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1.
PLoS One ; 18(6): e0286751, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-37267388

RESUMEN

The Movement Assessment Battery for Children-2 (MABC-2) is the most widely used instrument for aiding the diagnosis of developmental coordination disorder (DCD). Despite being shown to have strong validity and reliability, it has received criticism for aspects of its scoring system, the lack of formal training, and its susceptibility to overlook higher functioning DCD children. To aid the development of future diagnostic tools and/or iterations of the MABC-2, the present study attempted to draw upon the experience of key stakeholders and determine the strengths and weaknesses of the MABC-2. Using a short online questionnaire, occupational therapists (n = 14) and physiotherapists (n = 3) with experience using the MABC-2 for DCD diagnosis completed a series of Likert scale and free-text questions. Braun and Clarke's six-phase process to thematic analyses was used to identify main themes obtained across quantitative and qualitative data. Results indicate that whilst the MABC-2 is easy to administer and interpret, the scores can misrepresent true motor difficulties due to (a) daily variations in mental and physical state, (b) the reliance on non-functional tasks, (c) negative interference from parents, (d) changes in motor competency due to practice, and (e) a lack of formal examiner training to ensure the test is effectively lead. Further work is needed to more reliably determine how perceptions of the MABC-2 might vary across levels of expertise, profession, and cultural differences.


Asunto(s)
Trastornos de la Destreza Motora , Fisioterapeutas , Niño , Humanos , Destreza Motora , Trastornos de la Destreza Motora/diagnóstico , Terapeutas Ocupacionales , Reproducibilidad de los Resultados , Encuestas y Cuestionarios
2.
Neurooncol Adv ; 3(1): vdaa166, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-33501430

RESUMEN

BACKGROUND: The Coronavirus Disease 2019 (COVID-19) pandemic has affected individuals as well as disease-specific brain tumor organizations. These organizations around the world exist to address unmet needs for patients and caregivers they serve. The direct impact of the pandemic on these organizations constitutes significant collateral damage. In order to better understand the effects of the COVID-19 pandemic on brain tumor organizations, the International Brain Tumour Alliance (IBTA) carried out an international survey to identify organizational changes induced by the virus and approaches adopted to address challenges. METHODS: A 37-question online survey consisting of categorical and qualitative questions was developed and circulated to 130 brain tumor organizations across the world. Seventy-seven organizations from 22 countries completed the survey (59% return rate). Descriptive statistics and content analysis were used to present the results. RESULTS: Responses fell into the following 3 categories: (1) organizational characteristics, (2) impact of COVID-19 on services, and (3) COVID-19 impact on financial and human resources within organizations. Although organizational characteristics varied, common concerns reported were activity disruption which impacted organizations' abilities to offer usual services and challenges to sustaining funding. Both financial and human resources were stressed, but integral adaptations were made by organizations to preserve resources during the pandemic. CONCLUSIONS: Although brain tumor organizations have been impacted by the COVID-19 pandemic, organizations quickly adjusted to this unprecedented global healthcare crisis. Nimble reactions and flexibility have been vital to organization sustainability. Innovative approaches are required to ensure organizations remain viable so that needs of brain tumor community at large are met.

3.
Neurooncol Adv ; 2(1): vdaa104, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-32989433

RESUMEN

BACKGROUND: Since the COVID-19 pandemic began, thousands of medical procedures and appointments have been canceled or delayed. The long-term effects of these drastic measures on brain tumor patients and caregivers are unknown. The purpose of this study is to better understand how COVID-19 has affected this vulnerable population on a global scale. METHODS: An online 79-question survey was developed by the International Brain Tumour Alliance, in conjunction with the SNO COVID-19 Task Force. The survey was sent to more than 120 brain tumor charities and not-for-profits worldwide and disseminated to pediatric and adult brain tumor patients and caregivers. Responses were collected from April to May 2020 and subdivided by patient versus caregiver and by geographical region. RESULTS: In total, 1989 participants completed the survey from 33 countries, including 1459 patients and 530 caregivers. There were no significant differences in COVID-19 testing rates (P = .662) or positive cases for brain tumor patients between regions (P = .1068). Caregivers were significantly more anxious than patients (P ≤ .0001). Patients from the Americas were most likely to have lost their jobs due to the pandemic, practiced self-isolation, and received telehealth services (P ≤ .0001). Patients from Europe experienced the most treatment delays (P = .0031). Healthcare providers, brain tumor charities, and not-for-profits were ranked as the most trusted sources of information. CONCLUSIONS: As a result of COVID-19, brain tumor patients and caregivers have experienced significant stress and anxiety. We must continue to provide accessible high-quality care, information, and support in the age of COVID-19.

4.
Curr Dev Disord Rep ; 5(1): 34-42, 2018.
Artículo en Inglés | MEDLINE | ID: mdl-29497596

RESUMEN

PURPOSE OF THE REVIEW: This paper examines physical and emotional coherence in young people with developmental coordination disorder (DCD). Specifically, the transactional relationship between motor and non-motor/executive dysfunction in children with DCD and its impact on psychosocial functioning is explored. RECENT FINDINGS: This paper integrates the subjective reported experiences of young people with DCD with objective measurements and findings from neuroimaging studies. SUMMARY: Consideration of the transactional relationship between the person, the activity and the environment, whether these factors be physical, social, attitudinal or virtual, will be fundamental to our understanding of the mechanisms underpinning organisational and emotional issues presenting in DCD. Integrating the experiences of young people with research evidence will be essential to improve outcomes for young people with DCD in clinical practice.

5.
Eur. j. psychiatry (Ed. esp.) ; 16(4): 204-215, oct. 2002. tab
Artículo en Es | IBECS | ID: ibc-17916

RESUMEN

Este estudio pretendía explorar 1) las diferencias existentes entre el sexo femenino y el masculino a la hora de manifestar síntomas de estrés postraumático tras la ruptura de una relación sentimental, 2) las diferencias en el estilo de amar que presenta cada sexo durante la relación y, 3) la interacción entre el sexo, el estrés traumático y las distintas maneras de expresar el amor. Valoramos la posibilidad de que ambos sexos se diferenciaran en cuanto a los síntomas de estrés postraumático tras la ruptura de una relación así como en los estilos de amar adoptados y asimismo, consideramos la posibilidad de que existiera una interacción significativa entre el sexo, el estrés traumático y los estilos de amar. Un total de 25 hombres y 40 mujeres participaron en el estudio y fueron entrevistados con la Escala de Impacto de Acontecimientos Vitales (IES), el Cuestionario de Salud General (GHQ) y la Escala de Actitud ante el amor (LAS). Los resultados no mostraron diferencias significativas entre ambos sexos en lo que al impacto que provocaba la ruptura se refiere, sin embargo, las mujeres padecían mayor disfunción social y depresión que los hombres. Los resultados también mostraron que existían diferencias en los estilos de amor "Eros" y "Agape". A pesar de ello, no se obtuvieron resultados significativos en las relaciones existentes entre el sexo, la gravedad del estrés traumático y los estilos de amar (AU)


Asunto(s)
Femenino , Masculino , Humanos , Matrimonio/psicología , Amor , Estrés Psicológico , Acontecimientos que Cambian la Vida , Ansiedad de Separación/psicología , Factores Sexuales , Entrevista Psicológica
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