RESUMEN
Properly managing healthcare data is a complex endeavor that must balance the requirements and interests of many stakeholders. In this paper, we present the findings from a panel discussion with healthcare professionals and academics, who elaborate on the current situation in healthcare data management as well as the future role that blockchain could play in this sector. Based on the findings of this panel, we structure the research field of healthcare data management and provide numerous avenues for future research. The outcome is a framework that highlights the important role of healthcare data and puts them into context. From a patient's perspective, we specifically elaborate on trust and privacy as well as the expected benefits. Additionally, four important data aspects are identified: integrity, security, interoperability, and, finally, sharing and transfer. We also outline the importance of current problems and derive several relevant and timely research questions that build the foundation of a research agenda for blockchain-driven innovation in healthcare data management. In summary, the framework will inform practitioners of blockchain's potential in healthcare and structure the area for researchers, who are called upon to investigate the respective topics in greater detail.
RESUMEN
Integrating personal health records (PHRs) and electronic health records (EHRs) facilitates the provision of novel services to individuals, researchers, and healthcare practitioners. Simultaneously, integrating healthcare data leads to complexities arising from the structural and semantic heterogeneity within the data. The subject of healthcare data evokes strong emotions due to concerns surrounding privacy breaches. Blockchain technology is employed to address the issue of patient data privacy in inter-organizational processes, as it facilitates patient data ownership and promotes transparency in its usage. At the same time, blockchain technology creates new challenges for e-healthcare systems, such as data privacy, observability, and online enforceability. This article proposes designing and formalizing automatic conflict resolution techniques in decentralized e-healthcare systems. The present study expounds upon our concepts by employing a running case study centered around preventive and personalized healthcare domains. Plain Language Summary: This paper suggests using blockchain technology for privacy concerns in integrating personal health records and electronic health records in decentralized e-healthcare systems. This report focuses on designing automatic conflict resolution techniques to ensure patient data ownership, transparency, and privacy in inter-organizational processes. This paper proposes designing automatic conflict resolution techniques in decentralized e-healthcare systems, which can improve inter-organizational processes in healthcare. Using blockchain technology to integrate personal and electronic health records can ensure patient data ownership and promote transparency in data usage, addressing privacy concerns in healthcare systems. This paper emphasizes the importance of data privacy and protection in healthcare systems, highlighting the need for compliance with laws and regulations. The research results, including the proof-of-concept prototype, can provide practical insights into implementing conflict resolution techniques in decentralized e-healthcare systems.
