RESUMEN
The haemophilia treatment centre of the Clinic for Children and Youth Medicine in Jena extends medical care by health-promotion measures, namely: health counselling, adjuvant exercise therapy and school sports. In addition to the regular medical checks at the treatment centre patients are examined regarding physical fitness, joint situation, quality of life in general and disease-specific manner, as well as psycho-social and nutritional behaviour. Findings and medical results of the examinations are integrated into an individual advice on therapy, school sports, and health recommendations. This aimed at strengthening health-related resources and minimizing potential injuries. First long-term evaluation shows an increase of activity behaviour and physical fitness without increasing bleeding rate and maintained joint function. CONCLUSION: Combining functional prevention diagnostics and individual health counselling shows signs of improved patient's health knowledge, self-competence and physical fitness.
Asunto(s)
Terapia por Ejercicio/métodos , Promoción de la Salud/métodos , Hemofilia A/rehabilitación , Hemofilia B/rehabilitación , Educación del Paciente como Asunto/métodos , Deportes/educación , Adolescente , Niño , Preescolar , Terapia por Ejercicio/psicología , Alemania , Hemofilia A/diagnóstico , Hemofilia A/psicología , Hemofilia B/diagnóstico , Hemofilia B/psicología , Hospitales Pediátricos , Humanos , Aptitud Física , Estudios Prospectivos , Calidad de Vida/psicología , Autoimagen , Deportes/psicologíaRESUMEN
The haemophilia treatment centre of the Clinic for Children and Youth Medicine in Jena extends medical care by health-promotion measures, namely: health counselling, adjuvant exercise therapy and school sports. In addition to the regular medical checks at the treatment centre patients are examined regarding physical fitness, joint situation, quality of life in general and disease-specific manner, as well as psycho-social and nutritional behaviour. Findings and medical results of the examinations are integrated into an individual advice on therapy, school sports, and health recommendations. This aimed at strengthening health-related resources and minimizing potential injuries. First long-term evaluation shows an increase of activity behaviour and physical fitness without increasing bleeding rate and maintained joint function. CONCLUSION: Combining functional prevention diagnostics and individual health counselling shows signs of improved patient's health knowledge, self-competence and physical fitness.
