Lollipops Help Align Visual and Statistical Fit Estimates in Scatterplots With Nonlinear Models.

Scatterplots overlayed with a nonlinear model enable visual estimation of model-data fit. Although statistical fit is calculated using vertical distances, viewers' subjective fit is often based on shortest distances. Our results suggest that adding vertical lines ("lollipops") supports more accurate fit estimation in the steep area of model curves (https://osf.io/fybx5/).

Color-Encoded Links Improve Homophily Perception in Node-Link Diagrams.

Node-link diagrams enable visual assessment of homophily when viewers can identify and evaluate the relative number of intra-cluster and inter-cluster links. Our online experiment shows that a new design with link type encoded edge color leads to more accurate perception of homophily than a design with same-color edges.

Participatory Development of a Modular Advance Care Planning Program in Pediatric Palliative Care (MAPPS).

CONTEXT: Decision-making in pediatric palliative care concerns mainly children without decision-making capacity. It has to balance the child's best interests, parental responsibility and the impact on the family system. OBJECTIVES: Advance care planning (ACP) supports decision making about future medical care. A consistent pediatric approach is still missing. This study aimed at developing a pediatric ACP program (pedACP) meeting specific needs of children, parents and professionals. METHODS: Bereaved parents of children with life-limiting conditions and professionals involved in pedACP participated. Employing the technique of constellation analysis, they collaboratively assigned content, actors, tools and warning notes about pedACP along a timeline. The researchers analyzed, systematized and translated these results into a pedACP program draft, which was revised by the participants. RESULTS: The participants' overall focus was on the children's quality of life and an individualized interdisciplinary communication process along the disease trajectory. The program was conceptualized in modular design with fixed modules at the beginning (to build a trustful relationship and frame the process) and at the end (to summarize results and prepare implementation). The main discussions are structured in flexible modules (About the child, Emergencies, Disease-specific scenarios and End of life care). General themes cover timing, communication, engaging children and structural issues. The participants appreciated the program's comprehensiveness and flexibility. CONCLUSION: Parents and professionals combined their perspectives on reflecting goals of care and the complexity of pedACP. They perceived the resulting modular program as suitable for meeting the individual needs of patients, families and professional stakeholders.

Visual Model Fit Estimation in Scatterplots: Influence of Amount and Decentering of Noise.

Scatterplots with a model enable visual estimation of model-data fit. In Experiment 1 (N = 62) we quantified the influence of noise-level on subjective misfit and found a negatively accelerated relationship. Experiment 2 showed that decentering of noise only mildly reduced fit ratings. The results have consequences for model-evaluation.

Visual Model Fit Estimation in Scatterplots and Distribution of Attention.

Scatterplots are ubiquitous data graphs and can be used to depict how well data fit to a quantitative theory. We investigated which information is used for such estimates. In Experiment 1 (N = 25), we tested the influence of slope and noise on perceived fit between a linear model and data points. Additionally, eye tracking was used to analyze the deployment of attention. Visual fit estimation might mimic one or the other statistical estimate: If participants were influenced by noise only, this would suggest that their subjective judgment was similar to root mean square error. If slope was relevant, subjective estimation would mimic variance explained. While the influence of noise on estimated fit was stronger, we also found an influence of slope. As most of the fixations fell into the center of the scatterplot, in Experiment 2 (N = 51), we tested whether location of noise affects judgment. Indeed, high noise influenced the judgment of fit more strongly if it was located in the middle of the scatterplot. Visual fit estimates seem to be driven by the center of the scatterplot and to mimic variance explained.

Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study.

BACKGROUND: Although international guidelines recommend discussions about goals of care and treatment options for children with severe and life-limiting conditions, there are still few structured models of paediatric advance care planning. AIM: The study aimed at identifying key components of paediatric advance care planning through direct discussions with all involved parties. DESIGN: The study had a qualitative design with a participatory approach. Participants constituted an advisory board and took part in two transdisciplinary workshops. Data were collected in discussion and dialogue groups and analysed using content analysis. SETTING/PARTICIPANTS: We included bereaved parents, health care providers and stakeholders of care networks. RESULTS: Key elements were discussions, documentation, implementation, timing and participation of children and adolescents. Parents engage in discussions with facilitators and persons of trust to reach a decision. Documentation constitutes the focus of professionals, who endorse brief recommendations for procedures in case of emergencies, supplemented by larger advance directives. Implementation hindrances include emotional barriers of stakeholders, disagreements between parents and professionals and difficulties with emergency services. Discussion timing should take into account parental readiness. The intervention should be repeated at regular intervals, considering emerging needs and increasing awareness of families over time. Involving children and adolescents in advance care planning remains a challenge. CONCLUSION: A paediatric advance care planning intervention should take into account potential pitfalls and barriers including issues related to timing, potential conflicts between parents and professionals, ambiguity towards written advance directives, the role of non-medical carers for paediatric advance care planning implementation, the need to involve the child and the necessity of an iterative process.