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1.
Am J Intellect Dev Disabil ; 121(5): 398-418, 2016 09.
Artículo en Inglés | MEDLINE | ID: mdl-27611351

RESUMEN

Amidst decades of attention directed toward improving employment outcomes for people with intellectual and developmental disabilities (IDD), few efforts have been made to engage communities in identifying local solutions for expanding integrated employment opportunities. We examined the implementation and outcomes of "community conversation" events held in 6 geographically and economically diverse locales. Each event used an asset-based dialogue approach called the World Café ( Brown & Isaacs, 2005 ) to solicit ideas from a broad cross-section of community members on improving integrated employment that reflect local priorities and possibilities. Six key themes encapsulated the 1,556 strategies generated by the almost 400 attendees. Although considerable consistency was found among the categories of strategies raised across events, the manner in which those individual strategies would be implemented locally reflected the unique accent of each community. Attendees also viewed these events as promising and productive pathways for identifying next steps for their community. We offer recommendations for community-level intervention efforts and suggest directions for future research.


Asunto(s)
Discapacidades del Desarrollo/rehabilitación , Empleo/normas , Discapacidad Intelectual/rehabilitación , Desarrollo de Programa , Características de la Residencia , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Masculino , Persona de Mediana Edad , Tennessee
2.
J Child Neurol ; 24(1): 19-24, 2009 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-19168814

RESUMEN

Sleep difficulties in children with autism spectrum disorders are common, with poor sleep hygiene a contributing factor. We developed the Family Inventory of Sleep Habits to measure sleep hygiene in this population. Its validity and reliability in 2 groups of children aged 4 to 10 years, those with a clinical diagnosis of autism spectrum disorders, and those who are typically developing are described. In both groups, total and modified (reflecting insomnia subscales) scores on the Children's Sleep Habits Questionnaire showed significant negative correlations with the total score. The Peabody Picture Vocabulary Test-III was significantly correlated with total score in the autism spectrum group but not in the typically developing group. Age and socioeconomic status were not correlated with total score in either group. This preliminary work suggests that the Family Inventory of Sleep Habits is a valid and reliable measure of sleep hygiene in autism spectrum disorders.


Asunto(s)
Trastorno Autístico/fisiopatología , Trastorno Autístico/psicología , Hábitos , Sueño/fisiología , Encuestas y Cuestionarios , Niño , Preescolar , Femenino , Estado de Salud , Humanos , Masculino , Polisomnografía , Psicometría , Reproducibilidad de los Resultados
3.
Autism ; 12(5): 557-73, 2008 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-18805947

RESUMEN

The study examined the properties of the Screening Tool for Autism in Two-Year-Olds (STAT) for children under 24 months. The STAT provides a standard context for observing social-communicative behavior in play, imitation, and communication. Seventy-one children received the STAT between 12 and 23 months of age and a follow-up diagnostic evaluation after 24 months. All had an older sibling with an autism spectrum diagnosis (n=59) or had been referred for evaluation for concerns about autism (n=12). Signal detection analysis resulted in a cut score of 2.75 for this sample, which yielded a sensitivity of 0.95, specificity of 0.73, positive predictive value of 0.56, and negative predictive value of 0.97. False positives were highest for the 12- to 13-month-old age group; STAT screening properties were improved when the sample was limited to children 14 months and older. Implications for using the STAT with children under 24 months are discussed.


Asunto(s)
Trastorno Autístico/diagnóstico , Trastorno Autístico/epidemiología , Tamizaje Masivo/métodos , Encuestas y Cuestionarios , Trastornos del Conocimiento/diagnóstico , Trastornos del Conocimiento/epidemiología , Estudios de Seguimiento , Humanos , Lactante , Índice de Severidad de la Enfermedad
4.
Pediatr Neurol ; 37(2): 108-16, 2007 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-17675025

RESUMEN

The validity of the Parental Concerns Questionnaire, a brief screening checklist assessing the presence and severity of 13 developmental and behavioral concerns expressed by parents of children with autism spectrum disorders, was determined in 53 children ages 4 to 10 years with a clinical diagnosis of autism spectrum disorder and 48 age-matched typically developing controls. Parents completed the Parental Concerns Questionnaire, the Child Behavior Checklist, the Child Sleep Habits Questionnaire, and either the Repetitive Behavior Scale or the Compulsive Behavior Checklist. A clinical examiner administered the Peabody Picture Vocabulary Test and the Autism Diagnostic Observation Scale. The Parental Concerns Questionnaire demonstrated high internal consistency in the autism spectrum disorder subgroup. Reliability and stability over time were demonstrated. Analyses showed variability in item responses for each child indicating that parents were not globally answering all items as concerns. Comparison of Parental Concerns Questionnaire item scores to scores for similar multiquestion domains on standardized parent-rated and clinician-administered assessment tools demonstrated external validity with other parent-rated and clinician-rated instruments. The Parental Concerns Questionnaire is a reliable screening instrument to assess parentally reported developmental and behavioral symptoms in children with autism spectrum disorders.


Asunto(s)
Trastorno Autístico/diagnóstico , Trastornos de la Conducta Infantil/diagnóstico , Discapacidades del Desarrollo/diagnóstico , Encuestas y Cuestionarios/normas , Trastorno Autístico/complicaciones , Niño , Trastornos de la Conducta Infantil/etiología , Preescolar , Conducta Compulsiva/diagnóstico , Conducta Compulsiva/etiología , Discapacidades del Desarrollo/etiología , Femenino , Humanos , Masculino , Psicometría/normas , Reproducibilidad de los Resultados , Trastornos del Sueño-Vigilia/diagnóstico , Trastornos del Sueño-Vigilia/etiología , Conducta Social
5.
Pediatr Neurol ; 34(4): 325-8, 2006 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-16638513

RESUMEN

Sleep disorders can affect daytime functioning in a variety of neurologic conditions, including autism spectrum disorder. This report describes improvements in sleep, social communication, attention, repetitive behaviors, and hypersensitivity after adenotonsillectomy for obstructive sleep apnea in a 5-year-old female with an autism spectrum disorder. Improvements were documented via pre- and postsurgical measures of parent report, polysomnography, validated sleep and behavior scales, and the Autism Diagnostic Observation Schedule. Identification and treatment of sleep disorders, including obstructive sleep apnea, may improve daytime behavior in children with autism spectrum disorders.


Asunto(s)
Adenoidectomía , Trastorno Autístico/complicaciones , Trastorno Autístico/psicología , Apnea Obstructiva del Sueño/complicaciones , Apnea Obstructiva del Sueño/cirugía , Tonsilectomía , Preescolar , Femenino , Humanos , Resultado del Tratamiento
6.
Sleep ; 29(12): 1563-71, 2006 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-17252887

RESUMEN

STUDY OBJECTIVES: To relate parentally reported sleep concerns in autism spectrum disorders (ASD) to polysomnographic (PSG) findings and measures of daytime behavior and autism symptomatology. DESIGN: Cross-sectional study involving validated questionnaires, sleep histories and diaries, 2 nights of PSG, and the Autism Diagnostic Observation Schedule (ADOS). SETTING: Vanderbilt University General Clinical Research Center Sleep Core. PARTICIPANTS: 21 children with ASD and 10 typically developing (TD) children, aged 4-10 years. Children were free of psychotropic medications, with no history of mental retardation or epileptic seizures. INTERVENTIONS: N/A. MEASUREMENTS AND RESULTS: Children with ASD were defined as "good sleepers" (10 children) and "poor sleepers" (11 children) on the basis of parental report; the age-comparable TD children were all reported by their parents to be good sleepers. Poor sleepers with ASD showed prolonged sleep latency and decreased sleep efficiency on night 1 of PSG and differed on insomnia-related subscales of the Children's Sleep Habits Questionnaire (CSHQ; increased sleep onset delay and decreased sleep duration). The good sleepers with ASD did not differ from the TD children in sleep architecture or on CSHQ domains. As compared with ASD good sleepers, the ASD poor sleepers also had higher scores related to affective problems on the Child Behavior Checklist and more problems with reciprocal social interaction on the ADOS. CONCLUSIONS: Parentally reported sleep concerns of insomnia in children with ASD are substantiated by validated sleep questionnaires and by PSG. Furthermore, good sleepers with ASD showed fewer affective problems and better social interactions than ASD poor sleepers.


Asunto(s)
Trastorno Autístico/epidemiología , Trastornos del Sueño-Vigilia/epidemiología , Niño , Trastornos de la Conducta Infantil/diagnóstico , Trastornos de la Conducta Infantil/epidemiología , Preescolar , Estudios Transversales , Electroencefalografía , Femenino , Humanos , Trastornos del Lenguaje/diagnóstico , Trastornos del Lenguaje/epidemiología , Pruebas del Lenguaje , Masculino , Trastornos del Humor/diagnóstico , Trastornos del Humor/epidemiología , Variaciones Dependientes del Observador , Polisomnografía , Índice de Severidad de la Enfermedad , Trastornos del Sueño-Vigilia/diagnóstico , Trastornos Somatomorfos/diagnóstico , Trastornos Somatomorfos/epidemiología , Encuestas y Cuestionarios
7.
Int J Dev Neurosci ; 20(3-5): 449-58, 2002.
Artículo en Inglés | MEDLINE | ID: mdl-12175886

RESUMEN

We examined the longitudinal relationships between power data in two bands (i.e. 4-6 and 6-9Hz) of electrical activity in the brain at 14 months, as measured by background electroencephalograms (EEG), with protodeclarative and protoimperative pointing at 18 months, as measured by the Early Social Communication Scales (ESCS), [Mundy et al., ESCS: A Preliminary Manual for the Abridged Early Social Communication Scales, 1996, unpublished manual] (n=27). EEGs were recorded from 64 sensors using the Electrical Geodesics (EGI) system's dense array sensor nets. Multivariate permutation testing (MPT), which controlled for experiment-wise error due to multiple significance tests, revealed significant correlations between log-transformed power in the frontal region at 14 months and protodeclarative, but not protoimperative, pointing at 18 months.


Asunto(s)
Encéfalo/crecimiento & desarrollo , Encéfalo/fisiología , Potenciales Evocados/fisiología , Gestos , Movimiento/fisiología , Comunicación no Verbal/fisiología , Conducta Social , Atención/fisiología , Cognición , Electroencefalografía , Femenino , Lóbulo Frontal/crecimiento & desarrollo , Lóbulo Frontal/fisiología , Lateralidad Funcional/fisiología , Humanos , Lactante , Estudios Longitudinales , Masculino , Valor Predictivo de las Pruebas
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