Evaluating and Addressing the Diversity, Equity, Inclusion, and Belonging Climate in a School of Nursing.

BACKGROUND: There is a critical need to prepare a diverse nursing workforce and address issues of structural racism and health inequities. PROBLEM: A shortage of underrepresented nurse faculty exacerbates the lack of diversity in nursing education. Microaggressions and discrimination experienced by underrepresented nursing students hinder their personal and professional growth. Evaluating diversity, equity, and inclusion (DEI) and belonging within a school of nursing is crucial for progress. APPROACH: An alumni survey and a faculty/staff survey were conducted to assess DEI perceptions, which informed the development of a strategic plan. Goals focused on monitoring the cultural climate, increasing diversity and inclusivity, and enhancing faculty competencies. Educational offerings and initiatives were implemented to support these goals. OUTCOMES: Ongoing evaluation is essential to sustain progress in this critical area. CONCLUSION: These efforts are necessary for sustainable progress and equitable care provision.

Assessing Preferences in Patients with Head and Neck Squamous Cell Carcinoma: Phase I and II of Questionnaire Development.

Shared-decision making for head and neck squamous cell carcinoma (HNSCC) is challenged by the difficulty to integrate the patient perception of value within the framework of a multidisciplinary team approach. The aim of this study was to develop a questionnaire to assess the preferences of HNSCC patients with respect to the disease trajectory, expected treatment, and toxicities. In accordance with the standardized EORTC Quality of Life Group's methodology for the development of quality of life modules, a phase 1-2 study was envisaged. Following a systematic review of the literature, a consolidated list of 28 issues was administered through a semi-structured interview to 111 patients from 7 institutions in 5 countries. Overall, "cure of disease", "survival", and "trusting in health care professionals" were the 3 most common priorities, being chosen by 87.3%, 73.6% and 59.1% of patients, respectively. When assessing the correlation with the treatment subgroup, the issue of "being thoroughly and sincerely informed about treatments' efficacy and survival expectation" was highly prevalent in an independent manner (71.4%, 75% and 90% of patients in the follow-up, palliative and curative subgroups, respectively). Based on prespecified scoring criteria, a 24-item list was generated. Pending clinical applicability, further testing and validation of the questionnaire are warranted.

Depressive symptoms, social anxiety, and perceived neck function in patients with head and neck cancer.

BACKGROUND: This study examined the relationships of depressive symptoms and social anxiety with perceived neck function in patients treated for head and neck cancer. METHODS: Depressive symptoms, social anxiety, and perceived neck-related function were measured at baseline, posttreatment, every 6 weeks thereafter for 1 year after the end of treatment, and at 15 and 18 months posttreatment. Group-based trajectory modeling was used to generate clusters of patients with similar baseline and trajectories of perceived neck-related function after head and neck cancer treatment. RESULTS: Participants included 83 subjects who had completed at least 1 follow-up assessment. Three clusters of longitudinal patterns in neck disability were identified: none/mild, moderate, and severe. Significant associations were found between membership in the neck disability index trajectories and membership in the longitudinal patterns of depressive symptoms and social anxiety. CONCLUSION: Impaired physical function and psychological distress are intertwined for patients with head and neck cancer long after completing treatment.

Head and Neck Cancer and Sexuality: A Review of the Literature.

BACKGROUND: Individuals treated for head and neck cancer are at risk of sexual problems, particularly given the probability for disfigurement, body image disturbance, depressive symptoms, and functional difficulties that result from treatment. Because oncology nurses are an important source of information and support for patients, it is important that they be familiar with the current literature as well as opportunities for research. OBJECTIVE: The aim of this study was to present a review of the literature on head and neck cancer and sexuality. METHODS: PubMed, PsycINFO, CINAHL, and Ovid databases were searched using the terms "head and neck cancer" and "sexuality." Publications had to be peer-reviewed, empirical studies, written in English, and published within the last 10 years. Selected publications were compared based on study aims, leading investigator, study location, conceptual framework, study design, sample, instruments, and study findings. RESULTS: Nine publications were analyzed in this review. Incidence of individuals reporting a negative effect of head and neck cancer on sexuality varied from 24% to 100% depending on the study. CONCLUSIONS: There is a paucity of data regarding sexuality among patients with head and neck cancer. Existing studies indicate that sexuality is of considerable significance, particularly after treatment for head and neck cancer. IMPLICATIONS FOR PRACTICE: Holistic care includes information about sexuality during and after treatment for head and neck cancer. Oncology nurses should be aware that this topic is of importance to many patients, and they should familiarize themselves with available resources. It is also important that nurse scientists facilitate research in the area of sexuality.

A pilot randomized trial evaluating lymphedema self-measurement with bioelectrical impedance, self-care adherence, and health outcomes.

BACKGROUND: Less than half of breast cancer survivors with lymphedema perform self-care as directed. Effective lymphedema self-care is required to obtain acceptable health outcomes. Self-Regulation Theory suggests that objective self-measurement of physiological conditions is necessary to promote self-regulation/self-care. Bioelectric Impedance Spectroscopy (BIS) represents a potential self-measurement method for arm lymphedema. The purpose of this pilot study was to examine the impact of arm self-measurement on daily self-care activities and health outcomes in breast cancer survivors with lymphedema. METHODS AND RESULTS: A pilot randomized clinical trial compared outcomes between breast cancer survivors with lymphedema who self-monitored for 3 months and breast cancer survivors with lymphedema who did not self-monitor. Data were collected at baseline, months 1, 2, 3, and 4. Eighty-six women with lymphedema were screened: 62 were eligible, 50 were enrolled, 10 withdrew, and 1 had incomplete data, thus N=39. No between group differences were noted in participant characteristics. The self-monitored group had higher days of garment use (p=0.005) that remained stable after self-monitoring stopped. The median number of days of simple manual lymphatic drainage increased in the intervention group (p=0.004) with a downward trend after self-monitoring ceased. CONCLUSIONS: Objective self-monitoring of arms using BIS is possible. Self-monitoring may positively impact self-care behaviors. Highly symptomatic patients may require coaching or other psychological support to improve their self-care. Studies that combine a cognitive behavioral therapy component along with self-measurement should be considered as potential interventions to impact lymphedema self-care. Other applications of self-monitoring warrant investigation.

Body image in patients with head and neck cancer: a review of the literature.

OBJECTIVES: Patients with head and neck cancer have a high potential for body image disturbance due to highly visible disfigurement resulting from both the primary cancer and its treatment. The purpose of this review is to examine the conceptual framework for understanding body image in patients treated for head and neck cancer, present the current state of the science, discuss measurement issues, and identify areas for future investigation. A novel hypothetical model based on ongoing work is proposed, and it asserts that head and neck cancer therapy results in two main tumor/treatment related physical effects: (1) disfigurement and (2) dysfunction. In this model, personal, social and environmental factors moderate the effect of dysfunction and disfigurement on body image. RESULTS: A search of the empirical literature revealed a paucity of data on body image in head and neck cancers including a lack of longitudinal data as well as a lack of data on the relationship between body image disturbance and other psychosocial variables such as depression, anxiety, and social isolation over the course of treatment and throughout recovery. Additionally, the need for measurement tools specifically developed for the assessment of body image in head and neck cancer patients was identified. CONCLUSION: Prospective longitudinal studies that define the trajectory of body image issues and the mediating and moderating factors associated with body image will allow researchers to design targeted interventions to limit body image disturbance and thereby improve quality of life in patients with head and neck cancer.