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1.
Am J Med Genet C Semin Med Genet ; 196(1): e32075, 2024 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-37929633

RESUMEN

Our current understanding of adaptation in families of individuals with Down syndrome (DS) is based primarily on findings from studies focused on participants from a single country. Guided by the Resiliency Model of Family Stress, Adjustment, and Adaptation, the purpose of this cross-country investigation, which is part of a larger, mixed methods study, was twofold: (1) to compare family adaptation in 12 countries, and (2) to examine the relationships between family variables and family adaptation. The focus of this study is data collected in the 12 countries where at least 30 parents completed the survey. Descriptive statistics were generated, and mean family adaptation was modeled in terms of each predictor independently, controlling for an effect on covariates. A parsimonious composite model for mean family adaptation was adaptively generated. While there were cross-country differences, standardized family adaptation mean scores fell within the average range for all 12 countries. Key components of the guiding framework (i.e., family demands, family appraisal, family resources, and family problem-solving communication) were important predictors of family adaptation. More cross-country studies, as well as longitudinal studies, are needed to fully understand how culture and social determinants of health influence family adaptation in families of individuals with DS.


Asunto(s)
Adaptación Psicológica , Síndrome de Down , Humanos , Síndrome de Down/genética , Padres , Encuestas y Cuestionarios , Salud de la Familia
2.
J Clin Nurs ; 31(5-6): 689-702, 2022 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-34196048

RESUMEN

AIMS AND OBJECTIVES: To evaluate the effectiveness of a midwife-family provided social support programme (MFPSS programme) for first-time adolescent mothers on preventing postpartum depression (PPD) at 3-month postpartum. BACKGROUND: Adolescent mothers with lack of social support are a high-risk group for increasing the development of PPD. Interventions designed to promote social support and provided to mothers following childbirth have a more effective role in preventing PPD. DESIGN: The Consolidated Standards of Reporting Trials (CONSORT) guidelines for a single-blinded randomised controlled trial were conducted. METHODS: Forty-two adolescent mothers were randomly assigned to 4-week MFPSS programme plus routine care (n = 21) and routine care only (n = 21). PPD was measured using the Edinburgh Postnatal Depression Scale (EPDS), rates and severity at baseline, post-test, 6-week and 3-month postpartum follow-ups. Repeated measures ANOVA and Cohen's d were used to analyse the data. RESULTS: At the last follow-up, 20 (95.24%) participants remained in each group. Data were analysed based on 40 adolescent mothers. After the intervention, the mean EPDS scores in the intervention group were significantly lower than the same scores in the control group at post-test, 6-week and 3-month postpartum follow-ups. Similarly, the rates and severity of PPD in the intervention group were also lower than the control group at post-test, 6-week and 3-month postpartum follow-ups. CONCLUSION: Psychosocial support interventions designed to incorporate support from midwives and family members is an effective intervention for preventing PPD in first-time adolescent mothers and the preventive effect is sustained for up to 3-month postpartum. RELEVANCE TO CLINICAL PRACTICE: Midwives or nurses could apply the MFPSS programme to nursing care for adolescent mothers and family members by adding health information about PPD and promoting social support. CLINICAL TRIAL REGISTRATION: The trial was registered with Thai Clinical Trials Registry (TCTR). The trial registration number is TCTR 20190206004.


Asunto(s)
Depresión Posparto , Partería , Adolescente , Madres Adolescentes , Depresión Posparto/prevención & control , Femenino , Humanos , Madres , Embarazo , Sistemas de Apoyo Psicosocial
3.
J Fam Nurs ; 27(1): 8-22, 2021 02.
Artículo en Inglés | MEDLINE | ID: mdl-33272069

RESUMEN

Down syndrome (DS) is the most common genetic cause of intellectual disability worldwide. The purpose of this analysis was to determine the internal consistency reliability of eight language versions of the Family Management Measure (FaMM) and compare family management of DS across cultures. A total of 2,740 parents of individuals with DS from 11 countries completed the FaMM. The analysis provided evidence of internal consistency reliability exceeding .70 for four of six FaMM scales for the entire sample. Across countries, there was a pattern of positive family management. Cross-cultural comparisons revealed parents from Brazil, Spain, and the United States had the most positive family management and respondents from Ireland, Italy, Japan, and Korea had the least positive. The rankings were mixed for the four remaining countries. These findings provide evidence of overall strong internal consistency reliability of the FaMM. More cross-cultural research is needed to understand how social determinants of health influence family management in families of individuals with DS.


Asunto(s)
Síndrome de Down , Comparación Transcultural , Humanos , Padres , Reproducibilidad de los Resultados , Encuestas y Cuestionarios , Estados Unidos
4.
Sex Reprod Healthc ; 20: 72-76, 2019 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-31084823

RESUMEN

OBJECTIVE: To investigate the association between psychosocial factors and postpartum depression. METHODS: A cross-sectional design was used. The sample consisted of 166 postpartum mothers recruited by cluster sampling from two public health centers in South Jakarta, Jakarta Province, Indonesia, during February to April 2016. Data collection was through home visits. Instruments employed were: the Edinburgh Postnatal Depression Scale (EPDS); the Childcare Stress Inventory; the Postpartum Support Questionnaire to measure social support; the Dyad Adjustment Scale to measure marital satisfaction; the Rosenberg Self-esteem Scale; and the modified Life Events Questionnaire to measure stressful life events. Data analysis consisted of linear regression. RESULTS: The prevalence of postpartum depression was 19.88%. Childcare stress, marital satisfaction and stressful life events were associated with postpartum depression (R2 = 0.298, F = 16.794, p-value < 0.001). Stressful life events explained the most variance in EPDS scores (ß = 0.220, P-value < 0.001), followed by marital satisfaction (ß = -0.321, P-value < 0.01) and childcare stress (ß = 0.008, P-value < 0.01). CONCLUSION: The results of this study can be used to inform the screening of vulnerable sub-groups for postpartum depression and to develop nursing interventions that might alleviate postpartum depression.


Asunto(s)
Climaterio/psicología , Depresión Posparto/epidemiología , Cuidado del Lactante/psicología , Relaciones Interpersonales , Madres/psicología , Adolescente , Adulto , Estudios Transversales , Femenino , Humanos , Indonesia/epidemiología , Recién Nacido , Prevalencia , Escalas de Valoración Psiquiátrica , Factores de Riesgo , Estrés Psicológico/psicología , Encuestas y Cuestionarios , Adulto Joven
5.
BMC Public Health ; 14: 638, 2014 Jun 23.
Artículo en Inglés | MEDLINE | ID: mdl-24953678

RESUMEN

BACKGROUND: Home hazards are associated with toddlers receiving unintentional home injuries (UHI). These result in not only physical and psychological difficulties for children, but also economic losses and additional stress for their families. Few researchers pay attention to predictors of home hazards among toddlers in a systematic way. The purpose of this study is firstly to describe the characteristics of homes with hazards and secondly to explore the predicted relationship of children, parents and family factors to home hazards among toddlers aged 24-47 months in Wenzhou, China. METHODS: A random cluster sampling was employed to select 366 parents having children aged 24 - 47 months from 13 kindergartens between March and April of 2012. Four instruments assessed home hazards, demographics, parent's awareness of UHI, as well as family functioning. RESULTS: Descriptive statistics showed that the mean of home hazards was 12.29 (SD = 6.39). The nine kinds of home hazards that were identified in over 50% of households were: plastic bags (74.3%), coin buttons (69.1%), and toys with small components (66.7%) etc. Multivariate linear regression revealed that the predictors of home hazards were the child's age, the child's residential status and family functioning (b = .19, 2.02, -.07, p < .01, < .05 and < .01, respectively). CONCLUSIONS: The results showed that a higher number of home hazards were significantly attributed to older toddlers, migrant toddlers and poorer family functioning. This result suggested that heath care providers should focus on the vulnerable family and help the parents assess home hazards. Further study is needed to find interventions on how to manage home hazards for toddlers in China.


Asunto(s)
Accidentes Domésticos , Heridas y Lesiones/etiología , Accidentes Domésticos/prevención & control , Preescolar , China , Estudios Transversales , Femenino , Humanos , Modelos Lineales , Masculino , Padres , Medición de Riesgo , Seguridad , Factores Socioeconómicos , Encuestas y Cuestionarios
6.
Pac Rim Int J Nurs Res Thail ; 16(2): 85-96, 2012 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-24660041

RESUMEN

The purpose of this study was to compare health problems and advanced practice nursing (APN) interventions in two types of APN care provided to 41 childbearing women with diabetes. The study's design involved content analysis of interaction logs containing the process of APN care during two clinical trials: 1) APN care was added to physician care (n = 22); and, 2) half of physician care was substituted with APN care (n = 19). Women's' health problems and APN interventions were classified using the Omaha System's Problem Scheme and Intervention Scheme. The women, in the study, had a mean age of 30, and were predominantly Black, high school graduates, with a low income. The findings identified 61,004 health problems and 60,980 APN interventions from the interaction logs. APNs provided significantly more interventions antenatally to the women in the substitution group than to those in the additive group. However, the overall categories of problems were the same in both groups. Surveillance and health teaching/counseling were the top APN interventions antenatally and postpartum. Case management interventions were third most common for both groups, while treatments and procedures constituted the least number of APN interventions in each group before and after birth. When APNs shared care more equally with physicians, they intervened differently in type and number of interventions. Their broad range of skills and depth of understanding in clinical practice, health systems, family and personal issues allowed them to intervene early and effectively.

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