Your browser doesn't support javascript.
loading
Mostrar: 20 | 50 | 100
Resultados 1 - 20 de 38
Filtrar
1.
J Rehabil Med ; 55: jrm12303, 2023 Aug 16.
Artículo en Inglés | MEDLINE | ID: mdl-37584479

RESUMEN

OBJECTIVE: To develop consensus among experts to guide physical rehabilitation in children and adolescents with acquired brain injury during the subacute phase. DESIGN: International Delphi study. METHODS: A 3-round online Delphi study was conducted with 11 international experts in rehabilitation for children and adolescents with acquired brain injury. The first round consisted of open-ended questions; the second and third round consisted of ranking 139 statements on a 5-point Likert scale. RESULTS: The panel reached consensus on 116/139 statements. Consensus was reached on the importance of age, pre-injury developmental stage and the clinical presentation of the child when determining content and focus of physical rehabilitation. In addition, consensus was reached on the importance of participation-focused interventions, and involvement of family members in goal-setting and therapeutic activities. Although dosage was deemed very important, no consensus was reached for determination of dose-response variables to suit and influence the child's needs. CONCLUSION: This study provides a framework for clinicians to design physical rehabilitation interventions in children with acquired brain injury in the sub-acute recovery phase. The promotion of physical activity in meaningful contexts and involvement of family members are considered as important components to optimize recovery.


Asunto(s)
Lesiones Encefálicas , Humanos , Niño , Adolescente , Técnica Delphi , Consenso
2.
Prev Med ; 175: 107683, 2023 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-37633599

RESUMEN

BACKGROUND: The aim of this study was to examine the prevalence and clustering of four health risks (increasing-/higher-risk drinking, current smoking, overweight/obesity, and at-risk gambling), and to examine variation across sociodemographic groups in the English adult population. METHODS: We analysed data from the 2012, 2015, 2016, and 2018 Health Survey for England (n = 20,698). Prevalence odds ratios (POR) were calculated to examine the clustering of risks. We undertook a multinomial multilevel regression model to examine sociodemographic variation in the clustering of health risks. RESULTS: Overall, 23.8% of the adult English population had two or more co-occurring health risks. The most prevalent was increasing-/higher-risk drinking and overweight/obesity (17.2%). Alcohol consumption and smoking were strongly clustered, particularly higher-risk drinking and smoking (POR = 2.68; 95% CI = 2.31, 3.11; prevalence = 1.7%). Higher-risk drinking and at-risk gambling were also clustered (POR = 2.66; 95% CI = 1.76, 4.01), albeit with a very low prevalence (0.2%). Prevalence of multiple risks was higher among men for all risk combinations except smoking and obesity. The odds of multiple risks were highest for men and women aged 35-64 years. Unemployed men and women with lower educational qualifications had a higher odds of multiple risks. The relationship between deprivation and multiple risks depended on the definition of multiple risks, with the clearest socioeconomic gradients seen for the highest risk health behaviours. CONCLUSION: An understanding of the prevalence, clustering, and risk factors for multiple health risks can help inform effective prevention and treatment approaches and may support the design and use of multiple behaviour change interventions.

3.
Adapt Phys Activ Q ; 39(1): 17-36, 2022 01 01.
Artículo en Inglés | MEDLINE | ID: mdl-34740991

RESUMEN

This cross-sectional study examined experiential elements facilitating quality sport experiences for youth (ages 12-24 years) in Special Olympics, and the associated influences of sport program and sociodemographic characteristics. A total of 451 athletes involved in the 2019 Special Olympics Youth Games completed a survey assessing elements of quality participation (autonomy, belongingness, challenge, engagement, mastery, and meaning). The t tests investigated whether athletes with intellectual and developmental disabilities rated elements differently across Traditional and Unified Sport programs. Regression analyses explored whether sport program and sociodemographic characteristics were predictors of these elements. Youth reported high mean scores across the elements, with no significant differences between athletes with intellectual and developmental disabilities in Traditional or Unified Sport. Athletes with no reported disability rated higher autonomy than those who reported disability (p = .01). Women tended to report greater engagement in sport than men (p = .07). Findings provide theoretical and practical insights into quality sport participation among youth in Special Olympics.


Asunto(s)
Discapacidad Intelectual , Deportes , Adolescente , Adulto , Atletas , Niño , Estudios Transversales , Femenino , Humanos , Masculino , Adulto Joven
4.
Physiother Can ; 74(2): 151-157, 2022 May.
Artículo en Inglés | MEDLINE | ID: mdl-37323713

RESUMEN

Purpose: To determine how physical activity-related self-efficacy is associated with physical activity and sedentary behaviour time among ambulatory children with cerebral palsy (CP). Method: Children with CP, Gross Motor Function Classification System (GMFCS) Levels I-III (N = 26; aged 9-18 y), completed the task self-efficacy component of a self-efficacy scale and wore Actigraph GT3X+ accelerometers for 5 days. Correlations (Pearson and Spearman's rank-order; α = 0.050) were conducted to evaluate the relationships among age, GMFCS level, self-efficacy, and both daily moderate-to-vigorous physical activity (MVPA) and sedentary time. Linear regression models were used to determine the relationships among the independent variables and MVPA and sedentary time. Results: Self-efficacy was positively associated with MVPA time (r = 0.428, p = 0.015) and negatively correlated with sedentary time (r = -0.332, p = 0.049). In our linear regression models, gross motor function (ß = -0.462, p = 0.006), age (ß = -0.344, p = 0.033), and self-efficacy (ß = 0.281, p = 0.080) were associated with MVPA time (R2 = 0.508), while GMFCS level (ß = 0.439, p = 0.003) and age (ß = 0.605, p < 0.001) were associated with sedentary time (R2 = 0.584). Conclusions: This research suggests that self-efficacy, age, and gross motor function are associated with MVPA in children with CP. Additional research is needed to confirm these findings and further explore the influence of self-efficacy on sedentary behaviour.


Objectif : déterminer l'association entre l'autoefficacité liée à l'activité physique et la durée de l'activité et du comportement sédentaire chez les enfants ambulatoires ayant la paralysie cérébrale (PC). Méthodologie : des enfants ayant la PC âgés de 9 à 18 ans (N = 26) présentant les niveaux I à III du système de classification de la fonction motrice globale (GMFCS) ont effectué l'élément d'autoefficacité de l'échelle d'autoévaluation et ont porté des accéléromètres Actigraph GT3X+ pendant cinq jours. Les chercheurs ont établi des corrélations (hiérarchie de Pearson et Spearman; α = 0,050) pour évaluer les relations entre l'âge, le niveau de GMFCS, l'autoefficacité et à la fois l'activité physique modérée à vigoureuse (APMV) et à la durée de la sédentarité. Ils ont utilisé les modèles de régression linéaire pour déterminer la relation entre, d'une part, les variables indépendantes et, d'autre part, l'APMV et la sédentarité. Résultats : l'autoefficacité était associée de manière positive au temps d'APMV (r = 0,428, p = 0,015) et de manière négative avec la durée de sédentarité (r = ­0,332, p = 0,049). Dans les modèles de régression linéaire des chercheurs, la fonction motrice globale (ß = ­0,462, p = 0,006), l'âge (ß = ­0,344, p = 0,033) et l'autoefficacité (ß = 0,281, p = 0,080) étaient associés à la durée de l'APMV (R2 = 0,508), mais le niveau du GMFCS (ß = 0,439, p = 0,003) et l'âge (ß = 0,605, p < 0,001) étaient corrélés avec la durée de sédentarité (R2 = 0,584). Conclusions : selon la présente recherche, l'autoefficacité, l'âge et la fonction motrice globale sont liées à l'APMV chez les enfants ayant la PC. D'autres recherches devront être réalisées pour confirmer ces observations et explorer plus à fond l'influence de l'autoefficacité sur le comportement sédentaire.

5.
Trials ; 21(1): 167, 2020 Feb 11.
Artículo en Inglés | MEDLINE | ID: mdl-32046765

RESUMEN

BACKGROUND: Unemployment is highly prevalent in populations with alcohol and drug dependence and the employment support offered in addiction-treatment programmes is ineffective. Individual Placement and Support (IPS) is an evidence-based intervention for competitive employment. IPS has been extensively studied in severe mental illness and physical disabilities, but there have been no formal randomised controlled trials (RCTs) in alcohol and drug dependence. The Individual Placement and Support for Alcohol and Drug Dependence (IPS-AD) study should determine whether IPS for patients with alcohol use disorder (AUD), opioid use disorder (OUD) and other drug use disorder is effective. DESIGN/METHODS: The IPS-AD study is a seven-site, pragmatic, two-arm, parallel-group, superiority RCT. IPS-AD includes a realist process evaluation. Eligible patients (adult, unemployed or economically inactive for at least 6 months and wishing to obtain open job market employment and enrolled in ongoing community treatment-as-usual (TAU; the control condition) in England for AUD, OUD and other drug use disorders) will be randomised (1:1) to receive TAU and any standard employment support, or TAU plus IPS (the experimental condition) for 9 months with up to 4 months of in-work support. The primary outcome measure will be competitive employment status (at least 1 day (7 h)) during an 18-month follow-up, determined by patient-level, trial-data-linkage with national tax and state benefit databases. From meta-analysis, an 18% target difference on this measure of vocational effectiveness (for the experimental intervention) and a two-sided 5% level of statistical significance, will require a minimum target sample of 832 participants to achieve 90% power for a pre-registered, mixed-effects, multi-variable logistic regression model. A maximum-likelihood multiple-imputation approach will manage missing outcome data. IPS-AD has six vocational secondary outcome measures during the 18-month follow-up: (1) total time in competitive employment (and corresponding National Insurance contributions and tax paid); (2) time from randomisation to first competitive employment; (3) number of competitive job appointments; (4) job tenure (length of longest held competitive employment); (5) sustained employment (tenure in a single appointment for at least 13 weeks); and (6) job search self-efficacy. A primary cost-benefit analysis and a secondary cost-effectiveness analysis will be done using the primary outcome and secondary vocational outcomes, respectively and will include addiction treatment and social and health outcomes and their associated reference costs. The process evaluation will address IPS implementation and delivery. DISCUSSION: The IPS-AD study is the first large-scale, multi-site, definitive, superiority RCT of IPS for people with alcohol and drug dependence. Findings from the study will have substantial implications for service delivery. TRIAL REGISTRATION: ISRCTN Registry, ID: ISRCTN24159790. Registered on 1 February 2018.


Asunto(s)
Alcoholismo/rehabilitación , Empleos Subvencionados , Autoeficacia , Trastornos Relacionados con Sustancias/rehabilitación , Adolescente , Adulto , Anciano , Alcoholismo/psicología , Estudios de Equivalencia como Asunto , Femenino , Estudios de Seguimiento , Humanos , Masculino , Persona de Mediana Edad , Estudios Multicéntricos como Asunto , Ensayos Clínicos Pragmáticos como Asunto , Calidad de Vida , Trastornos Relacionados con Sustancias/psicología , Resultado del Tratamiento , Adulto Joven
6.
Disabil Rehabil Assist Technol ; 12(3): 262-271, 2017 04.
Artículo en Inglés | MEDLINE | ID: mdl-26883010

RESUMEN

Purpose The Lower Limb Function Questionnaire (LLFQ) was developed as a self-report assessment of lower-limb functional ability for orthotic and prosthetic (O&P) device users to be suitable for a wide range of conditions, cultures, and ages. The measure aims to address an existing gap in tools for the assessment of functional ability in this population. The purpose of this study is to evaluate LLFQ reliability and validity in a sample of young adult O&P users. Methods Adolescents from a secondary school in Kenya completed the LLFQ twice, 6 d apart, and test-retest reliability was assessed using intra-class correlation coefficients. Validity evaluations involved Timed Up-and-Go, 6-min walk, 6-min obstacle course, and/or spatiotemporal gait assessments. Oxygen consumption was measured during walk tests. Associations between the LLFQ and each measure were evaluated using Pearson correlation coefficients for construct validity. Results LLFQ reliability was acceptable (ICC = 0.79, 95% CIs 0.64-0.89). Construct validity was demonstrated via moderate correlation (r > 0.60) with obstacle course distance, gait velocity, stride length, and stance/single support/double support percent of gait cycle. Conclusions Both LLFQ reliability and validity were acceptable in the sample of youth in Kenya. Further testing is required to determine applicability in other cultural contexts. Implications for Rehabilitation The LLFQ may be clinically useful across a variety of cultures and conditions to provide feedback on the effectiveness of rehabilitative treatment or assistive devices for youth with lower limb impairments. The LLFQ may enable specific strengths and challenges to lower limb function to be identified to enable planning of well-targeted rehabilitation.


Asunto(s)
Miembros Artificiales , Evaluación de la Discapacidad , Extremidad Inferior , Aparatos Ortopédicos , Modalidades de Fisioterapia/normas , Encuestas y Cuestionarios/normas , Adolescente , Femenino , Marcha , Humanos , Kenia , Masculino , Consumo de Oxígeno , Reproducibilidad de los Resultados , Prueba de Paso , Adulto Joven
7.
Appl Res Qual Life ; 11: 571-599, 2016.
Artículo en Inglés | MEDLINE | ID: mdl-27398103

RESUMEN

While optimizing quality of life (QOL) is a key goal of rehabilitation care, no previous study has reported on what 'QOL' means to youth with chronic health conditions. In addition, no qualitative studies have explored the relationship between QOL and self-determination (SD). Objectives of this qualitative study were to examine: what the terms 'quality of life' and 'self-determination' mean to youth with chronic conditions; the factors these youth think are linked with these concepts; the relationship they see between concepts, the types of future goals youth have and how they view the connection between their SD and these goals. A descriptive methodology was used. A purposive sample of 15 youth aged 15 to 20 years was obtained. Youth had cerebral palsy, a central nervous system disorder, or autism spectrum disorder. Semi-structured interviews were conducted first, followed by a focus group. Line-by-line coding of transcripts was completed, codes were collapsed into categories, and themes identified. Participants viewed QOL as an overarching personal evaluation of their life, and used terms such as satisfaction and happiness to describe the concept. Factors related to QOL included: 'relationships', 'supportive environments', 'doing things', 'personal growth and moving forward', and 'understanding of self/acceptance of disability'. Participants described SD in such terms as confidence and motivation. Contributors to SD were: 'personal strengths', 'interdependence', and 'functional independence'. SD was considered important to QOL. Youth goals were reflective of the goals of most adolescents. They identified the importance of having key goals that were of personal interest to them. This study adds consumer-based information to the debate over the meaning of QOL. Service providers and decision makers should be aware of the factors that youth feel impact their QOL and SD, the importance of SD to youth QOL, and of SD to future goals, and consider this information when tailoring therapeutic interventions.

8.
Dev Neurorehabil ; 19(2): 135-40, 2016.
Artículo en Inglés | MEDLINE | ID: mdl-24950349

RESUMEN

OBJECTIVE: To evaluate the effects of an internet-platform exergame cycling programme on cardiovascular fitness of youth with cerebral palsy (CP). METHODS: In this pilot prospective case series, eight youth with bilateral spastic CP, Gross Motor Functional Classification System (GMFCS) level III, completed a six-week exergame programme. Outcomes were obtained at baseline and post-intervention. The primary outcome measure was the GMFCS III-specific shuttle run test (SRT-III). Secondary outcomes included health-related quality of life (HQL) as measured by the KIDSCREEN-52 questionnaire, six-minute walk test, Wingate arm cranking test and anthropomorphic measurements. RESULTS: There were significant improvements in the SRT-III (t = -2.5, p = 0.04, d = 0.88) post-intervention. There were no significant changes in secondary outcomes. CONCLUSION: An exergame cycling programme may lead to improvement in cardiovascular fitness in youth with CP. This study was limited by small sample size and lack of a comparison group. Future research is warranted.


Asunto(s)
Ciclismo , Parálisis Cerebral/fisiopatología , Parálisis Cerebral/rehabilitación , Ejercicio Físico , Juegos Experimentales , Aptitud Física , Adolescente , Antropometría , Niño , Femenino , Promoción de la Salud , Frecuencia Cardíaca , Humanos , Internet , Masculino , Destreza Motora , Proyectos Piloto , Estudios Prospectivos , Calidad de Vida , Resultado del Tratamiento
9.
Disabil Rehabil ; 38(14): 1359-69, 2016 07.
Artículo en Inglés | MEDLINE | ID: mdl-26505557

RESUMEN

PURPOSE: This study investigated the association between mothers' mental health and education and the emotional and behavioural functioning of adolescents with chronic health conditions over time. METHODS: Data were drawn from an ongoing study. Study participants (N = 363) were recruited through eight children's rehabilitation centres. Logistic regression models were estimated. RESULTS: There were significantly reduced odds that girls would display clinical signs of hyperactivity/inattention one year later compared to boys when a maternal mental health condition was present (OR = 0.10; p < 0.01). Where low maternal education was present, girls were more likely to display peer relationship problems one year later (OR = 3.72; p < 0.01). For both genders, having a mother with less than a high school education was also associated with conduct problems one year later (OR = 2.89; p < 0.01). CONCLUSIONS: Findings support a link between maternal factors and emotional and behavioural functioning in adolescents with chronic conditions. A holistic and family-centred approach to assessment and service delivery is indicated. Implications for Rehabilitation When conducting clinical assessments, service providers should consider associations between maternal education and mental health and the emotional and behavioural functioning of adolescents with chronic health conditions. A holistic and family-centred approach to assessment and service delivery is indicated to ensure adolescents with chronic conditions and their families receive support for interrelated needs.


Asunto(s)
Conducta del Adolescente/psicología , Trastornos de la Conducta Infantil/psicología , Enfermedad Crónica/psicología , Conducta Materna/psicología , Trastornos Mentales/psicología , Relaciones Madre-Hijo/psicología , Adolescente , Emociones , Femenino , Humanos , Estudios Longitudinales , Masculino , Salud Mental , Madres/psicología
10.
Disabil Rehabil ; 36(25): 2143-51, 2014.
Artículo en Inglés | MEDLINE | ID: mdl-24575718

RESUMEN

PURPOSE: To explore International Classification of Functioning, Disability and Health (ICF)-based functional components and contextual factors associated with perceived quality of life (QOL) for youth with chronic conditions from the perspective of youth and parents. METHOD: Baseline data were obtained from a longitudinal study examining predictors of changes in perceived QOL for youth with chronic conditions. 439 youth aged 11-17 (and one of their parents) completed a questionnaire. Standardized tools were used to measure youth functioning, contextual factors and perceived QOL. Multivariate linear regression analyses, controlling for socio-demographic and health information, were conducted to explore correlations among youth functioning/contextual factors and youth and parent perceptions of youth QOL. RESULTS: Significant (p ≤ 0.05) negative correlates with both youth and parent perceptions of youth QOL included pain/other physical symptoms and emotional symptoms. Significant factors positively correlated with youth and parent perceptions of youth QOL included school productivity and spirituality. Other significant positive correlates of youth perspectives were family social support and school belongingness/safety. Family functioning was positively correlated, and youth social anxiety and environmental barriers were negatively correlated, with parent perceptions of youth QOL. CONCLUSIONS: This study provides preliminary evidence of factors upon which services aimed at improving perceived QOL of youth with chronic conditions could be based. IMPLICATIONS FOR REHABILITATION: This study supports the utility of clinicians assessing the QOL of youth with chronic conditions in terms of youths' and their families' perspectives. This is the first study to identify key factors that impact perceived QOL at one point in time across a group of youth with chronic conditions, offering clinicians a main starting-point for considering youths' strengths and needs and the supportiveness of the environment. Findings suggest youth and families would benefit from the availability of services that encompass the full scope of the ICF.


Asunto(s)
Enfermedad Crónica , Clasificación Internacional del Funcionamiento, de la Discapacidad y de la Salud , Calidad de Vida , Adolescente , Niño , Enfermedad Crónica/psicología , Femenino , Humanos , Estudios Longitudinales , Masculino , Padres , Análisis de Regresión , Conducta Social , Apoyo Social , Encuestas y Cuestionarios
11.
Disabil Rehabil ; 36(24): 2072-9, 2014.
Artículo en Inglés | MEDLINE | ID: mdl-24564359

RESUMEN

PURPOSE: To explore the ways in which promotional materials for two rehabilitation technologies reproduce commonly held perspectives about disability and rehabilitation. METHOD: Our analysis was informed by critical disability studies using techniques from discourse analysis to examine texts (words and images) and their relation to social practices and power. Using this approach, promotional materials for (a) hearing aid and (b) robotic gait training technologies were interrogated using three central questions: (1) Who are represented? (2) What is promised? and (3) Who has authority? RESULTS: Messages of normalization pervaded representations of disabled children and their families, and the promises offered by the technologies. The latter included efficiency and effectiveness, progress and improvement, success and inclusion, and opportunities for a normal life. CONCLUSIONS: Normalization discourses construct childhood disability through texts and images. These discourses reinforce pervasive negative messages about disability that are taken up by children and families and have ethical implications for clinical practice. Rehabilitation has largely focused on "fixing" the individual, whereas broadening the clinical gaze to the social dimensions of disablement may lead to a more sensitive and informed approach within family-clinician discussions surrounding these advanced technologies and the use they make of promotional materials. Implications for Rehabilitation Awareness of the potential effects of implicit and explicit messages about disability in promotional materials may lead to a more sensitive and informed approach within family-clinician discussions surrounding rehabilitation technologies. In practice, it is important for rehabilitation professionals to remember that parents' and children's values and beliefs are shaped over time, and parents' and professionals' perspectives on disability strongly influence how disabled children internalize what disability means to them.


Asunto(s)
Información de Salud al Consumidor , Corrección de Deficiencia Auditiva/psicología , Niños con Discapacidad , Padres/psicología , Modalidades de Fisioterapia/psicología , Adulto , Actitud Frente a la Salud , Tecnología Biomédica/ética , Niño , Información de Salud al Consumidor/ética , Información de Salud al Consumidor/métodos , Información de Salud al Consumidor/normas , Niños con Discapacidad/psicología , Niños con Discapacidad/rehabilitación , Salud , Servicios de Salud para Personas con Discapacidad/ética , Humanos , Validez Social de la Investigación
12.
Phys Occup Ther Pediatr ; 34(3): 271-88, 2014 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-24004267

RESUMEN

Parents of a child with a disability are often asked about their child's functioning in daily activities. One way to gather this information is through parent-report functional questionnaires such as the Pediatric Evaluation of Disability Inventory (PEDI). The purpose of this study was to explore parental experiences associated with completion of the PEDI before and after a functional therapy intervention. Semi-structured interviews were conducted with 12 mothers of children with cerebral palsy (CP) or developmental delay (DD) who had completed the PEDI within a larger study. A content analysis approach was used to code and organize the data into five themes. PEDI completion was associated with increased parental awareness of developmental patterns, and greater insight into levels of assistance they give to their child. Parents described various challenges and concerns with the PEDI that have implications for test administration processes. The findings have potential to enable more sensitive and focused PEDI use.


Asunto(s)
Evaluación de la Discapacidad , Madres/psicología , Encuestas y Cuestionarios , Actividades Cotidianas , Parálisis Cerebral/rehabilitación , Niño , Preescolar , Discapacidades del Desarrollo/rehabilitación , Femenino , Conocimientos, Actitudes y Práctica en Salud , Humanos , Lactante , Entrevistas como Asunto , Masculino , Relaciones Madre-Hijo , Investigación Cualitativa
13.
Dev Neurorehabil ; 17(4): 232-42, 2014 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-23869969

RESUMEN

OBJECTIVE: This study applied response efficiency theory to create the Access Technology Delivery Protocol (ATDP), a child and family-centred collaborative approach to the implementation of access technologies. METHODS: We conducted a descriptive, mixed methods case study to demonstrate the ATDP method with a 12-year-old boy with no reliable means of access to an external device. Evaluations of response efficiency, satisfaction, goal attainment, technology use and participation were made after 8 and 16 weeks of training with a custom smile-based access technology. RESULTS: At the 16 week mark, the new access technology offered better response quality; teacher satisfaction was high; average technology usage was 3-4 times per week for up to 1 h each time; switch sensitivity and specificity reached 78% and 64%, respectively, and participation scores increased by 38%. CONCLUSION: This case supports further development and testing of the ATDP with additional children with multiple or severe disabilities.


Asunto(s)
Discapacidades del Desarrollo/rehabilitación , Hipotonía Muscular/rehabilitación , Dispositivos de Autoayuda , Algoritmos , Niño , Comunicación , Equipos de Comunicación para Personas con Discapacidad , Personas con Discapacidad , Diseño de Equipo , Humanos , Masculino , Terapia Ocupacional , Reconocimiento de Normas Patrones Automatizadas , Procesamiento de Señales Asistido por Computador , Encuestas y Cuestionarios
14.
Brain Inj ; 27(11): 1271-80, 2013.
Artículo en Inglés | MEDLINE | ID: mdl-24020440

RESUMEN

PRIMARY OBJECTIVE: To revise the scaling of the response sets of the Acquired Brain Injury Challenge Assessment (ABI-CA) through expert input and determination of empirically based cut-points. RESEARCH DESIGN: A measurement development study with a content validity focus. METHODS: Response option wording was revised through consultation with six physiotherapists with paediatric ABI expertise. Twenty-nine typically-developing children performed the ABI-CA and empirically-based cut-points for item-specific response options were derived from their time/distance/repetition results (SD values) as benchmark values. Movement quality considerations (compensatory movements) were identified from expert consultation/ABI-CA video observation and built into revised response options. The revised ABI-CA was pilot-tested with four children with ABI, aged 7-15 years, for a feasibility check. RESULTS: Nineteen of the 23 items' response scales were revised based on experts' feedback and empirically-based cut-points replaced the previous arbitrarily-determined cut-points. Compensatory movement considerations were re-defined in nine items. The mean score of the refined ABI-CA was 70.0% (SD = 18.5) with four children with ABI. CONCLUSION: The new response options in the ABI-CA appeared suitable for testing high-functioning children with ABI and the mid-range mean score in this pilot sample indicates its potential to measure change. Recommendations are outlined for final ABI-CA amendments before large-scale validation.


Asunto(s)
Actividades Cotidianas , Lesiones Encefálicas/epidemiología , Evaluación de la Discapacidad , Adaptación Psicológica , Adolescente , Lesiones Encefálicas/complicaciones , Canadá/epidemiología , Niño , Estudios de Factibilidad , Femenino , Escala de Coma de Glasgow , Humanos , Masculino , Proyectos Piloto , Recuperación de la Función , Índice de Severidad de la Enfermedad , Perfil de Impacto de Enfermedad , Análisis y Desempeño de Tareas , Grabación de Cinta de Video
15.
Semin Pediatr Neurol ; 20(2): 84-99, 2013 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-23948683

RESUMEN

Outcome measures may be used for a variety of reasons by clinicians and researchers. This paper provides an overview on motor measures that can be used in research or practice and are classified within the International Classification of Functioning, Disability and Health or ICF. Specifically, body function measures of neuromusculoskeletal and movement-related functions are presented, as are mobility measures within the activity and participation domain of the ICF. Descriptions of measures within these categories and their psychometric properties are provided. Current challenges and future directions for motor measurement are delineated.


Asunto(s)
Discapacidades del Desarrollo/diagnóstico , Clasificación Internacional del Funcionamiento, de la Discapacidad y de la Salud/instrumentación , Clasificación Internacional del Funcionamiento, de la Discapacidad y de la Salud/normas , Trastornos del Movimiento/diagnóstico , Enfermedades Neuromusculares/diagnóstico , Evaluación de Resultado en la Atención de Salud/normas , Humanos
16.
Soc Indic Res ; 114(3): 1243-1257, 2013.
Artículo en Inglés | MEDLINE | ID: mdl-25484486

RESUMEN

The purpose of this paper was to assess the psychometric properties of the Students' Life Satisfaction Scale (SLSS) and the Brief Multidimensional Students' Life Satisfaction Scale (BMSLSS) when used with youth who have chronic conditions. Baseline data from a longitudinal study examining predictors of changes in perceived quality of life (PQOL) for youth with chronic conditions were used. SLSS and BMSLSS data were collected on over 400 youth aged 11-17 using youth self-report and parent proxy-report versions. Internal consistency, convergent validity, and factor structure were examined for both versions. Extent of agreement and magnitude of differences between youth and parent report were evaluated. Finally, gender, age, and condition group differences in youth report scores were examined for the SLSS and BMSLSS. Strong internal consistency was demonstrated for the youth and parent reports of both measures. As with normative samples, a single factor structure was found for youth and parent reports of the BMSLSS. However, both youth and parent reports of the SLSS had a two-factor structure: one consisting of five positively worded items, and the other, two negatively worded items. Youth reported their PQOL to be significantly higher than did their parents. Significant differences in PQOL scores for the youth report were not found by age, gender, or conditions. Findings show that, from a psychometric standpoint, the BMSLSS (both youth and parent report) is a promising measure of PQOL for use in population-based research with youth who have chronic conditions. The SLSS may need to be revised to exclude negative items when used with this population of youth.

17.
Pediatr Phys Ther ; 25(1): 53-60, 2013.
Artículo en Inglés | MEDLINE | ID: mdl-23208222

RESUMEN

PURPOSE: To evaluate and compare the interrater reliability of the Motor Learning Strategy Rating Instrument (MLSRI) within usual and virtual reality (VR) interventions for children with acquired brain injury. METHODS: Two intervention sessions for each of 11 children (total, 22) were videotaped; sessions were provided by 4 physical therapists. Videotapes were divided into usual and VR components and rated by 2 observers using the MLSRI. A generalizability theory approach was used to determine interrater reliability for each intervention. RESULTS: Interrater reliability for usual interventions was high for the MLSRI total score (g-coefficient, 0.81), whereas it was low for the VR total score (g-coefficient, 0.28); MLSRI category g-coefficients varied from 0.35 to 0.65 for usual and from 0.17 to 0.72 for VR interventions. CONCLUSION: Adequate reliability was achieved within ratings of usual interventions; however, challenges related to MLSRI use to rate VR-based interventions require further evaluation.


Asunto(s)
Lesiones Encefálicas/rehabilitación , Destreza Motora/fisiología , Modalidades de Fisioterapia/instrumentación , Interfaz Usuario-Computador , Terapia de Exposición Mediante Realidad Virtual/instrumentación , Adolescente , Niño , Sistemas de Computación , Evaluación de la Discapacidad , Femenino , Humanos , Masculino , Variaciones Dependientes del Observador , Reproducibilidad de los Resultados
18.
Arch Phys Med Rehabil ; 93(8): 1448-56, 2012 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-22571917

RESUMEN

OBJECTIVE: To evaluate the potential of active video game (AVG) play for physical activity promotion and rehabilitation therapies in children with cerebral palsy (CP) through a quantitative exploration of energy expenditure, muscle activation, and quality of movement. DESIGN: Single-group, experimental study. SETTING: Human movement laboratory in an urban rehabilitation hospital. PARTICIPANTS: Children (N=17; mean age ± SD, 9.43±1.51y) with CP. INTERVENTION: Participants played 4 AVGs (bowling, tennis, boxing, and a dance game). MAIN OUTCOME MEASURES: Energy expenditure via a portable cardiopulmonary testing unit; upper limb muscle activations via single differential surface electrodes; upper limb kinematics via an optical motion capture system; and self-reported enjoyment via the Physical Activity Enjoyment Scale (PACES). RESULTS: Moderate levels of physical activity were achieved during the dance (metabolic equivalent for task [MET]=3.20±1.04) and boxing (MET=3.36±1.50) games. Muscle activations did not exceed maximum voluntary exertions and were greatest for the boxing AVG and for the wrist extensor bundle. Angular velocities and accelerations were significantly larger in the dominant arm than in the hemiplegic arm during bilateral play. A high level of enjoyment was reported on the PACES (4.5±0.3 out of 5). CONCLUSIONS: AVG play via a low-cost, commercially available system can offer an enjoyable opportunity for light to moderate physical activity in children with CP. While all games may encourage motor learning to some extent, AVGs can be strategically selected to address specific therapeutic goals (eg, targeted joints, bilateral limb use). Future research is needed to address the challenge of individual variability in movement patterns/play styles. Likewise, further study exploring home use of AVGs for physical activity promotion and rehabilitation therapies, and its functional outcomes, is warranted.


Asunto(s)
Parálisis Cerebral/rehabilitación , Terapia por Ejercicio/métodos , Juegos de Video , Pesos y Medidas Corporales , Niño , Metabolismo Energético , Femenino , Promoción de la Salud/métodos , Humanos , Masculino
19.
Phys Occup Ther Pediatr ; 32(3): 288-305, 2012 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-22574628

RESUMEN

PURPOSE: To evaluate reliability and feasibility of the Motor Learning Strategy Rating Instrument (MLSRI) in children with acquired brain injury (ABI). The MLSRI quantifies the extent to which motor learning strategies (MLS) are used within physiotherapy (PT) interventions. METHODS: PT sessions conducted by ABI team physiotherapists with a convenience sample of children with ABI (4-18 years) were videotaped and independently scored later by two raters trained in MLSRI use. Intraclass correlation coefficients (ICCs) and 95% confidence intervals (CIs) estimated intra- and inter-rater reliability. RESULTS: Eighteen PT sessions were evaluated. Intra- and inter-rater reliability ICCs for total score were 0.86 (95% CI: 0.66-0.94) and 0.50 (95% CI: 0.08-0.78), respectively. MLSRI category ICCs were 0.56-0.86 (intra-rater) and 0.16-0.84 (inter-rater). CONCLUSIONS: Intra-rater reliability of MSLRI total score was excellent. Moderate inter-rater reliability may partially be due to inconsistent item interpretation between raters. Revisions and further reliability testing are required before recommending the MLSRI for clinical and research use.


Asunto(s)
Lesión Encefálica Crónica/rehabilitación , Evaluación de la Discapacidad , Destreza Motora/fisiología , Adolescente , Lesión Encefálica Crónica/fisiopatología , Niño , Preescolar , Intervalos de Confianza , Femenino , Humanos , Aprendizaje , Masculino , Variaciones Dependientes del Observador , Psicometría , Reproducibilidad de los Resultados , Grabación en Video
20.
Games Health J ; 1(4): 287-93, 2012 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-26191632

RESUMEN

OBJECTIVE: Active videogames (AVGs) have potential in terms of physical activity and therapy for children with cerebral palsy. However, the effect of social interaction on AVG play has not yet been assessed. The objective of this study is to determine if multiplayer AVG versus solo affects levels of energy expenditure and movement patterns. SUBJECTS AND METHODS: Fifteen children (9.77 [standard deviation (SD) 1.78] years old) with hemiplegic cerebral palsy (Gross Motor Function Classification System Level I) participated in solo and multiplayer Nintendo(®) "Wii™ Boxing" (Nintendo, Inc., Redmond, WA) AVG play while energy expenditure and punching frequency were monitored. RESULTS: Moderate levels of physical activity were achieved with no significant differences in energy measures during multiplayer and solo play. Dominant arm punching frequency increased during the multiplayer session from 95.75 (SD 37.93) punches/minute to 107.77 (SD 36.99) punches/minute. Conversely, hemiplegic arm punching frequency decreased from 39.05 (SD 29.57) punches/minutes to 30.73 (SD 24.74) punches/minutes during multiplayer game play. Children enjoyed multiplayer more than solo play. CONCLUSIONS: Opportunities to play AVGs with friends and family may translate to more frequent participation in this moderate physical activity. Conversely, increased hemiplegic limb use during solo play may have therapeutic advantages. As such, new strategies are recommended to promote use of the hemiplegic hand during multiplayer AVG play and to optimize commercial AVG systems for applications in virtual reality therapy.

SELECCIÓN DE REFERENCIAS
DETALLE DE LA BÚSQUEDA
...