[Care of newborns and infants with epidermolysis bullosa]. / Prise en soins du nouveau-né et du nourrisson atteints d'épidermolyse bulleuse héréditaire.

When a baby is born, the first bonds of attachment are slowly formed. Primary care, such as feeding, changing, carrying, rocking or putting the child to sleep, is very important for the development of these bonds. In the event of early hospitalization, and especially in the case of a newborn with fragile skin, parents are deprived of this first care, which is a key moment they looked forward to during pregnancy. Feelings of fear and guilt are bound to develop during the establishment of these first bonds. That's why it's essential to support these families as early as possible, and involve them as much as possible in their baby's care.

[Adapting technical care to EBH patients]. / Adapter les soins techniques aux patients atteints d'EBH.

The skin of patients with hereditary epidermolysis bullosa (HEB) is extremely fragile. When providing care, nurses must be extremely vigilant to avoid inducing lesions. Whether inserting a peripheral venous line, taking blood pressure or monitoring the patient, nurses are likely to injure the patient's skin by compressing it, rubbing it, applying dressings and so on. It is therefore essential that they adapt this care to the person suffering from HEB.

[The orthopedic program to support patients returning home from the hospital]. / Le programme d'accompagnement du retour à domicile en orthopédie.

The French state health insurance scheme, in line with its risk management policy, has offered, since 2010, a programme to support insured patients returning home from hospital (PRADO). Thanks to this programme, run in association with the general practitioner or the specialist, patients can choose to receive support from midwives, nurses, masseurs and physiotherapists. The orthopaedic PRADO programme, for example, supports patients returning home after an operation.