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1.
Am J Alzheimers Dis Other Demen ; 35: 1533317520939781, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-32666818

RESUMEN

Little is known about how individual behavioral and psychological symptoms of dementia (BPSD) impact the person with dementia. This cross-sectional, retrospective study examined the association between one BPSD, aggressive behavior, and a patient-identified outcome, sadness, among people with moderate and severe dementia (n = 5001) using clinical administrative Resident Assessment Instrument 2.0 data. For people with moderate or severe cognitive impairment, the odds of sadness were significantly higher if verbal aggression was exhibited 4 to 6 (adjusted odds ratio [aOR] = 2.85, P < .001) or 1 to 3 (aOR = 2.28, P < .001) times per week, or daily (aOR = 1.77, P = .003). People with severe cognitive impairment and who displayed physical aggression either daily (OR = 2.16, P = .002) or 1 to 3 times per week (OR = 1.45, P = .023) also had an increased odds of sadness. Aggression may harm the person with dementia's mental well-being, depending on the level of cognitive impairment, and type and frequency of aggression. Prospective studies can build on these correlational findings.


Asunto(s)
Agresión , Demencia/psicología , Tristeza , Anciano de 80 o más Años , Estudios Transversales , Femenino , Humanos , Masculino , Estudios Prospectivos , Estudios Retrospectivos
2.
BMC Geriatr ; 20(1): 174, 2020 05 13.
Artículo en Inglés | MEDLINE | ID: mdl-32404059

RESUMEN

BACKGROUND: Type II diabetes mellitus (T2DM) affects upwards of 25% of Canadian older adults and is associated with high comorbidity and burden. Studies show that lifestyle factors and self-management are associated with improved health outcomes, but many studies lack rigour or exclude older adults, particularly those with multimorbidity. More evidence is needed on the effectiveness of community-based self-management programs in older adults with T2DM and multimorbidity. The study purpose is to evaluate the effect of a community-based intervention versus usual care on physical functioning, mental health, depressive symptoms, anxiety, self-efficacy, self-management, and healthcare costs in older adults with T2DM and 2 or more comorbidities. METHODS: Community-living older adults with T2DM and two or more chronic conditions were recruited from three Primary Care Networks (PCNs) in Alberta, Canada. Participants were randomly allocated to the intervention or control group in this pragmatic randomized controlled trial comparing the intervention to usual care. The intervention involved up to three in-home visits, a monthly group wellness program, monthly case conferencing, and care coordination. The primary outcome was physical functioning. Secondary outcomes included mental functioning, anxiety, depressive symptoms, self-efficacy, self-management, and the cost of healthcare service use. Intention-to-treat analysis was performed using ANCOVA modeling. RESULTS: Of 132 enrolled participants (70-Intervention, 62-Control), 42% were 75 years or older, 55% were female, and over 75% had at least six chronic conditions (in addition to T2DM). No significant group differences were seen for the baseline to six-month change in physical functioning (mean difference: -0.74; 95% CI: - 3.22, 1.74; p-value: 0.56), mental functioning (mean difference: 1.24; 95% CI: - 1.12, 3.60; p-value: 0.30), or other secondary outcomes.. CONCLUSION: No significant group differences were seen for the primary outcome, physical functioning (PCS). Program implementation, baseline differences between study arms and chronic disease management services that are part of usual care may have contributed to the modest study results. Fruitful areas for future research include capturing clinical outcome measures and exploring the impact of varying the type and intensity of key intervention components such as exercise and diet. TRIAL REGISTRATION: NCT02158741 Date of registration: June 9, 2014.


Asunto(s)
Diabetes Mellitus Tipo 2 , Automanejo , Anciano , Canadá/epidemiología , Diabetes Mellitus Tipo 2/diagnóstico , Diabetes Mellitus Tipo 2/epidemiología , Diabetes Mellitus Tipo 2/terapia , Femenino , Humanos , Masculino , Multimorbilidad , Calidad de Vida
3.
J Comorb ; 10: 2235042X20981190, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-33403202

RESUMEN

BACKGROUND: Older adults with multiple chronic conditions (MCC) rely heavily on caregivers for assistance with care. However, we know little about their psychosocial experiences and their needs for support in managing MCC. The purpose of this study was to explore the experiences of caregivers of older adults living in the community with MCC. METHODS: This qualitative study was a secondary analysis of previously collected data from caregivers in Ontario and Alberta, Canada. Participants included caregivers of older adults (65 years and older) with three or more chronic conditions. Data were collected through in-depth, semi-structured interviews. Interview transcripts were coded and analyzed using Thorne's interpretive description approach. RESULTS: Most of the 47 caregiver participants were female (76.6%), aged 65 years of age or older (61.7%), married (87.2%) and were spouses to the care recipient (68.1%). Caregivers' experiences of caring for community-living older adults with MCC were complex and included: (a) dealing with the demands of caregiving; (b) prioritizing chronic conditions; (c) living with my own health limitations; (d) feeling socially isolated and constrained; (e) remaining committed to caring; and (f) reaping the rewards of caregiving. CONCLUSIONS: Healthcare providers can play key roles in supporting caregivers of older adults with MCC by providing education and support on managing MCC, actively engaging them in goal setting and care planning, and linking them to appropriate community health and social support services. Communities can create environments that support caregivers in areas such as social participation, social inclusion, and community support and health services.

4.
Dementia (London) ; 17(7): 801-820, 2018 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-27306962

RESUMEN

Objectives Research into the lived experiences of long-term care residents with dementia has identified perceived conflict, and its impact on sadness, as priorities for quality of life from the perspectives of people with dementia. However, whether and to what extent perceived conflict and sadness are associated has not been previously tested in this population. This study tested the associations between perceived conflicts with staff, family or friends and co-residents and their experience of sadness, and whether cognitive impairment or functional dependence modified these associations. Methods The study design was cross-sectional, correlational retrospective. Participants were 5001 residents of 613 long-term care facilities in Ontario, Canada with moderate and severe dementia. Clinical administrative data collected from 2012 to 2013 using the Resident Assessment Instrument 2.0 were used to measure the person's perception of conflicts with family/friends, staff, or co-residents, as well as verbal and non-verbal indicators of sadness. Hypotheses were tested using logistic regression, with cluster correction. Results Sadness (adjusting for age, sex, family/friend contact, pain, cognitive impairment, and functional dependence) was positively associated with perceived conflicts with family or friends (OR 1.91; 95% CI 1.26-2.88; p = 0.002) and staff (OR 1.51; 95% CI 1.07-2.13; p = 0.020). These associations did not differ depending on the level of cognitive impairment or functional dependence. The association between co-resident conflict and sadness was statistically significant for people with moderate (OR 2.02; 95% CI 1.45-2.82; p < 0.001) but not for those with severe dementia (OR 1.18; 95% CI 0.72-1.91; p = 0.511). Conclusion Long-term care residents with dementia who perceive conflict with others require support to maintain high quality relationships, particularly with family and friends. Future research should rigorously assess the modifiability of perceived conflict for people with moderate and severe dementia, and whether interventions to ameliorate perceived conflict result in decreased sadness and improved quality of life.


Asunto(s)
Conflicto Psicológico , Demencia/psicología , Relaciones Interpersonales , Casas de Salud , Calidad de Vida/psicología , Tristeza/psicología , Anciano , Anciano de 80 o más Años , Estudios Transversales , Demencia/enfermería , Familia/psicología , Femenino , Amigos/psicología , Humanos , Cuidados a Largo Plazo , Masculino , Ontario , Estudios Retrospectivos , Índice de Severidad de la Enfermedad
5.
J Am Geriatr Soc ; 66(2): 263-273, 2018 02.
Artículo en Inglés | MEDLINE | ID: mdl-29178317

RESUMEN

OBJECTIVES: To compare the effect of a 6-month community-based intervention with that of usual care on quality of life, depressive symptoms, anxiety, self-efficacy, self-management, and healthcare costs in older adults with type 2 diabetes mellitus (T2DM) and 2 or more comorbidities. DESIGN: Multisite, single-blind, parallel, pragmatic, randomized controlled trial. SETTING: Four communities in Ontario, Canada. PARTICIPANTS: Community-dwelling older adults (≥65) with T2DM and 2 or more comorbidities randomized into intervention (n = 80) and control (n = 79) groups (N = 159). INTERVENTION: Client-driven, customized self-management program with up to 3 in-home visits from a registered nurse or registered dietitian, a monthly group wellness program, monthly provider team case conferences, and care coordination and system navigation. MEASUREMENTS: Quality-of-life measures included the Physical Component Summary (PCS, primary outcome) and Mental Component Summary (MCS, secondary outcome) scores of the Medical Outcomes Study 12-item Short-Form Health Survey (SF-12). Other secondary outcome measures were the Generalized Anxiety Disorder Scale, Center for Epidemiologic Studies Depression Scale (CES-D-10), Summary of Diabetes Self-Care Activities (SDSCA), Self-Efficacy for Managing Chronic Disease, and healthcare costs. RESULTS: Morbidity burden was high (average of eight comorbidities). Intention-to-treat analyses using analysis of covariance showed a group difference favoring the intervention for the MCS (mean difference = 2.68, 95% confidence interval (CI) = 0.28-5.09, P = .03), SDSCA (mean difference = 3.79, 95% CI = 1.02-6.56, P = .01), and CES-D-10 (mean difference = -1.45, 95% CI = -0.13 to -2.76, P = .03). No group differences were seen in PCS score, anxiety, self-efficacy, or total healthcare costs. CONCLUSION: Participation in a 6-month community-based intervention improved quality of life and self-management and reduced depressive symptoms in older adults with T2DM and comorbidity without increasing total healthcare costs.


Asunto(s)
Comorbilidad , Diabetes Mellitus Tipo 2/terapia , Calidad de Vida , Automanejo/métodos , Anciano , Diabetes Mellitus Tipo 2/psicología , Femenino , Costos de la Atención en Salud , Humanos , Masculino , Ontario , Método Simple Ciego
6.
Implement Sci ; 12(1): 66, 2017 05 18.
Artículo en Inglés | MEDLINE | ID: mdl-28521750

RESUMEN

BACKGROUND: There is substantial evidence about the effectiveness of audit with feedback, but none that we know have been conducted in home care settings. The primary purpose of the Data for Improvement and Clinical Excellence - Home Care (DICE-HC) project was to evaluate the effects of an audit and feedback delivered to care providers on home care client outcomes. The objective of this paper is to report the effects of feedback on four specific quality indicators: pain, falls, delirium, and hospital visits. METHODS: A 10-month audit with feedback intervention study was conducted with care providers in seven home care offices in Alberta, Canada, which involved delivery of four quarterly feedback reports consisting of data derived from the Resident Assessment Instrument - Home Care (RAI-HC). The primary evaluation employed an interrupted time series design using segmented regression analysis to assess the effects of feedback reporting on the four quality indicators: pain, falls, delirium, and hospitalization. Changes in level and trend of the quality indicators were measured before, during, and after the implementation of feedback reports. Pressure ulcer reporting was analyzed as a comparator condition not included in the feedback report. Care providers were surveyed on responses to feedback reporting which informed a process evaluation. RESULTS: At initiation of feedback report implementation, the percentage of clients reporting pain and falls significantly increased. Though the percentage of clients reporting pain and falls tended to increase and reporting of delirium and hospital visits tended to decrease relative to the pre-intervention period, there was no significant effect of feedback reporting on quality indicators during the 10-month intervention. The percentage of clients reporting falls, delirium, and hospital visits significantly increased in the 6-month period following feedback reporting relative to the intervention period. About 50% of the care providers that read and understand the feedback reports found the reports useful to make changes to the way clients are cared for. CONCLUSIONS: Routinely collected data used over time for feedback is feasible in home care settings. A high proportion of care providers find feedback reports useful for informing how they care for clients. Since reporting on the frequency of quality indicators increased in the post-intervention period, this study suggests that ongoing use of audit with feedback to enhance health outcomes in home care may promote improved reporting on standardized instruments.


Asunto(s)
Competencia Clínica/normas , Servicios de Atención de Salud a Domicilio/normas , Cuidados a Largo Plazo/normas , Mejoramiento de la Calidad/normas , Calidad de la Atención de Salud/normas , Anciano , Anciano de 80 o más Años , Alberta , Femenino , Humanos , Análisis de Series de Tiempo Interrumpido , Masculino , Persona de Mediana Edad , Encuestas y Cuestionarios
7.
Trials ; 18(1): 55, 2017 02 06.
Artículo en Inglés | MEDLINE | ID: mdl-28166816

RESUMEN

BACKGROUND: Many community-based self-management programs have been developed for older adults with type-2 diabetes mellitus (T2DM), bolstered by evidence from randomized controlled trials (RCTs) that T2DM can be prevented and managed through lifestyle modifications. However, the evidence for their effectiveness is contradictory and weakened by reliance on single-group designs and/or small samples. Additionally, older adults with multiple chronic conditions (MCC) are often excluded because of recruiting and retention challenges. This paper presents a protocol for a two-armed, multisite, pragmatic, mixed-methods RCT examining the effectiveness and implementation of the Aging, Community and Health Research Unit-Community Partnership Program (ACHRU-CPP), a new 6-month interprofessional, nurse-led program to promote self-management in older adults (aged 65 years or older) with T2DM and MCC and support their caregivers (including family and friends). METHODS/DESIGN: The study will enroll 160 participants in two Canadian provinces, Ontario and Alberta. Participants will be randomly assigned to the control (usual care) or program study arm. The program will be delivered by registered nurses (RNs) and registered dietitians (RDs) from participating diabetes education centers (Ontario) or primary care networks (Alberta) and program coordinators from partnering community-based organizations. The 6-month program includes three in-home visits, monthly group sessions, monthly team meetings for providers, and nurse-led care coordination. The primary outcome is the change in physical functioning as measured by the Physical Component Summary (PCS-12) score from the short form-12v2 health survey (SF-12). Secondary client outcomes include changes in mental functioning, depressive symptoms, anxiety, and self-efficacy. Caregiver outcomes include health-related quality of life and depressive symptoms. The study includes a comparison of health care service costs for the intervention and control groups, and a subgroup analysis to determine which clients benefit the most from the program. Descriptive and qualitative data will be collected to examine implementation of the program and effects on interprofessional/team collaboration. DISCUSSION: This study will provide evidence of the effectiveness of a community-based self-management program for a complex target population. By studying both implementation and effectiveness, we hope to improve the uptake of the program within the existing community-based structures, and reduce the research-to-practice gap. TRIAL REGISTRATION: ClinicalTrials.gov, Identifier: NCT02158741 . Registered on 3 June 2014.


Asunto(s)
Envejecimiento/psicología , Cuidadores/psicología , Servicios de Salud Comunitaria , Diabetes Mellitus Tipo 2/enfermería , Afecciones Crónicas Múltiples/enfermería , Autocuidado/métodos , Apoyo Social , Factores de Edad , Anciano , Alberta , Cuidadores/economía , Protocolos Clínicos , Servicios de Salud Comunitaria/economía , Análisis Costo-Beneficio , Diabetes Mellitus Tipo 2/diagnóstico , Diabetes Mellitus Tipo 2/economía , Diabetes Mellitus Tipo 2/psicología , Femenino , Costos de la Atención en Salud , Estilo de Vida Saludable , Humanos , Masculino , Afecciones Crónicas Múltiples/economía , Afecciones Crónicas Múltiples/psicología , Ontario , Calidad de Vida , Proyectos de Investigación , Conducta de Reducción del Riesgo , Autocuidado/economía , Autocuidado/psicología , Factores de Tiempo , Resultado del Tratamiento
8.
BMJ Open ; 6(11): e014023, 2016 11 24.
Artículo en Inglés | MEDLINE | ID: mdl-27884857

RESUMEN

INTRODUCTION: The frail elderly in Canada face a tough decision when they start to lose autonomy: whether to stay at home or move to another location. This study seeks to scale up and evaluate the implementation of shared decision-making (SDM) in interprofessional (IP) home care teams caring for elderly clients or their caregivers facing a decision about staying at home or moving elsewhere. METHODS: A stepped wedge cluster randomised trial involving 8 Health and Social Service Centers (HSSCs) will be conducted with IP home care teams. HSSCs are the unit of randomisation. A decision guide will be passively distributed to all of the participating HSSCs at the beginning of the project. The participating HSSCs will then be randomised to 1 of 4 intervention start times, separated by 7-month intervals. The primary outcome is whether or not clients and caregivers assumed an active role in decision-making, assessed with a modified version of the Control Preferences Scale. The intervention, targeted at IP home care teams, consists of a 1.5 hour online tutorial and a 3.5 hour skills building workshop in IP SDM. Clients will be eligible for outcome assessment if they (1) are aged ≥65; (2) are receiving care from the IP home care team of the enrolled HSSCs; (3) have made a decision about whether to stay at home or move to another location during the recruitment periods; (4) are able to read, understand and write French or English; (5) can give informed consent. If clients are not able to provide informed consent, their primary caregiver will become the eligible participant. ETHICS AND DISSEMINATION: Ethics committee review approval has been obtained from the Multicenter Ethics Committee of CISSS-Laval. Results will be disseminated at conferences, on websites of team members and in peer-reviewed and professional journals intended for policymakers and managers. TRIAL REGISTRATION NUMBER: NCT02592525, Pre-results.


Asunto(s)
Cuidadores , Toma de Decisiones , Anciano Frágil , Servicios de Atención de Salud a Domicilio/normas , Participación del Paciente , Anciano , Canadá , Humanos , Relaciones Interprofesionales , Evaluación de Resultado en la Atención de Salud , Grupo de Atención al Paciente , Proyectos de Investigación
9.
J Healthc Qual ; 38(5): 264-74, 2016.
Artículo en Inglés | MEDLINE | ID: mdl-27584696

RESUMEN

Recommendations for the evaluation of quality improvement interventions have been made in order to improve the evidence base of whether, to what extent, and why quality improvement interventions affect chosen outcomes. The purpose of this article is to articulate why these recommendations are appropriate to improve the rigor of quality improvement intervention evaluation as a research endeavor, but inappropriate for the purposes of everyday quality improvement practice. To support our claim, we describe the differences between quality improvement interventions that occur for the purpose of practice as compared to research. We then carefully consider how feasibility, ethics, and the aims of evaluation each impact how quality improvement interventions that occur in practice, as opposed to research, can or should be evaluated. Recommendations that fit the evaluative goals of practice-based quality improvement interventions are needed to support fair appraisal of the distinct evidence they produce. We describe a current debate on the nature of evidence to assist in reenvisioning how quality improvement evidence generated from practice might complement that generated from research, and contribute in a value-added way to the knowledge base.


Asunto(s)
Medicina Basada en la Evidencia , Bases del Conocimiento , Mejoramiento de la Calidad , Humanos
10.
Can J Aging ; 35(2): 206-14, 2016 06.
Artículo en Inglés | MEDLINE | ID: mdl-27093177

RESUMEN

Navigators help rural older adults with advanced illness and their families connect to needed resources, information, and people to improve their quality of life. This article describes the process used to engage experts - in rural aging, rural palliative care, and navigation - as well as rural community stakeholders to develop a conceptual definition of navigation and delineate navigation competencies for the care of this population. A discussion paper on the important considerations for navigation in this population was developed followed by a four-phased Delphi process with 30 expert panel members. Study results culminated in five general navigation competencies for health care providers caring for older rural persons and their families at end of life: provide patient/family screening; advocate for the patient/family; facilitate community connections; coordinate access to services and resources; and promote active engagement. Specific competencies were also developed. These competencies provide the foundation for research and curriculum development in navigation.


Asunto(s)
Servicios de Salud para Ancianos/normas , Cuidados Paliativos/métodos , Navegación de Pacientes/normas , Servicios de Salud Rural/normas , Población Rural , Anciano , Envejecimiento , Canadá , Competencia Clínica , Técnica Delphi , Humanos , Programas Nacionales de Salud , Satisfacción del Paciente , Calidad de Vida , Índice de Severidad de la Enfermedad
11.
Care Manag J ; 16(4): 174-83, 2015.
Artículo en Inglés | MEDLINE | ID: mdl-26673912

RESUMEN

We explored the state of knowledge on home care supplies and equipment because not much is known about this topic. We used a scoping review for the literature review because it was the most appropriate approach considering the state of the literature. We searched for articles published in both the gray and peer-reviewed literature. We established five overarching themes based on the findings. These were supply management, durable medical equipment, wound care, best practices, and costs. This review demonstrates that although knowledge about home care supplies and equipment is growing, it is still an understudied area.


Asunto(s)
Equipos y Suministros , Servicios de Atención de Salud a Domicilio , Humanos
12.
Gerontologist ; 55(4): 719-29, 2015 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-26179707

RESUMEN

PURPOSE OF THE STUDY: Artistic engagement has been identified as a promising way to improve older adults' quality of life (QoL) and health. This has resulted in a growing, yet diverse, knowledge base. The purpose of this scoping review was to describe and map the nature and extent of research conducted on the arts, aging, and either QoL or health for well older adults. DESIGN AND METHODS: We followed scoping review procedures. Research librarians developed a comprehensive search strategy to capture published and gray literature across 16 databases. We systematically screened 9,720 titles/abstracts and extracted data. Findings were collated by tabulating frequencies and textual data organized according to themes. RESULTS: 94 articles were included, spanning nine disciplines, and most were published after 2000 (72%). Most of the studies were conducted in the United States (52%). Research teams rarely published more than one study about the arts and QoL/health. The studies used qualitative (49%), quantitative (38%), or mixed methods (10%). The most common art form examined was music (40%). Artistic engagement was usually active (70%) and frequently occurred in groups (56%). Health and QoL were conceptualized and operationalized in many different ways. IMPLICATIONS: There is a need for programs of research (instead of teams conducting only one study), the development and application of conceptual frameworks, and multiple perspectives in order to build knowledge about how the arts contribute to health and QoL for older adults.


Asunto(s)
Envejecimiento/psicología , Arte , Creatividad , Calidad de Vida , Anciano , Estado de Salud , Humanos , Música
13.
J Adv Nurs ; 71(8): 1812-24, 2015 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-25892121

RESUMEN

AIMS: A discussion of the extent to which people with dementia's perspectives on quality of life have been included in quantitative research. BACKGROUND: Capturing the perspective of people with dementia may improve understanding of their quality of life. Quantitative tools to assess quality of life exist, but the extent to which these reflect the perspective of people with dementia has not been evaluated. DESIGN: A discussion paper. DATA SOURCES: Ten tools (designed between 1992-2012) to measure quality of life from the perspective of people with dementia were located from existing reviews. DISCUSSION: Each tool was rated according to the extent to which the developers included the perspectives of people with dementia at three different points of quality of life conceptualization: during quality of life assessment, to identify quality of life domains and to define an overall conceptual framework. This analysis demonstrates that tool developers were inconsistent in their approach to including the perspectives of people with dementia to understand quality of life. The perspective of people with dementia was included primarily to assess, but not to select domains or define overall quality of life. IMPLICATIONS FOR NURSING: Nurses should consider not only who assesses quality of life, but also whose understanding of quality of life is being assessed. CONCLUSION: It is unclear whether the quantitative quality of life literature reflects the perspective of people with dementia. Debate is needed regarding the impact of this issue on the lives of people with dementia.


Asunto(s)
Demencia/fisiopatología , Calidad de Vida , Canadá , Humanos
14.
Qual Life Res ; 24(5): 1145-55, 2015 May.
Artículo en Inglés | MEDLINE | ID: mdl-25809650

RESUMEN

PURPOSE: Patient perspectives about quality of life are often found in the results of qualitative research and could be applied to steer the direction of future research. The purpose of this paper was to describe how findings from a body of qualitative research on patient perspectives about quality of life were linked to a clinical administrative dataset and then used to design a subsequent quantitative study. METHODS: Themes from two systematic reviews of qualitative evidence (i.e., metasyntheses) identified what affects quality of life according to people with dementia. Selected themes and their sub-concepts were then mapped to an administrative dataset (the Resident Assessment Instrument 2.0) to determine the study focus, formulate nine hypotheses, and select a patient-reported outcome. A literature review followed to confirm existence of a knowledge gap, identify adjustment variables, and support design decisions. RESULTS: A quantitative study to test the association between conflict and sadness for people with dementia in long-term care was derived from metasynthesis themes. Challenges included (1) mapping broad themes to the administrative dataset; (2) decisions associated with inclusion of variables not identified by people with dementia from the qualitative research; and (3) selecting a patient-reported outcome, when the dataset lacked a valid subjective quality-of-life measure. CONCLUSIONS: Themes derived from a body of qualitative research capturing a target populations' perspective can be linked to administrative data and used to design a quantitative study. Using this approach, the quantitative findings will be meaningful with respect to the quality of life of the target population.


Asunto(s)
Demencia/psicología , Calidad de Vida/psicología , Proyectos de Investigación , Anciano , Femenino , Humanos , Cuidados a Largo Plazo , Percepción , Investigación Cualitativa , Estereotipo
15.
J Am Geriatr Soc ; 63(1): 24-38, 2015 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-25597556

RESUMEN

OBJECTIVES: To comprehensively and systematically identify, appraise, and synthesize qualitative research findings on factors that affect quality of life from the perspective of people with dementia. DESIGN: Systematic review and metasynthesis of primary qualitative studies in published and gray literature that aimed to identify factors that influence quality of life from the perspective of people with dementia. Expert-developed search strategies were applied in nine electronic databases. Reference lists of included articles and literature reviews identified during the search were reviewed. Structured inclusion criteria were applied to screen 5,625 titles and abstracts to identify 11 qualitative studies published from 1975 to April 2012. Two independent reviewers appraised study quality. SETTING: Primary study recruitment sites included long-term care and community-based settings in the United Kingdom, the United States, Canada, the Netherlands, Ireland, Australia, and Japan. PARTICIPANTS: A combined sample of 345 people with mild, moderate, and severe dementia. MEASUREMENTS: The primary studies used interview and focus group methods. Findings from primary studies were synthesized using techniques of taxonomic analysis, constant comparison, and importing concepts. RESULTS: Four factors and the experience of connectedness or disconnectedness within each factor influenced quality of life according to people with dementia. These factors, and the terms that represent connectedness and disconnectedness, were relationships (together vs alone), agency in life today (purposeful vs aimless), wellness perspective (well vs ill), and sense of place (located vs unsettled). Happiness and sadness were key outcomes of good and poor quality of life, respectively. CONCLUSION: The four factors identified potentially modifiable areas to improve quality of life for people with dementia, even in the context of worsening cognitive function.


Asunto(s)
Envejecimiento/fisiología , Demencia/fisiopatología , Demencia/psicología , Calidad de Vida , Humanos
16.
J Nurs Manag ; 23(8): 1058-66, 2015 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-25491021

RESUMEN

AIM: To identify and report on the relative importance of factors influencing nurse managers' intentions to stay in or leave their current position. BACKGROUND: Effective nurse managers play an important role in staff nurse retention and in the quality of patient care. The advancing age of nurse managers, multiple job opportunities within nursing and the generally negative perceptions of the manager role can contribute to difficulties in retaining nurse managers. METHODS: Ninety-five Canadian nurse managers participated in a web survey. Respondents rated the importance of factors related to their intent to leave or stay in their current position for another 2 years. Descriptive, t-test and mancova statistics were used to assess differences between managers intending to stay or leave. RESULTS: For managers intending to leave (n = 28), the most important factors were work overload, inability to ensure quality patient care, insufficient resources, and lack of empowerment and recognition. Managers intending to leave reported significantly lower job satisfaction, perceptions of their supervisor's resonant leadership and higher burnout levels. IMPLICATIONS FOR NURSING MANAGEMENT: Organisations wishing to retain existing nurse managers and to attract front-line staff into leadership positions must create and foster an environment that supports nurse managers.


Asunto(s)
Actitud del Personal de Salud , Satisfacción en el Trabajo , Enfermeras Administradoras/psicología , Reorganización del Personal , Adulto , Factores de Edad , Anciano , Agotamiento Profesional/psicología , Canadá , Ambiente , Femenino , Humanos , Intención , Liderazgo , Masculino , Persona de Mediana Edad , Poder Psicológico , Calidad de la Atención de Salud/organización & administración , Factores Sexuales , Carga de Trabajo/psicología
17.
Implement Sci ; 9: 161, 2014 Nov 11.
Artículo en Inglés | MEDLINE | ID: mdl-25384801

RESUMEN

BACKGROUND: There is considerable evidence about the effectiveness of audit coupled with feedback for provider behavior change, although few feedback interventions have been conducted in long-term care settings. The primary purpose of the Data for Improvement and Clinical Excellence-Long-Term Care (DICE-LTC) project was to assess the effects of a feedback intervention delivered to all direct care providers on resident outcomes. Our objective in this report is to assess the effect of feedback reporting on rates of pain assessment, depression screening, and falls over time. METHODS: The intervention consisted of monthly feedback reports delivered to all direct care providers, facility and unit administrators, and support staff, delivered over 13 months in nine LTC units across four facilities. Data for feedback reports came from the Resident Assessment Instrument Minimum Data Set (RAI) version 2.0, a standardized instrument mandated in LTC facilities throughout Alberta. The primary evaluation used an interrupted time series design with a comparison group (units not included in the feedback intervention) and a comparison condition (pressure ulcers). We used segmented regression analysis to assess the effect of the feedback intervention. RESULTS: The primary outcome of the study, falls, showed little change over the period of the intervention, except for a small increase in the rate of falls during the intervention period. The only outcome that improved during the intervention period was the proportion of residents with high pain scores, which decreased at the beginning of the intervention. The proportion of residents with high depression scores appeared to worsen during the intervention. CONCLUSIONS: Maintaining all nine units in the study for its 13-month duration was a positive outcome. The feedback reports, without any other intervention included, did not achieve the desired reduction in proportion of falls and elevated depression scores. The survey on intention to change pain assessment practice which was conducted shortly after most of the feedback distribution cycles may have acted as a co-intervention supporting a reduction in pain scores. The processing and delivery of feedback reports could be accomplished at relatively low cost because the data are mandated and could be added to other intervention approaches to support implementation of evidence-based practices.


Asunto(s)
Competencia Clínica/normas , Retroalimentación , Cuidados a Largo Plazo/normas , Accidentes por Caídas/prevención & control , Alberta , Trastorno Depresivo/diagnóstico , Personal de Salud/normas , Humanos , Análisis de Series de Tiempo Interrumpido , Dolor/prevención & control , Dimensión del Dolor/normas , Mejoramiento de la Calidad/normas , Calidad de la Atención de Salud/normas
18.
J Nurs Manag ; 21(8): 1016-25, 2013 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-24015973

RESUMEN

AIM: This paper reports on regulated (or licensed) care providers' understanding and perceptions of feedback reports in a sample of Canadian long-term care settings using a cross-sectional survey design. BACKGROUND: Audit with feedback quality improvement studies have seldom targeted front-line providers in long-term care to receive feedback information. METHODS: Feedback reports were delivered to front-line regulated care providers in four long-term care facilities for 13 months in 2009-10. Providers completed a postfeedback survey. RESULTS: Most (78%) regulated care providers (n = 126) understood the reports and felt they provided useful information for making changes to resident care (64%). Perceptions of the report differed, depending on the role of the regulated care provider. In multivariable logistic regression, the regulated nurses' understanding of more than half the report was negatively associated with 'usefulness of information for changing resident care', and perceiving the report as generally useful had a positive association. CONCLUSIONS: Front-line regulated providers are an appropriate target for feedback reports in long-term care. IMPLICATIONS FOR NURSING MANAGEMENT: Long-term care administrators should share unit-level information on care quality with unit-level managers and other professional front-line direct care providers.


Asunto(s)
Cuidados a Largo Plazo/normas , Estudios Transversales , Humanos , Conocimiento Psicológico de los Resultados , Investigación en Administración de Enfermería , Mejoramiento de la Calidad
19.
BMC Geriatr ; 13: 15, 2013 Feb 13.
Artículo en Inglés | MEDLINE | ID: mdl-23402382

RESUMEN

BACKGROUND: Audit with feedback is a moderately effective approach for improving professional practice in other health care settings. Although unregulated caregivers give the majority of direct care in long-term care settings, little is known about how they understand and perceive feedback reports because unregulated providers have not been directly targeted to receive audit with feedback in quality improvement interventions in long-term care. The purpose of this paper is to describe unregulated care providers' perceptions of usefulness of a feedback report in four Canadian long-term care facilities. METHODS: We delivered monthly feedback reports to unregulated care providers for 13 months in 2009-2010. The feedback reports described a unit's performance in relation to falls, depression, and pain as compared to eight other units in the study. Follow-up surveys captured participant perceptions of the feedback report. We conducted descriptive analyses of the variables related to participant perceptions and multivariable logistic regression to assess the association between perceived usefulness of the feedback report and a set of independent variables. RESULTS: The vast majority (80%) of unregulated care providers (n = 171) who responded said they understood the reports. Those who discussed the report with others and were interested in other forms of data were more likely to find the feedback report useful for making changes in resident care. CONCLUSIONS: This work suggests that unregulated care providers can understand and feel positively about using audit with feedback reports to make changes to resident care. Further research should explore ways to promote fuller engagement of unregulated care providers in decision-making to improve quality of care in long-term care settings.


Asunto(s)
Retroalimentación , Personal de Salud/normas , Cuidados a Largo Plazo/normas , Auditoría Médica/normas , Mejoramiento de la Calidad/normas , Informe de Investigación/normas , Estudios Transversales , Estudios de Seguimiento , Personal de Salud/legislación & jurisprudencia , Personal de Salud/psicología , Humanos , Cuidados a Largo Plazo/legislación & jurisprudencia , Auditoría Médica/legislación & jurisprudencia , Proyectos Piloto , Mejoramiento de la Calidad/legislación & jurisprudencia , Informe de Investigación/legislación & jurisprudencia
20.
Implement Sci ; 7: 4, 2012 Jan 18.
Artículo en Inglés | MEDLINE | ID: mdl-22257782

RESUMEN

BACKGROUND: Although considerable evidence exists about the effectiveness of audit coupled with feedback, very few audit-with-feedback interventions have been done in either home care or supportive living settings to date. With little history of audit and feedback in home care or supportive living there is potential for greater effects, at least initially. This study extends the work of an earlier study designed to assess the effects of an audit-with-feedback intervention. It will be delivered quarterly over a one-year period in seven home care offices and 11 supportive living sites. The research questions are the same as in the first study but in a different environment. They are as follows: 1. What effects do feedback reports have on processes and outcomes over time? 2. How do different provider groups in home care and supportive living sites respond to feedback reports based on quality indicator data? METHODS: The research team conducting this study includes researchers and decision makers in continuing care in the province of Alberta, Canada. The intervention consists of quarterly feedback reports in 19 home care offices and supportive living sites across Alberta. Data for the feedback reports are based on the Resident Assessment Instrument Home Care tool, a standardized instrument mandated for use in home care and supportive living environments throughout Alberta. The feedback reports consist of one page, printed front and back, presenting both graphic and textual information. Reports are delivered to all employees working in each site. The primary evaluation uses a controlled interrupted time-series design, both adjusted and unadjusted for covariates. The concurrent process evaluation includes observation, focus groups, and self-reports to assess uptake of the feedback reports. The project described in this protocol follows a similar intervention conducted in our previous study, Data for Improvement and Clinical Excellence--Long-Term Care. We will offer dissemination strategies and spread of the feedback report approach in several ways suited to various audiences and stakeholders throughout Alberta. SIGNIFICANCE: This study will generate knowledge about the effects of an audit with feedback intervention in home care and supportive living settings. Our dissemination activities will focus on supporting sites to continue to use the Resident Assessment Instrument data in their quality improvement activities.


Asunto(s)
Retroalimentación , Servicios de Atención de Salud a Domicilio/normas , Cuidados a Largo Plazo/normas , Apoyo Social , Alberta , Recolección de Datos/métodos , Humanos , Auditoría Médica , Evaluación de Resultado en la Atención de Salud , Indicadores de Calidad de la Atención de Salud
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