Participation Among Community-Dwelling Older Adults During the COVID-19 Pandemic: A Cross-Sectional Analysis.

OBJECTIVE: Participation in life situations is a critical aspect of health recognized by the World Health Organization. Guidelines to prevent spreading of COVID-19 place older adults at risk of worsening participation. The purpose of this study was to identify the factors associated with participation during the COVID-19 pandemic among community-dwelling older adults living in Hamilton, Ontario, Canada. METHODS: Participants were recruited from identified census dissemination areas in Hamilton. Participants completed surveys either by phone or online during the months of May to August 2020. Measures were organized into factors related to body functions and structures, activities, participation, as well as personal and environmental contextual factors using the International Classification of Functioning, Disability, and Health (ICF) framework. Multivariable regression analysis was conducted to identify factors associated with participation as measured by the Late-Life Disability Instrument's (LLDI) frequency and limitations scales. RESULTS: A total of 272 older adults completed the survey (78 [7.3] years; 70% female). Use of a walking aid, driving status, perceived mental health status, nutrition risk, and physical function explained 48.2% of the variance observed in the LLDI-frequency scale scores. Use of a walking aid, driving status, perceived mental health status, receiving health assistance, and physical function explained 38.5% of the variance observed in the LLDI-limitation scale scores. CONCLUSION: Results highlighted factors across multiple ICF domains that are associated with participation restriction among a sample of community-dwelling older adults during the pandemic. Participation during the pandemic was greatest in those that were able to walk without needing to use a walking aid, being a licensed and current driver, perceiving good to excellent mental health, and having greater physical function. IMPACT: Our findings contribute to the literature on older adult participation during lockdowns, restrictions, pandemics, and/or other similar circumstances.

Life situations of Swedish women after mastectomy due to breast cancer: A qualitative study.

PURPOSE: Breast cancer is a significant health issue all around the world and the most frequent type of cancer among Swedish women. The aim of this study was to explore and describe life situations of Swedish women with breast cancer after mastectomy. METHODS: A qualitative study with semi-structured interviews was conducted by using an interview guide concerning experiences of changes in the women's daily lives and functions. Thirty-three women with breast cancer having undergone mastectomy participated. The data from the interviews were subjected to content analysis. RESULTS: Six categories emerged: Embarrassment with body image and loss of femininity; Feelings of fear, worry and anxiety; Better appreciation of life; Support from different sources; Experiences of care from health care professionals; and Need of information and follow-up care. CONCLUSION: The women's body image limits their daily lives, and psychological distress reminds them of their disease. Reception of support from family and healthcare professionals and perception of positive life are important. Sometimes there is a lack of information and follow-up from healthcare professionals, who should be aware of the women's feelings and needs.

Changes in Life Situations during the SARS-CoV-2 Virus Pandemic and Their Impact on Eating Behaviors for Residents of Europe, Australia as Well as North and South America.

Many people's life situations are changing as a result of restrictions being imposed by national governments to limit the spread of the virus. These may be associated with additional factors (emotional or financial, for example) that influence eating behavior and physical activity levels. Therefore, the aim of this study was to show whether there is a relationship between a changing life situation during the pandemic and eating behavior as well as physical activity. An online survey was conducted between 28 April and 16 July 2020 with 921 participants from European countries and countries outside Europe (South and North America, Australia). An analysis of the obtained results showed an unfavorable relationship between a change in life situation during the pandemic and eating behavior as well as physical activity. This was observed mainly among students who returned to their family homes and respondents whose working hours increased. Students were more likely to snack between meals (51.13%, p < 0.001) and to consume more sweets (45.11%, p < 0.001) and savory snacks (30.83%, p < 0.001). Those whose working hours had increased, consumed morefast foods (13.57%, p < 0.05) during that time. On the other hand, the study results indicated that a change in life situation during the pandemic can also have a positive impact on eating behavior and physical activity. This was exhibited by individuals who transitioned to remote working. An improvement in the regularity of eating (38.86%, p < 0.001) was recorded for this group. The relationship between a change in life situation and eating behavior was further emphasized by the fact that people whose life situation had not changed were more likely to declare no change in the regularity of eating (62.86%, p < 0.001) and snacking (61.71%, p < 0.001). At the same time, they were less likely to exhibit a higher intake of sweets (22.29%, p < 0.01) and salty snacks (13.14%, p < 0.01). The study results indicated that a change in the nutritional situation during the pandemic may have had both negative and positive effects on eating behavior and physical activity. Finding these relationships may help identify groups that are particularly vulnerable to reduced diet quality and reduced levels of physical activity. Considering the immunomodulating effects of diets and the fact that physical activity is essential for maintaining good health, further research in this area is needed.

Relationship Between Cancer Related Fatigue, Physical Activity Related Health Competence, and Leisure Time Physical Activity in Cancer Patients and Survivors.

Background: A large body of evidence supports the positive effects of leisure time physical activity (LTPA) and exercise on cancer survivors. However, only a fraction of survivors manages to attain international PA recommendations. This can be attributed to several external and internal barriers toward PA those patients seem to encounter, with cancer related fatigue (CRF) being the most reported internal barrier. Nevertheless, self-efficacy and knowledge about the utilization of LTPA can serve as facilitators of PA, which also correspond to certain constituents of physical activity related health competence (PAHCO). Since PAHCO is not investigated in cancer survivors we investigated if PAHCO can mediate the negative relationship between CRF and LTPA. Methods: We surveyed 398 cancer survivors with different cancer types and therapy status. The patients completed the EORTC QLQ-FA12 (EORTC FA12) to assess CRF, the PAHCO questionnaire to assess PAHCO and the SQUASH to assess LTPA. We followed a two-step structural equation modeling approach. The first step established the measurement model, in the second step we fitted the mediation model. Since 163 patients chose not to answer the SQUASH, the mediation model was only fitted to the data of the remaining 235 participants. Results: The proposed measurement model of the PAHCO offered an excellent fit. We found small to moderate positive associations between the PAHCO dimensions and the LTPA, and negative moderate relationships between the PAHCO and the EORTC FA12 dimensions. We did not observe a relationship between the EORTC FA12 dimensions and the LTPA (p > 0.05). The hypothesized mediation models did not display an appropriate fit. Conclusion: The PAHCO confirmed its factorial validity; furthermore, it appears to have a positive relationship to LTPA. Therefore, integrating psycho-educational aspects can be beneficial in order to increase the PAHCO in exercise interventions. Because of the cross-sectional character of this study, causal conclusions are not suitable, therefore the longitudinal relationships of LTPA, CRF, and PAHCO require further investigation.

Effect of the Information Support Robot on the Daily Activity of Older People Living Alone in Actual Living Environment.

Information support robots (ISRs) have the potential to assist older people living alone to have an independent life. However, the effects of ISRs on the daily activity, especially the sleep patterns, of older people have not been clarified; moreover, it is unclear whether the effects of ISRs depend on the levels of cognitive function. To investigate these effects, we introduced an ISR into the actual living environment and then quantified induced changes according to the levels of cognitive function. Older people who maintained their cognitive function demonstrated the following behavioral changes after using the ISR: faster wake-up times, reduced sleep duration, and increased amount of activity in the daytime (p < 0.05, r = 0.77; p < 0.05, r = 0.89, and p < 0.1, r = 0.70, respectively). The results suggest that the ISR is beneficial in supporting the independence of older people living alone since living alone is associated with disturbed sleep patterns and low physical activity. The impact of the ISR on daily activity was more remarkable in the subjects with high cognitive function than in those with low cognitive function. These findings suggest that cognitive function is useful information in the ISR adaptation process. The present study has more solid external validity than that of a controlled environment study since it was done in a personal residential space.

Cuidados de enfermagem no manejo da dor em pacientes adultos e idosos em cuidados paliativos / Atención de enfermería en el manejo del dolor en pacientes adultos y de ancianos en cuidados paliativos / Nursing care in pain management in adult and elderly patients in palliative care

Objetivo: Identificar os cuidados de enfermagem no manejo da dor de pacientes adultos e idosos em cuidados paliativos. Método: Foi realizada uma revisão integrativa da literatura, de artigos nacionais e internacionais, que abordaram o tema "cuidados de enfermagem no manejo da dor de pacientes em cuidados paliativos", publicados no período de 2009 a 2019, em três bases de dados. Foram encontrados oito artigos que atenderam os critérios de inclusão e exclusão. Resultados: A partir da análise dos artigos, foram elaboradas duas categorias: a investigação da dor pela equipe de enfermagem em pacientes em cuidados paliativos e intervenções para o alívio da dor em pacientes em cuidados paliativos. Conclusão: Evidenciou-se a importância do vínculo entre o profissional e o paciente/família, no manejo da dor, além da assistência de forma holística. O pequeno número de estudos sobre o tema foi uma limitação para a pesquisa, ressaltando, assim, a necessidade de mais pesquisas nesta temática(AU)

Objective: To identify nursing care in pain management of adult and elderly patients in palliative care. Method: This is an integrative literature review of national and international articles which addressed the "nursing care in pain management of patients under palliative care" published between 2009 to 2019 onto three databases. Eight papers that met the inclusion and exclusion criteria ere found. Results: From the analysis of the articles, two categories were elaborated: The investigation of pain by the nursing team in patients under palliative care; and Interventions for pain relief in patients under palliative care. Conclusion: Results evidenced the importance of the bond between the professional and the patient / family in the management of pain, as well as a holistic care. The small number of studies on the topic was a limitation for this study, thus emphasizing the need for more research on this topic(AU)

Objetivo: Identificar los cuidados de enfermería en el manejo del dolor de pacientes adultos y ancianos en cuidados paliativos. Método: se realizó una revisión integral de la literatura, de artículos nacionales e internacionales, que abordó el tema "atención de enfermería en el manejo del dolor de pacientes en cuidados paliativos" publicado en el período de 2009 a 2019, en tres bases de datos. Se encontraron ocho artículos que cumplían los criterios de inclusión y exclusión. Resultado: A partir del análisis de los artículos, se elaboraron dos categorías: la investigación del dolor por parte del equipo de enfermería en pacientes en cuidados paliativos e intervenciones para el alivio del dolor en pacientes en cuidados paliativos. Conclusión: Se evidenció la importancia del vínculo entre el profesional y el paciente/familia en el manejo del dolor, además de la atención integral. El pequeño número de estudios sobre el tema fue una limitación para la investigación, enfatizando así la necesidad de más investigación sobre este tema.(AU)

Engaging Pharmacy Students in Interactive Life-Based Situations as the Basis for Teaching a Biochemistry Course.

Objectives Undergraduate pharmacy students have neither sufficient training on analyzing the role of biochemistry in actual-life situations nor on its effect on both health and disease. Therefore, we conducted this study to link the biochemistry course with actual-life situations and to encourage students to search for biochemistry answers for the health problems they face. Methods Students were randomized into different groups of three to five students. Every week, a group was asked to search the Internet for the most prevalent disease in their area associated with the biochemistry title studied. The group was asked to have an open discussion was their colleagues about a hot topic in life that is related to this subject. Finally, the group was asked to dig into social media for a current event that grabbed their attention in relation to this subject and write a short paragraph beyond the details. This scenario was repeated weekly using different student groups. The students' opinion was collected before the conduction of the course and the end of the semester. Results The post-course questionnaire showed good improvement in the students' ability to communicate effectively, conduct independent work, participate in active discussion, and solve problems. Overall, the students' satisfaction was significantly elevated. Conclusions We have promoted a method to engage undergraduate students in linking biochemistry theories with real-life situations instead of just memorizing them. The new method improves the students' perception of biochemistry courses. Finally, it provides a promise of a new active learning strategy for undergraduate pharmacy students, which can be used widely to motivate students.

A nationwide survey regarding the life situations of patients with thalidomide embryopathy in Japan, 2018: First report.

BACKGROUND: Clinical studies on the effects of thalidomide-induced damage on thalidomide victims as they age have only recently started to be conducted, but no studies have examined socioeconomic differences in terms of healthcare and social status between thalidomiders and the age-matched general population in Japan. Therefore, we carried out a nationwide survey focusing on the life situations of thalidomiders. METHOD: Questionnaires were sent to 274 thalidomiders in Japan. The questionnaire items basically matched those of the Comprehensive Survey of Living Conditions (CSLC) in the general population conducted by the Japanese Government. The results were compared with those of the CSLC for individuals aged 55-59 years, which was the cohort most similar in age to the average thalidomider living in Japan. RESULTS: More thalidomiders rated their health condition as relatively bad or bad compared with the general population (20.2% vs. 13.3%, respectively). A much higher percentage of thalidomiders reported having some health or physical problem caused by a disease or injury (68.8% vs. 32.6%, respectively), and thalidomiders reported visiting medical and healthcare-related facilities more frequently. A higher proportion of thalidomiders (9.2%) were unemployed, and thalidomiders tended to feel higher levels of worry and stress, especially in terms of the future. CONCLUSIONS: The results of this nationwide survey of the life situations of thalidomiders in Japan clarified their health conditions and the related associations with socioeconomic status. These findings could be expected to help improve the provision of medical and healthcare, welfare measures, and financial support for thalidomiders in the near future.

Everyday life situations in which mothers experience difficulty stimulating healthy energy balance-related behavior in their school-age children: a focus group study.

BACKGROUND: Parental support is an important element in overweight prevention programs for children. The purpose of this study was to examine everyday life situations in which mothers encounter difficulties encouraging healthy energy balance-related behavior in their school-age children. METHODS: We formed four focus groups containing 6-9 participants each. The participants were mothers of Dutch, Turkish, or Moroccan descent with a child 8-13 years of age. All focus group sessions were recorded, transcribed, and coded. Content was analyzed conventionally using ATLAS.ti 6. RESULTS: Twenty-seven difficult everyday life situations were identified in 14 settings. The five most frequently reported situations were a daily struggle regarding eating vegetables, eating breakfast on time before going to school, eating candy and snacks between meals, and spending excessive time watching television and using the computer. A perceived loss of parental control, the inability to establish rules and the failure to consistently enforce those rules were the most commonly cited reasons for why the mothers experience these situations as being difficult. CONCLUSIONS: We identified five difficult everyday life situations related to healthy energy balance-related behavior. These five difficult situations were used as the input for developing a web-based parenting program designed to prevent children from becoming overweight. We reasoned that if we use these situations and the underlying reasons, many parents would recognize these situations and are willing to learn how to deal with them and complete the e-learning.

Experiences of living with persisting post-stroke dysphagia and of dysphagia management - a qualitative study.

PURPOSE: The aim of this study was to investigate people's experiences of living with dysphagia after stroke, and their experiences of dysphagia management. METHODS: The study design was qualitative, and an open-ended approach to data collection was used, with follow-up probing questions to gain more information as needed. Personal interviews were conducted with five persons who had persisting moderate to severe dysphagia after stroke, living in the south-west part of Sweden. The data were analysed with qualitative content analysis. RESULTS: When analysing the data, the following theme emerged; "Dysphagia impacts life situations negatively and requires individually adapted, long term support from skilled health care professionals". The theme consists of three categories: "Learning to manage dysphagia and its complications", "Professional support with dysphagia varies" and "Finding small moments of joy despite large restrictions in life situations". CONCLUSIONS: Findings indicated that people with dysphagia experienced a lack of support from health care professionals. Better health care support following discharge from hospital is required to ensure an optimal quality of life. Actions to achieve this may include developing national guidelines for adequate dysphagia follow-up and establishing multidisciplinary dysphagia teams in hospitals and long-term care facilities.

Approaches for Assessing Olfaction in Children with Autism Spectrum Disorder.

Olfactory traits in individuals with autism spectrum disorder (ASD) are considered the strongest predictors of social impairment. Compared to other sensory abnormalities, olfactory abnormalities in individuals with ASD are poorly understood. In this chapter, we provide an overview of the current assessment in individuals with ASD. Several confounding factors have to be considered when conducting research on olfaction in individuals with ASD. Qualitative measures of olfaction contain only limited information about the olfactory stimuli. In addition, little systematic information is available about individual's actual uses of olfaction in daily life. Only a limited number of experimental studies have performed quantitative measurements of olfactory abnormalities in ASD. Therefore, clarifying the relationship between olfactory traits and the influence of real-life situations in a laboratory setting is very difficult. Some new methodologies for measuring olfactory traits are gradually becoming available. New methods that reveal important links between ASD and olfactory traits should be developed in the future.