics & numerical data , Hospice Care/psychology , Health Knowledge, Attitudes, Practice/ethnology , Asian/psychology , Asian/statistics & numerical data , Middle Aged , United States , Aged, 80 and over , China/ethnology , Patient Preference/ethnology , Socioeconomic Factors , Interviews as Topic , New York City , East Asian People
2.
Clin Pediatr (Phila) ; 62(12): 1531-1536, 2023 12.
Article in English | MEDLINE | ID: mdl-37060287

ABSTRACT

This study aims to evaluate if race and ethnicity affect rates of tympanostomy tube (TT) placement during inpatient pediatric admissions in children with otologic conditions. A review of the 2016 Kids' Inpatient Database was conducted based on the International Classification of Diseases, 10th revision, Clinical Modification (ICD-10-CM) codes for common otologic conditions. Among 85 827 weighted pediatric inpatient discharges with ICD-10-CM codes for common otologic conditions, 213 underwent TT placement. Odds ratios (ORs) for children of Hispanic ethnicity and Asian or Pacific Islander race undergoing TT placement when compared to other ethnicities and races were 0.60 (P = .011) and 0.21 (P = .040), respectively. Multiple logistic regression showed Hispanic ethnicity was associated with lower rates of TT placement when compared to non-Hispanic white children (OR = 0.62; 95% confidence interval = 0.40-0.96). Future studies should assess why these differences exist and if these differences are associated with racial/ethnic bias or attributed to patient/family preference.


Subject(s)
Ear Diseases , Healthcare Disparities , Middle Ear Ventilation , Child , Humans , Ethnicity/statistics & numerical data , Hispanic or Latino/statistics & numerical data , Middle Ear Ventilation/statistics & numerical data , United States/epidemiology , White/statistics & numerical data , Healthcare Disparities/ethnology , Hospitalization/statistics & numerical data , Patient Admission/statistics & numerical data , Asian/statistics & numerical data , Pacific Island People/statistics & numerical data , Racism/ethnology , Racism/statistics & numerical data , Patient Preference/ethnology , Patient Preference/statistics & numerical data , Ear Diseases/epidemiology , Ear Diseases/ethnology , Ear Diseases/surgery
3.
BMC Cancer ; 21(1): 1018, 2021 Sep 12.
Article in English | MEDLINE | ID: mdl-34511112

ABSTRACT

BACKGROUND: An effective cross-cultural doctor-patient communication is vital for health literacy and patient compliance. Building a good relationship with medical staff is also relevant for the treatment decision-making process for cancer patients. Studies about the role of a specific migrant background regarding patient preferences and expectations are lacking. We therefore conducted a multicentre prospective survey to explore the needs and preferences of patients with a migrant background (PMB) suffering from gynecological malignancies and breast cancer to evaluate the quality of doctor-patient communication and cancer management compared to non-migrants (NM). METHODS: This multicentre survey recruited patients with primary or recurrence of breast, ovarian, peritoneal, or fallopian tube cancer. The patients either filled out a paper form, participated via an online survey, or were interviewed by trained staff. A 58-item questionnaire was primarily developed in German and then translated into three different languages to reach non-German-speaking patients. RESULTS: A total of 606 patients were included in the study: 54.1% (328) were interviewed directly, 9.1% (55) participated via an online survey, and 36.8% (223) used the paper print version. More than one quarter, 27.4% (166) of the participants, had a migrant background. The majority of migrants and NM were highly satisfied with the communication with their doctors. First-generation migrants (FGM) and patients with breast cancer were less often informed about participation in clinical trials (p < 0.05) and 24.5% of them suggested the help of an interpreter to improve the medical consultation. Second and third-generation migrants (SGM and TGM) experienced more fatigue and nausea than expected. CONCLUSIONS: Our results allow the hypothesis that training medical staff in intercultural competence and using disease-related patient information in different languages can improve best supportive care management and quality of life in cancer patients with migrant status.


Subject(s)
Breast Neoplasms/ethnology , Genital Neoplasms, Female/ethnology , Motivation , Needs Assessment , Patient Preference/ethnology , Physician-Patient Relations , Transients and Migrants , Adult , Aged , Aged, 80 and over , Breast Neoplasms/psychology , Communication , Culturally Competent Care/ethnology , Female , Genital Neoplasms, Female/psychology , Germany , Health Literacy , Humans , Middle Aged , Neoplasm Recurrence, Local/ethnology , Patient Compliance , Patient Preference/statistics & numerical data , Patient Satisfaction/ethnology , Patient Satisfaction/statistics & numerical data , Prospective Studies , Surveys and Questionnaires , Transients and Migrants/statistics & numerical data , Translations , Young Adult
4.
JAMA Netw Open ; 4(7): e2118801, 2021 07 01.
Article in English | MEDLINE | ID: mdl-34323984

ABSTRACT

Importance: Although racial disparities in acute pain control are well established, the role of patient analgesic preference and the factors associated with these disparities remain unclear. Objective: To characterize racial disparities in opioid prescribing for acute pain after accounting for patient preference and to test the hypothesis that racial disparities may be mitigated by giving clinicians additional information about their patients' treatment preferences and risk of opioid misuse. Design, Setting, and Participants: This study is a secondary analysis of data collected from Life STORRIED (Life Stories for Opioid Risk Reduction in the ED), a multicenter randomized clinical trial conducted between June 2017 and August 2019 in the emergency departments (EDs) of 4 academic medical centers. Participants included 1302 patients aged 18 to 70 years who presented to the ED with ureter colic or musculoskeletal back and/or neck pain. Interventions: The treatment arm was randomized to receive a patient-facing intervention (not examined in this secondary analysis) and a clinician-facing intervention that consisted of a form containing information about each patient's analgesic treatment preference and risk of opioid misuse. Main Outcomes and Measures: Concordance between patient preference for opioid-containing treatment (assessed before ED discharge) and receipt of an opioid prescription at ED discharge. Results: Among 1302 participants in the Life STORRIED clinical trial, 1012 patients had complete demographic and treatment preference data available and were included in this secondary analysis. Of those, 563 patients (55.6%) self-identified as female, with a mean (SD) age of 40.8 (14.1) years. A total of 455 patients (45.0%) identified as White, 384 patients (37.9%) identified as Black, and 173 patients (17.1%) identified as other races. After controlling for demographic characteristics and clinical features, Black patients had lower odds than White patients of receiving a prescription for opioid medication at ED discharge (odds ratio [OR], 0.42; 95% CI, 0.27-0.65). When patients who did and did not prefer opioids were considered separately, Black patients continued to have lower odds of being discharged with a prescription for opioids compared with White patients (among those who preferred opioids: OR, 0.43 [95% CI, 0.24-0.77]; among those who did not prefer opioids: OR, 0.45 [95% CI, 0.23-0.89]). These disparities were not eliminated in the treatment arm, in which clinicians were given additional data about their patients' treatment preferences and risk of opioid misuse. Conclusions and Relevance: In this secondary analysis of data from a randomized clinical trial, Black patients received different acute pain management than White patients after patient preference was accounted for. These disparities remained after clinicians were given additional patient-level data, suggesting that a lack of patient information may not be associated with opioid prescribing disparities. Trial Registration: ClinicalTrials.gov Identifier: NCT03134092.


Subject(s)
Acute Pain/psychology , Analgesics, Opioid/therapeutic use , Healthcare Disparities/ethnology , Patient Preference/ethnology , Risk Assessment/ethnology , Academic Medical Centers , Acute Pain/drug therapy , Acute Pain/ethnology , Adult , Black People/psychology , Emergency Service, Hospital , Female , Humans , Male , Middle Aged , Odds Ratio , Opioid-Related Disorders/ethnology , Opioid-Related Disorders/prevention & control , Pain Management/psychology , Pain Management/statistics & numerical data , Patient Discharge/statistics & numerical data , Patient Preference/statistics & numerical data , Practice Patterns, Physicians'/statistics & numerical data , Prescriptions/statistics & numerical data , Randomized Controlled Trials as Topic , Risk Assessment/statistics & numerical data , White People/psychology
5.
J Racial Ethn Health Disparities ; 8(3): 678-689, 2021 06.
Article in English | MEDLINE | ID: mdl-32729105

ABSTRACT

OBJECTIVES: This study examined beliefs, expectations, and preferences related to mental health problems and treatment in a sample of young adults who are in a developmental period when many types of psychopathology emerge. Prior studies on this topic have primarily included samples that are older and predominately White. It is not clear whether results from that research generalize to diverse samples of young adults. METHODS: Participants were 370 undergraduate students (41.3% African American; 76.5% female) who completed questionnaires about expectations and preferences for psychotherapy and therapists. RESULTS: Findings regarding racial differences include African Americans having less experience with mental health services and different goals for psychotherapy than did Whites. Additionally, African Americans, relative to Whites, demonstrated stronger preferences for couple, family, and group psychotherapy, a male therapist their same race, and a therapist who is assertive and structured in session. CONCLUSIONS: The results of this study provide information about young adults' perceptions, expectations, and preferences related to mental health problems and psychotherapy. Findings suggest some barriers to treatment that might be addressed to improve treatment engagement and utilization of psychological services among young adults in general and among African American young adults specifically.


Subject(s)
Black or African American/psychology , Health Knowledge, Attitudes, Practice/ethnology , Mental Disorders/ethnology , Motivation , Patient Preference/ethnology , Psychotherapy , White People/psychology , Black or African American/statistics & numerical data , Female , Humans , Male , Mental Disorders/therapy , Surveys and Questionnaires , White People/statistics & numerical data , Young Adult
6.
J Racial Ethn Health Disparities ; 8(5): 1168-1177, 2021 Oct.
Article in English | MEDLINE | ID: mdl-33078334

ABSTRACT

PURPOSE: Although some research has been done on end-of-life (EOL) preferences and wishes, our knowledge of racial differences in the EOL wishes of non-Hispanic White and non-Hispanic Black middle-aged and older adults is limited. Previous studies exploring such racial differences have focused mainly on EOL decision-making as reflected in advance healthcare directives concerning life-sustaining medical treatment. In need of examination are aspects of EOL care that are not decision-based and therefore not normally covered by written advance healthcare directives. This study focuses on racial differences in non-decision-based aspects of EOL care, that is, EOL care that incorporates patients' beliefs, culture, or religion. AIM: To test the combined effects of race, socioeconomic status, health status, spirituality, perceived discrimination and medical mistrust on the EOL non-decision-based desires and wishes of a representative sample of non-Hispanic White and non-Hispanic Black older California adults. METHODS: This cross-sectional study used data from the Survey of California Adults on Serious Illness and End-of-Life 2019. To perform data analysis, we used multiple logistic regression models. RESULTS: Non-Hispanic Blacks reported more EOL non-decision-based desires and wishes than non-Hispanic Whites. In addition to gender, age, and education other determinants of EOL non-decision-based medical desires and wishes included perceived and objective health status, spirituality, and medical trust. Poverty level, perceived discrimination did not correlate with EOL medical wishes. CONCLUSION: Non-Hispanic Blacks desired a closer relationship with their providers as well as a higher level of respect for their cultural beliefs and values from their providers compared with their White counterparts. Awareness, understanding, and respecting the cultural beliefs and values of older non-Hispanic Black patients, that usually are seen by non-Hispanic Black providers, is the first step for meaningful relationship between non-Hispanic Black patients and their providers that directly improve the end-of-life quality of life for this segment of our population.


Subject(s)
Black or African American/psychology , Patient Preference/ethnology , Terminal Care/psychology , White People/psychology , Black or African American/statistics & numerical data , Aged , Aged, 80 and over , California , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Socioeconomic Factors , Surveys and Questionnaires , White People/statistics & numerical data
7.
Obstet Gynecol ; 136(4): 731-737, 2020 10.
Article in English | MEDLINE | ID: mdl-32925629

ABSTRACT

OBJECTIVE: To evaluate the maternal characteristics associated with consent to a randomized trial of labor induction in pregnancy. METHODS: This is a secondary analysis of low-risk nulliparous women randomized to induction of labor at 39 weeks or expectant management. During the trial, the Data and Safety Monitoring Committee requested additional fields on the screening log, which already included race and ethnicity: maternal age, type of insurance, and the reason for declining consent if declined. RESULTS: From August 2016 (start of additional data collection) to August 2017, 1,965 (28%) of the 7,112 eligible women consented to the trial. Consent was more likely for Black women (41%, adjusted odds ratio [aOR] 1.47, 95% CI 1.24-1.74), and less likely for Asian women (15%, aOR 0.64, 95% CI 0.48-0.84), compared with White women (24%). Women without private insurance were more likely to consent (38%, aOR 1.55, 95% CI 1.34-1.79), compared with those with private insurance (22%). Younger women were also more likely to consent. Among eligible women who declined participation and provided a reason (68%), preference to be expectantly managed (85%) was most common, a response more common in Asian women (aOR 1.75, 95% CI 1.31-2.33) and less common in women without private insurance (aOR 0.60, 95% CI 0.51-0.70). Not wanting to participate in research was more common in Asian women (aOR 2.41, 95% CI 1.44-4.03). Declining consent because family or friends objected was more common in Asian women (aOR 2.51, 95% CI 1.27-4.95) and women without private insurance (aOR 1.68, 95% CI 1.10-2.59). CONCLUSION: Frequency of consent and reasons for declining consent were associated with age, type of insurance, and race and ethnicity. These findings should be considered when developing recruitment strategies that promote diverse participant representation. CLINICAL TRIAL REGISTRATION: ClinialTrials.gov, NCT01990612.


Subject(s)
Insurance Coverage , Labor, Induced , Patient Preference , Refusal to Participate , Adult , Family Characteristics/ethnology , Female , Gestational Age , Humans , Informed Consent/psychology , Labor, Induced/methods , Labor, Induced/psychology , Maternal Age , Outcome Assessment, Health Care , Parity , Patient Preference/economics , Patient Preference/ethnology , Patient Selection , Pregnancy , Refusal to Participate/ethnology , Refusal to Participate/psychology , Refusal to Participate/statistics & numerical data
8.
J Ethnopharmacol ; 257: 112899, 2020 Jul 15.
Article in English | MEDLINE | ID: mdl-32335191

ABSTRACT

ETHNOPHARMACOLOGICAL RELEVANCE: Very few studies examining quantitatively gender differences in the knowledge and use of medicinal plants exist for the Arab world. Differences in ethnobotanical knowledge of medicinal plants between men and women in Jeddah are explored here for the first time. AIM OF THE STUDY: Our study aims to document urban medicinal plant knowledge in Jeddah, and to answer the following questions: (1) What medicinal plants are used by Saudis in Jeddah? (2) To what extent do men and women use medicinal plants? (3) Are plants used by men significantly different to those used by women? And, (4) do men and women learn about medicinal plants in different ways? Given the gendered nature of space and relations in the Arab world, we hypothesise that men and women learn about plants in different ways and that this will contribute to explain any possible differences. MATERIALS AND METHODS: Ethnobotanical fieldwork took place in Jeddah from August 2018 to September 2019. Individual free-listing, semi-structured interviews and an online survey questionnaire were carried out to document local medicinal plant. In total, 50 men and 50 women were interviewed face-to-face and 344 people responded to the questionnaire, of which 154 were men and 190 were women. RESULTS: A total of 94 medicinal plant vernacular names were documented representing 85 different plant species belonging to 37 families. Men cited 63 plants (33 plant families) and women 83 (36 plant families). Sixty-one plants were cited by both men and women, two only by men and 22 only by women. Men and women learn in similar ways, but generally use medicinal plants to treat different ailments. Women rely on medicinal plant use to a larger extent. CONCLUSION: Medicinal plant use is dependent on gendered social roles and experience, as well as preference for biomedicine or medicinal plant use. Men and women use similar plants, but women have greater knowledge that increases with age. Given the food-medicine continuum, women's double role of family food and care providers may explain their expertise in medicinal plant use.


Subject(s)
Arabs/psychology , Ethnobotany , Health Knowledge, Attitudes, Practice/ethnology , Medicine, Arabic , Medicine, Traditional , Phytotherapy , Plant Preparations/therapeutic use , Plants, Medicinal , Adult , Age Factors , Aged , Female , Gender Role , Humans , Interviews as Topic , Male , Middle Aged , Patient Preference/ethnology , Plant Preparations/isolation & purification , Plants, Medicinal/chemistry , Plants, Medicinal/classification , Saudi Arabia , Sex Factors , Surveys and Questionnaires , Young Adult
9.
J Womens Health (Larchmt) ; 29(7): 971-979, 2020 07.
Article in English | MEDLINE | ID: mdl-32212991

ABSTRACT

Background: We compared women's acceptability of urine and cervico-vaginal sample self-collection for high-risk (oncogenic) human papillomavirus (hrHPV) testing and assessed whether acceptability varied across racial/ethnic groups. Methods: As part of a test accuracy study of urine-based hrHPV testing, we recruited a convenience sample of women 25-65 years of age at two colposcopy clinics in North Carolina between November 2016 and January 2019. After self-collection of urine and cervico-vaginal samples, women completed a questionnaire on the acceptability of the sample collection methods. We coded open-ended questions inductively. All results are presented stratified by racial/ethnic group. Results: We included 410 women (119 Hispanic, 115 non-Hispanic Black, 154 non-Hispanic White, and 22 women with other racial identities). Most women (79%, 95% confidence interval [CI] = 76%-83%) had positive feelings about urine-based hrHPV testing. Women generally preferred urine (78%, 95% CI = 74%-82%) over cervico-vaginal self-collection (18%, 95% CI = 14%-22%), but the degree differed by racial/ethnic group, increasing from 75% in non-Hispanic Black to 82% in Hispanic women (p = 0.011). Most women reported at least one positive aspect of urine (89%) and cervico-vaginal self-collection (85%) for hrHPV testing with the most common positive aspect being easy sample collection, although 16% of women were concerned about performing the cervico-vaginal self-collection correctly. Conclusions: Self-collection for hrHPV-based cervical cancer screening is highly acceptable to women across different racial/ethnic groups in the United States, and most women in our study would be more likely to attend future cervical cancer screening appointments if screening were urine based. Urine-based hrHPV testing is a promising approach to improve cervical cancer screening coverage.


Subject(s)
Papillomaviridae/isolation & purification , Papillomavirus Infections/prevention & control , Patient Acceptance of Health Care/statistics & numerical data , Patient Preference/ethnology , Specimen Handling/methods , Urinalysis/methods , Uterine Cervical Neoplasms/prevention & control , Vagina/virology , Vaginal Smears/methods , Adult , Aged , Colposcopy , Early Detection of Cancer/methods , Female , Humans , Mass Screening/methods , Middle Aged , North Carolina , Papillomaviridae/genetics , Papillomavirus Infections/diagnosis , Papillomavirus Infections/urine , Predictive Value of Tests , Reproducibility of Results , Self-Examination/methods , Surveys and Questionnaires , Uterine Cervical Neoplasms/diagnosis , Vagina/pathology , Uterine Cervical Dysplasia/diagnosis
10.
BMC Pregnancy Childbirth ; 20(1): 100, 2020 Feb 12.
Article in English | MEDLINE | ID: mdl-32050919

ABSTRACT

BACKGROUND: Tanzania's One Plan II health sector program aims to increase facility deliveries from 50 to 80% from 2015 to 2020. Success is uneven among certain Maasai pastoralist women in Northern Tanzania who robustly prefer home births to facility births even after completing 4+ ANC visits. Ebiotishu Oondomonok Ongera (EbOO) is a program in Nainokanoka ward to promote facility births through a care-group model using trained traditional birth attendants (TBAs) as facilitators. Results to date are promising but show a consistent gap between women completing ANC and those going to a facility for delivery. A qualitative study was conducted to understand psychosocial preferences, agency for decision-making, and access barriers that influence where a woman in the ward will deliver. METHODS: In-depth interviews, focus group discussions and key-informant interviews were conducted with 24 pregnant and/or parous women, 24 TBAs, 3 nurse midwives at 3 health facilities, and 24 married men, living in Nainokanoka ward. Interviews and discussions were transcribed, translated, and analyzed thematically using a grounded theory approach. RESULTS: Most women interviewed expressed preference for a home birth with a TBA and even those who expressed agency and preference for a facility birth usually had their last delivery at home attributed to unexpected labor. TBAs are engaged by husbands and play a significant influential role in deciding place of delivery. TBAs report support for facility deliveries but in practice use them as a last resort, and a significant trust gap was documented based on a bad experience at a facility where women in labor were turned away. CONCLUSIONS: EbOO project data and study results show a slow but steady change in norms around delivery preference in Nainokanoka ward. Gaps between expressed intention and practice, especially around 'unexpected labor' present opportunities to accelerate this process by promoting birth plans and perhaps constructing a maternity waiting house in the ward. Rebuilding trust between facility midwives, TBAs, and the community on the availability of health facility services, and increased sensitivity to women's cultural preferences, could also close the gap between the number of women who are currently using facilities for ANC and those returning for delivery.


Subject(s)
Health Facilities , Health Knowledge, Attitudes, Practice/ethnology , Home Childbirth/psychology , Midwifery , Patient Preference/ethnology , Patient Preference/psychology , Adolescent , Adult , Decision Making , Female , Focus Groups , Humans , Male , Middle Aged , Pregnancy , Prenatal Care , Qualitative Research , Rural Population , Spouses/ethnology , Spouses/psychology , Tanzania/ethnology , Young Adult
11.
Geriatr Nurs ; 41(2): 89-97, 2020.
Article in English | MEDLINE | ID: mdl-31320127

ABSTRACT

Due to low levels of planned care, older adults of underrepresented communities tend to experience higher rates of unwanted treatments at end of life (EOL). The purpose of this review was to identify factors that may explain differences in EOL care preferences and planning between older adults from the general population and ethnically diverse populations. We hypothesized that culture-specific factors may be fundamental. To describe similarities and differences, we conducted a comprehensive literature search using keywords and subject headings. Findings from 14 studies were critically examined, grouped, and compared across studies and populations. While studies on general populations showed the significance of health and sociodemographic factors, studies on underrepresented groups frequently cited the importance of spirituality, belief systems, acculturation, healthcare system distrust, and social networks.


Subject(s)
Ethnicity/psychology , Patient Preference/ethnology , Terminal Care , Aged , Decision Making , Humans
12.
Ann Behav Med ; 54(3): 193-201, 2020 02 21.
Article in English | MEDLINE | ID: mdl-31595299

ABSTRACT

BACKGROUND: In the UK, cancer-screening invitations are mailed with information styled in a standard, didactic way to allow for informed choice. Information processing theory suggests this "standard style" could be more appealing to people who prefer deliberative thinking. People less likely to engage in deliberative thinking may be disenfranchised by the design of current standard-style information. PURPOSE: To examine the distribution of preference for deliberative thinking across demographic groups (Study 1) and explore associations between preference for deliberative thinking and perceived usefulness of standard- and narrative-style screening information (Study 2). METHODS: In Study 1, adults aged 45-59 (n = 4,241) were mailed a questionnaire via primary care assessing preference for deliberative thinking and demographic characteristics. In Study 2, a separate cohort of adults aged 45-59 (n = 2,058) were mailed standard- and narrative-style leaflets and a questionnaire assessing demographic characteristics, preference for deliberative thinking, and perceived leaflet usefulness. Data were analyzed using multiple regression. RESULTS: In Study 1 (n = 1,783) and Study 2 (n = 650), having lower socioeconomic status, being a women, and being of nonwhite ethnicity was associated with lower preference for deliberative thinking. In Study 2, the standard-style leaflet was perceived as less useful among participants with lower preference for deliberative thinking, while perceived usefulness of the narrative-style leaflet did not differ by preference for deliberative thinking. CONCLUSIONS: Information leaflets using a standard style may disadvantage women and those experiencing greater socioeconomic deprivation. More work is required to identify design styles that have a greater appeal for people with low preference for deliberative thinking.


Subject(s)
Colorectal Neoplasms/diagnosis , Consumer Behavior/statistics & numerical data , Early Detection of Cancer , Health Communication , Pamphlets , Patient Preference/statistics & numerical data , Social Class , Cohort Studies , Early Detection of Cancer/standards , Female , Health Communication/methods , Health Communication/standards , Humans , Male , Middle Aged , Patient Preference/ethnology , Sex Factors
13.
Health Care Women Int ; 41(7): 802-816, 2020 07.
Article in English | MEDLINE | ID: mdl-31671029

ABSTRACT

Many community-based studies from India have pointed out a sudden increase in the number of hysterectomy performed in the past few years. Using the data from the fourth round of National Family Health Survey (NFHS-4), we have attempted to examine the changing trends in the preference of health care facilities and reasons for hysterectomy in India. After analyzing the data, we have found that over the years, women are moving toward private health care providers for hysterectomy, and excessive menstrual bleeding is one of the most common reasons among them. A substantially higher proportion of hysterectomy in private health care facilities over the public raises the question of its necessity.


Subject(s)
Hospitals, Private/statistics & numerical data , Hysterectomy/statistics & numerical data , Patient Preference/ethnology , Adolescent , Adult , Cross-Sectional Studies , Delivery of Health Care , Female , Health Surveys , Humans , India/epidemiology , Middle Aged , Patient Preference/statistics & numerical data , Prevalence , Socioeconomic Factors , Uterine Diseases/epidemiology , Uterine Diseases/surgery
14.
Ginekol Pol ; 90(9): 544-548, 2019.
Article in English | MEDLINE | ID: mdl-31588553

ABSTRACT

OBJECTIVES: Patients' attitudes and expectations of prenatal screening for genetic abnormalities throughout pregnancy arerarely analyzed by researchers as emotions and fears are both important and challenging factors. Prenatal counselling hasnever been so difficult as we live in the era of detailed ultrasound scans, cell-free fetal DNA and detailed microarray testing.The aim of this study was to investigate Polish women's attitudes towards screening for chromosomal abnormalities andfetal defects. MATERIAL AND METHODS: The study was a prospective survey conducted among a population of Polish women. An electronicquestionnaire regarding prenatal diagnostics was distributed to a total number of 1072 female volunteers. RESULTS: 1044 patients (97.30%) stated that they were motivated to undergo prenatal diagnostics and would want to beinformed about fetal abnormalities. Over 90% of the respondents would want to be informed about serious defects witha high mortality rate (including trisomy 13 or 18). More than half the Polish women (54.83%) stated they were willing toconsider terminating pregnancy in the case of a severe abnormality. CONCLUSIONS: Polish women expect prenatal screening. Almost all Polish women would want to be informed about bothgenetic and anatomical abnormalities and over half of them would consider terminating pregnancy in the case of a severeabnormality. Willingness to learn about a defect increased with average household income, and the statement of a will toterminate pregnancy depended mostly on maternal age and type of fetal abnormality.


Subject(s)
Health Knowledge, Attitudes, Practice/ethnology , Patient Preference , Prenatal Diagnosis , Adult , Female , Humans , Middle Aged , Patient Preference/ethnology , Patient Preference/statistics & numerical data , Poland/ethnology , Pregnancy , Prenatal Diagnosis/psychology , Prenatal Diagnosis/statistics & numerical data , Prospective Studies , Surveys and Questionnaires , Women , Young Adult
15.
Drug Alcohol Depend ; 204: 107547, 2019 11 01.
Article in English | MEDLINE | ID: mdl-31536877

ABSTRACT

BACKGROUND: Death from fentanyl-related overdose is now a leading cause of mortality among US adults. We sought to characterize fentanyl preference among street-based people who use drugs (PWUD). METHODS: Cross-sectional surveys were administered to PWUD (N = 308) who illicitly used heroin or prescription opioids in the prior six months. Recruitment occurred in 2017 in three US east coast cities with high overdose mortality: Baltimore, Boston, and Providence. Our main outcome was preference for fentanyl (yes/no); exposures included sociodemographics, drug use, and overdose history. Pearson's χ2, Shapiro-Wilk-Mann rank-sum tests, and tiered log-binomial regression determined sociodemographic and exposure-related factors associated with fentanyl preference. RESULTS: Preference for nonmedical use of fentanyl was reported by 27% (n = 83) of the sample. Fentanyl preference was associated with non-Hispanic white race (adjusted risk ratio (ARR) = 1.68, 95% confidence interval (CI):1.18-2.40), daily illicit drug use (aRR = 2.2, CI:1.71-2.87), and overdose ≥1 year ago (aRR = 1.33, CI:1.18-1.50). Age (in decades; aRR = 0.77, CI:0.61-0.98) and overdose <1 year ago (aRR = 0.92, CI:0.87-0.97) were associated with a decreased likelihood of preference. In our model excluding sociodemographics, initiating opioid use with non-prescribed opioids was associated with fentanyl preference (aRR = 1.48, CI:1.26-1.73). CONCLUSION: In three cities with high levels of opioid use and overdose, a quarter of street based PWUD reported preferring fentanyl. An opioid use age cohort effect and disproportionate access to prescription opioids by race could be contributing to preference. Frequency of opioid use, not route of administration, was associated with preference. Our data demonstrate the need to consider preferences for fentanyl when targeting services and interventions for PWUD.


Subject(s)
Drug Users/psychology , Fentanyl/analysis , Illicit Drugs/analysis , Opioid-Related Disorders/psychology , Patient Preference/psychology , Adolescent , Adult , Baltimore , Boston , Cross-Sectional Studies , Drug Overdose/ethnology , Drug Overdose/mortality , Female , Humans , Male , Middle Aged , Opioid-Related Disorders/ethnology , Opioid-Related Disorders/mortality , Patient Preference/ethnology , Prescriptions/statistics & numerical data , Rhode Island , Surveys and Questionnaires , White People/psychology , Young Adult
16.
Ethiop J Health Sci ; 29(3): 343-352, 2019 May.
Article in English | MEDLINE | ID: mdl-31447502

ABSTRACT

BACKGROUND: The influence of socio-cultural factors on institutional birth is not sufficiently documented in Ethiopia. Thus, this study explores socio-cultural beliefs and practices during childbirth and its influences on the utilization of institutional delivery services. METHODS: A qualitative study was conducted in three regions of Ethiopia through eight focus group discussions (with women) and thirty in-depth interviews with key informants which included health workers, community volunteers, and leaders. The data were analyzed thematically. RESULTS: The study identified six overarching socio-cultural factors influencing institutional birth in the study communities. The high preference for traditional birth attendants (TBAs) and home as it is intergenerational culture and suitable for privacy are among the factors. Correspondingly, culturally unacceptable birth practices at health facilities (such as birth position, physical assessment, delivery coach) and inconvenience of health facility setting to practice traditional birth rituals such as newborn welcoming ceremony made women avoid health facility birth. On the other hand, misperceptions and worries on medical interventions such as episiotomy, combined with mistreatment from health workers, and lack of parent engagement in delivery process discouraged women from seeking institutional birth. The provision of delivery service by male health workers was cited as a social taboo and against communities' belief system which prohibited women from giving birth at a health facility. CONCLUSIONS: Multiple socio-cultural factors and perceptions were generally affected utilization of institutional birth in study communities. Hence, culturally competent interventions through education, re-orientation, and adaptation of beneficial norms combined with women friendly care are essential to promote health facility birth.


Subject(s)
Culture , Delivery, Obstetric/methods , Patient Acceptance of Health Care/ethnology , Ethiopia , Female , Focus Groups , Humans , Interviews as Topic , Male , Patient Preference/ethnology , Pregnancy , Privacy , Qualitative Research
17.
Geriatr Gerontol Int ; 19(8): 829-833, 2019 Aug.
Article in English | MEDLINE | ID: mdl-31282019

ABSTRACT

AIM: Japan introduced dementia-friendly initiatives into its national policies to help people with dementia remain involved in society for as long as possible. However, some people might choose to live in a nursing home to avoid care burden on family members. Understanding middle-aged adults' preferences for place of care and identifying factors that influence their preferences would help policy decision-makers promote dementia-friendly initiatives. The present study aimed to investigate the care preferences of middle-aged adults if they acquired dementia in Japan and the USA. METHODS: We carried out a cross-sectional observational study using an internet-based questionnaire survey of Japanese residents with Japanese ethnicity, Japanese Americans, and non-Asian Americans aged 40-70 years. A total of 301 participants, including 104 Japanese residents, 93 Japanese Americans and 104 non-Asian Americans, completed the survey. Participants were asked to answer the items based on a hypothetical situation in which they had acquired dementia requiring regular care and supervision. RESULTS: Participants preferred nursing home care (29.9%), followed by professional home care (19.6%), family home care (17.6%) and hospital care (11.3%). Japanese residents had a significantly lower preference for professional home care than did Japanese or non-Asian Americans (adjusted odds ratio 0.28, 95% confidence interval 0.10-0.75). Between-ethnicity difference in care preferences was not observed. CONCLUSIONS: A low preference for professional home care among the middle-aged adults might be influenced by country-specific long-term and dementia care systems. Policy decision-makers should develop professional home care services that are more available for families of people living with dementia. Geriatr Gerontol Int 2019; 19: 829-833.


Subject(s)
Dementia , Home Care Services , Patient Preference , Skilled Nursing Facilities , Aged , Asian/psychology , Asian/statistics & numerical data , Asian People/psychology , Asian People/statistics & numerical data , Cross-Cultural Comparison , Cross-Sectional Studies , Dementia/ethnology , Dementia/psychology , Female , Humans , Independent Living/psychology , Independent Living/statistics & numerical data , Japan/epidemiology , Male , Middle Aged , Needs Assessment , Patient Preference/ethnology , Patient Preference/statistics & numerical data , United States/epidemiology
18.
Soc Sci Med ; 235: 112358, 2019 08.
Article in English | MEDLINE | ID: mdl-31196576

ABSTRACT

Current literature on patient-physician concordance emphasizes its advantages. Racial, ethnic, cultural and linguistic concordance was found to impact patient-physician communication positively and to lead to improved healthcare quality and outcomes. Patients' preference for ethnic discordance, on the other hand, appears anomalous and has barely been studied. The present research sought to evaluate the rates of patients from the Jewish majority and the Arab minority populations in Israel who prefer patient-physician ethnic discordance, and to examine the reasons for this preference. A mixed method methodology was employed: a survey (n = 760; 505 Jews, 255 Arabs), as well an exploratory qualitative study based on in-depth interviews with 38 Jewish and Arab patients in Israel. The survey's findings indicate that Arabs are more likely to prefer to be treated by a Jewish physician than are Jews to prefer an Arab physician (family physician - 4.3% vs. 0.4%, p < .0001; surgeon - 5.9% vs. 0.8%, p < .0001). The difference is age-dependent: young Arabs are more likely than older ones to prefer a Jewish physician. The reasons for Arabs' preference for a Jewish physician are fear of a breach of confidentiality, and internalized racism. The reasons for Jews' preference for an Arab physician are the disposition and professionalism attributed to the latter, which are perceived to stem from their need, as a minority population, to excel and to prove themselves. Despite the emphasis placed in scholarship and clinical practice on the importance of cultural and linguistic competency in healthcare, a preference for ethnic discordance should also be taken into account, especially regarding patients from minority collectivist populations.


Subject(s)
Ethnicity/psychology , Patient Preference/psychology , Physician-Patient Relations , Racism/statistics & numerical data , Adult , Arabs/psychology , Arabs/statistics & numerical data , Ethnicity/statistics & numerical data , Female , Humans , Israel/ethnology , Jews/psychology , Jews/statistics & numerical data , Male , Middle Aged , Patient Preference/ethnology , Patient Preference/statistics & numerical data , Racism/ethnology , Racism/psychology , Surveys and Questionnaires
19.
Med Care ; 57(7): 521-527, 2019 07.
Article in English | MEDLINE | ID: mdl-31192891

ABSTRACT

BACKGROUND/OBJECTIVES: Ideally, doctors ask each patient's current views about involvement in decision-making, but inquiries prove inconclusive with some inpatients. Doctors may then need indirect indicators of those views. We, therefore, explored ethnic group and sex as cultural indicators of patients' current preferences and perceptions about such involvement. METHODS: In open-response interviews, we asked those preferences and perceptions of 26 Mexican American (MA), 18 Euro-American (EA), and 14 African American (AA) adult inpatients. We content-analyzed responses blindly to identify themes and linked those themes to ethnic group and sex. RESULTS: Only sex indicated patients' current preferences. Regardless of ethnic group, most men preferred decision-making by the doctor (with or without the patient); most women, decision-making by the patient (with or without the doctor). But both ethnic group and sex together indicated patients' current perceptions. Specifically, each ethnic group as a whole most often perceived decision-making by the doctor alone and the patient alone on separate occasions, but the sexes within ethnic groups differed. For MAs roughly equal numbers of men and women perceived such decision making, for EAs more men than women did so, and for AAs more women than men did so. In addition, no EA men but some EA women perceived decision-making by the doctor alone, and some MA men and women-but no EAs or AAs-perceived decision-making by the patient alone. Primarily ethnic group indicated matches between current preferences and perceptions: Most EAs had matches; most MAs and AAs did not. CONCLUSIONS: Whenever direct inquiries fail, ethnic group and sex may indicate adult inpatients' current preferences and perceptions about involvement in decision-making. Yet matching those preferences and perceptions, especially for minority patients, remains difficult.


Subject(s)
Black or African American/psychology , Decision Making , Mexican Americans/psychology , Patient Participation , Patient Preference/ethnology , Patient-Centered Care , White People/psychology , Aged , Female , Humans , Male , Mexican Americans/statistics & numerical data , Middle Aged , Physician-Patient Relations , Sex Factors , White People/statistics & numerical data
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