Monitorização residencial da pressão arterial em adultos com hipertensão arterial sistêmica em tratamento medicamentoso, independentemente da pressão arterial do consultório / Residential monitoring of blood pressure in adults with systemic arterial hypertension in medication treatment, regardless of the blood pressure in the office

INTRODUÇÃO: A HAS é uma condição clínica multifatorial caracterizada por níveis elevados e sustentados de PA. Além de ser causa direta de cardiopatia e nefropatia hipertensivas, a HAS é fator de risco linear e contínuo para doenças decorrentes de aterosclerose e trombose, que se manifestam, predominantemente, por doença isquêmica cardíaca, cerebrovascular, vascular periférica e renal, assim como de morte prematura. No Brasil, a prevalência média é estimada em 32%, e pode chegar a mais de 50% em indivíduos com 60 a 69 anos e 75% em indivíduos com mais de 70 anos. Embora as diretrizes atuais recomendem o uso de monitorização ambulatorial da pressão arterial (MAPA) ou MRPA para monitoramento da resposta ao tratamento; este monitoramento é realizado no SUS apenas pela MAPA e medida da PA de consultório, ainda que o primeiro não esteja acessível para toda a população com indicação e o segundo não seja considerado suficientemente confiável para esse monitoram

Ampliação de uso da ventilação não invasiva no tratamento das manifestações pulmonares crônicas e graves de pacientes com Fibrose Cística / Expanding the use of non-invasive ventilation in the treatment of chronic and severe pulmonary manifestations of patients with Cystic Fibrosis

INTRODUÇÃO: A fibrose cística (FC) é uma doença genética autossômica recessiva rara que pode estar presente em todos os grupos étnicos, mas predomina na população caucasiana. Ocorre por mutação em um gene que codifica a proteína reguladora de condução transmembrana da FC (CFTR), cuja deficiência ou ausência ocasiona a desidratação e o aumento da viscosidade das secreções mucosas, favorecendo obstrução das vias aéreas, ductos intrapancreáticos, ductos seminíferos e vias biliares. É uma doença multissistêmica, que acomete principalmente os sistemas respiratório e digestivo, sendo o comprometimento pulmonar o responsável pela maior morbimortalidade dos portadores. O acúmulo de muco espesso nas vias respiratórias inferiores e a presença de reação inflamatória local são as características chave da sua fisiopatogenia. O pulmão torna-se cronicamente infectado por bactérias e os ciclos repetidos de inflamação e remodelação na evolução da doença levam à doença obstrutiva crônica e irreversível. O Protocolo Clínico e Diretrizes Terapêuticas (PCDT) de FC atual do Ministério da Saúde (MS), de 2017, preconiza tratamento tradicional com a remoção das secreções das vias aéreas com alfadornase, visando melhorar a função pulmonar, diminuir a frequência das exacerbações respiratórias, melhorar a qualidade de vida e a hiperinsuflação pulmonar; Recomenda também o uso de tobramicina inalatória, para a manutenção ou melhora da função pulmonar, redução da contagem de colônias de Pseudomonas aeruginosa no escarro e redução das internações. TECNOLOGIA: Ventilação não invasiva (VNI). PERGUNTA: VNI é uma opção terapêutica adjuvante segura e eficaz para o tratamento da fibrose cística associada a insuficiência respiratória avançada? EVIDÊNCIAS CIENTÍFICAS: Com bas

Lugar de fallecimiento de pacientes con procesos paliativos: ¿podemos invertir la tendencia de fallecer en el hospital? / Place of death of patients receiving palliative care: can we reverse the trend of dying in hospitals?

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New Data on Access to Mental Health and Addictions Services and Home and Community Care.

As the population ages, more Canadians need home care to help manage their health conditions and live safely at home. For Canadians of all ages, timely access to mental health and addictions services is an area of growing concern. The impact of the COVID-19 pandemic and its strain on health system resources have further highlighted the need to improve services in these areas. The Canadian Institute for Health Information (CIHI) is working with governments across Canada to bridge data gaps, develop indicators and publicly report results as part of a collective effort to improve access in these two sectors. Results for three new indicators were released by CIHI in 2020.

[The CoViD-19 epidemic is posing entirely new problems for home cancer care services.] / Cure domiciliari oncologiche nel corso dell'epidemia da CoViD-19.

We report on the protocol adopted by the Oncological Home Care Service of the Tuscany Cancer Association during the CoViD-19 pandemic. Based on the experience in home cancer care gained during the 2009 earthquake, we have developed strategies to ensure continuity of care, non-abandonment and protection of operators. In this context, the double triage protocol plays a central role, aimed at identifying patients at risk for CoViD-19 infection and rationalizing home access. we describe the protocol and present the preliminary data.

Trends in Home Care-the Coming Resource Crisis.

Nursing and other workforce shortages are among the challenges.

Women Caring for Our Aging in Place Seniors Will Lose Out because of U.S. Immigration Policies.

Most older people experiencing chronic health problems, physical disabilities, and memory losses are still able to age in place in their own homes. However, they often need help from others to enjoy healthy, active, and independent lives. They turn mostly to family members, mainly women and usually their daughters, daughters-in-law or wives. But caring for frail elders has become more demanding and complex, and these family members often feel physically and emotionally overwhelmed and burnt out. They concede that they cannot do it alone. Others find it more difficult to hold full-or even part-time jobs. Hiring home (direct) care workers to assist their loved ones can be an effective solution to ease their caregiving responsibilities. However, these personal care aides, home health aides, and nursing assistants are already in short supply. Moreover, going forward the aging of the baby boomer population will result in an even greater demand for their services even as these jobs are often unattractive to American-born workers and turnover is high. This country's immigration policies will make it even more difficult for women caring for older persons to hire these workers. Over 25 percent of home care workers are low-skilled immigrants or foreign-born. However, the Trump administration's policies reduce the number of immigrants entering the U.S. and specifically choke off the various pathways that enable low-skilled persons to be hirable in the home care sector. Female caregivers seeking relief from their caregiving responsibilities will lose out unless we remove these immigration barriers.

Rural-Urban Disparities in Access to Home- and Community-Based Services and Supports: Stakeholder Perspectives From 14 States.

OBJECTIVES: Trends over time in the United States show success in rebalancing long-term services and supports (LTSS) toward increased home- and community-based services (HCBS) relative to institutionalized care. However, the diffusion and utilization of HCBS may be inequitable across rural and urban residents. We sought to identify potential disparities in rural HCBS access and utilization, and to elucidate factors associated with these disparities. DESIGN: We used qualitative interviews with key informants to explore and identify potential disparities and their associated supply-side factors. SETTING AND PARTICIPANTS: We interviewed 3 groups of health care stakeholders (Medicaid administrators, service agency managers and staff, and patient advocates) from 14 states (n = 40). MEASURES: Interviews were conducted using a semistructured interview guide, and data were thematically coded using a standardized codebook. RESULTS: Stakeholders identified supply-side factors inhibiting rural HCBS access, including limited availability of LTSS providers, inadequate transportation services, telecommunications barriers, threats to business viability, and challenges to caregiving workforce recruitment and retention. Stakeholders perceived that rural persons have a greater reliance on informal caregiving supports, either as a cultural preference or as compensation for the dearth of HCBS. CONCLUSIONS/IMPLICATIONS: LTSS rebalancing efforts that limit the institutional LTSS safety net may have unintended consequences in rural contexts if they do not account for supply-side barriers to HCBS. We identified supply-side factors that (1) inhibit beneficiaries' access to HCBS, (2) affect the adequacy and continuity of HCBS, and (3) potentially impact long-term business viability for HCBS providers. Spatial isolation of beneficiaries may contribute to a perceived lack of demand and reduce chances of funding for new services. Addressing these problems requires stakeholder collaboration and comprehensive policy approaches with attention to rural infrastructure.

Diabetes prevalence among older people receiving care at home: associations with symptoms, health status and psychological well-being.

AIMS: To determine the prevalence of diabetes among older people receiving care at home, and to explore differences in sociodemographic and clinical characteristics, symptoms, health status, quality of life and psychological well-being between diabetes categories defined as HbA1c ≥ 48 mmol/mol (6.5%) and/or self-report. METHODS: A community-based sample of 377 people receiving care at home in Western Norway participated in a cross-sectional survey. Instruments included the MMSE-NR, Symptom Check-List, WHO Quality of Life-BREF (WHOQOL-BREF, global items), EuroQol EQ-5D-5L/EQ-5D-VAS and WHO-Five Well-Being Index (WHO-5). Participants were grouped into four categories: no diabetes, self-report only, HbA1c ≥ 48 mmol/mol (6.5%) and self-report, and HbA1c ≥ 48 mmol/mol (6.5%) only. RESULTS: Median age (IQR) was 86 (81-91) years and 34% of the sample were men. We identified 92 people (24%) with diabetes. Diabetes was more prevalent in men than women (34% vs. 20%, age-adjusted P = 0.005). Among people with diabetes, 14% were unaware of their diagnosis. There were significant differences in symptoms between the diabetes categories, with more symptoms (abnormal thirst, polyuria, genital itching, nausea, excessive hunger, perspiring, cold hands/feet, daytime sleepiness) among the groups with elevated HbA1c . Significant differences in WHO-5, WHOQOL-BREF and EQ-5D-5L between diabetes categories were identified, with the poorest scores in the group with undiagnosed diabetes. CONCLUSIONS: A high percentage of people with diabetes receiving care at home are unaware of their diagnosis. Diabetes deserves increased case-finding efforts and allocation of resources towards those receiving care at home to alleviate symptoms and the burden of inadequate diabetes care.

No Place Like Home: A Systematic Review of Home Care for Older Adults in Canada.

ABSTRACTGiven Canada's aging population, the demand for home care is expected to increase significantly. To date, little is known about home care for older adults in Canada such as characteristics of home care recipients, gaps in services, or interventions designed to support home care client needs. Consequently, we conducted a systematic review of seven electronic databases for the years 2000-2016 to examine the current knowledge of home care services for Canada's older adults. This synthesis examined four main themes in the literature: older adult client-level predictors; unmet care needs; interventions; and issues and challenges in home care. This review found significant knowledge gaps on home care for older adults across the country, as over half of the studies were focused primarily in Ontario. Although promising strategies were evident, more research and evaluation of interventions, and outcomes are required to effectively support Canada's home care system now and over time.

Older lesbians receiving home care: formal and informal dimensions of caregiving.

Older lesbians face the triple jeopardy of ageism, sexism, and heterosexism, and their experiences are largely invisible. This qualitative, exploratory study examines the formal and informal caregiving experiences of 20 lesbians, 65 and older, who had utilized home care services due to acute illness or chronic disabilities. Half of those not partnered reported some level of isolation from support networks. Nearly all study participants eventually found home care workers with whom they were satisfied and even quite connected. Practice implications are discussed in context of study participants' views of how being lesbian affects their aging process and day-to-day lives.

Social support and care needs of the disabled elderly population: An empirical study based on survey data from Beijing, China.

In order to describe and examine differences in social support and care needs among disabled Chinese elderly, the current study used stratified sampling to survey local residents of Beijing age 60 or over in the districts of Xicheng, Chaoyang, and Tongzhou in 2016. Structured in-person interviews were conducted with a 7-domain questionnaire. Multiple logistic regressions were used to compare social support and care needs among functioning, partially disabled, and completely disabled elderly. All statistical analyses were performed using SPSS 19.0 with a significance level of 0.05 (two-sided). One thousand and eighty-three residents completed the survey. Based on Activities of Daily Living (ADL) scores, 736 (68.0%) respondents were functioning (ADL score = 14), 167 (15.4%) were partially disabled (14 < ADL score < 22), and 180 (16.6%) were fully disabled (ADL score ≥ 22). Most of the disabled had formal financial support, they received daily care at home, and they received modest emotional support. After controlling for confounding factors, fully disabled respondents were 2.35 times (p = 0.018) more likely to receive financial support and 3.65 times (p = 0.003) more likely to receive emotional support than functioning respondents. However, the fully functioning and partially disabled did not differ significantly in terms of financial or emotional support. Compared to fully functioning respondents, partially disabled respondents were 0.49 (p < 0.001) times less likely to be fully satisfied with their daily care while fully disabled respondents were 0.37 (p < 0.001) times less likely to be fully satisfied with that care. The current study provided a thorough depiction of the current status of social support and care needs of disabled Chinese elderly. More attention should be paid to social support for the partially disabled and daily care for both the partially and fully disabled.

Home-based care: barriers and facilitators to expanded personal support worker roles in Ontario, Canada.

To accommodate the increasing demand for home care in Ontario, Canada, some care tasks traditionally performed by regulated health professionals are being transferred to personal support workers (PSW). However, this expansion of PSW roles is not uniform across the province. Between December 2014 and April 2015, barriers and facilitators to expansion of PSW roles in home care were explored in a series of 13 focus groups. Home care staff identified seven categories of factors affecting the expansion of PSW roles in home care including: communication and documentation; organization and structures of care; attitudes and perceptions of the expanding PSW role; adequate staffing; education, training and support; PSW role clarity and variation in practices, policies, and procedures. Addressing barriers and promoting facilitators at the funder and employer levels will enable the provision of safe, effective, and equitable care by PSWs.

"We don't have the infrastructure to support them at home": How health system inadequacies impact on long-term care admissions of people with dementia.

OBJECTIVES: The influence of healthcare system factors on long-term care admissions has received relatively little attention. We address this by examining how inadequacies in the healthcare system impact on long-term care admissions of people with dementia. This is done in the context of the Irish healthcare system. METHODS: Thirty-eight qualitative in-depth interviews with healthcare professionals and family carers were conducted. Interviews focused on participants' perceptions of the main factors which influence admission to long-term care. Interviews were analysed thematically. RESULTS: The findings suggest that long-term care admissions of people with dementia may be affected by inadequacies in the healthcare system in three ways. Firstly, participants regarded the economic crisis in Ireland to have exacerbated the under-resourcing of community care services. These services were also reported to be inequitable. Consequently, the effectiveness of community care was seen to be limited. Secondly, such limits in community care appear to increase acute hospital admissions. Finally, admission of people with dementia to acute hospitals was believed to accelerate the journey towards long-term care. CONCLUSIONS: Inadequacies in the healthcare system are reported to have a substantial impact on the threshold for long-term care admissions. The findings indicate that we cannot fully understand the factors that predict long-term care admission of people with dementia without accounting for healthcare system factors on the continuation of homecare.

Allocation of home care services by municipalities in Norway: a document analysis.

BACKGROUND: In Norway, elder care is primarily a municipal responsibility. Municipal health services strive to offer the 'lowest level of effective care,' and home healthcare services are defined as the lowest level of care in Norway. Municipalities determine the type(s) of service and the amount of care applicants require. The services granted are outlined in an individual decision letter, which serves as a contract between the municipality and the home healthcare recipient. The purpose of this study was to gain insight into the scope and duration of home healthcare services allocated by municipalities and to determine where home care recipients live in relation to home healthcare service offices. METHODS: A document analysis was performed on data derived from 833 letters to individuals allocated home care services in two municipalities in Northern Norway (Municipality A = 500 recipients, Municipality B = 333 recipients). RESULTS: In Municipality A, 74% of service hours were allotted to home health nursing, 12% to practical assistance, and 14% to support contact; in Municipality B, the distribution was 73%, 19%, and 8%, respectively. Both municipalities allocated home health services with no service end date (41% and 85% of the total services, respectively). Among recipients of "expired" services, 25% in Municipality A and 7% in Municipality B continued to receive assistance. CONCLUSIONS: Our findings reveal that the municipalities adhered to the goal for home care recipients to remain at home as long as possible before moving into a nursing home. The findings also indicate that the system for allocating home healthcare services may not be fair, as the municipalities lacked procedures for revising individual decisions. Our findings indicate that local authorities should closely examine how they design individual decisions and increase their awareness of how long a service should be provided.

Declive funcional y presencia de síntomas en cuidados paliativos: ¿causa o consecuencia? / Functional decline and presence of symptoms in palliative care: cause or consequence?

Introducción. Diversas publicaciones han relacionado el declive funcional con la aparición de síntomas, especialmente psicológicos o psiquiátricos, como ansiedad y depresión. Por otra parte, un trastorno depresivo inicial o previo al declive funcional también suele empeorarlo. Nos planteamos conocer la relación entre la existencia de declive funcional medido mediante descenso en índice de Barthel (IB) y la presencia de síntomas. Material y métodos. Estudio analítico prospectivo con los pacientes derivados a un Equipo de Soporte para Atención Domiciliaria (ESAD). Resultados. Seiscientos treinta y ocho casos, 53,9% (N=344) hombres, 56% (N=357) oncológicos y 44% (N=281) no oncológicos. La edad media fue 79,64 ± 10,8 años. Obtuvimos diferencias significativas (p<0,001) en declive funcional medido mediante descenso medio en el IB entre pacientes oncológicos (34,4) y no oncológicos (12,12). Encontramos diferencias significativas (p<0,001) en todos los síntomas registrados (dolor, disnea, anorexia, náuseas, ansiedad, depresión e insomnio) con mayor frecuencia en pacientes oncológicos, salvo en el caso de la agitación psicomotriz. En pacientes con mayor grado de declive funcional, con descensos en IB superior a 20 puntos, se detectó mayor presencia de síntomas. Salvo determinados analgésicos, no hubo diferencias en los tratamientos previos; sí encontramos diferencias en diversos tratamientos pautados por el ESAD. Conclusiones. La existencia de declive funcional y su grado pueden verse relacionados con la aparición de síntomas, especialmente en el paciente oncológico (AU)

Introduction. Several publications have related functional decline to the appearance of symptoms, especially psychiatric or psychological ones, such as anxiety and depression. Moreover, an initial depressive disorder or prior to functional decline usually worsens it. It was decided to investigate the relationship between the presence of functional decline, measured by a decrease in the Barthel index (BI), and the presence of symptoms. Material and methods. A prospective analytical study conducted on patients referred to a Home Care Support Team (HCST). Results. The study included 638 cases, of which 53.9% (N=344) were male, 56% (N=357) with cancer and 44% (N=281) geriatric. The mean age was 79.64 years+- 10.8. Significant differences (P<.001) were found in functional decline measured by mean decline in the BI between cancer (34.4) and non-cancer patients (12.12). Significant differences (P<.001) were also found in all recorded symptoms (pain, dyspnoea, anorexia, nausea, anxiety, depression, and insomnia), more frequently in cancer patients, except psychomotor agitation. A higher presence of symptoms was detected in patients with greater functional decline, with decreases in BI above 20 points. There were no differences in previous treatments, except in certain analgesics. Differences were found in the different treatments prescribed by HCST. Conclusions. The presence of functional decline and its level may be related to the appearance of symptoms, especially in cancer patients (AU)

Rebalance Without the Balance: A Research Note on the Availability of Community-Based Services in Areas Where Nursing Homes Have Closed.

Policies to "rebalance" funding away from nursing homes and toward home and community-based services (HCBS) have encouraged national trends of nursing home closure and an expansion of the HCBS industry. These changes are unfolding without a clear understanding of what services are available at the local level. The purpose of this study was: (1) to describe the current distribution of community-based services (CBS) in areas where nursing homes have closed and (2) to examine differences in availability of CBS using local market and population characteristics as regressors in a multinomial logistic model. We collected data on and geocoded CBS facilities and then used ArcGIS to define a 5-mile radius around all nursing homes that closed between 2006 and 2010 and compared these local market areas. In rural areas, availability of CBS does not appear to compensate for nursing home closures. Policies encouraging HCBS may be outpacing availability of CBS, especially in rural areas.