Understanding the Systems, Contexts, Behaviors, and Strategies of Parents Advocating for Their Children With Down Syndrome.

In the current qualitative research study, we focused on understanding the ecological systems, contexts, behaviors, and strategies of parents ( N = 435) advocating for their children with an intellectual and developmental disability diagnosis, specifically Down syndrome (DS). Based on the data analysis, parents of children with DS advocate for their children frequently, in a variety of settings, with different actions, attitudes, motivations, and outcomes. The most common settings where advocacy occurred were primarily school and healthcare systems. The goals of parents often included inclusiveness, equality, and acceptance, whereas a few parents reported advocating due to discrimination and judgment. Implications for further research and professional practice also are described.

"I Don't Like Being That Hyperaware of My Body": Women Survivors of Sexual Violence and Their Experience of Exercise.

The experience of exercise among women survivors of sexual violence is a multifaceted phenomenon. In effort to inform treatment interventions, we used a phenomenological approach to describe the lived experience of exercise among women survivors of sexual violence. Data analysis from a focus group discussion and individual interviews with eight women survivors receiving services at a rape crisis center (RCC) revealed four themes: exercising (and not exercising) fosters safety, exercising is risky, past trauma restricts exercise choices, and exercising is beneficial. Findings indicate that survivors' experience of exercise is related to their connections with self and their social environment. Survivors' choices related to exercise were impacted by their stage of recovery. A variety of social-contextual factors appeared to support or impede motivation to exercise and it was not disinterest in exercise or low confidence in the ability to exercise, but restricted exercise options perceived as safe that influenced exercise motivation.

Hope, Coping, and Relationship Quality in Mothers of Children With Down Syndrome.

Parenting a child with Down syndrome may pose unique challenges for parents' relationship quality. This study used structural equation modeling with a sample of 351 mothers of children with Down syndrome to test if hope mediated the association between mothers' various coping behaviors and mothers' relationship quality. Hope was defined as a generalized positive state that comes from a personal sense of agency. Results indicated a greater degree of religious coping and internal coping were each significantly associated with more hope, whereas support seeking was not related with more hope. Higher hope was significantly associated with greater relationship quality. Bootstrapped indirect effects from both religious coping and internal coping to hope, and then hope to relationship quality, were identified. Implications for therapists and future research are described.

Public Perspectives Toward the Sexual Behavior of an Individual With Dementia Residing in Long-Term Care.

OBJECTIVE: This study examines public perspectives toward sexual behavior within a heterosexually married couple in which one individual has dementia and resides in a long-term care facility. METHOD: Respondents included 318 adults in the Southern United States. Paired sample t tests were used to understand how the diagnosis of dementia statistically influenced participants' responses, and a logistic regression model was used to understand how a vignette character's sex and respondent characteristics influenced attitudes. RESULTS: Fifty-eight percent of respondents believed that a sexual relationship should be permitted for an adult with dementia, and t tests revealed that dementia had a statistical effect on participants' responses. Sex of the vignette character was not a predictor of attitudes. Participant's qualitative rationales are offered for additional insight. DISCUSSION: Respondents who felt that a couple should not engage in a sexual relationship commonly cited consent-related issues as their primary concern. Implications for policy development are discussed.