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1.
PLoS One ; 19(5): e0300537, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38776298

RESUMEN

This article explores which students-with regard to gender, socio-economic background and migration background-skip school in Germany, Japan, Sweden and the United Kingdom (UK) according to PISA data. Students who skip school are observed in many countries, but there is not much systematic research that studies this across countries. Comparable data is to a large extent missing. PISA data offers an opportunity to use comparable data. In PISA, students were asked in 2018, 2015 and 2012 whether they had skipped school a whole day in the last two weeks prior to their completion of the PISA student questionnaire. Patterns of how absence relates to sociodemographic factors vary in countries and school systems. In the comparison between the four countries the UK stands out as having a higher percentage of students who have reported that they have skipped school than in the other countries. This does not seem to be related to any specific group of students. Japan also stands out with a lower percentage of students who have reported that they have skipped school. According to PISA data, skipping school is more related to socio-economic background than any other of the variables studied. The socio-economic background seems to be related to skipping school in all three PISA studies in Sweden and the UK. Gender seems not to be an important factor in the four countries. In Sweden and Germany there is a lower percentage of non-immigrant students who report that they have skipped school than first-and second-generation immigrant students. In the UK the figures are more ambiguous. When the percentages of students skipping school are compared over time and in the countries, it is difficult to find any trends, but the data only covered three measurements during a period of six years, which may be too short a time span to see trends.


Asunto(s)
Absentismo , Instituciones Académicas , Estudiantes , Humanos , Estudiantes/estadística & datos numéricos , Masculino , Femenino , Adolescente , Instituciones Académicas/estadística & datos numéricos , Suecia , Japón , Reino Unido , Alemania , Encuestas y Cuestionarios , Factores Socioeconómicos , Factores Sociodemográficos , Niño
2.
Eur J Oncol Nurs ; 66: 102383, 2023 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-37506610

RESUMEN

PURPOSE: To examine how individuals treated for head and neck cancer perceive life one year after the end of treatment and how they experience supportive efforts from health care. METHODS: A semi-structured interview study of 21 patients was performed one year after the end of treatment. The patients gave their views concerning physical, psychological, and return-to-work issues, and their experiences concerning rehabilitative efforts from health care and particularly the contact nurse were captured. A thematic analysis was conducted. RESULTS: One year after treatment the patients were still suffering from side effects and from fear of recurrence, but they strived to live as they did before the cancer diagnosis, such as having returned to work and resuming leisure activities. Moreover, the rehabilitative efforts from health care had ended. Having access to a contact nurse, also known as a clinical nurse specialist, was positive, however, the participants lacked regular long-term follow-ups with the contact nurse regarding rehabilitation needs. Improvement possibilities were seen in clarifying the role of the contact nurse and that the contact nurse should show engagement and make the initial contact with the patients. CONCLUSION: Despite the sequelae from treatment, the patients strived to live as before their diagnosis. By regular, engaged, and long-term follow-ups by the contact nurse, remaining needs may be uncovered, and appropriate individualized support and rehabilitation can be offered.

3.
Soc Work Health Care ; 58(5): 494-508, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-30901286

RESUMEN

The oncology social worker is a core profession in the psychosocial care of cancer patients, and has been scrutinised according to its role, function, and delivery of care, primarily from an Anglo-Saxon perspective. There is, however, a lack of studies outside this context, and empirical studies based on individual data. This study is a contribution by exploring the variability in clinical practice from a Swedish perspective. It is based on documentation from one oncology social worker's (OSW's) patient contacts over the course of one year. The essence of the majority of contacts was counseling and the patients displayed a wide variety of motives for seeing an OSW. The function of the OSW is thus multifaceted, and the findings suggest that the OSW, in addition to guiding patients in social legislation issues, also should be prepared to act as an anchor in an acute crisis, contain despair in different phases of the trajectory, and facilitate the 'carrying on as before' or finding a 'new normal'. The paper discusses the importance of the OSW being acquainted with different counseling/psychotherapy perspectives in the illness context, but primarily the importance of having the ability to establish a 'working alliance' with their patients.


Asunto(s)
Consejo , Neoplasias , Derivación y Consulta , Trabajadores Sociales , Investigación Empírica , Femenino , Humanos , Masculino , Oncología Médica , Persona de Mediana Edad , Neoplasias/psicología , Neoplasias/terapia , Suecia
4.
Psychooncology ; 28(1): 154-159, 2019 01.
Artículo en Inglés | MEDLINE | ID: mdl-30346070

RESUMEN

OBJECTIVE: Although oncology social workers (OSWs) have emerged as a core profession in the provision of psychosocial services, there is a lack of empirical studies that describe their daily clinical work with next of kin (NOK). The overall aim of this study was to explore NOK's motives for consulting an OSW. This can provide us with insights into what types of skills OSWs need to have in order to fulfil their duties. METHODS: From a nationwide survey, we used data from 54 NOK cases that Swedish OSWs met face to face. RESULTS: About half of the motives concerned help in dealing with personal grief connected to the patients' cancer and distressing symptoms, while the other half concerned needs for help in dealing with the position of being the NOK, relationship conflicts, and assistance with socio-economic issues. CONCLUSIONS: The motives show that NOK does not just ask for help to come to terms with distress related to the patient's situation. Based on the diversity of motives, we suggest that OSWs (at least in Sweden) need a broad education in counselling psychology. Furthermore, health care personnel need to be attentive to the NOK's own voice and not reduce it to the voice of the patient and the patient's needs in referrals.


Asunto(s)
Familia/psicología , Neoplasias/psicología , Percepción Social , Trabajadores Sociales/psicología , Adulto , Femenino , Humanos , Masculino , Oncología Médica , Persona de Mediana Edad , Neoplasias/terapia , Psicooncología , Derivación y Consulta , Encuestas y Cuestionarios , Suecia
5.
Psychooncology ; 27(4): 1180-1184, 2018 04.
Artículo en Inglés | MEDLINE | ID: mdl-29314355

RESUMEN

OBJECTIVE: Although oncology social workers (OSWs) have emerged as a core profession in the provision of psychosocial services, there is a lack of empirical studies that describe their daily clinical work with patients. The overall aim of this study was to explore cancer patients' motives for consulting an OSW. METHODS: From a nationwide survey, we used data from 226 patient cases that OSWs met face to face. The OSWs were asked to describe how the case was referred to them, the patient's characteristics, and what they perceived as the patient's motives for contacting them as well as additional motives that came up during the consultations. RESULTS: Patients have different motives for consulting an OSW, and these motives change over the course of consultations; while feelings associated with being diagnosed with cancer were often the initial motive, questions associated with moving on in life and dealing with relationships and the overall life situation were added over time. CONCLUSIONS: The results show that Swedish OSWs' function is multifaceted and that the initial motives among patients rarely predict the content in consultations over time. Based on the diversity of motives, it seems obvious that OSWs (at least in Sweden) need a broad education in the psychology of counselling. It also seems obvious that even if patients initially were referred by health care staff to the OSW due to psychological reactions to being ill, staff should also be attentive to the fact that relational and socio-economic/juridical issues are of great concern for the patients.


Asunto(s)
Actitud del Personal de Salud , Supervivientes de Cáncer/psicología , Motivación , Psicoterapia , Derivación y Consulta , Trabajadores Sociales/psicología , Adaptación Psicológica , Femenino , Humanos , Relaciones Interpersonales , Masculino , Persona de Mediana Edad , Calidad de Vida/psicología , Encuestas y Cuestionarios
6.
J Psychosoc Oncol ; 35(5): 614-630, 2017.
Artículo en Inglés | MEDLINE | ID: mdl-28605311

RESUMEN

The aim of this study was to determine how patients with head and neck cancer experience changes within their intimate relationships at the end of treatment and detect detrimental and facilitating factors in the process of resuming intimate relationships. Interviews were conducted with 131 patients. A core category - "being open versus not sharing the cancer journey" - emerged from the patients' narratives and was based on the experiences of engagement/disengagement, openness/fear, and patronizing attitudes/sharing the burden. The findings point to the necessity of patients being open about the disease trajectory and might be understood in the light of theories about potential changes in identity and self-concept.


Asunto(s)
Neoplasias de Cabeza y Cuello/terapia , Relaciones Interpersonales , Parejas Sexuales/psicología , Adulto , Femenino , Neoplasias de Cabeza y Cuello/psicología , Humanos , Masculino , Persona de Mediana Edad , Investigación Cualitativa , Apoyo Social
7.
Soc Work Health Care ; 56(7): 600-614, 2017 08.
Artículo en Inglés | MEDLINE | ID: mdl-28486058

RESUMEN

Oncology social workers (OSWs) play a key role in cancer services, but they have mainly been described from an Anglo-Saxon perspective. This study aims to widen the field by scrutinizing the role and function of OSWs in Sweden. By means of a nationwide questionnaire to Swedish OSWs, the professional characteristics of this group are described, as well as their descriptions and reflections on their clinical function and their experiences of barriers to optimal functioning. Our findings indicate that Swedish OSWs seem to have taken a different path than in other countries by mainly providing therapeutic treatment and counseling to the patients rather than working with discharge planning. However, due to a mismatch between clinical demands and the training of Swedish OSWs, some suggestions are provided for future social work education in Sweden.


Asunto(s)
Conocimientos, Actitudes y Práctica en Salud , Oncología Médica , Trabajadores Sociales/psicología , Trabajadores Sociales/estadística & datos numéricos , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad , Encuestas y Cuestionarios , Suecia
8.
J Clin Nurs ; 25(21-22): 3160-3166, 2016 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-27301274

RESUMEN

AIMS AND OBJECTIVES: The purpose of this study is to systematically explore the motives for patients with head and neck cancer to contact a specialist nurse during two years postdiagnosis. BACKGROUND: Research focusing on the role of specialist nurses in cancer care almost exclusively concern cancers other than head and neck cancer. DESIGN: Qualitative, descriptive study based on the contacts between patients with head and neck cancer and a specialist nurse. METHODS: Patients were invited to contact a specialist nurse by telephone. The specialist nurse took systematic field notes, that is, she registered who contacted her, the nature of the call and the outcome. Sixty patients were included. RESULTS: In descending order, the motives for contact were questions about practical and uncomplicated matters, consultations about medical troubles/worries, presenting a report of the patient's situation, requests for additional information about the treatment plan and requests for medical information. The pattern of the patients' motivations for calling was not related to medical or social factors, suggesting that the initiative to make contact is very much a question of the complexity of individual life circumstances. Very few referrals were sent from the specialist nurse to other professionals. CONCLUSIONS: The specialist nurse turned out to be more than just a coordinator of health-care resources. The findings bring up questions about the potential of the nurse's function as a coordinator, but also as a potential attachment figure, and questions about the nurse's relationships to other professionals. RELEVANCE TO CLINICAL PRACTICE: When implementing a specialist nurse function, it is important to decide whether the function should be inspired by a broader relational perspective. In addition to the indispensible competence and experience in the clinical field of head and neck cancer, training in counselling and acquaintance with object-relational psychology will then be desirable.


Asunto(s)
Neoplasias de Cabeza y Cuello/psicología , Motivación , Enfermeras Especialistas , Aceptación de la Atención de Salud , Anciano , Femenino , Neoplasias de Cabeza y Cuello/enfermería , Humanos , Masculino , Persona de Mediana Edad , Rol de la Enfermera , Investigación Cualitativa , Derivación y Consulta
9.
Soc Sci Med ; 154: 54-61, 2016 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-26945172

RESUMEN

RATIONALE: There are many studies available describing how patients are affected by head and neck cancer (HNC) and its treatment. Usually these studies are quantitative and focus on assessing patients' quality of life or distress post-treatment. These studies are important, but they are of limited value if we are interested in understanding more about HNC in an everyday life context. OBJECTIVE: The purpose was to determine how life was lived and valued during and after treatment for HNC and to detect different transitions in returning to everyday life. METHODS: During 2009-2012, 56 patients with HNC were consecutively included, and interviewed at 6, 12, and 24 months post-treatment about how they lived their lives. All patients received primary treatment at a tertiary referral university hospital in Sweden. RESULTS: Four different trajectories and transitions emerged. The first group (n = 15) evaluated their illness experience as a past parenthesis in their life suggesting that they had psychologically left the illness behind. In the second group (n = 9), the impact of the disease seemed to be diluted by other strains in their life, and although these patients to some extent were still hampered by side effects, they regarded them as 'no big deal'. The cancer really made a difference in the third group (n = 12) in both positive and negative ways and seemed to reflect a balance between such effects. In the fourth group (n = 20), the physical and/or psychological problems predominated and the patients' lives had changed for the worse. CONCLUSION: The narratives showed that being afflicted by HNC has different impacts depending on how the patients live their lives - it is a matter of individual transition in an everyday life context. This idiosyncrasy challenges the meaningfulness of screening efforts to identify vulnerable groups for psychosocial intervention.


Asunto(s)
Actividades Cotidianas , Adaptación Psicológica , Neoplasias de Cabeza y Cuello/psicología , Anciano , Femenino , Neoplasias de Cabeza y Cuello/terapia , Humanos , Masculino , Persona de Mediana Edad , Estudios Prospectivos , Investigación Cualitativa , Suecia , Factores de Tiempo
10.
Support Care Cancer ; 24(1): 205-213, 2016 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-26003423

RESUMEN

PURPOSE: The purposes of this study were (1) to investigate employment status at diagnosis, sick leave, and returning to work patterns in correlation to quality of life, anxiety, and depression in patients treated for head and neck cancer (HNC) and (2) to explore patients' experiences of the process of returning to work. METHODS: Sixty-six patients with HNC (aged 34-66 years) were repeatedly interviewed over a period of 24 months. Interview responses that concerned the patients' experiences and ideas about work were categorised using the similarities-differences technique. Questionnaires on quality of life, anxiety, and depression were used to describe the patient characteristics and the differences between groups. RESULTS: In total, 53% of the patients had returned to work at 24 months after treatment, and 17% were deceased. Several quality of life parameters were significantly worse for patients not working at 24 months after treatment. Nine categories were found to describe the return-to-work process starting with symptoms causing sick leave, thoughts about the sick leave, and ending with the return to work and/or retirement. CONCLUSIONS: Returning to work is an important part of life because it structures everyday life and strengthens the individual's identity. The quality of life results showed significant differences between workers and non-workers at the 24-month follow-up. The patients need to be both physically and mentally prepared for the process of returning to work. It is important to take an individual rehabilitation approach to guide and support the patients in returning to work and regaining an important aspect of their everyday life. In such an approach, it is vital to understand the patients' overall life context and the patients' own perspective on the process and meaning associated with work.


Asunto(s)
Empleo/estadística & datos numéricos , Neoplasias de Cabeza y Cuello/rehabilitación , Reinserción al Trabajo/psicología , Ausencia por Enfermedad/estadística & datos numéricos , Adulto , Anciano , Ansiedad , Femenino , Humanos , Masculino , Persona de Mediana Edad , Calidad de Vida , Encuestas y Cuestionarios
11.
J Psychosoc Oncol ; 32(3): 322-41, 2014.
Artículo en Inglés | MEDLINE | ID: mdl-24611865

RESUMEN

Most studies of the psychosocial needs of patients with head and neck cancers (HNC) use predefined categories and explicitly ask for specified needs. These studies are important but should be complemented with inductive studies based on patients' own descriptions of experiences. This qualitative study is such a contribution. In repeated interviews positive and negative incidents were collected from 137 patients with HNC, and these experiences were categorized in dimensions expressing needs. A core category--"being included--neglected by a helping system"--emerged from the narrated incidents and was based on the dimensions engagement, competence, and information. The findings are easily related to attachment theory by stressing the significance of establishing trustful relationships with the health care staff, as attachment figures, who respond flexibly and sensitively to the patient's needs. In the constitution of health care as a helping system, all encounters between the patient and health care staff matters. Further research should preferably focus on the creation of guidelines for the constitution of health care as a helping system, that is, how the found factors of a helping system can be operationalized in clinical practice.


Asunto(s)
Actitud Frente a la Salud , Neoplasias de Cabeza y Cuello/psicología , Neoplasias de Cabeza y Cuello/terapia , Pacientes/psicología , Relaciones Profesional-Paciente , Anciano , Femenino , Humanos , Masculino , Persona de Mediana Edad , Narración , Evaluación de Necesidades , Apego a Objetos , Pacientes/estadística & datos numéricos , Teoría Psicológica , Investigación Cualitativa , Confianza
12.
Artículo en Inglés | MEDLINE | ID: mdl-20640030

RESUMEN

During the last decade an increasing use of differentiated support measures for pupils with special educational needs, indicative of a discrepancy between educational policies and practices, has been witnessed in Sweden. Another trend has been the increased use of medical diagnoses in school. The aim of this study was to explore the main concern of support given to pupils with special educational needs and how pupils and parents experience and handle this. Interviews were conducted with eight pupils in Grades 7-9-and their parents-at two compulsory schools in a city in northern Sweden. A grounded theory approach was used for analyzing the interview data. A conceptual model was generated illuminating the main concern of special support measures for pupils and parents. The core category of the model, struggling for recognition and inclusion, was related to two categories, which further described how this process was experienced and handled by the participants. These categories were labeled negotiating expertise knowledge within a fragmented support structure and coping with stigma, ambivalence, and special support measures. The developed conceptual model provides a deeper understanding of an ongoing process of struggle for recognition and inclusion in school as described by the pupils and parents.

13.
Nat Mater ; 6(9): 673-9, 2007 Sep.
Artículo en Inglés | MEDLINE | ID: mdl-17643105

RESUMEN

Cells and tissues use finely regulated ion fluxes for their intra- and intercellular communication. Technologies providing spatial and temporal control for studies of such fluxes are however, limited. We have developed an electrophoretic ion pump made of poly(3,4-ethylenedioxythiophene) doped with poly(styrene sulphonate) (PEDOT:PSS) to mediate electronic control of the ion homeostasis in neurons. Ion delivery from a source reservoir to a receiving electrolyte via a PEDOT:PSS thin-film channel was achieved by electronic addressing. Ions are delivered in high quantities at an associated on/off ratio exceeding 300. This induces physiological signalling events that can be recorded at the single-cell level. Furthermore, miniaturization of the device to a 50-microm-wide channel allows for stimulation of individual cells. As this technology platform allows for electronic control of ion signalling in individual cells with proper spatial and temporal resolution, it will be useful in further studies of communication in biological systems.


Asunto(s)
Señalización del Calcio/fisiología , Electroforesis/métodos , Electroporación/métodos , Microelectrodos , Neuronas/fisiología , Compuestos Orgánicos/química , Polímeros/química , Potenciales de Acción/fisiología , Materiales Biocompatibles/química , Técnicas de Cultivo de Célula/métodos , Línea Celular , Electroquímica/instrumentación , Electroquímica/métodos , Electrónica , Humanos , Iones
14.
Lab Chip ; 6(10): 1277-8, 2006 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-17102840

RESUMEN

We demonstrate a simple low-voltage technique for gating the flow of aqueous liquids in microfluidic systems employing the electrochemically-controlled surface energy of the conjugated polymer poly(3-hexylthiophene).

15.
Biomaterials ; 26(8): 861-72, 2005 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-15353197

RESUMEN

The aim of this study was to investigate whole blood coagulation on low blood plasma protein adsorbing surfaces. For this purpose, the polycationic graft copolymer poly(L-lysine)-g-poly(ethylene glycol) (PLL-g-PEG), PLL-g-PEG grafted with a cell adhesive peptide containing the amino acid sequence -Arg-Gly-Asp- (RGD), and PLL-g-PEG with a control peptide -Arg-Asp-Gly- (RDG) were adsorbed onto titanium (oxide), forming stable monomolecular adlayers through electrostatic attraction. Free oscillation rheometry and complementary techniques were used to measure the coagulation time (CT) and other interactions of the surfaces with native whole blood, recalcified platelet-rich plasma (PRP), and recalcified citrated platelet-free plasma (PFP). The results show that the uncoated titanium surfaces (reference) activated platelets and quickly triggered the coagulation cascade via the intrinsic pathway, whereas the PLL-g-PEG surfaces displayed a prolonged CT, approximately 2-3 times longer compared to uncoated titanium. We hypothesise that blood coagulates outside the vascular system independent of low protein adsorption to or activation by surfaces, due to the absence of an active down-regulation of procoagulative processes by the vascular endothelium.


Asunto(s)
Coagulación Sanguínea/fisiología , Materiales Biocompatibles Revestidos , Polietilenglicoles , Titanio , Plaquetas , Citometría de Flujo , Humanos , Lactatos , Microscopía Fluorescente , Oligopéptidos/metabolismo , Polietilenglicoles/metabolismo , Proteínas/metabolismo
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