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1.
Diabetes Educ ; 45(3): 253-259, 2019 06.
Artículo en Inglés | MEDLINE | ID: mdl-30902038

RESUMEN

PURPOSE: The purpose of this study was to determine the feasibility and functionality of MyDiaText™, a website and text messaging platform created to support behavior change in adolescents with type 1 diabetes (T1DM) and to evaluate user satisfaction of the application. METHODS: This study was a nonrandomized, prospective, pilot trial to test the feasibility and user interface with MyDiaText, a text message system for 10- to 17-year-old youths with newly diagnosed T1DM. Feasibility was evaluated by assessing for the user's ability to create a profile on the website. Functionality was defined by assessing whether a subject responded to at least 2 text messages per week and by their accumulating points on the website. User satisfaction of the text messaging system was assessed using an electronic survey. The 4 phases of this study were community engagement-advisory sessions, screening and enrollment, intervention, and follow-up. RESULTS: Twenty subjects (14 male, 6 female) were enrolled. All subjects were able to create a profile, and of these, 86% responded to at least 2 text messages per week. A survey administered during follow-up showed that users enjoyed reading text messages, found them useful, and thought the frequency of messages was appropriate. CONCLUSION: MyDiaText is a feasible, functional behavioral support tool for youth with T1DM. Users of the application reported high satisfaction with text messages and the reward system.


Asunto(s)
Diabetes Mellitus Tipo 1/psicología , Aceptación de la Atención de Salud/psicología , Automanejo/métodos , Telemedicina/métodos , Envío de Mensajes de Texto , Adolescente , Niño , Diabetes Mellitus Tipo 1/terapia , Estudios de Factibilidad , Femenino , Humanos , Masculino , Satisfacción del Paciente , Proyectos Piloto , Estudios Prospectivos , Automanejo/psicología
2.
J Fam Pract ; 63(10): E7-16, 2014 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-25343160

RESUMEN

PURPOSE: This study sought to identify the needs and unmet needs of the growing number of adult cancer survivors. METHODS: Vermont survivor advocates partnered with academic researchers to create a survivor registry and conduct a cross-sectional survey of cancer-related needs and unmet needs of adult survivors. The mailed survey addressed 53 specific needs in 5 domains based on prior research, contributions from the research partners, and pilot testing. Results were summarized by computing proportions who reported having needs met or unmet. RESULTS: Survey participants included 1668 of 2005 individuals invited from the survivor registry (83%); 65.7% were ages 60 or older and 61.9% were women. These participants had received their diagnosis 2 to 16 years earlier; 77.5% had been diagnosed ≥5 years previously; 30.2% had at least one unmet need in the emotional, social, and spiritual (E) domain; just 14.4% had at least one unmet need in the economic and legal domain. The most commonly identified individual unmet needs were in the E and the information (I) domains and included "help reducing stress" (14.8% of all respondents) and "information about possible after effects of treatment" (14.4%). CONCLUSIONS: Most needs of these longerterm survivors were met, but substantial proportions of survivors identified unmet needs. Unmet needs such as information about late and long-term adverse effects of treatment could be met within clinical care with a cancer survivor care plan, but some survivors may require referral to services focused on stress and coping.


Asunto(s)
Alfabetización en Salud , Neoplasias , Navegación de Pacientes , Atención Primaria de Salud , Sobrevivientes , Anciano , Anciano de 80 o más Años , Investigación Participativa Basada en la Comunidad , Estudios Transversales , Femenino , Alfabetización en Salud/métodos , Alfabetización en Salud/normas , Humanos , Masculino , Persona de Mediana Edad , Evaluación de Necesidades , Neoplasias/epidemiología , Neoplasias/psicología , Neoplasias/terapia , Defensa del Paciente , Navegación de Pacientes/métodos , Navegación de Pacientes/normas , Atención Primaria de Salud/métodos , Atención Primaria de Salud/organización & administración , Mejoramiento de la Calidad , Sistema de Registros , Apoyo Social , Encuestas y Cuestionarios , Sobrevivientes/legislación & jurisprudencia , Sobrevivientes/psicología , Sobrevivientes/estadística & datos numéricos , Vermont/epidemiología
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