[The patient voice in psychiatry: not heard, co-creation, co-optation or parallel organisation?] / De stem van de patiënt in de psychiatrie: niet gehoord, cocreatie, coöptatie of parallelle organisatie?

BACKGROUND: A key ethical issue in psychiatry concerns the relationship with patients. A central dilemma is that experiential knowledge (regarding existential recovery) and professional knowledge (the framework of specific-medication-for-specific-brain-disorder) are not easily integrated into a practice of co-creation. AIM: To describe the status quo in health care and science. METHOD: Qualitative review. RESULTS: Under the influence of critical psychiatry ('antipsychiatry'), the recovery movement, the voice hearing movement and open science, the patient voice has gained influence while the scientific framework of academic psychiatry/psychology is critically re-examined. Co-creation in mental health services is limited whilst parallel development is more successful. For example, experience-based recovery academies are developing primarily in the domain of social care whilst evidence-based specialist treatment remains the norm in mental health services. There is, however, a growing call for co-creation around recovery-oriented work in the mental health sector, despite limited institutional readiness. There is also a growing movement of user research responding to epistemic injustice and driving patient-driven innovations - although sometimes on the basis of appropriation without source awareness. CONCLUSION: Experiential knowledge is growing as the theoretical framework of psychiatry is in the process of change. This creates the conditions for co-creation of a new values-driven psychiatry.

The Lancashire Quality of Life Profile: first experiences in The Netherlands.

In the Netherlands, as in many other European countries, there is a strong desire for a reliable, valid and feasible instrument to assess the quality of life of people with long-term mental illness. After careful evaluation, it was decided to translate and adapt the Lancashire Quality of Life Profile (LQOP) developed by Oliver and associates. This article presents the preliminary results of a pilot study using the LQOLP. Emphasis is given to describing the psychometric properties of the extended Dutch version and its clinical applicability. Results indicate that the psychometric properties of the translated LQOLP are encouraging and that the instrument can be used for people with mental illness who live in the Netherlands.