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1.
Lancet Haematol ; 10(3): e165, 2023 03.
Artículo en Inglés | MEDLINE | ID: mdl-36858675
2.
Blood Cancer Discov ; 2(2): 119-124, 2021 03.
Artículo en Inglés | MEDLINE | ID: mdl-34179821

RESUMEN

African Americans are at higher risk of multiple myeloma (MM) yet underrepresented in clinical trials and reap less benefits from novel therapies of the disease. To improve representation of African Americans in MM clinical trials, researchers, providers, patients, industry partners and regulators at the FDA-AACR workshop developed recommendations to all stakeholders. The outlined principles offer a roadmap to addressing disparities broadly in clinical trials.


Asunto(s)
Mieloma Múltiple , Negro o Afroamericano , Atención a la Salud , Instituciones de Salud , Humanos , Mieloma Múltiple/terapia
3.
J Natl Compr Canc Netw ; 19(4): 378-384, 2021 04.
Artículo en Inglés | MEDLINE | ID: mdl-33845456

RESUMEN

The 21st Century Cures Act (Cures Act), signed into law in 2016, was designed to advance new therapies by modernizing clinical trials, funding research initiatives, and accelerating the development and use of health information technology. To analyze the current issues in cancer care related to the implementation and impact of the Cures Act, NCCN convened a multistakeholder working group. Participants discussed the legislation's impact on the oncology community since enactment and identified the remaining gaps and challenges as experienced by stakeholders. In June 2020, the policy recommendations of the working group were presented at the virtual NCCN Policy Summit: Accelerating Advances in Cancer Care Research: A Lookback at the 21st Century Cures Act in 2020. The summit consisted of informative discussions and a multistakeholder panel to explore the recommendations and the future of the Cures Act. This article explores identified policy recommendations from the NCCN Working Group and the NCCN Policy Summit, and analyzes opportunities to advance innovative cancer care and patient access to data.


Asunto(s)
Investigación Biomédica/tendencias , Neoplasias , Humanos , Neoplasias/terapia
4.
J Natl Compr Canc Netw ; 16(7): 801-806, 2018 07.
Artículo en Inglés | MEDLINE | ID: mdl-30006422

RESUMEN

As a disease, cancer can affect an individual's well-being, from physical to psychological, social, and even spiritual wellness. The cancer survivor population must navigate a complex, constantly evolving field, with the assistance of their care team, to conquer the disease. To address the unmet needs of the cancer survivorship community, NCCN conducted an environmental scan of existing and emerging aspects of survivorship cancer care through stakeholder meetings with survivors and patient advocacy groups to discuss needs, opportunities, and challenges in providing high-quality, patient-centered cancer survivorship care. The findings of this environmental scan directly informed the corresponding NCCN Patient Advocacy Summit: Addressing Survivorship in Cancer Care, held in Washington, DC, on December 1, 2017. In addition to the many patient advocacy groups, the summit featured stakeholders from all relevant areas of survivorship care. This article encapsulates the findings of the thorough environmental scan and the discussion from the NCCN Patient Advocacy Summit, including identified gaps and needs in addressing survivorship in cancer care.


Asunto(s)
Supervivientes de Cáncer/psicología , Neoplasias/psicología , Defensa del Paciente , Atención Dirigida al Paciente/métodos , Supervivencia , Congresos como Asunto , District of Columbia , Necesidades y Demandas de Servicios de Salud , Humanos , Neoplasias/mortalidad , Neoplasias/terapia , Calidad de Vida
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