RESUMEN
To date, there is scant psychosocial research on the experience of childhood AML. This article presents findings from the perspective of the child patients, their parents and siblings at one year post-treatment. The findings highlight challenges associated with re-entering life post-treatment with an emphasis on the ongoing sense of uncertainty, the changed sense of normalcy, and the difficulty of returning to the hospital for check-ups. A number of recommendations are made including the desirability of providing hospital space for check-ups away from the treatment area and the need for ongoing reassurance and support.
Asunto(s)
Actitud Frente a la Salud , Salud Holística , Leucemia Mielomonocítica Aguda/psicología , Relaciones Padres-Hijo , Responsabilidad Parental/psicología , Adaptación Psicológica , Adolescente , Adulto , Anécdotas como Asunto , Australia , Femenino , Humanos , Leucemia Mielomonocítica Aguda/enfermería , Estudios Longitudinales , Masculino , Investigación Metodológica en Enfermería , Relaciones entre Hermanos , Apoyo Social , Estrés Psicológico/prevención & control , Encuestas y CuestionariosAsunto(s)
Trasplante de Médula Ósea , Leucemia Mielomonocítica Aguda/cirugía , Adulto , Terapia Combinada , Costos y Análisis de Costo , Economía Hospitalaria , Femenino , Humanos , Leucemia Mielomonocítica Aguda/complicaciones , Leucemia Mielomonocítica Aguda/enfermería , Leucemia Mielomonocítica Aguda/psicología , Métodos , Cooperación del Paciente , Complicaciones Posoperatorias/etiología , Calidad de Vida , Estrés Psicológico/etiologíaRESUMEN
Young adolescent (10-15 year old) survivors of childhood cancer and their families (n = 35) completed self-report measures of perceived self-competence, social support, child behavior, parental distress, and family adaptability and cohesion, at two data points, 6 months apart. Relative to instrument norms and a comparison group (n = 13), survivors and their families scored within normative levels. The overall lack of group differences is discussed in terms of the implications of tests of the null hypothesis for families with chronically ill children. Changes over time for the survivors suggest a decline in available social support. Parents of survivors who received educational assistance reported less family adaptability and more distress than parents of survivors not receiving these services.