'Kindling the fire' of NHS patient data exploitations: The care.data controversy in news media discourses.

This paper explores news media discourse about care.data: an NHS England programme of work for amalgamating and sharing patient data from primary care for planning and research. It was scrapped in 2016 after three years of public outcry, delays and around 1.5 million opt-outs. I examine UK news media coverage of this programme through the 'fire object' metaphor, focusing upon the visions of purpose and value it inspired, the abrupt discontinuities, juxtapositions and transformations it performed, and the matters of concern that went unheeded. Findings suggest that, in care.data's pursuit of a societal consensus on NHS patient data exploitations, various visions for new and fluid data flows brought to presence narratives of transforming the NHS, saving lives, and growing the economy. Other realities and concerns that mattered for certain stakeholders, such as data ownership and commercialisation, public engagement and informed consent, commitment and leadership, operational capabilities, and NHS privatisation agendas, remained absent or unsettled. False dichotomies kept the controversy alive, sealing its fate. I conclude by arguing that such failed programmes can turn into phantom-like objects, haunting future patient data schemes of similar aspirations. The paper highlights the role news media can have in understanding such energetic public controversies.

Aborto legal na infância retratado pela imprensa escrita brasileira: perspectivas para o cuidado / Aborto legal en la infancia retratado por la prensa escrita brasileña: perspectivas para el cuidado / Legal abortion in childhood portraited by the brazilian written press: perspectives for care

Objetivo: identificar e interpretar à luz das categorias gênero e geração as contradições contidas em reportagens da imprensa escrita brasileira sobre caso envolvendo uma menina vítima de violência sexual e consequente aborto legal. Método: estudo documental de abordagem qualitativa. Os dados foram coletados por meio de 78 reportagens publicadas em 2 jornais no período de agosto a outubro de 2020, por meio de instrumento semiestruturado. O tratamento foi realizado por análise de conteúdo temática com apoio do webQDA. Resultados: foram identificadas três categorias empíricas: Proteção da infância expressa na legislação e no discurso dos agentes públicos; Concepções sobre o aborto e a inviolabilidade da integridade da criança; Volição dos adultos versus a autonomia da criança. Considerações finais: as contradições identificadas nas reportagens da mídia escrita brasileira no caso de uma menina desvelaram que sua autonomia, assim como o direito à proteção da infância e descriminalização do aborto, não foram respeitados.

Objetivo: identificar e interpretar, a la luz de las categorías de género y generación, las contradicciones contenidas en los reportajes de la prensa brasileña sobre el caso de una niña víctima de violencia sexual y consecuente aborto legal. Método: estudio documental con enfoque cualitativo. Los datos fueron recolectados a través de 78 reportajes publicados en 2 periódicos de agosto a octubre de 2020, utilizando un instrumento semiestructurado. El tratamiento se realizó mediante análisis de contenido temático con apoyo de webQDA. Resultados: se identificaron tres categorías empíricas: Protección de la niñez expresada en la legislación y en el discurso de los agentes públicos; Concepciones sobre el aborto y la inviolabilidad de la integridad del niño; Voluntad adulta versus autonomía infantil. Consideraciones finales: los resultados revelan las contradicciones identificadas en el caso de una niña brasileña, cuya autonomía, así como el derecho a la protección de la infancia y la despenalización del aborto, no fueron respetados.

Objective: to identify and interpret, based on the gender and generation categories, the contradictions contained in Brazilian written press reports on a case involving a girl victim of sexual violence and consequent legal abortion. Method: this is a documentary study with a qualitative approach. Data were collected through 78 reports published in 2 newspapers from august to october 2020, using a semi-structured instrument. The treatment was performed by thematic content analysis with support from webQDA. Results: three empirical categories were identified: Child protection expressed in legislation and the discourse of public agents; Conceptions about abortion and the inviolability of the child's integrity; Adult volition versus child autonomy. Final considerations: the results reveal the contradictions identified in the case of a Brazilian girl, whose autonomy, as well as the right to protection of childhood and decriminalization of abortion, were not respected.

Drivers of global media attention and representations for antimicrobial resistance risk: an analysis of online English and Chinese news media data, 2015-2018.

BACKGROUND: How antimicrobial resistance (AMR) risk is communicated in news media can shape public understanding and the engagement of different sectors with AMR. This study examined online news media attention for AMR risk and analyzed how AMR risk was communicated using a global sample of English and Chinese news articles. METHODS: A total of 16,265 and 8335 English and Chinese news relevant to AMR risk, respectively, published in 2015-2018 were retrieved from a professional media-monitoring platform, to examine media attention for AMR and its drivers, of which, 788 articles from six main English-speaking countries and three main Chinese-speaking territories were drawn using constructed-week sampling for content analysis. RESULTS: Media attention mainly fluctuated around official reports or scientific discovery of AMR risks or solutions but seldom around reports of inappropriate antimicrobial use (AMU), and not consistently increased in response to World Antimicrobial Awareness Week. The content analysis found that (1) heterogeneous medical terminologies and the 'superbug' frame were most commonly used to define AMR or AMR risk; (2) a temporal increase in communicating microbial evolution as a process of AMR was identified but communication about inappropriate AMU in general consumers as the cause of AMR remained inadequate; and (3) the multifaceted consequences of AMR and individual actions that can be taken to tackle AMR were inadequately communicated. CONCLUSIONS: The media should be encouraged or reoriented to communicate more about actions that can be taken by general consumers to enable collective actions and the multifaceted conseuqences of AMR to encourage one-health approach for tackling AMR.

Postmortem memory of public figures in news and social media.

Deceased public figures are often said to live on in collective memory. We quantify this phenomenon by tracking mentions of 2,362 public figures in English-language online news and social media (Twitter) 1 y before and after death. We measure the sharp spike and rapid decay of attention following death and model collective memory as a composition of communicative and cultural memory. Clustering reveals four patterns of postmortem memory, and regression analysis shows that boosts in media attention are largest for premortem popular anglophones who died a young, unnatural death; that long-term boosts are smallest for leaders and largest for artists; and that, while both the news and Twitter are triggered by young and unnatural deaths, the news additionally curates collective memory when old persons or leaders die. Overall, we illuminate the age-old question of who is remembered by society, and the distinct roles of news and social media in collective memory formation.

Measuring the news and its impact on democracy.

Since the 2016 US presidential election, the deliberate spread of misinformation online, and on social media in particular, has generated extraordinary concern, in large part because of its potential effects on public opinion, political polarization, and ultimately democratic decision making. Recently, however, a handful of papers have argued that both the prevalence and consumption of "fake news" per se is extremely low compared with other types of news and news-relevant content. Although neither prevalence nor consumption is a direct measure of influence, this work suggests that proper understanding of misinformation and its effects requires a much broader view of the problem, encompassing biased and misleading-but not necessarily factually incorrect-information that is routinely produced or amplified by mainstream news organizations. In this paper, we propose an ambitious collective research agenda to measure the origins, nature, and prevalence of misinformation, broadly construed, as well as its impact on democracy. We also sketch out some illustrative examples of completed, ongoing, or planned research projects that contribute to this agenda.

Misinformation in and about science.

Humans learn about the world by collectively acquiring information, filtering it, and sharing what we know. Misinformation undermines this process. The repercussions are extensive. Without reliable and accurate sources of information, we cannot hope to halt climate change, make reasoned democratic decisions, or control a global pandemic. Most analyses of misinformation focus on popular and social media, but the scientific enterprise faces a parallel set of problems-from hype and hyperbole to publication bias and citation misdirection, predatory publishing, and filter bubbles. In this perspective, we highlight these parallels and discuss future research directions and interventions.

No buzz for bees: Media coverage of pollinator decline.

Although widespread declines in insect biomass and diversity are increasing concerns within the scientific community, it remains unclear whether attention to pollinator declines has also increased within information sources serving the general public. Examining patterns of journalistic attention to the pollinator population crisis can also inform efforts to raise awareness about the importance of declines of insect species providing ecosystem services beyond pollination. We used the Global News Index developed by the Cline Center for Advanced Social Research at the University of Illinois at Urbana-Champaign to track news attention to pollinator topics in nearly 25 million news items published by two American national newspapers and four international wire services over the past four decades. We found vanishingly low levels of attention to pollinator population topics relative to coverage of climate change, which we use as a comparison topic. In the most recent subset of ∼10 million stories published from 2007 to 2019, 1.39% (137,086 stories) refer to climate change/global warming while only 0.02% (1,780) refer to pollinator populations in all contexts, and just 0.007% (679) refer to pollinator declines. Substantial increases in news attention were detectable only in US national newspapers. We also find that, while climate change stories appear primarily in newspaper "front sections," pollinator population stories remain largely marginalized in "science" and "back section" reports. At the same time, news reports about pollinator populations increasingly link the issue to climate change, which might ultimately help raise public awareness to effect needed policy changes.

Longitudinal Evidence of How Media Audiences Differ in Public Health Perceptions and Behaviors During a Global Pandemic.

The current study investigates how public attitudes and perceptions about the COVID-19 pandemic evolve over time and influence self-reported health behaviors (e. g., social distancing). Specific attention was paid to respondents' exposure to different news media channels (public vs. commercial). We used data from a two-wave panel study with a 3-week interval (W1 at the start and W2 at the peak of the pandemic) and a large sample of the adult population in Flanders, Belgium (n = 870). The results of mixed ANOVAs indicate that besides a time-effect there was also a significant effect of the different types of news media exposure and respondents' support for protective health measures and behaviors. Whereas, perceived vulnerability to disease, feelings of loneliness, and solidarity were mostly determined by respondents' overall frequency of media exposure, support of governmental measures and self-reported health behaviors were mostly determined by the type of news media exposure. Respondents with a predominantly public/quality news media diet had the highest scores on these variables. A stepwise linear regression analysis with individual's change scores demonstrated that (self-)protective behavior was positively determined by respondents' age, solidarity, and the belief that the measures are necessary, but negatively determined by one's cumulative exposure to commercial/tabloid news media. This longitudinal study provides a new perspective on the role of news media in times of a public health crisis. It offers support for (A) the "double bind hypothesis" (i.e., while news media consumption encourages (self-)isolation, it fosters feelings of loneliness); and (B) the "dual effects hypothesis" (i.e., exposure to commercial/tabloid news media generates different outcomes than exposure to public/quality news media). Affective responses and socio-psychological perceptions are influenced by overall news media exposure, whereas support for the government and its handling of the crisis are mainly determined by one's selection of media channels, whereby audiences of public news media evaluate these outcomes more positively than the audiences of commercial news media channels.

Association of Media Coverage of Transgender and Gender Diverse Issues With Rates of Referral of Transgender Children and Adolescents to Specialist Gender Clinics in the UK and Australia.

Importance: Specialist gender clinics worldwide have witnessed an increase in referrals of transgender and gender diverse (TGD) children and adolescents, but the underlying factors associated with this increase are unknown. Objective: To determine whether increases in TGD young people presenting to specialist gender clinics are associated with related media coverage. Design, Setting, and Participants: This cross-sectional study was conducted at 2 publicly funded, pediatric specialist gender services, one located in the UK and the other in Australia. Participants were all children and adolescents aged 0 to 18 years, referred between January 1, 2009, and December 31, 2016, to their respective gender services in the UK and Australia. Data analysis was performed in April 2019. Exposures: Media coverage of TGD issues. Main Outcomes and Measures: Referral rates from each gender service were compared with local TGD-related media coverage during the study period. Results: Referral data for 5242 TGD young people were obtained (4684 in the UK, of whom 1847 [39.4%] were assigned male at birth and 2837 [60.6%] were assigned female at birth; 558 in Australia, of whom 250 [44.8%] were assigned male at birth and 308 [55.2%] were assigned female at birth), and a total of 2614 news items were identified (UK, 2194; Australia, 420). The annual number of TGD young people referred to both specialist gender clinics was positively correlated with the number of TGD-related local media stories appearing each year (Spearman r = 1.0; P < .001). Moreover, weekly referral rates in both the UK for week 1 (ß̂ = 0.16; 95% CI, 0.03-0.29; P = .01) and Australia for week 2 (ß̂ = 0.12; 95% CI, 0.04-0.20; P = .003) showed evidence of association with the number of TGD-related media items appearing within the local media. There was no evidence of association between referrals and media items appearing 3 weeks beforehand. Media predominantly focused on TGD issues showed some association with increased referral rates. Specifically, TGD-focused stories showed evidence of association with referral numbers at week 1 (ß̂ = 0.16; 95% CI, 0.04-0.28; P = .007) and week 2 (ß̂ = 0.23; 95% CI, 0.11-0.35; P < .001) in Australia and with referral numbers at week 1 (ß̂ = 0.22; 95% CI, 0.01-0.44; P = .04) in the UK. No evidence of association was found between media peripherally related to TGD issues and referral rates. Conclusions and Relevance: This study found evidence of an association between increasing media coverage of TGD-related topics and increasing numbers of young people presenting to gender clinics. It is possible that media coverage acts as a precipitant for young people to seek treatment at specialist gender services, which is consistent with clinical experiences in which TGD young people commonly identify the media as a helpful source of information and a trigger to seek assistance.

Evaluation of Volume of News Reporting and Opioid-Related Deaths in the United States: Comparative Analysis Study of Geographic and Socioeconomic Differences.

BACKGROUND: News media coverage is a powerful influence on public attitude and government action. The digitization of news media covering the current opioid epidemic has changed the landscape of coverage and may have implications for how to effectively respond to the opioid crisis. OBJECTIVE: This study aims to characterize the relationship between volume of online opioid news reporting and opioid-related deaths in the United States and how these measures differ across geographic and socioeconomic county-level factors. METHODS: Online news reports from February 2018 to April 2019 on opioid-related events in the United States were extracted from Google News. News data were aggregated at the county level and compared against opioid-related death counts. Ordinary least squares regression was used to model opioid-related death rate and opioid news coverage with the inclusion of socioeconomic and geographic explanatory variables. RESULTS: A total of 35,758 relevant news reports were collected representing 1789 counties. Regression analysis revealed that opioid-related death rate was positively associated with news reporting. However, opioid-related death rate and news reporting volume showed opposite correlations with educational attainment and rurality. When controlling for variation in death rate, counties in the Northeast were overrepresented by news coverage. CONCLUSIONS: Our results suggest that regional variation in the volume of opioid-related news reporting does not reflect regional variation in opioid-related death rate. Differences in the amount of media attention may influence perceptions of the severity of opioid epidemic. Future studies should investigate the influence of media reporting on public support and action on opioid issues.

Ten Years of Messaging about the Affordable Care Act in Advertising and News Media: Lessons for Policy and Politics.

Messaging about the Affordable Care Act (ACA) has seemingly produced a variety of outcomes: millions of Americans gained access to health insurance, yet much of the US public remains confused about major components of the law, and there remain stark and persistent political divides in support of the law. Our analysis of the volume and content of ACA-related media (including both ads and news) helps explain these phenomena, with three conclusions. First, the information environment around the ACA has been complex and competitive, with messaging originating from diverse sponsors with multiple objectives. Second, partisan cues in news and political ads are abundant, likely contributing to the crystallized politically polarized opinion about the law. Third, partisan discussions of the ACA in political ads have shifted in volume, direction, and tone over the decade, presenting divergent views regarding which party is accountable for the law's successes (or failures). We offer evidence for each of these conclusions from longitudinal analyses of the volume and content of ACA messaging, also referencing studies that have linked these messages to attitudes and behavior. We conclude with implications for health communication, political science, and the future outlook for health reform.

Geographic and Longitudinal Trends in Media Framing of Obesity in the United States.

OBJECTIVE: The media's framing of public health issues is closely linked to public opinion on these issues and support for interventions to address them. This study characterized geographic and temporal variation in the US media's framing of obesity across states from 2006 to 2015. METHODS: Newspaper articles that mentioned the term obesity were drawn from Access World News (NewsBank, Inc., Naples, Florida), a comprehensive online database (N = 364,288). This study employed automated content analysis, a machine learning technique, to categorize articles as (1) attributing obesity to individual-level causes (e.g., lifestyle behaviors), (2) attributing obesity to environmental/systemic causes (e.g., neighborhood walkability), (3) attributing obesity to both individual-level causes and environmental/systemic causes, or (4) articles without any such attribution framework. RESULTS: Nationwide across all years, a higher proportion of articles focused on individual-level attribution of obesity than environmental-level attribution or both. Missouri and Idaho had the highest proportions of articles with an individual framework, and Nevada, Arkansas, and Wisconsin had the highest proportions of articles with an environmental framework. CONCLUSIONS: This analysis demonstrates that US media sources heavily focus on an individual framing of obesity, which may be informing public perceptions of obesity. By highlighting differences in obesity media portrayal, this study could inform research to understand why particular states represent outliers and how this may affect obesity policy making.

Epilepsy through the eyes of the media: A paradox of positive reporting and challenges of access to advanced neurotechnology.

OBJECTIVE: Media coverage of disorders and medical advancements can impact public perception regarding the riskiness, effectiveness, and accessibility of treatment options. We studied that coverage for epilepsy with a focus on surgical interventions and emerging neurotechnologies. METHODS: Epilepsy-related English language articles published through 2019 were retrieved from online International news media with a circulation of 80,000 or above. We used directed content analysis of news articles to code content into a priori categories both to identify salient themes and to characterize their valence. RESULTS: One hundred forty-six unique articles matched our search terms. Overall, there was a steady increase in epilepsy reporting over time, with a majority of articles published with a positive tone. Neuromodulation was the focus of over 50% of all the articles in the time points analyzed. Vagus nerve stimulation (VNS) and deep-brain stimulation (DBS) were discussed more prominently than other types of neurotechnological interventions; VNS was the neurotechnological focus in 39% of the pediatric articles; resective surgery was the focus in 34% of adult articles. Access, support, and epilepsy literacy were the central themes in the context of ethical, legal, and social issues. SIGNIFICANCE: News media can influence the trust that the public places in science and medicine, and by extension, influences health policy. As innovations in neurotechnology for epilepsy emerge, understanding of individual and societal values is essential to their beneficial evolution and translation to care.

The Examination of Diffusion Effects on Modern Contraceptive Use in Nigeria.

This study uses data gathered for an evaluation of a Bill & Melinda Gates Foundation-funded initiative designed to increase modern contraceptive use in select urban areas of Nigeria. When the initiative was conceived, the hope was that any positive momentum in the cities would diffuse to surrounding areas. Using a variety of statistical methods, we study three aspects of diffusion and their effects on modern contraceptive use: spread through mass communications, social learning, and social influence. Using a dynamic causal model, we find strong evidence of social multiplier effects through social learning. The results for social influence and spread through mass communications are promising, but we are unable to identify definitive causal impacts.

Listing of Indian Folk Games for Potential Therapeutic Benefits in Children with Neurodevelopmental Disability.

Background: India has a diverse cultural heritage, with a wealth of indigenous folk games that are culturally ingrained. Due to the ease of acquisition, low costs, and widespread acceptability, this form of games can be incorporated to facilitate and improve physical fitness among children with neurodevelopmental disabilities. Hence this study focuses on the analysis of the therapeutic benefits of traditional Indian folk games. Objective: To explore the therapeutic benefits of traditional Indian folk games. Methodology: Ten traditional Indian folk games were selected through purposive sampling and videotaped on skilled players. Each game was analyzed by two observers based on an operationalized conceptual model by using a six-point Likert scale. Results: Functional domains of the game have been identified and listed by using the operationalized conceptual model. Conclusion: Folk games encompass a variety of functions and can potentially be used for therapeutic purposes in children with neurodevelopmental disabilities.