Characterization of communication disorders according to the categories of the International Classification of Functioning, Disability and Health - Children and Youth (ICF-CY). / Caracterização de aspectos fonoaudiológicos segundo as categorias da Classificação Internacional de Funcionalidade, Incapacidade e Saúde para Crianças e Jovens (CIF-CJ).

PURPOSE: Characterize the performance of outpatients regarding aspects of communication disorders according to the categories of the International Classification of Functioning, Disability and Health - Children and Youth Version (ICF-CY). METHODS: This is a descriptive, observational study based on a retrospective analysis of secondary data collected at a Speech-language Pathology outpatient clinic of the public health network, from records of patients aged 5-16 years, evaluated between 2010 and 2014. Elements of anamnesis and assessment reports were analyzed with identification of ICF-CY categories related to the following components: Body Functions, Activities and Participation, and Environmental Factors. These categories were defined as the study variables, stored as categorical variables, and had their frequency distribution investigated by descriptive statistical analysis. RESULTS: One hundred eighty medical records were included in the study, and 65 of the 168 pre-selected categories were identified. As for the component Body Functions, 13 items were verified, with the category related to impairment in Mental functions of language as the most frequently mentioned. Of the 34 categories identified in the component Activities and Participation, Learning to read - Performance and Doing housework - Performance were the ones that most frequently presented difficulties. Of the 18 categories of the component Environmental Factors, the one described in most reports as Barrier was Individual attitudes of acquaintances, peers, colleagues, neighbors, and community members. CONCLUSION: Changes were found in categories of the three components of the ICF-CY analyzed, indicating the existence of issues that affected the functional performance regarding aspects of communication disorders of children and adolescents assisted at an outpatient environment.

OBJETIVO: Caracterizar o desempenho em aspectos fonoaudiológicos de pacientes ambulatoriais segundo as categorias da Classificação Internacional de Funcionalidade, Incapacidade e Saúde para Crianças e Jovens (CIF-CJ). MÉTODO: Trata-se de estudo observacional descritivo, baseado em análise retrospectiva de dados secundários coletados em serviço fonoaudiológico ambulatorial da rede pública, com prontuários de pacientes com idades entre 5 e 16 anos avaliados entre 2010 e 2014. Foram analisados elementos dos relatórios de anamnese e avaliação, sendo identificadas categorias da CIF-CJ referentes aos componentes Funções do Corpo, Atividades e Participação e Fatores Ambientais. As categorias presentes foram definidas como as variáveis do estudo. Todas foram armazenadas como variáveis categóricas, sendo realizada análise descritiva por meio da distribuição de frequências. RESULTADOS: Foram incluídos 180 prontuários e das 168 categorias pré-selecionadas, 65 foram identificadas. Para as Funções do Corpo, 13 itens foram verificados, sendo a categoria com mais frequência referida em que se observa deficiência a funções mentais da linguagem. Para as 34 categorias identificadas pertencentes às Atividades e Participação, as mais frequentemente apontadas como dificuldade foram: aprender a ler ­ desempenho e realização das tarefas domésticas ­ desempenho. Das 18 categorias dos Fatores Ambientais, a descrita na maior parte dos relatórios como Barreira foi a atitudes individuais de conhecidos, pares, colegas, vizinhos e membros da comunidade. CONCLUSÃO: Foram verificadas alterações em categorias dos três componentes da CIF-CJ analisados, indicando a existência de questões que afetaram o desempenho funcional em aspectos fonoaudiológicos de crianças e jovens atendidos em ambiente ambulatorial.

Caracterização de aspectos fonoaudiológicos segundo as categorias da Classificação Internacional de Funcionalidade, Incapacidade e Saúde para Crianças e Jovens (CIF-CJ) / Characterization of communication disorders according to the categories of the International Classification of Functioning, Disability and Health - Children and Youth (ICF-CY)

RESUMO Objetivo Caracterizar o desempenho em aspectos fonoaudiológicos de pacientes ambulatoriais segundo as categorias da Classificação Internacional de Funcionalidade, Incapacidade e Saúde para Crianças e Jovens (CIF-CJ). Método Trata-se de estudo observacional descritivo, baseado em análise retrospectiva de dados secundários coletados em serviço fonoaudiológico ambulatorial da rede pública, com prontuários de pacientes com idades entre 5 e 16 anos avaliados entre 2010 e 2014. Foram analisados elementos dos relatórios de anamnese e avaliação, sendo identificadas categorias da CIF-CJ referentes aos componentes Funções do Corpo, Atividades e Participação e Fatores Ambientais. As categorias presentes foram definidas como as variáveis do estudo. Todas foram armazenadas como variáveis categóricas, sendo realizada análise descritiva por meio da distribuição de frequências. Resultados Foram incluídos 180 prontuários e das 168 categorias pré-selecionadas, 65 foram identificadas. Para as Funções do Corpo, 13 itens foram verificados, sendo a categoria com mais frequência referida em que se observa deficiência a funções mentais da linguagem. Para as 34 categorias identificadas pertencentes às Atividades e Participação, as mais frequentemente apontadas como dificuldade foram: aprender a ler - desempenho e realização das tarefas domésticas - desempenho. Das 18 categorias dos Fatores Ambientais, a descrita na maior parte dos relatórios como Barreira foi a atitudes individuais de conhecidos, pares, colegas, vizinhos e membros da comunidade. Conclusão Foram verificadas alterações em categorias dos três componentes da CIF-CJ analisados, indicando a existência de questões que afetaram o desempenho funcional em aspectos fonoaudiológicos de crianças e jovens atendidos em ambiente ambulatorial.

ABSTRACT Purpose Characterize the performance of outpatients regarding aspects of communication disorders according to the categories of the International Classification of Functioning, Disability and Health - Children and Youth Version (ICF-CY). Methods This is a descriptive, observational study based on a retrospective analysis of secondary data collected at a Speech-language Pathology outpatient clinic of the public health network, from records of patients aged 5-16 years, evaluated between 2010 and 2014. Elements of anamnesis and assessment reports were analyzed with identification of ICF-CY categories related to the following components: Body Functions, Activities and Participation, and Environmental Factors. These categories were defined as the study variables, stored as categorical variables, and had their frequency distribution investigated by descriptive statistical analysis. Results One hundred eighty medical records were included in the study, and 65 of the 168 pre-selected categories were identified. As for the component Body Functions, 13 items were verified, with the category related to impairment in Mental functions of language as the most frequently mentioned. Of the 34 categories identified in the component Activities and Participation, Learning to read - Performance and Doing housework - Performance were the ones that most frequently presented difficulties. Of the 18 categories of the component Environmental Factors, the one described in most reports as Barrier was Individual attitudes of acquaintances, peers, colleagues, neighbors, and community members. Conclusion Changes were found in categories of the three components of the ICF-CY analyzed, indicating the existence of issues that affected the functional performance regarding aspects of communication disorders of children and adolescents assisted at an outpatient environment.

Mismatch between diagnostic reports and special educational needs classification in a public educational system.

OBJECTIVE: To assess the diagnostic status, the sociodemographic and health profiles for students with special educational needs (SEN) in a public educational system, and to map their use of educational/social services. METHODS: The sample comprised 1,202 SEN students from a total of 59,344 students. RESULTS: Only 792 students of the 1,202 had an established diagnosis. The most prevalent SEN condition was intellectual disability. There was a low percentage (29.4%) of use of specialized educational services or support. It was found that, for some neurodevelopmental disorders, prevalence data suggest an under-reporting in the school system. CONCLUSION: Results suggest that there is a mismatch between the diagnostic reports and the SEN condition legally recognized according to Brazilian law, in addition to the under-reporting and under specialized service use of students with disabilities.

Families' perception of children / adolescents with language impairment through the International Classification of Functioning, Disability, and Health (ICF-CY). / Percepção de familiares de crianças e adolescentes com alteração de linguagem utilizando a Classificação Internacional de Funcionalidade, Incapacidade e Saúde (CIF-CJ).

PURPOSE: To investigate the perception of family members regarding linguistic conditions and social participation of children and adolescents with speech and language impairments using the International Classification of Functioning, Disability and Health - Children and Youth Version (ICF-CY). METHODS: Quali-quantitative approach research, in which a survey of medical records of 24 children/adolescents undergoing speech-language therapy and interviews with their family members was conducted. A descriptive analysis of the participants' profiles was performed, followed by a categorization of responses using the ICF-CY. RESULTS: All family members mentioned various aspects of speech/language categorized by the ICF-CY. Initially, they approached it as an organic issue, categorized under the component of Body Functions and Structures. Most reported different repercussions of the speech-language impairments on the domains, such as dealing with stress and speaking, qualified from mild to severe. Participants reported Environmental Factors categorized as facilitators in the immediate family's attitudes and as barriers in the social attitudes. CONCLUSION: These findings, according to the use of the ICF-CY, demonstrate that the children/adolescents' speech-language impairments, from the families' perception, are primarily understood in the body dimension. However, guided by a broader approach to health, the findings in the Activities and Participation and Environmental Factors demonstrate a broader understanding of the participants of the speech-language impairments. The results corroborate the importance of using the ICF-CY as a health care analysis tool, by incorporating functionality and participation aspects and providing subsidies for the construction of unique therapeutic projects in a broader approach to the health of the group studied.

Mismatch between diagnostic reports and special educational needs classification in a public educational system / Descompasso entre os registros diagnósticos e a classificação de necessidade educacional especial em uma rede municipal de educação

ABSTRACT Objective To assess the diagnostic status, the sociodemographic and health profiles for students with special educational needs (SEN) in a public educational system, and to map their use of educational/social services. Methods The sample comprised 1,202 SEN students from a total of 59,344 students. Results Only 792 students of the 1,202 had an established diagnosis. The most prevalent SEN condition was intellectual disability. There was a low percentage (29.4%) of use of specialized educational services or support. It was found that, for some neurodevelopmental disorders, prevalence data suggest an under-reporting in the school system. Conclusion Results suggest that there is a mismatch between the diagnostic reports and the SEN condition legally recognized according to Brazilian law, in addition to the under-reporting and under specialized service use of students with disabilities.

RESUMO Objetivo Avaliar a situação diagnóstica, o perfil sociodemográfico e de saúde dos alunos com necessidades educacionais especiais (NEE) de uma rede municipal de educação, assim como mapear o uso de serviços educacionais e sociais. Métodos A amostra foi composta por 1202 alunos com NEE de um total de 59344 alunos. Resultados Dos 1202 alunos somente 792 tinha diagnóstico estabelecido. A condição de NEE mais prevalente foi a deficiência intelectual. Verificou-se um baixo percentual (29,4%) de uso de serviços educacionais especializados ou de apoio. Foi constatado que, para alguns transtornos do neurodesenvolvimento, os dados de prevalência parecem indicar uma subnotificação. Conclusão Os resultados sugerem um descompasso entre os registros diagnósticos e a condição de necessidade educacional especial segundo a legislação brasileira, além disso verificou-se uma subnotificação diagnóstica e baixo uso de serviços especializados entre estudantes com deficiências.

[Family violence in a sample of children and adolescents with disabilities]. / A violência familiar e a criança e o adolescente com deficiências.

This study aimed to identify and analyze the prevalence of physical and psychological family violence in a sample of children and adolescents with different categories of disabilities in a hospital in Rio de Janeiro, Brazil. This was a cross-sectional observational study based on application of the Parent-Child Conflict Tactics Scale in a sample of 270 parents or guardians. Prevalence was 83.7% for psychological aggression and 84.4% for physical maltreatment, while 96.5% of the children and adolescents with disabilities that suffered physical punishment were also victims of psychological aggression (p < 0.01) and 100% of those who suffered severe physical maltreatment also suffered psychological aggression (p = 0.01). Children and adolescents with disabilities showed increased risk of suffering family violence compared to those without disabilities. In conclusion, there is a need for greater awareness-raising and training of health teams for detection and notification of child abuse, and efforts should be made to support these families.

A violência familiar e a criança e o adolescente com deficiências / Family violence in a sample of children and adolescents with disabilities / La violencia familiar y el niño y/o adolescente con discapacidad

Resumo: O trabalho objetivou identificar e analisar a prevalência da violência familiar física e psicológica entre crianças e adolescentes com diferentes categorias de deficiência em um hospital no Rio de Janeiro, Brasil. Estudo observacional, transversal realizado com aplicação do instrumento Parent-Child Conflicts Tatics Scales numa amostra de 270 responsáveis. Mostrou-se a prevalência de 83,7% para agressão psicológica e 84,4% para maus-tratos físicos, e 96,5% das crianças e dos adolescentes com deficiência que sofreram punição corporal, também foram vítimas de agressão psicológica (p < 0,01), e todos os que sofreram maus-tratos físicos graves sofreram agressão psicológica (p = 0,01). Crianças e adolescentes com deficiência apresentam maior risco de sofrer violência intrafamiliar do que aquelas sem deficiência. Conclui-se haver necessidade de maior conscientização e capacitação das equipes de saúde em relação à detecção e notificação dos casos de maus-tratos da população estudada e para as medidas de proteção, e esforços devem ser feitos para apoiar essas famílias.

Abstract: This study aimed to identify and analyze the prevalence of physical and psychological family violence in a sample of children and adolescents with different categories of disabilities in a hospital in Rio de Janeiro, Brazil. This was a cross-sectional observational study based on application of the Parent-Child Conflict Tactics Scale in a sample of 270 parents or guardians. Prevalence was 83.7% for psychological aggression and 84.4% for physical maltreatment, while 96.5% of the children and adolescents with disabilities that suffered physical punishment were also victims of psychological aggression (p < 0.01) and 100% of those who suffered severe physical maltreatment also suffered psychological aggression (p = 0.01). Children and adolescents with disabilities showed increased risk of suffering family violence compared to those without disabilities. In conclusion, there is a need for greater awareness-raising and training of health teams for detection and notification of child abuse, and efforts should be made to support these families.

Resumen: El trabajo tuvo como objetivo identificar y analizar la prevalencia de la violencia familiar física y psicológica entre niños y adolescentes con diferentes categorías de discapacidad en un hospital de Río de Janeiro, Brasil. Se trata de un estudio observacional, transversal, realizado a partir de la aplicación de la herramienta Parent-Child Conflict Tactics Scale en una muestra de 270 responsables. Se mostró una prevalencia de un 83,7% en el caso de la agresión psicológica y un 84,4% en el de malos tratos físicos, siendo que un 96,5% de los niños y de los adolescentes con discapacidad que sufrieron castigo corporal, también fueron víctimas de agresión psicológica (p < 0,01) y todos los que sufrieron malos tratos físicos graves sufrieron agresión psicológica (p = 0,01). Niños y adolescentes con discapacidad presentan un mayor riesgo de sufrir violencia intrafamiliar que aquellos sin discapacidad. Se concluye que existe necesidad de una mayor concienciación y capacitación de los equipos de salud, en relación con la detección y notificación de los casos de malos tratos de la población estudiada y desarrollo de medidas de protección y esfuerzos en apoyo a estas familias.

Dental needs and management of children with special health care needs according to type of disability.

PURPOSE: The purpose of this study was to investigate the dental needs and management of special health care needs children in Rio de Janeiro, Brazil, according to the type of disability. METHODS: Records of 428 0- to 19-year-old patients who received dental treatment at the Patients Special Care Needs Clinic (Department of Pediatric Dentistry and Orthodontics, School of Dentistry, Universidade Federal do Rio de Janeiro) from 1996-2009 were analyzed. Information about the type of disability, use of medication, dental exam findings, management during treatment, dental treatment performed, and follow-up examinations were collected. Children were divided into 2 groups: those with medical conditions and those with intellectual disability. RESULTS: Patients with medical conditions used more medications and were older than those with intellectual disability. The most common dental treatments received were dental restorations (63%) and extractions (47%). There was no association between the type of disability and dental treatment needed. Children with intellectual disability were 3 times more likely to need general anesthesia and 7 times more likely to need physical restraint for dental care than the other group. CONCLUSIONS: Children with intellectual disability have a greater chance of requiring advanced management techniques during dental treatment. The development of effective oral health programs is recommended as well as a specific education program for their parents.

Dental treatment under general anesthesia in healthy and medically compromised developmentally disabled children: a comparative study.

AIM: To compare the type, number of procedures and working time of dental treatment provided under dental general anesthesia (DGA) in healthy and medically compromised/developmentally disabled children (MCDD children). DESIGN: This cross-sectional prospective study involved 80 children divided into two groups of 40 children each. Group 1 consisted of healthy and Group 2 consisted of MCDD children. RESULTS: Healthy children needed more working time than MCDD children, the means being 161 +/- 7.9 and 84 +/- 5.7 minutes, respectively (P = 0.0001). Operative dentistry and endodontic treatments showed a significant statistical difference (P = 0.0001). The means of procedures were 17 +/- 5.0 for healthy children and 11 +/- 4.8 for MCDD children (P = 0.0001). CONCLUSIONS: Healthy children needed more extensive dental treatment than MCDD children under DGA. The information from this sample of Mexican children could be used as reference for determining trends both within a facility as well as in comparing facilities in cross-population studies.

Nutritional status and obesity in children and young adults with disabilities in Punta Arenas, Patagonia, Chile.

Childhood obesity is reaching epidemic proportions throughout the world; however, little is known on the nutritional status of children with disabilities. To address this issue, medical records of 748 children aged 18 years or younger receiving physical therapy during 2004-2005 at a privately sponsored free rehabilitation clinic in Punta Arenas, Patagonia, Chile were abstracted. Data included demographic, clinical, and anthropometric information recorded at the first visit. As a comparison, height and weight were also collected in 215 children attending local schools. Nutritional status was calculated as body mass index (above 6 years of age) or evaluated by growth curves (6 years of age or below) as undernourished, normal, overweight, obese, or morbidly obese. Logistic regression was used to determine risk factors for obesity in these children. Overall, a significant difference in nutritional status between disabled and non-disabled children was found (P<0.001). Children with disabilities had a higher prevalence of both below and above normal weight than non-disabled children. Risk factors for obesity included increasing age and living with a grandparent independent of other socioeconomic factors. Compared with normal children, risk of obesity was doubled for those with developmental delays [odds ratio (OR): 1.96; 95% confidence interval (CI): 1.16-3.34] and neurological disorders (OR: 2.58, 95% CI: 1.26-5.29), whereas individuals with cerebral palsy were less than half as likely to be obese than non-disabled children (OR: 0.46, 95% CI: 0.20-1.03). We conclude that overnutrition continues to be a problem for both disabled and non-disabled children in Patagonia. Programs to increase physical activity and improve nutrition are needed in this isolated part of the world.

Inconsistencies with physical functioning and the child health questionnaire in children with cerebral palsy.

OBJECTIVES: To explore the performance of the Physical Functioning (PF) subscale of the Child Health Questionnaire (CHQ) in children with cerebral palsy (CP). STUDY DESIGN: Parents of 177 children and adolescents (age 3 to 18 years) with CP completed the CHQ -Parent Form 50. Severity of CP was assessed using the 5-level Gross Motor Function Classification System (GMFCS), in which higher levels reflect more severe impairment. RESULTS: PF scores were negatively correlated with GMFCS classification (R = -0.62) and were distributed bimodally in subjects with severe motor impairment. For GMFCS classifications IV and V (n = 59), PF scores were very low (means, 9 to 28; medians, 0 to 8); however, 12% of these subjects had excellent PF scores (> 88) despite being nonambulatory. CONCLUSIONS: Although the CHQ PF subscale correlated well with the GMFCS, the CHQ questions on physical functioning resulted in unexpected responses in approximately 1 in 8 subjects with severe CP. These unanticipated responses to the PF subscale questions may be due to ambiguity in the questions (which do not differentiate between health problems and disability) or to alternative parental interpretation of physical functioning. Confusion in differentiating health status and functional status may make the CHQ less useful in children with significant disabilities.

Puerto Rican understandings of child disability: methods for the cultural validation of standardized measures of child health.

Validating the cultural context of health is important for obtaining accurate and useful information from standardized measures of child health adapted for cross-cultural applications. This paper describes the application of ethnographic triangulation for cultural validation of a measure of childhood disability, the Pediatric Evaluation of Disability Inventory (PEDI) for use with children living in Puerto Rico. The key concepts include macro-level forces such as geography, demography, and economics, specific activities children performed and their key social interactions, beliefs, attitudes, emotions, and patterns of behavior surrounding independence in children and childhood disability, as well as the definition of childhood disability. Methods utilize principal components analysis to establish the validity of cultural concepts and multiple regression analysis to identify intracultural variation. Findings suggest culturally specific modifications to the PEDI, provide contextual information for informed interpretation of test scores, and point to the need to re-standardize normative values for use with Puerto Rican children. Without this type of information, Puerto Rican children may appear more disabled than expected for their level of impairment or not to be making improvements in functional status. The methods also allow for cultural boundaries to be quantitatively established, rather than presupposed.

Demostración de alcances benéficos del concepto Bobath en el Hospital de Niños Dr. Mario Ortiz Suárez / Demonstration of benefical scope of the concept bobath in the children's hospital Dr. Mario Ortiz Suarez

La razón fundamental que ha motivado a realizar este proyecto de Grado denominando: Demostración de alcances benéficos del concepto Bobath, en el hospital de niños Dr. Mario Ortiz Suarez, de Santa Cruz, es el afán de no dejar que quede estéril el esfuerzo por desarrollar innovaciones en el ejercicio de la fisioterapia. Un mensaje, quizás una plegaria que dice: "Amar lo perfecto es fácil. lo imperfecto es lo dificil, gracias por amarme como soy"; manifiestan el sentimiento de estos niños, por lo que este trabajo de investigación ha buscado es ser sinónimo de amor expresado por el fisoterapeuta desde su perspectiva profesional. Es así como el estudio se desarrollo en la ciudad de Santa Cruz de la Sierra en torno al Hospital de Niños "Dr. Mario Ortiz Suarez" teniendo como población de estudio a niños de 0 a 3 años grupo que será beneficiado de manera preferencial con los alcances obtenidos...

Meios de Comunicaþõo: a educaþõo e o indivíduo deficiente / Medios de comunicación: educación y el individuo deficiente / Mass media: education and deficient individual

Los medios de comunicación no son malos, tan sólo reflejan una sociedad petenciosa e incapaz de percibir la dicapacidad como un problema humano. En Brasil el tema ni llega a ser una cuestión social o política. La falta de compromiso no es del periodista, es del hombre, del ciudadano (AU)

Meios de Comunicaçäo: a educaçäo e o indivíduo deficiente / Medios de comunicación: educación y el individuo deficiente / Mass media: education and deficient individual

Los medios de comunicación no son malos, tan sólo reflejan una sociedad petenciosa e incapaz de percibir la dicapacidad como un problema humano. En Brasil el tema ni llega a ser una cuestión social o política. La falta de compromiso no es del periodista, es del hombre, del ciudadano

Parálisis cerebral infantil en la ciudad de El Alto: estudio de su incidencia en CEREFE: una nueva alternativa para niños discapacitados en El Alto (La Paz) / Child cerebral palsy in the city of the high one: study of its incidence in cerefe: a new alternative for disabled children in the high one ( La Paz)

Es objetivo de este estudio es determinar la incidenciade pacientes con Parálisis CerebralInfantil (PCI)que asistieron durante el año 1991 al Centro de Rehabilitación Física y Educación Especial