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1.
Sci Transl Med ; 15(681): eabk3489, 2023 02.
Artículo en Inglés | MEDLINE | ID: mdl-36724240

RESUMEN

Smart toilets are a key tool for enabling precision health monitoring in the home, but such passive monitoring has ethical considerations.


Asunto(s)
Aparatos Sanitarios , Medicina de Precisión
2.
J Am Med Inform Assoc ; 28(1): 184-189, 2021 01 15.
Artículo en Inglés | MEDLINE | ID: mdl-32722749

RESUMEN

The COVID-19 pandemic response in the United States has exposed significant gaps in information systems and processes that prevent timely clinical and public health decision-making. Specifically, the use of informatics to mitigate the spread of SARS-CoV-2, support COVID-19 care delivery, and accelerate knowledge discovery bring to the forefront issues of privacy, surveillance, limits of state powers, and interoperability between public health and clinical information systems. Using a consensus-building process, we critically analyze informatics-related ethical issues in light of the pandemic across 3 themes: (1) public health reporting and data sharing, (2) contact tracing and tracking, and (3) clinical scoring tools for critical care. We provide context and rationale for ethical considerations and recommendations that are actionable during the pandemic and conclude with recommendations calling for longer-term, broader change (beyond the pandemic) for public health organization and policy reform.


Asunto(s)
Discusiones Bioéticas , COVID-19 , Trazado de Contacto/ética , Informática Médica/ética , Vigilancia en Salud Pública , Salud Pública/ética , Disparidades en Atención de Salud , Humanos , Difusión de la Información/ética , Privacidad , Política Pública , Estados Unidos
3.
J Med Ethics ; 2020 Jun 22.
Artículo en Inglés | MEDLINE | ID: mdl-32571849

RESUMEN

In their recent article, Porsdam Mann et al propose to share biomedical research data more widely, securely and efficiently using blockchain technologies.1 They present compelling arguments for how the blockchain presents both a technological innovation, and a deontologically grounded policy innovation to traditional research consent. Their proposal can be read in conversation with a rich body of evidence to suggest current consent processes are problematic on at least one of tripartite bases in biomedical research: that it be fully informed. This response attempts to further the author's discussion of social justice discourse in, and of their proposed prosent model to enhance engagement among under-represented and vulnerable populations in research, specifically. Motivating this response is the view that advancing technological capabilities is no doubt necessary, but on its own insufficient to reinvigorate distributive, procedural and social justice as guiding principles for con/prosent processes. I offer three pros and cons to consider in effort to deepen the model's commitments to social justice to historically marginalised groups in the biomedical research enterprise.

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