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1.
PeerJ ; 11: e16685, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-38130931

RESUMEN

Background: Peristomal skin complications (PSCs) pose a major challenge for people living with an ostomy. To avoid severe PSCs, it is important that people with an ostomy check their peristomal skin condition on a regular basis and seek professional help when needed. Aim: To validate a new ostomy skin tool (OST 2.0) that will make regular assessment of the peristomal skin easier. Methods: Seventy subjects participating in a clinical trial were eligible for the analysis and data used for the validation. Item-level correlation with anchors, inter-item correlations, convergent validity of domains, test-retest reliability, anchor- and distribution-based methods for assessment of meaningful change were all part of the psychometric validation of the tool. Results: A final tool was established including six patient reported outcome items and automatic assessment of the discolored peristomal area. Follow-up with cognitive debriefing interviews assured that the concepts were considered relevant for people with an ostomy. Conclusion: The OST 2.0 demonstrated evidence supporting its reliability and validity as an outcome measure to capture both visible and non-visible peristomal skin complications.


Asunto(s)
Estomía , Enfermedades de la Piel , Humanos , Estomía/efectos adversos , Psicometría , Reproducibilidad de los Resultados , Piel , Enfermedades de la Piel/diagnóstico
2.
Chemosphere ; 339: 139745, 2023 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-37558003

RESUMEN

Non-targeted and suspect screening analysis is gaining approval across the scientific and regulatory community to monitor the chemical status in the environment and thus environmental quality. These holistic screening analyses provides the means to perform suspect screening and go beyond to discover previously undescribed chemical pollutants in environmental samples. In a case study, we developed and optimized a high-resolution tandem mass spectrometry platform hyphenated with anion exchange chromatography to screen drinking water samples in Denmark. The optimized non-targeted screening method was able to detect anionic and polar compounds and was successfully applied to drinking water from two drinking water facilities. Following a data analysis pipeline optimization, anionic pesticide residues and other environmental contaminants were detected at confidence identification level 1 such as dimethachlor ESA, mecoprop, and dichlorprop in drinking water. In addition to these three substances, it was possible to detect another 1662 compounds, of which 97 were annotated at confidence identification level 2. More research is urgently needed to health risk prioritize the detected substances and to determine their concentrations.


Asunto(s)
Agua Potable , Contaminantes Químicos del Agua , Espectrometría de Masas en Tándem , Agua Potable/análisis , Xenobióticos , Contaminantes Químicos del Agua/análisis , Cromatografía por Intercambio Iónico , Dinamarca
3.
Clin Respir J ; 17(8): 819-828, 2023 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-37448113

RESUMEN

INTRODUCTION: Spirometry is associated with several diagnostic difficulties, and as a result, misdiagnosis of chronic obstructive pulmonary disease (COPD) occurs. This study aims to investigate how random forest (RF) can be used to improve the existing clinical FVC and FEV1 reference values in a large and representative cohort of the general population of the US without known lung disease. MATERIALS AND METHODS: FVC, FEV1, body measures, and demographic data from 23 433 people were extracted from NHANES. RF was used to develop different prediction models. The accuracy of RF was compared with the existing Danish clinical references, an improved multiple linear regression (MLR) model, and a model from the literature. RESULTS: The correlation between actual and predicted FVC and FEV1 and the 95% confidence interval for RF were found to be FVC = 0.85 (0.85; 0.86) (p < 0.001), FEV1 = 0.92 (0.92; 0.93) (p < 0.001), and existing clinical references were FVC = 0.66 (0.64; 0.68) (p < 0.001) and FEV1 = 0.69 (0.67; 0.70) (p < 0.001). Slope and intercept for the RF models predicting FVC and FEV1 were FVC 1.06 and -238.04 (mL), FEV1: 0.86 and 455.36 (mL), and for the MLR models, slope and intercept were FVC: 0.99 and 38.56 39 (mL), and FEV1: 1.01 and -56.57-57 (mL). CONCLUSIONS: The results point toward machine learning models such as RF have the potential to improve the prediction of estimated lung function for individual patients. These predictions are used as reference values and are an important part of assessing spirometry measurements in clinical practice. Further work is necessary in order to reduce the size of the intercepts obtained through these results.


Asunto(s)
Enfermedad Pulmonar Obstructiva Crónica , Bosques Aleatorios , Humanos , Volumen Espiratorio Forzado , Encuestas Nutricionales , Capacidad Vital , Enfermedad Pulmonar Obstructiva Crónica/diagnóstico , Enfermedad Pulmonar Obstructiva Crónica/epidemiología , Espirometría/métodos , Pulmón
4.
Br J Dermatol ; 188(4): 474-481, 2023 03 30.
Artículo en Inglés | MEDLINE | ID: mdl-36715629

RESUMEN

BACKGROUND: Peristomal skin complications (PSCs) are the predominant complication for people living with a stoma, negatively affecting their health-related quality of life (HRQoL). PSCs may also have an impact on healthcare costs for society with more visits to healthcare professionals and increased consumption of products and treatment strategies, which amplifies the need for new strategies to reduce or prevent PSCs. OBJECTIVES: To evaluate the performance of an ostomy baseplate with a skin-protection technology. The target group comprised people living with a stoma with liquid faecal effluent, who struggled with PSCs. METHODS: A randomized, controlled, open-labelled, cross-over trial was conducted from September 2021 to February 2022 in five different countries. Each participant tested the investigational product against a comparator product (SenSura® Mio). The Ostomy Skin Tool 2.0 was used to evaluate the peristomal skin and HRQoL was measured using the Dermatology Life Quality Index (DLQI) questionnaire. Data were analysed in mixed repeated-measures models. RESULTS: A total of 79 adult participants (mean age 54.5 years, female 45.6%) were included in the intention-to-treat (ITT) population. A significant reduction in PSCs (P = 0.015) and HRQoL (P = 0.035) was found for the investigational product when compared with the comparator product. Also, significantly more study participants preferred the investigational product when compared with the comparator product (P = 0.017). CONCLUSIONS: The investigational product, an ostomy baseplate with a skin-protective technology, reduced PSCs and improved the HRQoL of people living with a stoma with liquid faecal effluent. Consequently, the investigational product was the preferred ostomy appliance of the participants. Thus, the product investigated in this study may be a new solution to be included in everyday clinical practice to overcome leakage-induced PSCs for people living with a stoma.


Asunto(s)
Estomía , Enfermedades de la Piel , Estomas Quirúrgicos , Adulto , Humanos , Femenino , Persona de Mediana Edad , Calidad de Vida , Estomía/efectos adversos , Piel , Estomas Quirúrgicos/efectos adversos , Enfermedades de la Piel/etiología , Enfermedades de la Piel/prevención & control
5.
Environ Pollut ; 315: 120346, 2022 Dec 15.
Artículo en Inglés | MEDLINE | ID: mdl-36202272

RESUMEN

Several classes of anthropogenic chemicals such as pesticides and pharmaceuticals are frequently used in human-related life activities and are discharged into the aquatic environment. These compounds can exert an unknown effect on aquatic life and humans if the water is used for human consumption. Thus, unravelling their occurrence in the aquatic system is crucial for the well-being of life and monitoring purposes. To this end, we used nanoflow-liquid and ion-exchange chromatography hyphenated with orbitrap high-resolution tandem mass spectrometry to detect several thousands of features (chemical entities) in surface water. Later, the features were narrowed down to a few focused lists using a stepwise filtering strategy, for which the structural elucidation was made. Accordingly, the chemical structure was confirmed for 83 compounds from different application areas, mainly being pharmaceuticals, pesticides, and other multiple application industrial compounds and xenobiotic degradation products. The compounds with the highest concentration were lamotrigine (27.6 µg/L), valsartan (14.4 µg/L), and ibuprofen (12.7 µg/L). Some compounds such as prosulfocarb, fluopyram, and tris(3-chloropropyl) phosphate were found to be the most abundant and widespread contaminants. Of the 32 sampling sites, nearly half of the sites (47%) contained more than 30 different compounds. Two sampling sites were far more contaminated than other sites based on the estimated concentration and the number of identified contaminants they contained. Our triplicate analysis revealed a low relative standard deviation between replicates, advocating for the added value in analysing more sampling sites instead of sample repetition. Overall, our study elucidated the occurrence of organic contaminants from a variety of sources in the aquatic environment. Furthermore, our findings highlighted the role of suspected non-target screening in exposing a snapshot of the chemical composition of surface water and the localized possible contamination sources.


Asunto(s)
Plaguicidas , Contaminantes Químicos del Agua , Humanos , Monitoreo del Ambiente/métodos , Contaminantes Químicos del Agua/análisis , Plaguicidas/análisis , Agua/análisis , Preparaciones Farmacéuticas
6.
BMC Geriatr ; 22(1): 800, 2022 10 14.
Artículo en Inglés | MEDLINE | ID: mdl-36241981

RESUMEN

BACKGROUND: Physical training is increasingly used in rehabilitation for older people with dementia and several studies have documented positive results. Currently, welfare nations promote motion-based technology (MBT) at home to replace group training in various rehabilitation interventions. Research on the use of MBT by people with dementia is sparse. Therefore, this study explores how people with mild dementia and their relatives experience home-based MBT training in an intervention facilitated by a Danish municipality. METHODS: The study is part of a feasibility study and builds on participant observation and interviews with people with dementia (n = 4), their relatives (n = 4), and health care workers (n = 3) engaged in the project. RESULTS: Participants compared MBT training to group training and found that MBT was not a satisfactory replacement for group training. Some participants used and enjoyed MBT daily while others were challenged by the technology, the placement of the device, or motivation to independently complete the training program. CONCLUSION: MBT is possibly best considered as a supplement to group training, suitable for individuals able to use it in daily life.


Asunto(s)
Demencia , Anciano , Demencia/terapia , Estudios de Factibilidad , Personal de Salud , Humanos , Investigación Cualitativa , Tecnología
7.
JMIR Rehabil Assist Technol ; 9(3): e36505, 2022 Aug 01.
Artículo en Inglés | MEDLINE | ID: mdl-35916689

RESUMEN

BACKGROUND: Approximately 50 million people worldwide are living with dementia. Social robots have been developed and tested to determine whether they improve the quality of life for persons with dementia. A new mobile social robot called LOVOT has artificial intelligence and sensor technologies built in. LOVOT, which is manufactured in Japan, has not yet been tested for use by persons with dementia. OBJECTIVE: This study aimed to explore how the social robot LOVOT interacts with persons with dementia and how health care professionals experience working with LOVOT in their interaction with persons with dementia. METHODS: The study was carried out at 3 nursing homes in Denmark, all with specialized units for persons with dementia. The interaction between the persons with dementia and LOVOT was tested in both individual sessions for 4 weeks and group sessions for 12 weeks. A total of 42 persons were included in the study, of which 12 were allocated to the individual sessions. A triangulation of data collection techniques was used: the World Health Organization-5 questionnaire, face scale, participant observation, and semistructured focus group interviews with health care professionals (n=3). RESULTS: There were no clinically significant changes in the well-being of the persons with dementia followed in the individual or group interaction sessions over time. The results from the face scale showed that in both the individual and group sessions, persons with dementia tended to express more positive facial expressions after the sessions. Findings on how persons with dementia experienced their interaction with LOVOT can be stated in terms of the following themes: LOVOT opens up communication and interaction; provides entertainment; creates a breathing space; is accepted and creates joy; induces feelings of care; can create an overstimulation of feelings; is not accepted; is perceived as an animal; is perceived as being nondemanding; and prevents touch deprivation. Findings regarding the health care professionals' experiences using LOVOT were as follows: the artificial behavior seems natural; and it is a communication tool that can stimulate, create feelings of security, and open up communication. Our findings indicate that the social robot is a tool that can be used in interactions with persons with dementia. CONCLUSIONS: The LOVOT robot is the next generation of social robots with advanced artificial intelligence. The vast majority of persons with dementia accepted the social robot LOVOT. LOVOT had positive effects, opened up communication, and facilitated interpersonal interaction. Although LOVOT did not create noticeable effects on social well-being, it gave individual persons a respite from everyday life. Some residents were overstimulated by emotions after interacting with LOVOT. Health care professionals accepted the social robot and view LOVOT as a new tool in the work with persons with dementia.

8.
Eur Heart J Case Rep ; 5(7): ytab061, 2021 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-34345761

RESUMEN

BACKGROUND: The increased risk of cardiovascular morbidity and mortality in chronic kidney disease (CKD) and end-stage renal disease (ESRD) seems particularly pronounced in patients with concomitant aortic and mitral valvular calcifications. Valvular calcification (VC) is accelerated in patients with CKD and even more so with ESRD and haemodialysis (HD) due to premature endothelial cell dysfunction. Mineral and bone disorder (CKD-MBD) is a common complication of CKD/ESRD and may play a pivotal role in VC. CASE SUMMARY: A 25-year-old woman with congenital hypoplastic kidneys and ESRD on HD from the age of 19 was admitted to the emergency department suffering from chest pain and dyspnoea. Transthoracic echocardiogram (TTE) revealed critical aortic stenosis (AS) with indexed aortic valve area 0.4 cm2/m2, a mean gradient 58 mmHg and a moderate mitral stenosis with a mean gradient 6-8 mmHg developed over the course of 2 years, as a normal TTE was performed at that time. During HD, the patient had longstanding alterations in calcium and phosphate metabolism including secondary hyperparathyroidism that eventually progressed into tertiary hyperparathyroidism. Efforts were made to treat CKD-MBD but patient compliance was low. Subtotal parathyroidectomy was performed 6 months prior to admission. The patient had dual mechanical valve replacement. DISCUSSION: Valvular calcification is common in patients with CKD/ESRD and in particular in patients on HD. Rapid progression of valve disease in this case may be related to the combination of low patient adherence and sustained disturbed calcium and phosphate metabolism with tertiary hyperparathyroidism. Transthoracic echocardiogram should be performed in patients on HD even with minor suspicion of VC and in patients with low adherence and disturbance of calcium and phosphate metabolism.

9.
Child Psychiatry Hum Dev ; 51(5): 839-852, 2020 10.
Artículo en Inglés | MEDLINE | ID: mdl-32705460

RESUMEN

This randomized control trial used intent-to-treat analyses to compare parent management training-Oregon model (PMTO) (N = 64) to family-based services as usual (SAU) (N = 62) in 3.5-13-year-old children and their families in Denmark. Outcomes were parent report of child internalizing and externalizing problems, parenting efficacy, parenting stress, parent sense of coherence, parent-report of life satisfaction, and parental depressive symptoms. Outcomes were measured at pretreatment, post-treatment, and 18-20 months post-treatment. Results demonstrated that both PMTO and family-based SAU resulted in significant improvements in child externalizing and internalizing problems, parenting efficacy, as well as parent-reported stress and depressive symptoms, life satisfaction, and aspects of sense of cohesion. Effect sizes at post-treatment and follow-up were in the small to moderate range, consistent with prior PMTO evaluations. However, there were no significant differences between PMTO and family-based SAU. Further research on the process and content of family-based SAU is needed to determine how this approach overlaps with and is distinct from PMTO.


Asunto(s)
Conducta del Adolescente , Síntomas Conductuales/terapia , Conducta Infantil , Educación no Profesional , Terapia Familiar , Responsabilidad Parental , Adolescente , Niño , Preescolar , Dinamarca , Femenino , Humanos , Masculino , Problema de Conducta
10.
J Couns Psychol ; 67(6): 723-735, 2020 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-32212760

RESUMEN

The Partners for Change Outcome System (PCOMS) is a feedback system that has been developed as part of psychotherapeutic treatment. The aim of this systematic review was to evaluate the effect of the PCOMS. We searched the literature and included studies that used a randomized controlled trial (RCT) design. We calculated a combined effect size across studies for outcomes related to the number of sessions attended. We also calculated a combined effect size for outcomes related to the participants' well-being. However, in the analysis of the effect on well-being, we excluded studies that included only the Outcome Rating Scale as a measure of effect because this scale is part of the PCOMS. In the calculation of the combined effect size, we used random effect models with inverse weighted variance. In the systematic literature search we identified 14 RCT studies that evaluated the effect of the PCOMS. Based on 12 studies, we found a rather small effect size for the number of sessions attended favoring the PCOMS intervention (Hedges's g = 0.13; 95% confidence interval [CI: 0.001, 0.26]). The effect size corresponded to a difference of less than 1 session. Six studies included a well-being scale that was independent of the PCOMS intervention as the outcome. The effect size for the 6 studies was insignificant (Hedges's g = 0.03; 95% Cl [-0.18, 0.23]). We found no evidence that the PCOMS feedback system has an effect on the number of sessions attended by clients or that the PCOMS improves the well-being of clients. (PsycInfo Database Record (c) 2020 APA, all rights reserved).


Asunto(s)
Retroalimentación , Psicoterapia/métodos , Parejas Sexuales/psicología , Humanos , Ensayos Clínicos Controlados Aleatorios como Asunto , Resultado del Tratamiento
11.
Anthropol Med ; 27(3): 315-329, 2020 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-31983239

RESUMEN

Presently, there is a general understanding that health, illness and rehabilitation should be studied in a relational context, and that people's experiences, perceptions and practices in relation to health and recovery are formed relationally and contextually. The aim of this paper is to consider and discuss how men experienced their marital relationships, after being diagnosed with cancer. The empirical material is based on the authors' ethnographic fieldworks, including participant observation and interviews with men who have or have had cancer. The analysis is informed by the anthropologist Michael Jackson's notion of intersubjectivity and his argument that intersubjectivity continually and dialectically moves between the complementary poles of compassion and conflict. We demonstrate how the men appreciated their partners' support and care, but also that the cancer disease and the treatment could cause marital friction and tension. Due to their new life circumstances and subject positions, the men continuously shifted between the poles of compassion and conflict, struggling for balance and control, including negotiations of how to perform their masculinity.


Asunto(s)
Matrimonio/psicología , Hombres/psicología , Neoplasias , Esposos/psicología , Adulto , Anciano , Antropología Médica , Humanos , Masculino , Masculinidad , Persona de Mediana Edad , Neoplasias/etnología , Neoplasias/psicología
12.
Acta Orthop ; 91(1): 42-47, 2020 02.
Artículo en Inglés | MEDLINE | ID: mdl-31680610

RESUMEN

Background and purpose - Discharge on the day of surgery (DOS) in selected patients operated with total hip arthroplasty (THA) or total knee arthroplasty (TKA) has been shown to be feasible, but different factors may determine whether patients are discharged on the DOS or not and setting may be one of them. We investigated the importance of the setting in which the short stay following outpatient THA or TKA takes place: was there a difference between the proportion of patients being discharged on the DOS from an ambulatory surgery center (ASC) compared with patients staying on an arthroplasty ward?Patients and methods - 50 patients (30 TKA, 20 THA) were included in the study and postoperatively randomized to either staying in the ASC or the arthroplasty ward until discharge. All patients were operated under general anesthesia by the same experienced surgeon (HH) and were discharged upon fulfillment of standardized discharge criteria.Results - 24/25 of the patients who stayed in the ASC compared with 20/25 of the patients on the arthroplasty ward were discharged on the DOS following fulfillment of discharge criteria (p = 0.08). All THA patients were discharged on the DOS and significantly more TKA patients were discharged from the ASC (15/16) vs. from the ward (9/14) (p = 0.04).Interpretation - Despite fixed discharge criteria, the logistical setting may play a role for achieving discharge on DOS and the ASC may facilitate achieving discharge criteria earlier especially in TKA.


Asunto(s)
Procedimientos Quirúrgicos Ambulatorios , Artroplastia de Reemplazo de Cadera , Artroplastia de Reemplazo de Rodilla , Unidades Hospitalarias , Hospitalización/estadística & datos numéricos , Alta del Paciente/estadística & datos numéricos , Centros Quirúrgicos , Anciano , Femenino , Humanos , Masculino , Persona de Mediana Edad
13.
Sociol Health Illn ; 41(5): 950-964, 2019 06.
Artículo en Inglés | MEDLINE | ID: mdl-30740754

RESUMEN

Illness stories are a prime analytical way of understanding patient perspectives on cancer. Nevertheless, limited studies have focused on stories of endometrial cancer. An ethnographic study including participant observation and interviews among 18 Danish women with endometrial cancer was conducted to examine prevalent stories and the ways the women responded to them. In this article, the analysis focuses on two exemplary cases, which present a line of issues related to the kinds of experiences that suffering includes. Findings illustrate that feelings of luck were central to the experience of being diagnosed, treated and cured, which was related to the way health professionals framed endometrial cancer as favourable through notions of curable/incurable, trivial and gentle/invasive and brutal, and aggressive/non-aggressive. Drawing upon the concept of a 'hierarchy of suffering', we exemplify how women tended to scale own experiences of suffering against others', leading some to believe they were not in a legitimate position to draw attention to themselves nor seek help and support, despite adverse physical, psychosocial effects. Thus, feelings of being lucky were intertwined with a sense of ambivalence. We conclude by discussing how suffering arises within a moral context, suggesting that the ways we speak of cancer may make some experiences unspeakable. This calls for increased clinical attention to more diverse narratives of cancer.


Asunto(s)
Supervivientes de Cáncer/psicología , Emociones , Neoplasias Endometriales/psicología , Estrés Psicológico , Anciano , Antropología Cultural , Dinamarca , Femenino , Humanos , Persona de Mediana Edad , Narración , Investigación Cualitativa
14.
J Clin Nurs ; 28(11-12): 2329-2339, 2019 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-30791156

RESUMEN

AIMS AND OBJECTIVES: To explore nurse-patient interactions in relation to the mobilisation of nonsedated and awake, mechanically ventilated patients in the intensive care unit. BACKGROUND: Lighter sedation has enabled the early mobilisation of mechanically ventilated patients, but little is known about the nurses' role and interaction with critically ill patients in relation to mobilisation. DESIGN AND METHODS: The study had a qualitative design using an ethnographic approach within the methodology of interpretive description. Data were generated in two intensive care units in Denmark, where a strategy of no sedation was applied. Participant observation was conducted during 58 nurse-patient interactions in relation to mobilisation between nurses (n = 44) and mechanically ventilated patients (n = 25). We conducted interviews with nurses (n = 16) and patients (n = 13) who had been mechanically ventilated for at least 3 days. The data were analysed using inductive, thematic analysis. The report of the study adhered to the COREQ checklist. FINDING: We identified three themes: "Diverging perspectives on mobilisation" showed that nurses had a long-term and treatment-oriented perspective on mobilisation, while patients had a short-term perspective and regarded mobilisation as overwhelming in their present situation. "Negotiation about mobilisation" demonstrated how patients actively negotiated the terms of mobilisation with the nurse. "Inducing hope through mobilisation" captured how nurses encouraged mobilisation by integrating aspects of the patient's daily life as a way to instil hope for the future. CONCLUSIONS: Exploring the nurse-patient interactions illustrated that mobilisation is more than physical activity. Mobilisation is accomplished through nurse-patient collaborations as a negotiated, complex and meaningful achievement, which is driven by the logic of care, leading to hope for the future. RELEVANCE TO CLINICAL PRACTICE: The study demonstrated the important role of nurses in achieving mobilisation in collaboration and through negotiation with mechanically ventilated patients in the intensive care unit.


Asunto(s)
Enfermería de Cuidados Críticos/métodos , Ambulación Precoz/enfermería , Relaciones Enfermero-Paciente , Adulto , Anciano , Anciano de 80 o más Años , Enfermedad Crítica/enfermería , Dinamarca , Ambulación Precoz/psicología , Femenino , Humanos , Unidades de Cuidados Intensivos , Masculino , Persona de Mediana Edad , Negociación , Rol de la Enfermera , Respiración Artificial/enfermería
15.
J Clin Nurs ; 28(1-2): 245-256, 2019 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-29989243

RESUMEN

AIMS AND OBJECTIVES: To explore endometrial cancer patients' perceptions of the disease and the influence of favourable prognoses on their experiences. BACKGROUND: Endometrial cancer is associated with favourable prognoses, which may imply that patients experience distress to a lesser extent than other cancer patients with less positive treatment outcomes. However, most people with cancer report reduced quality of life and, despite endometrial cancer being prevalent worldwide, experiences of the disease have been little explored. DESIGN: Ethnographic fieldwork with participant observations and interviews. METHODS: Observations during clinical consultations at two Danish hospitals and interviews with women with endometrial cancer (n = 18) over a period of 6 months. The article adheres to the COREQ guidelines for reporting qualitative research. RESULTS: We identify how patients consider cancer in general very likely to be fatal, while clinicians in contrast characterise endometrial cancer specifically as "good" because of favourable prognoses. We employ the concept of bricolage to illustrate how bits and pieces of biomedical knowledge and statistical evidence become intertwined with patients' past experiences and subjective ways of knowing, suggesting that patients' perceptions of endometrial cancer as a disease are somewhat dynamic. CONCLUSIONS: Public stories and everyday life experiences of cancer provide a central framework for illness perceptions. As a result, patients retain the idea of a close connection between cancer and death, while also adopting the notion of endometrial cancer as "good". This influenced how women responded to treatment and care. Framing endometrial cancer as "good" is not always helpful, as the impact of a cancer diagnosis per se is rarely favourable. RELEVANCE TO CLINICAL PRACTICE: In providing women with endometrial cancer with optimal support through diagnosis and treatment, clinicians should attend to the complexity of patients' illness understandings and be aware that assuring patients of a good prognosis not always has the expected impact.


Asunto(s)
Neoplasias Endometriales/psicología , Conocimientos, Actitudes y Práctica en Salud , Calidad de Vida , Anciano , Anciano de 80 o más Años , Dinamarca , Femenino , Humanos , Persona de Mediana Edad , Pronóstico , Investigación Cualitativa , Resultado del Tratamiento
16.
J Cancer Educ ; 33(3): 680-685, 2018 06.
Artículo en Inglés | MEDLINE | ID: mdl-27726108

RESUMEN

The aim of this study was to investigate if teaching patients about positioning before radiotherapy treatment would (a) reduce the residual rotational set-up errors, (b) reduce the number of repositionings and (c) improve patients' sense of control by increasing self-efficacy and reducing distress. Patients were randomized to either standard care (control group) or standard care and a teaching session combining visual aids and practical exercises (intervention group). Daily images from the treatment sessions were evaluated off-line. Both groups filled in a questionnaire before and at the end of the treatment course on various aspects of cooperation with the staff regarding positioning. Comparisons of residual rotational set-up errors showed an improvement in the intervention group compared to the control group. No significant differences were found in number of repositionings, self-efficacy or distress. Results show that it is possible to teach patients about positioning and thereby improve precision in positioning. Teaching patients about positioning did not seem to affect self-efficacy or distress scores at baseline and at the end of the treatment course.


Asunto(s)
Recursos Audiovisuales/estadística & datos numéricos , Ejercicio Físico , Neoplasias/radioterapia , Educación del Paciente como Asunto , Posicionamiento del Paciente/normas , Planificación de la Radioterapia Asistida por Computador/normas , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Masculino , Persona de Mediana Edad , Autoeficacia , Encuestas y Cuestionarios
17.
Int J Nurs Stud ; 75: 1-9, 2017 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-28704639

RESUMEN

BACKGROUND: There is a current trend towards lighter or no sedation of mechanically ventilated patients in the intensive care unit. The advantages of less sedation have been demonstrated as shorter duration of mechanical ventilation and reduced length of stay in the intensive care unit and hospital. Non-sedated patients are more awake during mechanical ventilation, but little is known about how this affects the intensive care patient. AIM: To explore patients' experiences of being awake during critical illness and mechanical ventilation in the intensive care unit. DESIGN & METHODS: The study was based on Interpretive Description, an applied inductive, qualitative approach with an ethnographic exploration of the patient experience. A longitudinal perspective was obtained through 13 months of fieldwork followed by two patient interviews after intensive care and after hospital discharge. Data were analyzed using thematic analysis. SETTING & PARTICIPANTS: The fieldwork was conducted in two intensive care units at a university hospital in Denmark, where the no sedation strategy for mechanically ventilated patients was implemented. Twenty-eight patients were observed in the intensive care unit. Twenty patients, who had been awake for most of the time on mechanical ventilation, were interviewed during the first week after discharge from intensive care. Thirteen of these patients were interviewed again two to four months after discharge. FINDINGS: Three themes were identified: "A sense of agency", "The familiar in the unfamiliar situation" and "Awareness of surrounding activities". Patients had the ability to interact from the first days of critical illness and a sense of agency was expressed through initiating, directing and participating in communication and other activities. Patients appreciated competent and compassionate nurses who were attentive and involved them as individual persons. Initiatives to enhance familiar aspects such as relatives, personal items and care, continuity and closeness of nurses contributed to the patients' experience of feeling safe and secure in the unfamiliar setting. Patients were aware of the surrounding activities and felt powerless when ignored by the staff and were affected when witnessing fellow patients' suffering. CONCLUSION: Being awake during mechanical ventilation entailed new opportunities and challenges for critically ill patients. Patients found themselves at the interface between agency and powerlessness as they were able to interact, yet were bound by contextual factors such as bodily weakness, technology, spatial position and relational aspects. This knowledge is important to develop patient-centered nursing practice in the context of lighter sedation.


Asunto(s)
Unidades de Cuidados Intensivos , Respiración Artificial , Vigilia , Adulto , Anciano , Anciano de 80 o más Años , Antropología Cultural , Femenino , Humanos , Hipnóticos y Sedantes/administración & dosificación , Tiempo de Internación , Masculino , Persona de Mediana Edad
18.
Fam Pract ; 34(1): 114-118, 2017 02.
Artículo en Inglés | MEDLINE | ID: mdl-28122927

RESUMEN

BACKGROUND: International guidelines recommend health care professionals to use supportive tools like questionnaires when assessing cancer patients' needs. Little is known about GPs' perspectives and experience in this regard. OBJECTIVE: To examine how GPs experience to involve a short questionnaire, completed by patients' prior to a consultation, when addressing the patients' problems and needs. The aim is to contribute to the knowledge concerning the use of questionnaires as part of clinical cancer care in general practice. METHODS: Semi-structured individual interviews with 11 GPs in the Region of Southern Denmark purposefully sampled with regard to gender, years working in general practice and practice form. Interviews were analyzed using systematic text condensation. RESULTS: Most GPs found that using the questionnaire provided a supportive structure to the consultation. The questionnaire helped to bring forward issues of importance to the patients, which might otherwise not have been mentioned and enhanced a patient-centered approach. A few GPs found the use of the questionnaire to be restraining, detracting focus from the patient and impede usual practice. CONCLUSIONS: This study shows that using questionnaires may have the potential to improve clinical cancer care in general practice in relation to needs assessment of cancer patients and the results support current recommendations.


Asunto(s)
Actitud del Personal de Salud , Medicina General/métodos , Evaluación de Necesidades , Neoplasias , Anciano , Anciano de 80 o más Años , Comunicación , Femenino , Humanos , Entrevistas como Asunto , Masculino , Persona de Mediana Edad , Neoplasias/terapia , Participación del Paciente , Atención Dirigida al Paciente , Relaciones Médico-Paciente , Investigación Cualitativa , Encuestas y Cuestionarios
19.
J Psychosoc Oncol ; 34(6): 460-476, 2016.
Artículo en Inglés | MEDLINE | ID: mdl-27612167

RESUMEN

Previous research on psychosocial support for cancer-related concerns has primarily focused on either patients or their relatives, although limited research is available on how patients and their relatives can be supported together. The aim of this article is to explore the use of storytelling as a part of a residential cancer rehabilitation intervention for patients together with their relatives, with a specific focus on their management of cancer-related concerns. Ten pairs participated in the intervention and data were generated through ethnographic fieldwork, including participant observations, informal conversations and follow-up interviews conducted one month after completing the intervention. Analysis was performed drawing on narrative theory combined with social practice theory. The results demonstrate that the use of storytelling and metaphors intertwined with other course activities, such as dancing and arts & crafts, provided the patients and their relatives with strategies to manage cancer-related concerns, which they were later able to apply in their everyday lives. The study results may be useful to other professionals in clinical practice for rehabilitation purposes for addressing issues of fear and worry.


Asunto(s)
Familia/psicología , Neoplasias de los Genitales Femeninos/psicología , Neoplasias de los Genitales Femeninos/rehabilitación , Neoplasias Pulmonares/psicología , Neoplasias Pulmonares/rehabilitación , Narración , Apoyo Social , Anciano , Anciano de 80 o más Años , Femenino , Estudios de Seguimiento , Humanos , Masculino , Persona de Mediana Edad , Investigación Cualitativa , Resultado del Tratamiento
20.
Br J Soc Work ; 46(5): 1354-1371, 2016 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-27559232

RESUMEN

Using a cluster-randomised design, this study analyses the effects of a government-administered skill training programme for social workers in Norway. The training programme aims to improve social workers' professional competences by enhancing and systematising follow-up work directed towards longer-term unemployed clients in the following areas: encountering the user, system-oriented efforts and administrative work. The main tools and techniques of the programme are based on motivational interviewing and appreciative inquiry. The data comprise responses to baseline and eighteen-month follow-up questionnaires administered to all social workers (n = 99) in eighteen participating Labour and Welfare offices randomised into experimental and control groups. The findings indicate that the skill training programme positively affected the social workers' evaluations of their professional competences and quality of work supervision received. The acquisition and mastering of combinations of specific tools and techniques, a comprehensive supervision structure and the opportunity to adapt the learned skills to local conditions were important in explaining the results.

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