Asunto(s)
Atención a la Salud/métodos , Disparidades en Atención de Salud/organización & administración , Neoplasias/terapia , Servicios de Salud Rural/organización & administración , Población Rural , Atención a la Salud/legislación & jurisprudencia , Accesibilidad a los Servicios de Salud/legislación & jurisprudencia , Accesibilidad a los Servicios de Salud/organización & administración , Disparidades en Atención de Salud/legislación & jurisprudencia , Humanos , Estados UnidosRESUMEN
Background: African Americans (AAs) are less likely to participate in cancer clinical trials (CCTs) despite experiencing disproportionately higher rates of cancer mortality. As a way to address these ongoing disparities, this study sought to qualitatively explore informational needs regarding CCTs among AA women and identify message considerations for educational information targeting AA women and their community. Methods: Three focus groups were conducted in which AA women viewed a DVD created as a decisional tool for CCT participation and provided feedback regarding content. Results: Results indicated general fear regarding CCTs, which is partially attributable to the impact of historic research abuses, lack of information regarding CCTs, and lack of cultural relevance of the education and outreach materials for AA communities. Recruitment of AAs to CCTs may be enhanced by educational and outreach approaches that increase awareness of CCTs as well as involvement of the AA community in developing such interventions. Conclusion: Interventions should include the perspectives of AA women, as key stakeholders and decision-makers for their family and provide research information in a multimedia format that will facilitate family discussion and decision-making regarding CCTs.
Asunto(s)
Comités Consultivos , Negro o Afroamericano , Neoplasias/terapia , Educación del Paciente como Asunto/métodos , Selección de Paciente , Universidades , Adulto , Negro o Afroamericano/psicología , Anciano , Anciano de 80 o más Años , Ensayos Clínicos como Asunto , Investigación Participativa Basada en la Comunidad , Toma de Decisiones , Miedo , Femenino , Florida , Grupos Focales , Conocimientos, Actitudes y Práctica en Salud/etnología , Disparidades en el Estado de Salud , Humanos , Persona de Mediana Edad , Evaluación de Necesidades , Participación del Paciente/psicología , Investigación Cualitativa , Adulto JovenRESUMEN
The Center for Equal Health (CEH), a transdisciplinary Center of Excellence, was established to investigate cancer disparities comprehensively and achieve health equity through research, education, training, and community outreach. This paper discusses challenges faced by CEH, strategies employed to foster collaborations, lessons learned, and future considerations for establishing similar initiatives.