Should I trust or should I go? How people perceive and assess the quality of science communication to avoid fake news.

This paper investigates how citizens of five European countries (Italy, Poland, Portugal, Slovakia, and Spain) enquire about scientific issues, how they rate scientific information on climate change and vaccines in terms of quantity and quality, and their strategies for overcoming perceived defects. We conducted a public consultation involving almost 500 citizens and addressed controversial science-related topics. Discussions were qualitatively content analyzed. The public consultations revealed the prevalence of traditional media as a source of scientific information, and the results presented a general perception of inadequate, imprecise, and insufficient scientific communication. Finally, we show how traditional media are still the most frequently used channels and that personal criteria prevail in the evaluation of the reliability of information sources. Supplementary Information: The online version contains supplementary material available at 10.1007/s11135-022-01569-5.

Development of a Self-Assessment Tool for the Nontechnical Skills of Hemophilia Teams.

BACKGROUND AND OBJECTIVES: The treatment of chronic illnesses requires health care professionals (HCPs) to master several nontechnical skills to meet patient care needs. This article aims to describe the rationale and the inductive process through which a self-assessment tool for the nontechnical skills of hemophilia teams was conceived, developed, and tested. METHODS: Starting from an explorative analysis of hemophilia HCP work experiences, the process followed 3 phases: an in-depth analysis of hemophilia HCP skills; the questionnaire development; and a pilot study. RESULTS: Using the voice of HCPs as a starting point, the tool proved to be able to identify precise cross-professional and intercultural challenges as well as related required and/or acquired skills in the hemophilia field. CONCLUSION: The proposed tool may contribute to providing HCPs with strategic knowledge to successfully perform everyday practices, to improve the effectiveness of hemophilia teams and the care model adopted by their centers, and to implement intercultural research in this field. It may be used to propose ad hoc training courses targeted by challenge, in order to fill the major gaps reported by the teams, or targeted by medical specialty or country (and therefore health care system) specificity.

Health care professionals dealing with hemophilia: insights from the international qualitative study of the HERO initiative.

Background: Assessing the viewpoints of health care professionals concerning their work with chronic patients is a relatively new research topic, widely overlooked in the literature. However, understanding their subjective work experience is highly relevant for identifying problems and perceived resources, enhancing health service organisation, improving relationships or communication with patients, and maintaining well-being. Purpose and method: Qualitative data from the "Haemophilia Experience, Results and Opportunities" Initiative - a research program aimed at investigating the psychosocial aspects of hemophilia - were used to evaluate the experiences of 62 professionals from seven countries around the world. Semi-structured interviews were submitted to thematic analysis of elementary contexts with the aid of T-Lab software. Results: Five dominant themes emerged, identifying the main challenges that professionals have to deal with in their everyday work practice: caring for impaired adult patients; handling policies and stakeholders; providing counselling on diagnosis and reproductive choices; considering the role of family dynamics; coping with adolescent patients. Conclusion: The outcomes of the study provide an opportunity to develop the area of the non-technical skills in the core curriculum of those who work with chronic illnesses by focusing on cross-professional competences and by improving a comprehensive care model for hemophilia patients.

Italian parliamentary debates on energy sustainability: How argumentative 'short-circuits' affect public engagement.

Public engagement is considered a crucial process in the transition towards sustainable energy systems. However, less space has been devoted to understand how policy makers and stakeholders view citizens and their relationship with energy issues. Nonetheless, together with technological advancements, policies and political debates on energy affect public engagement as well as individual practices. This article aims at tackling this issue by exploring how policy makers and stakeholders have socially constructed sustainable energy in Italian parliamentary debates and consultations during recent years (2009-2012). Results show that societal discourses on sustainable energy are oriented in a manner that precludes public engagement. The political debate is characterised by argumentative 'short-circuits' that constrain individual and community actions to the acceptance or the refusal of top-down decisions and that leave little room for community empowerment and bottom-up innovation.