RESUMEN
Ethics has been defined as the way we ought to behave. Medical publishing essentially exists to broadcast current and new medical knowledge to aid in the practice of medicine. In this review article we consider many of the aspects of medical publishing with regard to 'what we ought to do' and, equally, 'what we ought not to do' from the perspective of various ethical frameworks. Although ethics is not the law or a set of rules, nor a code of conduct, an ethical lens can be useful when developing good general guidelines for medical publishing.
Asunto(s)
Publicaciones Periódicas como Asunto , Humanos , EdiciónAsunto(s)
Betacoronavirus , Infecciones por Coronavirus , Pandemias , Neumonía Viral , COVID-19 , Niño , Humanos , SARS-CoV-2RESUMEN
On March, 24, 2020, 818 cases of COVID-19 had been reported in New South Wales, Australia, and new cases were increasing at an exponential rate. In anticipation of resource constraints arising in clinical settings as a result of the COVID-19 pandemic, a working party of ten ethicists (seven clinicians and three full-time academics) was convened at the University of Sydney to draft an ethics framework to support resource allocation decisions. The framework guides decision-makers using a question-and-answer format, in language that avoids philosophical and medical technicality. The working party met five times over the following week and then submitted a draft Framework for consideration by two groups of intensivists and one group of academic ethicists. It was also presented to a panel on a national current affairs programme. The Framework was then revised on the basis of feedback from these sources and made publicly available online on April 3, ten days after the initial meeting. The framework is published here in full to stimulate ongoing discussion about rapid development of user-friendly clinical ethics resources in ongoing and future pandemics.
Asunto(s)
Toma de Decisiones/ética , Atención a la Salud , Asignación de Recursos/ética , COVID-19 , Humanos , Nueva Gales del Sur , Pandemias , SARS-CoV-2RESUMEN
Although mandatory reporting of suspected child abuse was first introduced over 50 years ago, there are no quantitative studies addressing whether or not it achieves better outcomes for children. We report two cases of maternal infection, one with tuberculosis (TB) and one with human immunodeficiency virus (HIV), where the mothers' failure to attend follow-up appointments raised the possibility of significant harm if their infants were infected. Some health professionals argued strongly that mandatory reporting meant the mothers should be reported to child protection authorities. Others argued that the risk was not critically imminent and an immediate report could seriously compromise maternal confidentiality, risked maternal disengagement and a worse outcome. An alternative was to make more vigorous efforts to contact the mothers and report only if these failed. In the TB case, reporting to child protection was deferred in favour of making more strenuous efforts at communication, which proved successful. In the HIV case, a case worker reported the case to child protection, but when the doctor contacted child protection authorities they agreed not to contact the mother unless the doctor's vigorous attempts to communicate with her failed. We do not advocate for breaking the law regarding mandatory reporting, but we do argue for a considered approach to the timing of reporting and for a collaborative approach with child protection services.
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Notificación Obligatoria , Poblaciones Vulnerables , Estudios de Casos y Controles , Servicios de Protección Infantil , Femenino , Infecciones por VIH/prevención & control , Humanos , Lactante , Embarazo , Salud Pública , Medición de Riesgo , Tuberculosis Pulmonar/prevención & controlAsunto(s)
Maltrato a los Niños , Comunicación , Relaciones Médico-Paciente , Conducta Verbal , Niño , HumanosRESUMEN
We use issues that arose in the management of a 4-year old girl with a congenital myopathy to consider the tension between respecting the choices and decisions of the child's parents and applying clinical practice guidelines that emphasise minimising risk to the child. This case raises the issue of when it is reasonable to override parents' choice of management options.
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Planificación en Salud , Servicios de Atención de Salud a Domicilio , Enfermedades Musculares/genética , Preescolar , Femenino , Guías como Asunto , Humanos , Estudios de Casos Organizacionales , Cuidados Paliativos , Relaciones Padres-Hijo , Calidad de Vida , Índice de Severidad de la EnfermedadAsunto(s)
Pediatría/historia , Neumología/historia , Australia , Historia del Siglo XX , Historia del Siglo XXI , HumanosAsunto(s)
Toma de Decisiones/ética , Consultoría Ética , Pediatría/ética , Femenino , Humanos , MasculinoRESUMEN
In this article, we address how general paediatrics has evolved and adapted to change over the past 50 years and speculate on its future directions. We compare the state of general paediatrics with that of general adult medicine. We argue that general paediatrics must continue to have a strong role both in paediatric teaching hospitals and the community.
Asunto(s)
Pediatría/historia , Adulto , Australia , Niño , Servicios de Salud del Niño/historia , Medicina General/historia , Historia del Siglo XX , Historia del Siglo XXI , Hospitales Pediátricos/historia , Hospitales de Enseñanza/historia , Humanos , Pediatría/tendencias , Especialización/historiaRESUMEN
We report the progress of an 8-year-old child with spinal muscular atrophy (SMA) type 1. The parents elected in infancy that the child should be on long-term ventilation, but all attempts to establish this care at home have failed, so the child remains ventilated in the hospital. The leader of the long-term ventilation team reports on the child's progress and describes a week in the child's life. Two paediatricians argue that the benefits of long-term ventilation have not and do not compensate the child for the burdens imposed on her by this treatment and explain why they would not support the withdrawal of long-term ventilation now. They argue that long-term ventilation might have been avoided by applying to a court of law when the child was an infant. An ethicist discusses ethical aspects of decision-making in SMA type 1.