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1.
J Cancer Educ ; 28(4): 729-37, 2013 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-23881820

RESUMEN

The objective of this study was to explore beliefs and treatment decisions of foreign-born Latino men from Cuba, Mexico, Colombia, and Venezuela, who have been diagnosed with cancer and who live in Central Florida, USA. Experiences related to knowledge of diagnosis, treatment decisions, communication with health providers, family involvement, and advance care planning (ACP) discussions following the diagnosis of cancer are central to this study. This study used qualitative in-depth semi-structured interviews and thematic analysis. The interviews were conducted with 15 Latino men who have been diagnosed with cancer within the past 5 years and who reside in the community. The interviews were conducted and transcribed in Spanish and then translated into English. The median age was 55.4 years. Nine Latino men had prostate cancer, two had brain cancer, two had colorectal cancer, and two had lung cancer. Emerging themes involved the suddenness of the diagnosis, fear of dying, expectations of diagnosis-related communication, reliance on physicians for treatment decisions, limited information pertaining to ACP, family support, and role changes. Latino men's limited knowledge of cancer diagnosis and treatment options coupled with their fear led them to immediately believe that they were going to die. Knowledge gaps regarding diagnosis-related communication, treatment decisions, and ACP varied among the men. The forthright diagnosis communication and the expectation to engage in decision making are contrary to Latinos men's beliefs of reliance on health providers decisions. The findings contribute to understanding Latino men's beliefs about a cancer diagnosis and treatment decisions.


Asunto(s)
Planificación Anticipada de Atención/estadística & datos numéricos , Características Culturales , Toma de Decisiones , Conductas Relacionadas con la Salud/etnología , Hispánicos o Latinos/psicología , Neoplasias de la Próstata/psicología , Neoplasias de la Próstata/terapia , Adulto , Anciano , Colombia , Conocimientos, Actitudes y Práctica en Salud , Humanos , Masculino , Persona de Mediana Edad , Proyectos Piloto
2.
Support Care Cancer ; 21(5): 1233-9, 2013 May.
Artículo en Inglés | MEDLINE | ID: mdl-23192672

RESUMEN

PURPOSE: Limited knowledge exists pertaining to advance care planning (ACP) among Colombian, Mexican, and Puerto Rican women with a cancer diagnosis living in Central Florida, in the USA. The purpose of the study is to identify factors that facilitated the completion of ACP and decisions making patterns among the three groups of Latinas. METHODS: The research method used was an exploratory qualitative in-depth open-ended semi-structured interview with a grounded theoretical approach and thematic analysis. The interviews were conducted in Spanish with a purposeful sample of 45 Latinas (15 in each group) diagnosed with cancer. RESULTS: A total of ten women (22 %) in the study documented at least one form of ACP. Thirty-five women identified obstacles to accessing information regarding ACP, relating this to insurance and financial factors. Among the Colombian women, one completed a living will, health care surrogate, and power of attorney (all forms of ACP), and three just a living will. Two Puerto Rican women completed all, two a living will, and one both a living will and an enduring power of attorney. Only one Mexican woman completed a living will. CONCLUSIONS: This study identifies a knowledge gap regarding ACP among Latina women with cancer diagnosis living in Central Florida, in the USA. Differences between the three groups exist as a result of migration/immigration history, family support, education, English language proficiency, income, knowledge gaps, and information ascertained by medical and health professionals. These differences contribute to their readiness, receptiveness, and willingness to engage in documenting a living will, a health care surrogate, and an enduring power of attorney for health decisions.


Asunto(s)
Planificación Anticipada de Atención/estadística & datos numéricos , Hispánicos o Latinos/estadística & datos numéricos , Neoplasias/terapia , Adolescente , Adulto , Colombia/etnología , Toma de Decisiones , Emigrantes e Inmigrantes/estadística & datos numéricos , Femenino , Florida , Conocimientos, Actitudes y Práctica en Salud , Hispánicos o Latinos/etnología , Humanos , Entrevistas como Asunto , Voluntad en Vida/etnología , Voluntad en Vida/estadística & datos numéricos , México/etnología , Persona de Mediana Edad , Neoplasias/etnología , Apoderado/estadística & datos numéricos , Puerto Rico/etnología , Adulto Joven
3.
Soc Work Health Care ; 50(10): 828-44, 2011.
Artículo en Inglés | MEDLINE | ID: mdl-22136348

RESUMEN

Oral health care is critical for farmworkers' families in Central Florida. There is little research regarding the access to primary oral health care, barriers, and behaviors of Mexican migrant families. Forty semi-structured interviews were conducted with parents who are farmworkers in order to understand the factors that impact dental service utilization. Other factors that were also examined related to parental decisions regarding visits to the dentist with their children. This study highlights the inconsistent and inadequate patterns of dental health care services available for women, men, and children of farmworkers in Central Florida.


Asunto(s)
Agricultura , Odontología , Accesibilidad a los Servicios de Salud , Salud Bucal , Atención Primaria de Salud , Adolescente , Adulto , Niño , Preescolar , Femenino , Florida , Disparidades en Atención de Salud , Humanos , Entrevistas como Asunto , Masculino , México/etnología , Migrantes , Adulto Joven
4.
Soc Sci Med ; 71(11): 2028-37, 2010 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-20943298

RESUMEN

Few studies have engaged issues of social class and access related to dental health care policy from an ethnographic perspective. The state of Florida in the US has one of the poorest records in the nation for providing dental care for low-income children, falling especially short for Medicaid-enrolled children. In this paper, we discuss unmet dental health needs of children in migrant farmworker families. Although one of the most marginalized populations, most are eligible for Medicaid and are thus covered for dental services. However, serious disparities have been linked to the lack of access through the public insurance system. This study was informed by participant observation at dental clinics and a Migrant Head Start Center and interviews with dental health providers (n = 19) and migrant farmworker parents (n = 48) during 2009. Our results indicate that some typical factors associated with poor oral health outcomes, such as low dental health literacy, may not apply disproportionately to this population. Instead, we argue that structural features and ineffective policies contribute to oral health care disparities. Dental Medicaid programs are chronically underfunded, resulting in low reimbursement rates, low provider participation, and a severe distribution shortage of dentists within poor communities. We characterize the situation for families in Florida as one of "false hope" because of the promise of services with neither adequate resources nor the urgency to provide them. The resulting system of charity care, which leads dentists to provide pro bono care instead of accepting Medicaid, serves to only further persistent inequalities. We provide several recommendations, including migrant-specific efforts such as programs for sealants and new mothers; improvements to the current system by removing obstacles for dentists to treat low-income children; and innovative models to provide comprehensive care and increase the number of providers.


Asunto(s)
Agricultura , Atención Dental para Niños/organización & administración , Salud de la Familia , Disparidades en Atención de Salud , Medicaid/organización & administración , Salud Bucal , Migrantes , Niño , Atención Dental para Niños/economía , Florida , Política de Salud , Recursos en Salud/provisión & distribución , Necesidades y Demandas de Servicios de Salud , Humanos , Medicaid/economía , México/etnología , Pobreza , Investigación Cualitativa , Clase Social , Estados Unidos
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