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1.
Eur J Oncol Nurs ; 69: 102517, 2024 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-38340645

RESUMEN

PURPOSE: Thyroid cancer generally has a good prognosis, and thyroidectomy is the main treatment given to thyroid cancer patients. Almost every cancer patient experiences varying degrees of distress, which can reduce their quality of life. This study aims to explore the level of distress and its relationship with illness perception and coping style among Chinese thyroid cancer patients after thyroidectomy and to identify the influencing factors on distress. METHODS: A cross-sectional study with convenience sampling method was conducted. Totally 184 thyroid cancer patients after thyroidectomy were recruited in a tertiary hospital in Southern China with the response rate being 94.4% . The participants were investigated by a self-designed demographic and disease-related questionnaire, the Distress Management, the Brief Illness Perception Questionnaire, and the Medical Coping Modes Questionnaire. Descriptive statistics, univariate analysis, and multivariate linear regression were applied for data analysis. RESULTS: In total, 99 (53.8%) thyroid cancer patients after thyroidectomy scored 4 or higher on the DT. Illness perception, emotional problem, body image loss by surgical scars, and acceptance-resignation were the influencing factors of distress and could explain 67.6% of the variance of distress among thyroid cancer patients after thyroidectomy. CONCLUSIONS: Healthcare professionals should not ignore the distress among thyroid cancer patients after thyroidectomy and should take effective measures to alleviate the distress of thyroid cancer patients after thyroidectomy by enhancing their accurate and positive illness perceptions, decreasing their emotional problems, alleviating their body image loss by surgical scars, and avoiding acceptance-resignation coping style.


Asunto(s)
Calidad de Vida , Neoplasias de la Tiroides , Humanos , Estudios Transversales , Tiroidectomía/métodos , Cicatriz/psicología , Cicatriz/cirugía , Neoplasias de la Tiroides/cirugía , Neoplasias de la Tiroides/psicología , Habilidades de Afrontamiento , Imagen Corporal , Adaptación Psicológica , Encuestas y Cuestionarios
2.
Burns ; 50(4): 885-892, 2024 May.
Artículo en Inglés | MEDLINE | ID: mdl-38267290

RESUMEN

PURPOSE: It is well known that the coronavirus disease 19 (COVID-19) epidemic had an adverse effect on the health-related quality of life (HRQOL) of patients with disabilities, or neurological or chronic conditions. The aim of this study was to examine the possible factors affecting HRQOL in patients with burn injuries during COVID-19 epidemic. METHODS: The study included a total of 40 burns patients. The demographic and burn injury information of the patients were recorded. The active range of motion was measured with a goniometer. The HRQOL, community integration, scar tissue quality and anxiety level were evaluated using the Burn-Specific Health Scale (BSHS), the Community Integration Questionnaire Revised (CIQ-R), Patient and Observer Scar Assessment Scale, and the State-Trait Anxiety Inventory, respectively. RESULTS: The history of COVID-19 infection, total burn surface area (TBSA), community integration level, work-related burns, the presence of trunk burn injury, the presence of face burn injury, and the presence of a major burn injury were determined to be significantly associated with the HRQOL of burns patients (p < 0.05). CONCLUSION: The history of COVID-19 infection, community integration level, and burn-related parameters (TBSA, localization, severity etc.) were found to be factors associated with the HRQOL during the epidemic. The history of COVID-19 and community integration level should be evaluated in addition to the burn injury parameters to improve the quality of life of burn survivors. It can be recommended that these clinical parameters should be considered when planning the treatment program during and after the epidemic.


Asunto(s)
Ansiedad , Quemaduras , COVID-19 , Calidad de Vida , Sobrevivientes , Humanos , Quemaduras/psicología , Quemaduras/epidemiología , COVID-19/epidemiología , COVID-19/psicología , Masculino , Femenino , Adulto , Persona de Mediana Edad , Sobrevivientes/psicología , Ansiedad/psicología , Ansiedad/epidemiología , Superficie Corporal , Adulto Joven , SARS-CoV-2 , Encuestas y Cuestionarios , Cicatriz/psicología , Cicatriz/etiología , Rango del Movimiento Articular , Traumatismos Faciales/psicología , Traumatismos Faciales/epidemiología , Traumatismos Ocupacionales/psicología , Traumatismos Ocupacionales/epidemiología , Anciano
3.
Laryngoscope ; 134(6): 2726-2733, 2024 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-38214383

RESUMEN

OBJECTIVE: The purpose of this study is to determine children's perception of secondary cleft lip deformity (SCLD) using objective eye tracking technology and subjective responses on a survey to understand pediatric perceptions of facial scarring. DESIGN: Cross-sectional study of participants aged 5-17 years old. METHODS: Participants viewed images of children's faces with an eye tracking device. Sixteen images were displayed, 12 with unilateral SCLD and four with no facial scarring. Eye tracking data were obtained. Gaze samples were analyzed for areas of interest (AOIs). Immediately after viewing each image, participants answered two survey questions relating to facial asymmetry attitude toward the child pictured. For analysis, participants were divided into age groups. RESULTS: A total of 259 participants were enrolled (42.5% female). Mean age was 10.5 years and 78% identified as White. In all age groups, total fixation time was greater for SCLD compared to control images. Early elementary age children spent significantly less time assessing the nose AOI compared to other groups, and also spent the least total fixation time and had the lowest visit count on all AOIs. Subjective survey questions showed similar trends with elementary age not noticing facial asymmetry compared to older age groups. CONCLUSION: This study demonstrates the successful use of eye tracking technology in children as young as 5 years old. This study suggests that SCLD is perceived as less noticeable in elementary age children and becomes more noticeable to older groups. Understanding peer perception on SCLD from this study may impact decision on revision surgery for SCLD. LEVEL OF EVIDENCE: IV Laryngoscope, 134:2726-2733, 2024.


Asunto(s)
Cicatriz , Labio Leporino , Tecnología de Seguimiento Ocular , Humanos , Femenino , Labio Leporino/cirugía , Labio Leporino/psicología , Labio Leporino/fisiopatología , Niño , Masculino , Estudios Transversales , Adolescente , Preescolar , Cicatriz/psicología , Cicatriz/etiología , Percepción Visual/fisiología , Encuestas y Cuestionarios , Asimetría Facial/psicología
4.
Front Public Health ; 11: 1103714, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-37089486

RESUMEN

Background: Scars are a natural consequence of the healing process, but with an impact on the psychological and social level for the individual, which can even lead to withdrawal and social stigmatization. We aimed to analyze the psychosocial impact determined by post-traumatic scars, using psychometric scales, to assess the effectiveness of the Mekereș' Psychosocial Internalization Scale (MPIS), and to identify relevant predictors of traumatic and surgical scar internalization. Methods: Our cohort included 293 participants, 149 women and 144 men, aged 18-64 years who were screened for scar characteristics and completed a set of psychological scales. We compared the results obtained in two subgroups: 153 subjects with posttraumatic scars and 140 with surgical scars. Results: Relevant predictors for posttraumatic scar internalization (R 2 = 0.721) are adaptation time, age of the occurrence and subjective appraisal, while for the depression, and hopelessness relevant predictors are the subjective appraisal of the scars and the posttraumatic quality of life. Conclusion: The psychological and social reporting of the aftermath of trauma, that has been followed by scar-ring, is an indicator of how a person will react and could indicate the susceptibility to psycho-pathology.


Asunto(s)
Cicatriz , Calidad de Vida , Masculino , Humanos , Femenino , Cicatriz/etiología , Cicatriz/patología , Cicatriz/psicología , Psicometría , Salud Mental , Autoimagen
5.
J Nurs Scholarsh ; 55(1): 319-328, 2023 01.
Artículo en Inglés | MEDLINE | ID: mdl-36161474

RESUMEN

INTRODUCTION: Post-burn scarring is often cosmetically unappealing and create discomfort. This makes it crucial to understand the experience of individuals living with scars which can offer insights into their recovery. This review sought to develop an in-depth understanding of living with post-burn scars. DESIGN: A systematic review and meta-ethnography approach were employed. We utilized an interpretive approach to inductively generate codes. These codes were examined iteratively using a constant comparison strategy following which they were re-interpreted to formulate themes which formed the basis of undertaking a narrative synthesis. RESULTS: Twenty-five studies were retained. The analytical process yielded two themes: emergence of a new identity and living with the redefined self. The experience of living with scars is entwined with the initial trauma as the scars served as a permanent reminder of the injury. Emergence of a new identity involved a process of meaning making, mourning the loss of the old self, confronting the new self, reconciling the remains of the old self with the new, rebuilding a new identity, and navigating through functional restrictions. These processes were particularly challenging for persons involved in self-immolation. Positive coping and changing one's perspective emerged as strategies to facilitate living with the redefined self. CONCLUSION: Living with scars is a challenging process which is more difficult for persons whose injuries are due to self-immolation (act of burning oneself). The findings highlight a latent yet ongoing process towards subjective recovery. Clinicians need to be aware of the processes and incorporate these into rehabilitation programmes. CLINICAL RELEVANCE: Burn survivors need ongoing professional support to adjust to and live with the scars. Victims of self-immolation should be considered for early psychosocial support.


Asunto(s)
Antropología Cultural , Cicatriz , Humanos , Cicatriz/etiología , Cicatriz/psicología , Adaptación Psicológica , Sobrevivientes/psicología
6.
Pediatr Blood Cancer ; 69(9): e29832, 2022 09.
Artículo en Inglés | MEDLINE | ID: mdl-35796091

RESUMEN

BACKGROUND: In children with cancer, port-a-caths (ports) are commonly placed in the right anterior chest wall, leaving a visible scar when removed. The psychological impact of port scars on survivors is unknown. It is unclear whether alternative sites should be considered. We assessed the impact of port scars on pediatric cancer survivors to determine whether a change in location is indicated. METHODS: We performed a cross-sectional single-center study of pediatric cancer survivors aged 13-18 years. A questionnaire explored participants' perceptions of their port scars. Four additional validated tools were used: Fitzpatrick scale, Patient and Observer Scar Assessment Scale (POSAS), Children's Dermatology Life Quality Index, and a Distress Thermometer. RESULTS: Among 100 participants (median age 15.8 years [13-18], median duration since treatment 8 years [1.5-14.8]), 75 'never/occasionally' thought about their port scars, 85 were not bothered by its location and 87 would not have preferred another site. Eleven participants were highly impacted by their scars: six thought about their scar 'everyday/all the time', four were highly bothered by its location, and nine would have preferred a different location. There was an association between the desire for different scar location and how much the location bothered participants (p < 0.0001), female sex (p = 0.03) and Patient POSAS score (p = 0.04). CONCLUSION: A port scar on the anterior chest wall was not a major concern for the majority of this cohort. A minority of participants were highly impacted by the scar and its location. Advance identification of those likely to be impacted by their scars may not be possible.


Asunto(s)
Supervivientes de Cáncer , Cicatriz , Neoplasias , Adolescente , Niño , Cicatriz/etiología , Cicatriz/psicología , Estudios Transversales , Femenino , Humanos , Neoplasias/complicaciones , Neoplasias/cirugía , Satisfacción del Paciente , Encuestas y Cuestionarios
7.
Isr Med Assoc J ; 24(1): 20-24, 2022 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-35077041

RESUMEN

BACKGROUND: The purpose of mastectomy for the transgender patient is to produce a masculine appearance of the chest. A number of algorithms have been proposed for selecting the surgical technique. A holistic and surgical approach to transgender men includes our experience-based classification system for selecting the correct surgical technique. OBJECTIVES: To present and discuss the Transgender Standard of Care and our personal experience. METHODS: Data were collected from the files of female-to-male transgender persons who underwent surgery during 2003-2019. Pictures of the patients were also analyzed. RESULTS: Until May 2021, 342 mastectomies were performed by the senior author on 171 patients. The 220 mastectomies performed on 110 patients until November 2019 were included in our cohort. Patient age was 13.5 to 50 years (mean 22.5 ± 6.1). The excision averaged 443 grams per breast (range 85-2550). A periareolar approach was performed in 14 (12.7%), omega-shaped resection (nipple-areola complex on scar) in 2 (1.8%), spindle-shaped mastectomy with a dermal nipple-areola complex flap approach in 38 (34.5%), and a complete mastectomy with a free nipple-areola complex graft in 56 (50.9%). Complications included two hypertrophic scars, six hematomas requiring revision surgery, three wound dehiscences, and three cases of partial nipple necrosis. CONCLUSIONS: A holistic approach to transgender healthcare is presented based on the World Professional Association for Transgender Health standard of care. Analysis of the data led to Wolf's classification for female-to-male transgender mastectomy based on skin excess and the distance between the original and the planned position of the nipple-areola complex.


Asunto(s)
Cicatriz , Hematoma , Mastectomía , Complicaciones Posoperatorias , Procedimientos de Reasignación de Sexo , Dehiscencia de la Herida Operatoria , Personas Transgénero , Adulto , Contorneado Corporal/métodos , Contorneado Corporal/psicología , Imagen Corporal/psicología , Cicatriz/etiología , Cicatriz/psicología , Femenino , Hematoma/diagnóstico , Hematoma/etiología , Hematoma/cirugía , Humanos , Masculino , Mastectomía/efectos adversos , Mastectomía/métodos , Pezones/patología , Pezones/cirugía , Evaluación de Resultado en la Atención de Salud , Satisfacción del Paciente , Complicaciones Posoperatorias/diagnóstico , Complicaciones Posoperatorias/cirugía , Reoperación/métodos , Reoperación/estadística & datos numéricos , Procedimientos de Reasignación de Sexo/efectos adversos , Procedimientos de Reasignación de Sexo/métodos , Procedimientos de Reasignación de Sexo/psicología , Dehiscencia de la Herida Operatoria/diagnóstico , Dehiscencia de la Herida Operatoria/cirugía , Personas Transgénero/psicología , Personas Transgénero/estadística & datos numéricos
8.
Am J Clin Dermatol ; 23(1): 115-123, 2022 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-34705166

RESUMEN

BACKGROUND: Acne affects more than 80% of adolescents and young adults, who most often develop acne scars. Supporting data on the effect of acne scars on patient's health-related quality of life (HRQOL) are limited. OBJECTIVE: The aim was to determine how the severity of acne scars impacts the HRQOL of afflicted individuals. METHODS: In this population-based cross-sectional study, 723 adults with facial acne scars but without active acne lesions self-completed the Self-assessment of Clinical Acne-Related Scars (SCARS) questionnaire formulated to investigate degree of acne scarring. The Facial Acne Scar Quality of Life (FASQoL), Dermatology Life Quality Index (DLQI), and Dysmorphic Concern Questionnaire (DCQ) were completed to assess the attitude of these patients toward their scars and the impact of scarring on their HRQOL. RESULTS: The mean (standard error) DLQI score for facial acne scars was 6.26 (0.22). Acne scars were considered a 'very large' or 'extremely large' concern by 19.3% of participants with mild scars as compared to 20.1% and 34.0% of participants with moderate and severe/very severe scars, respectively (P = 0.003). Higher FASQoL scores were associated with increased severity of scarring (P = 0.001). In total, 16.9% of participants had clinical features of dysmorphia (i.e., DCQ > 13). DCQ scores were significantly higher among participants with more severe scarring (mean DCQ score of 8.04 [0.28], 8.40 [0.18], and 10.13 [0.08] among participants with mild, moderate, and severe/very severe acne scars, respectively; P = 0.001). Most commonly reported signs of emotional distress were self-consciousness (68.0%) and worry about scars not going away (74.8%). CONCLUSIONS: This study highlights the significant psychosocial impact of atrophic acne scars in the form of embarrassment and self-consciousness. Individuals with mild scars also expressed significant impact on quality of life that increased with aggravation of scar severity. Patient-reported outcomes provide an insight into the physical, functional, and psychological impact of acne scarring from the patient's perspective.


Asunto(s)
Acné Vulgar/psicología , Cicatriz/psicología , Calidad de Vida , Acné Vulgar/complicaciones , Adolescente , Adulto , Cicatriz/etiología , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad , Encuestas y Cuestionarios , Adulto Joven
9.
Burns ; 48(5): 1190-1197, 2022 08.
Artículo en Inglés | MEDLINE | ID: mdl-34635366

RESUMEN

The purpose of this research was to understand the current status of stigma and illness uncertainty in patients with visible burns and explore the correlation between them. Measures to help patients alleviate shame and uncertainty in illness are also discussed. A cross-sectional study was conducted in a tertiary hospital from November 2020 to March 2021 for patients with burns on exposed parts of the face, neck, or limbs. The scales used in this study include demographic data questionnaires, the Social Impact Scale (SIS), and the Mishel Uncertainty in Illness Scale for Adults (MUIS-A). A two-tailed independent t-test was used to evaluate the differences in the respondents' sociodemographic characteristics, stigma, and illness uncertainty. The total stigma and illness uncertainty scores of 146 patients were 57.03 ± 6.762 and 68.59 ± 12.901, respectively. Spearman correlation analysis showed that stigma was positively correlated with illness uncertainty (r = 0.398, p < 0.01). Multiple regression analysis showed a relationship between stigma and uncertainty of illness (B = 0.215, p = 0.000), itching (B = 2.555, p = 0.01), residence (B = 2.545, p = 0.029), and age (B = 0.074, p = 0.037). The stigma level of patients with visible burns increased with increasing uncertainty regarding illness. Therefore, reducing the patients' uncertainty in illness is a way to intervene in stigma.


Asunto(s)
Quemaduras , Cicatriz , Estigma Social , Adulto , Cicatriz/psicología , Estudios Transversales , Humanos , Encuestas y Cuestionarios , Incertidumbre
10.
Plast Reconstr Surg ; 148(1): 203-212, 2021 Jul 01.
Artículo en Inglés | MEDLINE | ID: mdl-34076625

RESUMEN

BACKGROUND: Scar revisions have been increasing in number. Patient-reported outcome measures are one tool to aid scar modulation decision-making. The aims of this study were to determine patient, scar, and clinical risk factors for (1) low SCAR-Q Appearance, Symptom, and Psychosocial Impact scores and how this differs for children; and (2) the potential need for future scar revision surgery to better identify such patients in a clinical setting. METHODS: A multicenter international cross-sectional cohort study based on survey data of participants with traumatic, surgical, and burn scars attending plastic, hand, and burn clinics in four countries was conducted following the Strengthening the Reporting of Observational Studies in Epidemiology checklist. Univariate analysis to identify risk factors and multivariable logistic analysis to select risk factors were completed. Collinearity for nonindependent factors and C statistic for model discrimination were also calculated. RESULTS: Seven hundred thirty-one participants completed the study booklet, and 546 participants (74.7 percent) had full data. Independent risk factors were determined to be a bothersome scar and perception of scarring badly for all three scales. Risk factors for self-reporting the need for future surgery included a health condition, scarring badly, scar diagnosis, prior scar revision, and low Psychosocial Impact scores. We did not identify evidence of multicollinearity. C statistics were high (0.81 to 0.84). CONCLUSIONS: This study is the first multicenter international study to examine independent risk factors for low patient-reported outcome measure scores and the potential need for future scar revision surgery. Patients that perceive themselves as scarring badly and having a bothersome scar were at a higher risk of scar appearance concern, an increased symptom burden, and poorer psychosocial impact scores. CLINICAL QUESTION/LEVEL OF EVIDENCE: Risk, III.


Asunto(s)
Quemaduras/complicaciones , Cicatriz/diagnóstico , Medición de Resultados Informados por el Paciente , Complicaciones Posoperatorias/diagnóstico , Herida Quirúrgica/complicaciones , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Imagen Corporal , Niño , Cicatriz/etiología , Cicatriz/psicología , Cicatriz/cirugía , Estudios Transversales , Estética , Femenino , Humanos , Masculino , Persona de Mediana Edad , Complicaciones Posoperatorias/etiología , Complicaciones Posoperatorias/psicología , Complicaciones Posoperatorias/cirugía , Pronóstico , Reoperación/estadística & datos numéricos , Índice de Severidad de la Enfermedad , Adulto Joven
11.
Medicine (Baltimore) ; 100(23): e26187, 2021 Jun 11.
Artículo en Inglés | MEDLINE | ID: mdl-34115002

RESUMEN

ABSTRACT: Cosmetic appearance is a major concern for living donors. However, little is known about the impact of a surgical scar on body image changes in living liver donors. The aim of this study was to identify potential factors that cause displeasing upper midline incision scar, and to evaluate the overall satisfaction regarding body image and scarring after living donor hepatectomy.Donors who underwent right lobe hepatectomy were recruited. Exclusion criteria included reoperation, refusal to participate, and lost follow-up. All donors were invited to complete the Vancouver Scar Scale (VSS) and the body image questionnaire. According to the VSS results of upper midline incision scar, donors were divided into 2 groups: good scarring group (VSS ≤4) and bad scarring group (VSS >4). we compared the clinical outcomes, including the demographics, preoperation, intraoperation, and postoperation variables. The study also analyzed the results of the body image questionnaire.The proportion of male donors was 48.9%. The bad scarring group consisted of 63% of the donors. On multivariate analysis, being a male donor was found to be an independent predictor of a cosmetically displeasing upper midline incision scar with statistical significance. The results of body image questionnaires, there were significant differences in cosmetic score and confidence score among the 2 groups.The upper midline incision and male donors have higher rates of scarring in comparison with the transverse incision and female donors. Donors who reported having a higher satisfaction with their scar appearance usually had more self-confidence. However, the body image won't be affected. Medical staff should encourage donors to take active participation in wound care and continuously observe the impact of surgical scars on psychological changes in living liver donors.


Asunto(s)
Cicatriz/etiología , Trasplante de Hígado/efectos adversos , Satisfacción del Paciente , Herida Quirúrgica/complicaciones , Donantes de Tejidos/psicología , Adulto , Imagen Corporal/psicología , Distribución de Chi-Cuadrado , Cicatriz/psicología , Estudios Transversales , Femenino , Humanos , Trasplante de Hígado/psicología , Trasplante de Hígado/normas , Donadores Vivos/psicología , Donadores Vivos/estadística & datos numéricos , Masculino , Persona de Mediana Edad , Complicaciones Posoperatorias/etiología , Complicaciones Posoperatorias/psicología , Psicometría/instrumentación , Psicometría/métodos , Herida Quirúrgica/psicología , Encuestas y Cuestionarios , Donantes de Tejidos/estadística & datos numéricos
12.
Cancer Med ; 10(6): 1989-2002, 2021 03.
Artículo en Inglés | MEDLINE | ID: mdl-33638269

RESUMEN

OBJECTIVE: Papillary thyroid microcarcinoma (PTMC) has a good prognosis and a long survival time, surgery is the common treatment including total thyroidectomy (TT) and unilateral lobectomy (LT), but recent studies showed that TT does not show an advantage over LT for PTMC in preventing cancer recurrence and reducing mortality. Given this, the health-related quality of life (HRQoL) has become one of the important factors that physicians must consider when making treatment decisions. The aim of this study was to compare the HRQoL of patients between undergoing TT and LT. METHODS: From October 2019 to December 2019, 69 PTMC patients were enrolled in our study, including 34 in the LT group and 35 in the TT group, respectively. We used three questionnaires which included the 36-item short-form health survey (SF-36), thyroid cancer-specific quality of life (THYCA-QOL), and Fear of Progression Questionnaire-Short Form (FoP-Q-SF) for each patient to evaluate their scores of HRQoL. RESULTS: According to the SF-36, the scores of the domain for the role limitation due to physical problems, emotional problems, and social function (RP, RE, and SF) as well as Physical Component Summary (PCS) and Mental Component Summary (MCS) showed a significant negative linear association between the LT group and TT group: RP (coefficient [coef]: -33.953 [confidence interval (CI) -51.187 to -16.720], p < 0.001, RE (coef: -21.633 [CI -39.500 to -3.766], p = 0.018), SF (coef: -10.169 [CI -19.586 to -0.752], p = 0.035)and PCS (coef: -10.571 [CI -17.768 to -3.373], p = 0.005), MCS (coef: -10.694 [CI -19.465 to -1.923], p = 0.018). The THYCA-QOL showed that the scores of the TT group were higher than that of the LT group in the problem of scar (coef: 16.245 [CI 1.697 to 30.794], p = 0.029 according to the multivariate analysis), suggesting a higher level of complaint in the TT group. There was no statistically significant difference in the scores of FoP-Q-SF between the two groups. CONCLUSIONS: In patients with PTMC, LT offers an advantage over TT in terms of HRQoL, which supports the role of LT as an alternative strategy to TT.


Asunto(s)
Carcinoma Papilar/cirugía , Calidad de Vida , Glándula Tiroides/cirugía , Neoplasias de la Tiroides/cirugía , Tiroidectomía/métodos , Adulto , Factores de Edad , Carcinoma Papilar/mortalidad , Carcinoma Papilar/psicología , Cicatriz/psicología , Toma de Decisiones Clínicas , Intervalos de Confianza , Estudios Transversales , Progresión de la Enfermedad , Femenino , Estudios de Seguimiento , Encuestas Epidemiológicas , Humanos , Masculino , Trastornos Mentales , Disección del Cuello , Recurrencia Local de Neoplasia/mortalidad , Recurrencia Local de Neoplasia/prevención & control , Rendimiento Físico Funcional , Interacción Social , Neoplasias de la Tiroides/mortalidad , Neoplasias de la Tiroides/psicología , Tiroidectomía/psicología
13.
Arch Dermatol Res ; 313(10): 847-853, 2021 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-33515277

RESUMEN

Patient expectations of the scar after Mohs micrographic surgery (MMS) are often not realistic, leading to subsequent psychosocial sequelae such as anxiety, depression, and avoidance of social situations. When patient expectations are not met, this may also contribute to a decrease in patient satisfaction after surgery. Therefore, altering expectation levels may change patient satisfaction and psychosocial distress levels after surgery. To assess whether patient satisfaction improves in patients after MMS when patients view the surgical defect prior to reconstruction. Patients undergoing facial MMS between December 2017 and September 2019 were included. Patients received or did not receive a mirror after MMS to view the surgical defect before closing the defect. Patients were asked to complete the Dutch FACE-Q Skin Cancer before, one-week, three-months, and one-year after MMS. A total of 113 patients where included. One-hundred-eight (95.6%), 113 (100%), and 93 (82.3%) questionnaires were completed, one-week, three-months, and one-year follow-up, respectively. Satisfaction with facial appearance and appraisal of scars significantly improved over time for all patients, no such improvement was seen for appearance-related distress. Female patients who looked in the mirror had higher satisfaction with facial appearance than female patients who did not look in the mirror. Also, lower appearance-related distress scores were seen in patients who looked in the mirror prior to a flap reconstruction. Showing the defect in the mirror prior to the reconstruction may result in higher patient satisfaction in female patients and patients before undergoing a flap reconstruction.


Asunto(s)
Cicatriz/psicología , Cirugía de Mohs/efectos adversos , Procedimientos de Cirugía Plástica/psicología , Neoplasias Cutáneas/cirugía , Herida Quirúrgica/psicología , Anciano , Anciano de 80 o más Años , Cicatriz/diagnóstico , Cicatriz/etiología , Estética , Cara , Femenino , Humanos , Masculino , Persona de Mediana Edad , Países Bajos , Satisfacción del Paciente , Procedimientos de Cirugía Plástica/efectos adversos , Índice de Severidad de la Enfermedad , Colgajos Quirúrgicos/trasplante , Herida Quirúrgica/cirugía
14.
Burns ; 47(1): 190-197, 2021 02.
Artículo en Inglés | MEDLINE | ID: mdl-32713827

RESUMEN

BACKGROUND: Paediatric patients with scars after burn are regularly encountered. Discussion of rational strategies for management are of value. The objective of the study was to describe development and utilisation of strategies for paediatric burn scars up to five years after injury. METHODS: We included 164 cases aged from 5 to 8 years old in our study; all had burn scar deformities. RESULTS: Assessments were made up to December 31, 2019. The following strategies were used: sequential treatment, reconstruction based on facial aesthetic units, predicting the effect of surgery on development, releasing skin tension and application of photoelectric technology or other non-surgical measures. CONCLUSIONS: Using rational strategies for paediatric burn scars is very important.


Asunto(s)
Quemaduras/psicología , Cicatriz/terapia , Examen Físico/métodos , Quemaduras/complicaciones , Niño , Preescolar , Cicatriz/etiología , Cicatriz/psicología , Femenino , Humanos , Masculino , Sobrevivientes/psicología , Sobrevivientes/estadística & datos numéricos
15.
Transplantation ; 105(5): 1039-1043, 2021 05 01.
Artículo en Inglés | MEDLINE | ID: mdl-32467480

RESUMEN

BACKGROUND: Scarring can greatly impact quality of life for individuals (ie, causing depression posttraumatic stress disorder and body image issues). Those who wish to be anonymous live liver donors are warned of the potential negative psychological impacts associated with the large scar left from liver donation surgery. Given the unique degree of autonomy that these patients have over their surgery, we explore whether a sample of 26 anonymous live liver donors experience a unique relationship with their scar. METHODS: Anonymous donors participated in a semistructured qualitative interview examining their experience with donation. Interviews were audio-recorded, transcribed, and analyzed using the constant comparison method for themes pertaining, to participants' perception of their scar. RESULTS: Five main themes were identified-a marker of satisfaction about the donation experience, a physical reminder of donation, a trigger for recipient-related thoughts, an awareness tool, and a potential threat to anonymity. Donors did not voice any body image or cosmetic concerns due to their scars. Instead, discussions about the negative aspects of scarring centered around the identifying nature of their scar. CONCLUSIONS: These findings help underscore the distinctiveness of anonymous living liver donors as a patient population. Preparing anonymous living liver donors for different types of cosmetic issues relating to their scar (ie, as a possible threat to their desired anonymity) may be more appropriate than preparing them in the same way as other donor populations.


Asunto(s)
Cicatriz/psicología , Hepatectomía/efectos adversos , Trasplante de Hígado/efectos adversos , Donadores Vivos/psicología , Privacidad , Adaptación Psicológica , Adolescente , Adulto , Altruismo , Cicatriz/etiología , Cicatriz/patología , Femenino , Humanos , Entrevistas como Asunto , Masculino , Persona de Mediana Edad , Autonomía Personal , Satisfacción Personal , Investigación Cualitativa , Adulto Joven
16.
Burns ; 47(4): 953-960, 2021 06.
Artículo en Inglés | MEDLINE | ID: mdl-33139075

RESUMEN

PURPOSE: To translate and culturally adapt the Patient and Observer Scar Assessment Scale, POSAS, to Norwegian and explore its test-retest, intra- and inter-tester reliability. METHODS: POSAS was translated into Norwegian following international guidelines in collaboration with an international translation bureau. Twenty-six adults and 24 children were recruited from a burns outpatient clinic. Three observer-categories: doctor, nurse and physiotherapist, assessed the patients' scars and scored the Observer scale for estimating inter-tester reliability. Photos of the scars were taken and used to score the Observer scale a second time for examining intra-tester reliability. The patients or parents/next of kin rated their scar on the Patient scale at the clinic and after two days at home for examining test-retest reliability. Intraclass correlation (ICC) and Kappa were used for statistical analysis. RESULTS: A Norwegian version of POSAS (POSAS-NV) was developed. Inter-tester ICC of the Observer parameters varied between 0.203 and 0.728, and for the total sum score, ICC=0.528 (0.280-0.708). Intra-tester ICC of the Observer scale ranged between 0.575 and 0.858. The Patient scale demonstrated high test-retest reliability. CONCLUSIONS: Intra-tester reliability of the Observer scale and test-retest reliability of the Patient scale of POSAS-NV were found satisfactory, but not inter-tester reliability of the Observer scale.


Asunto(s)
Cicatriz/clasificación , Examen Físico/métodos , Adulto , Imagen Corporal/psicología , Quemaduras/complicaciones , Cicatriz/psicología , Femenino , Humanos , Masculino , Persona de Mediana Edad , Noruega , Examen Físico/normas , Reproducibilidad de los Resultados , Traducción
17.
Burns ; 47(5): 1153-1160, 2021 08.
Artículo en Inglés | MEDLINE | ID: mdl-33277095

RESUMEN

AIM: To compare the quality of life and psychological impact of cases of facial burn scar between male and female patients. STUDY TYPE: An observational cross sectional study done in a tertiary care university level teaching hospital, on a hospital based sample over a period ranging from January 2018 to July 2019. METHODOLOGY: The study was carried out on 32 patients of facial burn scar, who were screened for psychiatric diagnoses by MINI International Neuropsychiatric Interview; severity of depression and anxiety assessed by HDRS and HAM A; assessed for QoL and scar ratings of both patient and observer. QoL was assessed using the WHO QOL BREF questionnaire. The scar assessment was done with the help of POSAS by interviewing the patient and examination of the scar. RESULTS: None of other socio-demographic variables patient showed any significant association with the number of psychiatric diagnoses of the patient or QoL domains; barring years of schooling, which had a significant positive correlation with the psychological domain score of QoL. Being male or female also did not show any significant differences with the anxiety or depression severity. No burn or scar related variable could reach significant association, except scar itching, stiffness scores of POSAS P and overall scar opinion score of POSAS O, with the number of psychiatric diagnoses of the patient. Extent of scar had significant negative associations with the physical and psychological domains of QoL. Significant negative correlations were found between scar variables like stiffness, pigmentation, relief, pliability, and overall opinion and QoL domain scores. The total observer score of POSAS and the overall opinion of observer had much stronger negative correlation than the patient score; the latter having a significant association with the depression severity as well. CONCLUSION: No statistically significant gender difference in QoL and psychological impact of patients with facial burn scar were found. However educational level was found to positively influence the psychological well-being of the patients; whereas scar extent was found to negatively affect the physical and psychological domains of QoL.


Asunto(s)
Quemaduras/psicología , Cicatriz/psicología , Traumatismos Faciales/psicología , Factores Sexuales , Quemaduras/complicaciones , Cicatriz/etiología , Estudios Transversales , Traumatismos Faciales/etiología , Femenino , Hospitales Universitarios , Humanos , Masculino , Calidad de Vida , Centros de Atención Terciaria
18.
PLoS Negl Trop Dis ; 14(10): e0008759, 2020 10.
Artículo en Inglés | MEDLINE | ID: mdl-33095776

RESUMEN

Cutaneous leishmaniasis (CL) is a chronic skin infection caused by Leishmania parasites, causing single or multiple skin nodules and ulcers on the exposed body locations. Healing of lesions is followed by scar formation. Active and healed CL lesions may affect patient's health related quality of life (HRQL). The aim of this study was to determine whether the body location of the leishmaniasis lesions affects the HRQL of localized CL patients in Suriname. The HRQL of 163 patients with CL was assessed by Skindex-29 and EQ-5D/VAS questionnaires. Forty-six patients out of the total study population also participated in a qualitative anthropological study involving in depth interviews. All patients were allocated in 4 groups in the following hierarchy: head and face, upper limbs, lower limbs and trunk. Patients with lesions on the lower limbs had significantly higher Skindex-29 scores, indicating worse HRQL, in the symptom scale compared to lesions on head/face and trunk. The lower limb group was more likely to report problems in the dimensions self-care, mobility, daily activities and pain/discomfort of the EQ-5D. Little to no social stigma was reported in the in-depth interviews. The findings of this study indicate that Surinamese patients with CL lesions located on the lower limbs had more impairment in HRQL than on other body locations. Stigma related to CL seems to be virtually absent in Suriname.


Asunto(s)
Cicatriz/psicología , Leishmaniasis Cutánea/psicología , Calidad de Vida , Piel/patología , Estigma Social , Adulto , Antropología Cultural , Femenino , Humanos , Entrevistas como Asunto , Leishmaniasis Cutánea/complicaciones , Masculino , Investigación Cualitativa , Calidad de Vida/psicología , Suriname/epidemiología , Encuestas y Cuestionarios , Adulto Joven
19.
Ann R Coll Surg Engl ; 102(9): 737-743, 2020 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-32820638

RESUMEN

INTRODUCTION: Open thyroidectomy is the most common approach to thyroid surgery. However, 'scarless' (in the neck) endoscopic thyroidectomy, consisting of endoscopic and robotic surgery, is progressively being adopted for its perceived cosmetic benefits. This study aims to determine the patient's preferred surgical approach and to identify the factors that influence their decision. MATERIALS AND METHODS: A pilot study consisting of 100 patients with a surgical thyroid disorder were prospectively recruited from a single tertiary centre. An interviewer-administered survey was conducted. Demographic, socioeconomic status, scar perception and an adapted body image scale were evaluated to identify factors that shaped the patient's perception of the surgical approach. RESULTS: The mean age of participants was 54.5 ± 13.0 years; 72% were women and 87% Chinese. Of the 100 patients, 75 patients considered scarless endoscopic thyroidectomy as their preferred surgical approach while 25 patients opted for open thyroid surgery. Improvement in scar perception score between scarless endoscopic thyroidectomy and open thyroid surgery is associated with an increased willingness to choose scarless endoscopic thyroidectomy. The mean body image scale score was 6.9 ± 2.8, indicating no statistical difference between the surgical approaches. On multivariate analysis, improvement in scar perception score (odds ratio 3.38, 95% confidence interval 1.11-10.29) and having surgeon recommendation (odds ratio 6.38, 95% confidence interval 1.80-22.63) were independently associated with interest in scarless endoscopic thyroidectomy. CONCLUSION: Patients interest in undergoing scarless endoscopic thyroidectomy is driven by improved scar perception and surgeon's recommendation compared with open thyroid surgery.


Asunto(s)
Cicatriz/etiología , Endoscopía/efectos adversos , Prioridad del Paciente/estadística & datos numéricos , Tiroidectomía/efectos adversos , Actitud Frente a la Salud , Cicatriz/prevención & control , Cicatriz/psicología , Estudios Transversales , Endoscopía/métodos , Femenino , Humanos , Masculino , Persona de Mediana Edad , Prioridad del Paciente/psicología , Proyectos Piloto , Estudios Prospectivos , Encuestas y Cuestionarios , Enfermedades de la Tiroides/cirugía , Tiroidectomía/métodos
20.
Surg Today ; 50(12): 1626-1632, 2020 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-32507906

RESUMEN

PURPOSE: A drain tube is commonly inserted during breast reconstruction surgery. This leads to a scar in addition to the scar on the breast. This study was performed to investigate how patients feel about the drain scar and to clarify its ideal location. METHODS: A questionnaire survey about the drain scar was distributed to 38 consecutive breast reconstruction patients and a total of 104 female doctors and nurses engaged in breast reconstruction. The drain scars were evaluated using the Japan Scar Workshop (JSW) Scar Scale. RESULTS: A total of 32% of the patients expressed some anxiety about the drain scar. Patients who were anxious about the drain scar had higher scores on the JSW Scar Scale than those who were not anxious. Younger doctors and nurses preferred the drain scar to be on the side of the chest, while older doctors and nurses preferred the drain scars to be at the axilla. CONCLUSIONS: About a third of the patients had some anxiety associated with their drain scar after breast reconstruction surgery, and this anxiety level was correlated with objective assessment of the scar. Thus, more patient involvement or the provision of more information regarding drain placement is required.


Asunto(s)
Ansiedad , Mama/cirugía , Cicatriz/etiología , Cicatriz/psicología , Drenaje/efectos adversos , Drenaje/psicología , Cuidados Intraoperatorios/instrumentación , Cuidados Intraoperatorios/psicología , Intubación/métodos , Intubación/psicología , Evaluación del Resultado de la Atención al Paciente , Participación del Paciente , Pacientes/psicología , Procedimientos de Cirugía Plástica/instrumentación , Procedimientos de Cirugía Plástica/psicología , Encuestas y Cuestionarios , Adulto , Factores de Edad , Anciano , Cicatriz/prevención & control , Drenaje/instrumentación , Drenaje/métodos , Femenino , Humanos , Cuidados Intraoperatorios/métodos , Japón , Persona de Mediana Edad , Enfermeras y Enfermeros/psicología , Médicos/psicología , Procedimientos de Cirugía Plástica/métodos
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