The Implementation of Federated Digital Identifiers in Health Care: Rapid Review.

BACKGROUND: Federated digital identifiers (FDIs) have been cited to improve the interoperability of data and information management while enhancing the privacy of individuals verifying their identity on the web. Many countries around the world have implemented FDIs in various sectors, such as banking and government. Similarly, FDIs could improve the experience for those wanting to access their health care information; however, they have only been introduced in a few jurisdictions around the world, and their impact remains unclear. OBJECTIVE: The main objective of this environmental scan was to describe how FDIs have been established and implemented to enable patients' access to health care. METHODS: We conducted this study in 2 stages, with the primary stage being a rapid review, which was supplemented by a targeted gray literature search. Specifically, the rapid review was conducted through a database search of MEDLINE and Embase, which generated a list of countries and their services that use FDIs in health care. This list was then used to conduct a targeted gray literature search using the Google search engine. RESULTS: A total of 93 references from the database and targeted Google searches were included in this rapid review. FDIs were implemented in health care in 11 countries (Australia, Belgium, Canada, Denmark, Estonia, Finland, Iceland, Norway, Singapore, Sweden, and Taiwan) and exclusively used with a patient-accessible electronic health record system through a single sign-on interface. The most common FDIs were implemented nationally or provincially, and establishing them usually required individuals to visit a bank or government office in person. In contrast, some countries, such as Australia, allow individuals to verify their identities entirely on the web. We found that despite the potential of FDIs for use in health care to facilitate the amalgamation of health information from different data sources into one platform, the adoption of most health care services that use FDIs remained below 30%. The exception to this was Australia, which had an adoption rate of 90%, which could be correlated with the fact that it leveraged an opt-out consent model. CONCLUSIONS: This rapid review highlights key features of FDIs across regions and elements associated with higher adoption of the patient-accessible electronic health record systems that use them, like opt-out registration. Although FDIs have been reported to facilitate the collation of data from multiple sources through a single sign-on interface, there is little information on their impact on care or patient experience. If FDIs are used to their fullest potential and implemented across sectors, adoption rates within health care may also improve.

La otra cara de la información: la desinformación y la información imprecisa como retos para la gestión de la información institucional / The other side of information: misinformation and inaccurate information as challenges to institutional information management

Este trabajo pretendió abordar un problema muy actual de los sistemas de información relativo a la calidad de la información, principalmente en sus manifestaciones de desinformación y de información imprecisa, así como lo relativo a los vacíos de información. Se realizó una conceptualización de estas manifestaciones a partir de un análisis documental, tomando el criterio de autores contemporáneos de gran relevancia. Se consideraron algunos atributos de estas manifestaciones y el modelo de Karlova-Fisher relativo a su difusión social. Se valoraron las características de estas manifestaciones y el efecto que puede provocar en la toma de decisiones, así como en el manejo de la información en las instituciones. Se concluye con los retos que estas constituyen para la gestión de información institucional, entre los que se incluyen, por su importancia, algunos ajustes en la alfabetización informacional(AU)

The purpose of the study was to address a very current problem faced by information systems which has to do with information quality, mainly as manifested by misinformation and inaccurate information, and information gaps. Conceptualization of these manifestations was based on document analysis, taking into account the opinions of contemporary authors of great relevance. Some attributes of these manifestations were considered, as well as their social diffusion following the Karlova-Fisher model. An evaluation was conducted of the characteristics of the manifestations and their potential effect on decision making and information management at institutions. An analysis was also performed of the challenges posed by these manifestations to institutional information management, including, due to their importance, some adjustments to information literacy(AU)

Propuesta de observatorio sobre formación profesional en Ciencias de la Información para Iberoamérica y El Caribe / Observatory proposal on professional training in information sciences for Ibero-America and the Caribbean

Objetivo: proponer la estructura conceptual y funcional del observatorio sobre formación profesional en ciencias de la información para Iberoamérica y El Caribe, como un instrumento para la gestión de la información que puede aportar datos útiles de apoyo a las escuelas y a los programas de Bibliotecología, Archivística y Ciencia de la Información. Métodos: se realizó una revisión y la comparación de fundamentos conceptuales, características y funciones de los observatorios, concebidos como herramientas para la gestión y la investigación sobre aspectos formativos del campo, los cuales también permiten realizar actividades de vigilancia, seguimiento y monitoreo de procesos, actores y productos sobre diversas temáticas de interés y dimensiones del desarrollo académico, social, cultural y tecnológico. Igualmente, se compararon los objetivos, la estructura y la tipología de la información que se gestiona desde este tipo de instrumentos, apoyados en la tecnología y en los procesos analíticos para proyectar escenarios. Resultados: los principales resultados de la revisión y comparación de conceptos y características revelan que el observatorio se define como instrumento que permite soportar las decisiones estratégicas en cualquier ámbito del quehacer científico y tecnológico, al ofrecer información significativa y relevante, debidamente organizada y sistematizada. Se propone que el observatorio sobre formación profesional en Ciencias de la Información sea estructurado a partir de cuatro componentes de la observación: el currículo, la formación de los docentes, la investigación-desarrollo, la extensión, la responsabilidad social universitaria y la educación continua. Conclusión: se destaca la alta potencialidad que tendría el observatorio sobre formación profesional en Ciencias de la Información para Iberoamérica y El Caribe, como base de los procesos de cooperación académica y de conformación de redes de conocimiento en el área(AU)

Objective: to propose a conceptual and functional structure of the observatory on professional training in information sciences for Ibero-America and the Caribbean, as an instrument for the management of information that can provide useful data to support the Schools and Programs of Library Science, Archives and Information Science. Methods: a review and comparison of the conceptual foundations, characteristics and functions of the observatories was carried out, conceived as tools for management and research on training aspects of the field, which also allow monitoring, monitoring and monitoring of processes, actors and products on various topics of interest and dimensions of academic, social, cultural and technological development. Likewise, the objectives, structure and typology of the information that is managed from this type of instruments were compared, supported by technology and analytical processes to project scenarios. Results: the main results of the review and comparison of concepts and characteristics reveal that the observatory is defined as an instrument that supports strategic decisions in any field of scientific and technological work, by offering significant and relevant information, duly organized and systematized. It is proposed that the observatory on professional training in information science be structured around four components of observation: the curriculum, teacher training, research-development, extension, university social responsibility and continuing education. Conclusions: this proposal highlights the high potential that the Observatory on professional training in information sciences for Ibero-America and the Caribbean would have, as a basis for academic cooperation processes and the formation of knowledge networks in the area(AU)

Propuesta de observatorio sobre formación profesional en Ciencias de la Información para Iberoamérica y El Caribe / Observatory proposal on professional training in information sciences for Ibero-America and the Caribbean

Objetivo: proponer la estructura conceptual y funcional del observatorio sobre formación profesional en ciencias de la información para Iberoamérica y El Caribe, como un instrumento para la gestión de la información que puede aportar datos útiles de apoyo a las escuelas y a los programas de Bibliotecología, Archivística y Ciencia de la Información. Métodos: se realizó una revisión y la comparación de fundamentos conceptuales, características y funciones de los observatorios, concebidos como herramientas para la gestión y la investigación sobre aspectos formativos del campo, los cuales también permiten realizar actividades de vigilancia, seguimiento y monitoreo de procesos, actores y productos sobre diversas temáticas de interés y dimensiones del desarrollo académico, social, cultural y tecnológico. Igualmente, se compararon los objetivos, la estructura y la tipología de la información que se gestiona desde este tipo de instrumentos, apoyados en la tecnología y en los procesos analíticos para proyectar escenarios. Resultados: los principales resultados de la revisión y comparación de conceptos y características revelan que el observatorio se define como instrumento que permite soportar las decisiones estratégicas en cualquier ámbito del quehacer científico y tecnológico, al ofrecer información significativa y relevante, debidamente organizada y sistematizada. Se propone que el observatorio sobre formación profesional en Ciencias de la Información sea estructurado a partir de cuatro componentes de la observación: el currículo, la formación de los docentes, la investigación-desarrollo, la extensión, la responsabilidad social universitaria y la educación continua. Conclusión: se destaca la alta potencialidad que tendría el observatorio sobre formación profesional en Ciencias de la Información para Iberoamérica y El Caribe, como base de los procesos de cooperación académica y de conformación de redes de conocimiento en el área(AU)

Objective: to propose a conceptual and functional structure of the observatory on professional training in information sciences for Ibero-America and the Caribbean, as an instrument for the management of information that can provide useful data to support the Schools and Programs of Library Science, Archives and Information Science. Methods: a review and comparison of the conceptual foundations, characteristics and functions of the observatories was carried out, conceived as tools for management and research on training aspects of the field, which also allow monitoring, monitoring and monitoring of processes, actors and products on various topics of interest and dimensions of academic, social, cultural and technological development. Likewise, the objectives, structure and typology of the information that is managed from this type of instruments were compared, supported by technology and analytical processes to project scenarios. Results: the main results of the review and comparison of concepts and characteristics reveal that the observatory is defined as an instrument that supports strategic decisions in any field of scientific and technological work, by offering significant and relevant information, duly organized and systematized. It is proposed that the observatory on professional training in information science be structured around four components of observation: the curriculum, teacher training, research-development, extension, university social responsibility and continuing education. Conclusions: this proposal highlights the high potential that the Observatory on professional training in information sciences for Ibero-America and the Caribbean would have, as a basis for academic cooperation processes and the formation of knowledge networks in the area(AU)

Ten years of reviews.

The March 2017 issue of the Health Information and Libraries Journal marks the 10 year anniversary of the inaugural review published in the journal's review series. The review series was conceived to meet the growing appetite of health library and information workers to access synthesised evidence to inform their practice; something we'd already been doing to support medics in their practice. This editorial looks back on the 10 years and the inspiration which saw the development of a typology of review types and associated methodologies to address the lack of consistent guidelines on the features a review should incorporate.

¿Cómo responder a nuestras preguntas de investigación de forma específica y no morir en el intento? Parte I / How to respond to our questions of research specifically and not die in the attempt? Part I

No disponible

Governance strategies for living technologies: bridging the gap between stimulating and regulating technoscience.

The life sciences present a politically and ethically sensitive area of technology development. NBIC convergence-the convergence of nanotechnology, biotechnology, and information and cognitive technology-presents an increased interaction between the biological and physical sciences. As a result the bio-debate is no longer dominated by biotechnology, but driven by NBIC convergence. NBIC convergence enables two bioengineering megatrends: "biology becoming technology" and "technology becoming biology." The notion of living technologies captures the latter megatrend. Accordingly, living technology presents a politically and ethically sensitive area. This implies that governments sooner or later are faced with the challenge of both promoting and regulating the development of living technology. This article describes four current political models to deal with innovation promotion and risk regulation. Based on two specific developments in the field of living technologies-(psycho)physiological computing and synthetic biology-we reflect on appropriate governance strategies for living technologies. We conclude that recent pleas for anticipatory and deliberative governance tend to neglect the need for anticipatory regulation as a key factor in guiding the development of the life sciences from a societal perspective. In particular, when it is expected that a certain living technology will radically challenge current regulatory systems, one should opt for just such a more active biopolitical approach.

Standard pediatric oncology data and information technology: necessities for cancer care management.

Cancer is the second leading cause of death in children and survivors require life time follow-up. There is a growing recognition of the need to base cancer control policies on accurate, detailed and timely information on cancer management and outcomes. Coordination and central documentation ensure quality of treatment and permit clinical and scientific investigations. The combined data thus obtained create a comprehensive picture of disease, leading to more effective prevention and cure. Medical information can be gathered, processed and analyzed in different ways and the importance of precise language cannot be overestimated. All medical activity arises from the ability to observe and communicate intelligibly and a lack of standardized documentation leads to insufficient integration of clinical work. The Minimal Standard data set is the result of a global effort to establish a common structure and vocabulary for electronic reports. In addition, information technology combines research aspects of decision support and clinical documentation, allowing formal representation of general protocols, calculating of a particular therapy for a patient, data acquisition in the clinics. Our aim in this papers is to stress the need for standard pediatric oncology data and information technology as an approach to cancer care management.

The education of informationists, from the perspective of a library and information sciences educator.

This article explores the background of, and some of the current models for the education of, the individuals known as "informationists." A definition, an historical overview, and a literature review are followed by a description of the current practices in a variety of institutions and organizations. A series of five "case reports" illustrates some of the possible tracks that individuals seeking education as informationists may follow. A proposal for a rigorous planning process is made, followed by a list of recommendations for this planning process.

Science information in the media: an academic approach to improve its intrinsic quality.

The lay audience expresses a clear demand for scientific information, particularly when health and welfare are involved. For most people science is what they learn from the media. The need for good scientific journalism is pressing, to bridge the gap between the slow pace of science and the fast-moving and concise nature of successful mass communication. This academic postgraduate course was established by the Department of Pharmacological Sciences to train mediators to improve the quality of lay scientific dissemination. The programme focuses on teaching a method of selecting, analysing, understanding, mediating and diffusing scientific information to lay people. The course explores the theoretical and practical aspects of methods, techniques and channels of scientific communication. Case studies, practical exercises, and stages complement the theoretical curriculum. The teaching focus is on reducing the asymmetry between scientists and the public. The different backgrounds of students and the spread of topics are major challenges.