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OBJECTIVE: This study was conducted to reveal the relationship between nursing students' disaster response self-efficacy and their disaster preparedness perceptions. METHODS: This cross-sectional study was conducted on nursing students after a major earthquake that occurred in Turkey on February 6, 2023 (n = 302). Data collection took place from June 2023 to October 2023, using the Disaster Response Self-Efficacy Scale (DRSES) and Disaster Preparedness Perception Scale (DPPS). Descriptive statistics, independent samples t-test, correlation, and multiple linear regression analysis were used to analyze the data. RESULTS: Nursing students' DRSES mean score was 63.35 ± 10.83 (moderate level) and DPPS mean score was 3.41 ± 0.50 (high level). A positive and moderate correlation was found between nursing students' DRSES and DPPS scores (r = 0.515; P = 0.000). Predictors affecting nursing students' disaster preparedness are disaster response self-efficacy score, being male, and making a family disaster plan. CONCLUSIONS: The results of this study highlight the importance of increasing the disaster response self-efficacy needed by nursing students to successfully assist patients in disaster situations.
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Terremotos , Autoeficacia , Estudiantes de Enfermería , Humanos , Estudiantes de Enfermería/psicología , Estudiantes de Enfermería/estadística & datos numéricos , Masculino , Estudios Transversales , Turquía , Femenino , Encuestas y Cuestionarios , Terremotos/estadística & datos numéricos , Adulto , Defensa Civil/métodos , Defensa Civil/estadística & datos numéricos , Defensa Civil/normas , Planificación en Desastres/métodos , Psicometría/instrumentación , Psicometría/métodosAsunto(s)
Planificación en Desastres , Servicios de Salud , Mpox , Pandemias , Salud Sexual , Humanos , Gripe Humana/epidemiología , Mpox/epidemiología , Mpox/prevención & control , Pandemias/prevención & control , Vigilancia de Guardia , Salud Sexual/normas , Servicios de Salud/normas , Servicios de Salud Reproductiva/normas , Planificación en Desastres/normas , Creación de Capacidad/normas , Defensa Civil/normasRESUMEN
Introduction: catastrophe is a thoughtful community's well-being problem nowadays. Tragedies of any kind can strike at any time and have claimed many lives. Because, the emergency unit is at the frontline of disaster/emergency response system and helps as initial point to the most proper care of causalities, health professionals who are working in this area are the first caregivers, main players, and upfront role in calamity responses after pre-hospital medical services to disaster victims. The aim of this study was to assess emergency unit health professionals´ knowledge, attitude, practice, and related factors towards disasters and emergency preparedness at hospitals in the South Gondar Zone, Ethiopia, 2020. Methods: institution-based cross-sectional study with the census method was conducted at South Gondar Zone hospitals. All health professionals working in emergency units of South Gondar Zone hospitals were taken as a sample. A structured self-administered questionnaire was used to collect data. EPI-data version 4.2 and SPSS version 25 were used to enter and analyze data, respectively. The result was presented by narration, tables, and charts. Binary logistic regression was employed to determine the relations between dependent and independent variables. Results: the majority of the respondents (58.3%) were male. Regarding their profession, 52.2% were nurses, followed by physicians, 18.5%, while the rest were others. The mean age of the respondents was 29.48 ± 6.34 years. A substantial proportion (58.9%) of the study participants didn´t know whether their hospitals had a disaster management plan or not. In general, fifty-one-point seven percent´s (51.7%) of the study participants had poor knowledge toward disaster/emergency preparedness. Concerning their attitude, 55.0% had a negative attitude toward disaster preparedness. Regarding their levels of practice, 67.5% had inadequate practice disaster/emergency preparedness. Age category and profession of the respondents had a significant effect on the knowledge and attitude of respondents at P-value 0.05. Conclusion: more than half of the study participants had poor knowledge, negative attitudes, and inadequate practice about disaster/emergency preparedness.
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Actitud del Personal de Salud , Defensa Civil , Planificación en Desastres , Servicio de Urgencia en Hospital , Conocimientos, Actitudes y Práctica en Salud , Adulto , Defensa Civil/normas , Defensa Civil/estadística & datos numéricos , Estudios Transversales , Planificación en Desastres/normas , Planificación en Desastres/estadística & datos numéricos , Servicio de Urgencia en Hospital/normas , Servicio de Urgencia en Hospital/estadística & datos numéricos , Etiopía/epidemiología , Femenino , Humanos , Masculino , Encuestas y Cuestionarios , Adulto JovenRESUMEN
An expert in disaster nursing discusses COVID-19, Hurricane Maria, and emergency preparedness.
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COVID-19/enfermería , Defensa Civil/normas , Medicina de Desastres/organización & administración , Enfermería/organización & administración , COVID-19/epidemiología , Tormentas Ciclónicas , Historia del Siglo XXI , Humanos , Pandemias , Puerto Rico/epidemiología , SARS-CoV-2RESUMEN
BACKGROUND: Faced with possible shortages due to COVID-19, many states updated or rapidly developed crisis standards of care (CSCs) and other pandemic preparedness plans (PPPs) for rationing resources, particularly ventilators. RESEARCH QUESTION: How have US states incorporated the controversial standard of rationing by age and/or life-years into their pandemic preparedness plans? STUDY DESIGN AND METHODS: This was an investigator-initiated, textual analysis conducted from April to June 2020, querying online resources and in-state contacts to identify PPPs published by each of the 50 states and for Washington, DC. Analysis included the most recent versions of CSC documents and official state PPPs containing triage guidance as of June 2020. Plans were categorized as rationing by (A) short-term survival (≤ 1 year), (B) 1 to 5 expected life-years, (C) total life-years, (D) "fair innings," that is, specific age cutoffs, or (O) other. The primary measure was any use of age and/or life-years. Plans were further categorized on the basis of whether age/life-years was a primary consideration. RESULTS: Thirty-five states promulgated PPPs addressing the rationing of critical care resources. Seven states considered short-term prognosis, seven considered whether a patient had 1 to 5 expected life-years, 13 rationed by total life-years, and one used the fair innings principle. Seven states provided only general ethical considerations. Seventeen of the 21 plans considering age/life-years made it a primary consideration. Several plans borrowed heavily from a few common sources, although use of terminology was inconsistent. Many documents were modified in light of controversy. INTERPRETATION: Guidance with respect to rationing by age and/or life-years varied widely. More than one-half of PPPs, many following a few common models, included age/life-years as an explicit rationing criterion; the majority of these made it a primary consideration. Terminology was often vague, and many plans evolved in response to pushback. These findings have ethical implications for the care of older adults and other vulnerable populations during a pandemic.
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COVID-19 , Defensa Civil/normas , Gestión de Recursos de Personal en Salud , Cuidados Críticos , Asignación de Recursos para la Atención de Salud/normas , Nivel de Atención/organización & administración , Triaje , Anciano , COVID-19/epidemiología , COVID-19/terapia , Gestión de Recursos de Personal en Salud/ética , Gestión de Recursos de Personal en Salud/métodos , Gestión de Recursos de Personal en Salud/organización & administración , Cuidados Críticos/ética , Cuidados Críticos/organización & administración , Cuidados Críticos/normas , Humanos , SARS-CoV-2 , Capacidad de Reacción/normas , Triaje/ética , Triaje/organización & administración , Triaje/normas , Estados Unidos/epidemiología , Poblaciones VulnerablesAsunto(s)
Defensa Civil , Control de Enfermedades Transmisibles , Pandemias/prevención & control , Complicaciones Infecciosas del Embarazo , Salud Pública , COVID-19/epidemiología , COVID-19/prevención & control , Defensa Civil/organización & administración , Defensa Civil/normas , Cambio Climático , Control de Enfermedades Transmisibles/métodos , Control de Enfermedades Transmisibles/organización & administración , Control de Enfermedades Transmisibles/tendencias , Enfermedades Transmisibles Emergentes/epidemiología , Enfermedades Transmisibles Emergentes/prevención & control , Enfermedades Transmisibles Emergentes/transmisión , Femenino , Necesidades y Demandas de Servicios de Salud , Humanos , Transmisión Vertical de Enfermedad Infecciosa/prevención & control , Embarazo , Complicaciones Infecciosas del Embarazo/epidemiología , Complicaciones Infecciosas del Embarazo/prevención & control , Salud Pública/normas , Salud Pública/tendencias , SARS-CoV-2 , Viaje/tendencias , Enfermedad Relacionada con los ViajesRESUMEN
Failures in preparation and response led to a worsened crisis.
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COVID-19/prevención & control , Medicina Preventiva/normas , Defensa Civil/organización & administración , Defensa Civil/normas , Humanos , Medicina Preventiva/tendencias , Organización Mundial de la Salud/organización & administraciónRESUMEN
Federal and state enforcement authorities have increasingly intervened on the criminal overprescribing of opioids. However, little is known about the health effects these enforcement actions have on patients experiencing disrupted access to prescription opioids or medication-assisted treatment/medication for opioid use disorder. Simultaneously, opioid death rates have increased. In response, the Maryland Department of Health (MDH) has worked to coordinate mitigation strategies with enforcement partners (defined as any federal, state, or local enforcement authority or other governmental investigative authority). One strategy is a standardized protocol to implement emergency response functions, including rapidly identifying health hazards with real-time data access, deploying resources locally, and providing credible messages to partners and the public. From January 2018 through October 2019, MDH used the protocol in response to 12 enforcement actions targeting 34 medical professionals. A total of 9624 patients received Schedule II-V controlled substance prescriptions from affected prescribers under investigation in the 6 months before the respective enforcement action; 9270 (96%) patients were residents of Maryland. Preliminary data indicate fatal overdose events and potential loss of follow-up care among the patient population experiencing disrupted health care as a result of an enforcement action. The success of the strategy hinged on endorsement by leadership; the establishment of federal, state, and local roles and responsibilities; and data sharing. MDH's approach, data sources, and lessons learned may support health departments across the country that are interested in conducting similar activities on the front lines of the opioid crisis.
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Analgésicos Opioides/efectos adversos , Defensa Civil/legislación & jurisprudencia , Defensa Civil/normas , Derecho Penal/tendencias , Prescripciones de Medicamentos/estadística & datos numéricos , Defensa Civil/estadística & datos numéricos , Derecho Penal/legislación & jurisprudencia , Humanos , Maryland , Mal Uso de Medicamentos de Venta con Receta/legislación & jurisprudencia , Mal Uso de Medicamentos de Venta con Receta/estadística & datos numéricosRESUMEN
OBJECTIVE: No case definition exists that allows public health authorities to accurately identify opioid overdoses using emergency medical services (EMS) data. We developed and evaluated a case definition for suspected nonfatal opioid overdoses in EMS data. METHODS: To identify suspected opioid overdose-related EMS runs, in 2019 the Rhode Island Department of Health (RIDOH) developed a case definition using the primary impression, secondary impression, selection of naloxone in the dropdown field for medication given, indication of medication response in a dropdown field, and keyword search of the report narrative. We developed the case definition with input from EMS personnel and validated it using an iterative process of random medical record review. We used naloxone administration in consideration with other factors to avoid misclassification of opioid overdoses. RESULTS: In 2018, naloxone was administered during 2513 EMS runs in Rhode Island, of which 1501 met our case definition of a nonfatal opioid overdose. Based on a review of 400 randomly selected EMS runs in which naloxone was administered, the RIDOH case definition accurately identified 90.0% of opioid overdoses and accurately excluded 83.3% of non-opioid overdose-related EMS runs. Use of the case definition enabled analyses that identified key patterns in overdose locations, people who experienced repeat overdoses, and the creation of hotspot maps to inform outbreak detection and response. PRACTICE IMPLICATIONS: EMS data can be an effective tool for monitoring overdoses in real time and informing public health practice. To accurately identify opioid overdose-related EMS runs, the use of a comprehensive case definition is essential.
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Defensa Civil/normas , Servicios Médicos de Urgencia/estadística & datos numéricos , Sobredosis de Opiáceos/diagnóstico , Factores de Tiempo , Adulto , Defensa Civil/estadística & datos numéricos , Servicios Médicos de Urgencia/métodos , Humanos , Naloxona/uso terapéutico , Antagonistas de Narcóticos/uso terapéutico , Sobredosis de Opiáceos/epidemiología , Rhode IslandAsunto(s)
COVID-19 , Defensa Civil , Control de Enfermedades Transmisibles , Agencias Gubernamentales , Regulación Gubernamental , COVID-19/epidemiología , COVID-19/prevención & control , Defensa Civil/legislación & jurisprudencia , Defensa Civil/organización & administración , Defensa Civil/normas , Control de Enfermedades Transmisibles/legislación & jurisprudencia , Control de Enfermedades Transmisibles/organización & administración , Control de Enfermedades Transmisibles/normas , Agencias Gubernamentales/legislación & jurisprudencia , Agencias Gubernamentales/organización & administración , Agencias Gubernamentales/normas , Humanos , Evaluación de Necesidades , Práctica de Salud Pública/legislación & jurisprudencia , Práctica de Salud Pública/normas , SARS-CoV-2 , Reino Unido/epidemiologíaRESUMEN
Emergency preparedness is a continuous quality improvement process through which roles and responsibilities are defined to effectively anticipate, respond to, and recover from the impact of emergencies. This process results in documented plans that provide a backbone structure for developing the core capacities to address health threats. Nevertheless, several barriers can impair an effective preparedness planning, as it needs a 360° perspective to address each component according to the best evidence and practice. Preparedness planning shares common principles with health technology assessment (HTA) as both encompass a multidisciplinary and multistakeholder approach, follow an iterative cycle, adopt a 360° perspective on the impact of intervention measures, and conclude with decision-making support. Our "Perspective" illustrates how each HTA domain can address different component(s) of a preparedness plan that can indeed be seen as a container of multiple HTAs, which can then be used to populate the entire plan itself. This approach can allow one to overcome preparedness barriers, providing an independent, systematic, and robust tool to address the components and ensuring a comprehensive evaluation of their value in the mitigation of the impact of emergencies.
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Defensa Civil/organización & administración , Planificación en Desastres/organización & administración , Evaluación de la Tecnología Biomédica/organización & administración , Defensa Civil/economía , Defensa Civil/normas , Planificación en Desastres/economía , Planificación en Desastres/normas , Práctica Clínica Basada en la Evidencia/normas , HumanosRESUMEN
BACKGROUND: Although more than seven million older adults struggle or are unable to leave their homes independently, only a small minority access home-based primary care (HBPC). Despite substantial growth of HBPC, fueled by growing evidence supporting positive patient outcomes and cost savings, the population remains dramatically underserved and many evidence gaps still exist around scope of practice and key issues in care delivery and quality. Understanding the current state of the field is critical to the delivery of high-quality home-based care. METHODS: We conducted a systematic search of the peer-reviewed literature on HBPC, published between January 2010 and January 2020, using Medline, CINAHL, Embase, Web of Science, and Scopus online libraries. All studies were evaluated by two members of the research team, and key findings were extracted. RESULTS: The initial search yielded 1730 unique studies for screening. Of these initial results, 1322 were deemed not relevant to this review. Of the 408 studies deemed potentially relevant, 79 were included in the study. Researchers identified five overarching themes: the provision of HBPC, the composition of care teams, HBPC outcomes, the role of telehealth, and emergency preparedness efforts. CONCLUSION: The need and desire for growth of HBPC has been highlighted by the recent COVID-19 pandemic. Current research on HBPC finds a diverse scope of practice, successful use of interdisciplinary teams, positive outcomes, and increasing interest in telehealth with many areas ripe for further research.
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COVID-19 , Defensa Civil/normas , Atención a la Salud/normas , Servicios de Atención de Salud a Domicilio , Atención Primaria de Salud , Telemedicina , Anciano , COVID-19/epidemiología , COVID-19/prevención & control , Necesidades y Demandas de Servicios de Salud , Servicios de Atención de Salud a Domicilio/organización & administración , Servicios de Atención de Salud a Domicilio/normas , Servicios de Atención de Salud a Domicilio/tendencias , Humanos , Atención Primaria de Salud/métodos , Atención Primaria de Salud/organización & administración , Brechas de la Práctica Profesional , SARS-CoV-2 , Telemedicina/métodos , Telemedicina/tendencias , Estados UnidosAsunto(s)
COVID-19 , Defensa Civil , Necesidades y Demandas de Servicios de Salud , Liderazgo , Ageísmo/prevención & control , COVID-19/epidemiología , COVID-19/prevención & control , Defensa Civil/organización & administración , Defensa Civil/normas , Gestión de Recursos de Personal en Salud/organización & administración , Gestión de Recursos de Personal en Salud/normas , Atención a la Salud/organización & administración , Necesidades y Demandas de Servicios de Salud/organización & administración , Necesidades y Demandas de Servicios de Salud/tendencias , Humanos , SARS-CoV-2 , Determinantes Sociales de la Salud , Estados Unidos/epidemiologíaRESUMEN
INTRODUCTION: Many trusted organizations recommend a particular set of gear for hikers. Termed the "10 essentials," the importance of these items to wilderness preparedness has not been critically evaluated. We sought to better understand the value of these items in day hiker preparedness by assessing the association between carried items, the occurrence of adverse events, and satisfaction. METHODS: A cross-sectional survey study was conducted at Mount Monadnock (NH) over 4 non-consecutive days. Adults finishing a day hike were invited to participate. The survey assessed items carried, adverse events, satisfaction, and whether hikers felt prepared for the adverse events that occurred. The primary outcome was the occurrence of an adverse event. RESULTS: A total sample of 961 hikers reported 1686 adverse events. Hikers felt prepared for 89% of the events experienced. The most common adverse events reported were thirst (62%), hunger (50%), feeling cold (18%), and needing rain gear (11%). Medical events such as sprains and lacerations made up 18% of all adverse events. Carrying more items was associated with an increased likelihood of reporting an adverse event and a decreased likelihood of adverse events that the hiker was not prepared for, without a change in satisfaction rates. CONCLUSIONS: Carrying more items did not translate into improved satisfaction for day hikers, but was associated with fewer events for which the hiker was unprepared. Other than adverse events related to hunger, thirst, weather, and minor medical events, adverse events were unlikely during this day hike. Nutrition, hydration, and insulation were the items reported as most often needed, followed by a kit to treat minor medical events, while the remaining 6 items were infrequently used.
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Defensa Civil/métodos , Naturaleza , Satisfacción Personal , Caminata/tendencias , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Defensa Civil/normas , Defensa Civil/estadística & datos numéricos , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad , New Hampshire , Encuestas y CuestionariosRESUMEN
Importance: The National Pediatric Readiness Project is a US initiative to improve emergency department (ED) readiness to care for acutely ill and injured children. However, it is unclear whether high ED pediatric readiness is associated with improved survival in US trauma centers. Objective: To evaluate the association between ED pediatric readiness, in-hospital mortality, and in-hospital complications among injured children presenting to US trauma centers. Design, Setting, and Participants: A retrospective cohort study of 832 EDs in US trauma centers in 50 states and the District of Columbia was conducted using data from January 1, 2012, through December 31, 2017. Injured children younger than 18 years who were admitted, transferred, or with injury-related death in a participating trauma center were included in the analysis. Subgroups included children with an Injury Severity Score (ISS) of 16 or above, indicating overall seriously injured (accounting for all injuries); any Abbreviated Injury Scale (AIS) score of 3 or above, indicating at least 1 serious injury; a head AIS score of 3 or above, indicating serious brain injury; and need for early use of critical resources. Exposures: Emergency department pediatric readiness for the initial ED visit, measured through the weighted Pediatric Readiness Score (range, 0-100) from the 2013 National Pediatric Readiness Project ED pediatric readiness assessment. Main Outcomes and Measures: In-hospital mortality, with a secondary composite outcome of in-hospital mortality or complication. For the primary measurement tools used, the possible range of the AIS is 0 to 6, with 3 or higher indicating a serious injury; the possible range of the ISS is 0 to 75, with 16 or higher indicating serious overall injury. The weighted Pediatric Readiness Score examines and scores 6 domains; in this study, the lowest quartile included scores of 29 to 62 and the highest quartile included scores of 93 to 100. Results: There were 372â¯004 injured children (239â¯273 [64.3%] boys; median age, 10 years [interquartile range, 4-15 years]), including 5700 (1.5%) who died in-hospital and 5018 (1.3%) who developed in-hospital complications. Subgroups included 50â¯440 children (13.6%) with an ISS of 16 or higher, 124â¯507 (33.5%) with any AIS score of 3 or higher, 57â¯368 (15.4%) with a head AIS score of 3 or higher, and 32â¯671 (8.8%) requiring early use of critical resources. Compared with EDs in the lowest weighted Pediatric Readiness Score quartile, children cared for in the highest ED quartile had lower in-hospital mortality (adjusted odds ratio [aOR], 0.58; 95% CI, 0.45-0.75), but not fewer complications (aOR for the composite outcome 0.88; 95% CI, 0.74-1.04). These findings were consistent across subgroups, strata, and multiple sensitivity analyses. If all children cared for in the lowest-readiness quartiles (1-3) were treated in an ED in the highest quartile of readiness, an additional 126 lives (95% CI, 97-154 lives) might be saved each year in these trauma centers. Conclusions and Relevance: In this cohort study, injured children treated in high-readiness EDs had lower mortality compared with similar children in low-readiness EDs, but not fewer complications. These findings support national efforts to increase ED pediatric readiness in US trauma centers that care for children.
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Servicio de Urgencia en Hospital/normas , Evaluación de Resultado en la Atención de Salud/estadística & datos numéricos , Pediatría/normas , Adolescente , Niño , Preescolar , Defensa Civil/normas , Defensa Civil/estadística & datos numéricos , Estudios de Cohortes , Servicio de Urgencia en Hospital/organización & administración , Servicio de Urgencia en Hospital/estadística & datos numéricos , Femenino , Humanos , Masculino , Evaluación de Resultado en la Atención de Salud/métodos , Pediatría/métodos , Pediatría/estadística & datos numéricos , Estudios Retrospectivos , Centros Traumatológicos/organización & administración , Centros Traumatológicos/normas , Centros Traumatológicos/estadística & datos numéricos , Estados UnidosRESUMEN
This Covid-19 pandemic has been a trying time for all countries, governments, societies, and individuals. The physical, social, and organizational infrastructure of healthcare systems across the world is being stressed. This pandemic has highlighted that the healthcare of the country is as strong as its weakest link and that no aspect of life, be it social or economic, is spared from this pandemic. The authors would like to highlight some of the lessons learned from Singapores management of the Covid-19 pandemic. During the Singaporean Covid-19 pandemic, public health policy planning was all encompassing in its coverage, involving various stakeholders in government and society. The important role of individuals, governments, industry, and primary healthcare practitioners when tackling COVID-19 are highlighted. Singapores management of the Covid-19 pandemic involved an approach that involved the whole of society, with a particular focus on supporting the vulnerable foreign worker population, which formed the majority of Covid-19 cases in the country. Hopefully amidst the trying times, valuable lessons are learnt that will be etched into medical history and collective memory. We hope to highlight these lessons for future generations, both for members of the public and fellow healthcare practitioners.
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COVID-19 , Salud Pública , Política Pública , Marginación Social , COVID-19/epidemiología , COVID-19/prevención & control , Defensa Civil/normas , Regulación Gubernamental , Necesidades y Demandas de Servicios de Salud/organización & administración , Humanos , Salud Pública/métodos , Salud Pública/normas , SARS-CoV-2 , Singapur/epidemiología , Migrantes/estadística & datos numéricosRESUMEN
To examine the impact of the COVID-19 pandemic, we interviewed 26 patients with lysosomal storage disorders receiving enzyme replacement therapy. 20 (77 %) had significant interruption in their treatment, with an average of 8 (range 2-28) missed doses. Alternate methods of delivering uninterrupted care including home therapy were used. Vulnerable patients with chronic genetic disorders require organization for their multidisciplinary needs of care.
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COVID-19 , Terapia de Reemplazo Enzimático/métodos , Accesibilidad a los Servicios de Salud , Enfermedades por Almacenamiento Lisosomal , Administración del Tratamiento Farmacológico , Adolescente , COVID-19/epidemiología , COVID-19/prevención & control , Defensa Civil/normas , Femenino , Enfermedades Genéticas Congénitas/epidemiología , Enfermedades Genéticas Congénitas/terapia , Accesibilidad a los Servicios de Salud/organización & administración , Accesibilidad a los Servicios de Salud/normas , Necesidades y Demandas de Servicios de Salud , Humanos , India/epidemiología , Control de Infecciones , Enfermedades por Almacenamiento Lisosomal/epidemiología , Enfermedades por Almacenamiento Lisosomal/terapia , Masculino , Administración del Tratamiento Farmacológico/organización & administración , Administración del Tratamiento Farmacológico/normas , SARS-CoV-2 , Encuestas y CuestionariosRESUMEN
OBJECTIVE: To report the results of a survey exploring the experience of patients with SLE facing hydroxychloroquine (HCQ) shortage that occurred during the early phases of the COVID-19 pandemic. METHODS: A survey was designed by Lupus Europe's patient advisory network and distributed through its social media, newsflash and members' network. People with lupus were asked about their last HCQ purchases and their level of anxiety (on a 0-10 scale) with regard to not being able to have access to HCQ, once in April 2020 (first wave) and after 11 August (second wave). The results were compared. RESULTS: 2075 patients responded during the first wave; 1001 (48.2%) could get HCQ from the first place they asked, 230 (11.1%) could get the drug by going to more than one pharmacy, 498 (24.0%) obtained HCQ later from their usual pharmacy and 126 (6.1%) from other sources. 188 (9.1%) could not get any; 32 (1.5%) did not respond to this question. All countries showed significant improvement in HCQ availability during the second wave. 562 (27.4%) patients reported an extremely high level of anxiety in wave 1 and 162 (10.3%) patients in wave 2; 589 (28.7%) and 268 (17.1%) patients reported a high level of anxiety in wave 1 and wave 2, respectively. CONCLUSIONS: The HCQ shortage had a significant impact on patients with SLE and has been responsible for psychological consequences including anxiety. Indeed, despite an objective improvement in drug availability, the event is leaving significant traces in patients' mind and behaviours.