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1.
Am Ann Deaf ; 168(5): 274-295, 2024.
Artículo en Inglés | MEDLINE | ID: mdl-38766939

RESUMEN

Extant research on learners who are d/Deaf or hard of hearing with disabilities who come from Asian immigrant families is extremely sparse. The authors conducted an intrinsic case study of a deaf student with autism who comes from a Korean immigrant family. To acquire a comprehensive understanding of language and communication characteristics, they analyzed (a) interview data of three administrators who worked with the student and family and (b) school documents/reports issued to the parents. Themes are reported across the three components of the tri-focus framework (Siegel-Causey & Bashinski, 1997): the learner, partner, and environment. Implications for practitioners who work with these learners and their families are discussed, including (a) compiling an individualized language and communication profile that encompasses the framework; (b) utilizing culturally and linguistically responsive practices with the family; (c) practicing interprofessional collaboration; and (d) modifying physical and social environments to increase accessibility.


Asunto(s)
Trastorno del Espectro Autista , Sordera , Emigrantes e Inmigrantes , Humanos , Trastorno del Espectro Autista/psicología , Trastorno del Espectro Autista/etnología , Emigrantes e Inmigrantes/psicología , Sordera/psicología , Sordera/rehabilitación , Sordera/etnología , Masculino , Comunicación , Personas con Deficiencia Auditiva/psicología , Educación de Personas con Discapacidad Auditiva , Niño , República de Corea , Femenino , Barreras de Comunicación , Lengua de Signos , Medio Social , Lenguaje
2.
Health Soc Work ; 49(2): 105-114, 2024 Apr 29.
Artículo en Inglés | MEDLINE | ID: mdl-38503492

RESUMEN

Children with autism spectrum disorder and developmental disabilities (ASD/DD) face barriers to participation in health promotion programs due to the lack of available and/or affordable programs and trained staff at recreation centers. Children with ASD/DD in Korean immigrant families are one of the most underserved minority groups due to language, racial/ethnic discrimination, and stigma and shame within their own ethnic community. However, little research is available on development, implementation, and evaluation of a culturally adapted community health promotion program in this population. The purpose of this study is to assess effectiveness of a pilot program for children with ASD/DD from first-generation Korean immigrant families. The pilot study used a quantitative, quasiexperimental design (one-group design with pre- and posttest) following a seven-week health promotion program. We recruited 15 children with ASD/DD, ages nine through 16, from first-generation Korean immigrant families. The findings of the study suggest that the pilot program was effective in gaining nutrition knowledge and increasing physical involvement among participants. Given the fact that Asian immigrants are a fast-growing population and that nearly 75 percent of them were born abroad, development and evaluation of a community-based, culturally adapted health promotion program is urgently needed.


Asunto(s)
Trastorno del Espectro Autista , Discapacidades del Desarrollo , Emigrantes e Inmigrantes , Promoción de la Salud , Humanos , Trastorno del Espectro Autista/etnología , Trastorno del Espectro Autista/terapia , Emigrantes e Inmigrantes/psicología , Masculino , Proyectos Piloto , Promoción de la Salud/métodos , Femenino , Niño , República de Corea/etnología , Adolescente , Asiático/psicología , Asistencia Sanitaria Culturalmente Competente
3.
Autism ; 27(8): 2407-2421, 2023 11.
Artículo en Inglés | MEDLINE | ID: mdl-37070240

RESUMEN

LAY ABSTRACT: Latino parents may choose to use complementary health approaches, such as vitamins, supplements, and special diets, for their autistic children. However, they might not tell their pediatrician about their complementary health approach use if they worry that the pediatrician will disapprove or judge them. This fear, along with pediatricians' lack of autism knowledge, creates barriers to "shared decision-making" between parents and pediatricians. Shared decision-making is a process where families and healthcare providers collaborate and exchange information in order to come to an agreement about treatment options. In our qualitative study with 12 bilingual Latino families of autistic children, we interviewed and observed families to learn about their experiences with both conventional healthcare (their pediatrician) and complementary health approaches. Our study results describe the parents' different pathways to an autism assessment, a process that is sometimes called the "diagnostic odyssey." The parents reported that conventional healthcare met their needs for their child's physical health but not for their child's developmental challenges. The parents who used complementary health approaches for their autistic children were more frustrated about a lack of autism information from pediatricians than those who did not use complementary health approaches. Finally, we describe two examples of successful shared decision-making between parents and pediatricians. We conclude that pediatricians who are able to talk about complementary health approaches with Latino families may help to facilitate shared decision-making and reduce healthcare disparities for Latino autistic children.


Asunto(s)
Trastorno del Espectro Autista , Terapias Complementarias , Toma de Decisiones Conjunta , Hispánicos o Latinos , Padres , Rol del Médico , Niño , Humanos , Trastorno del Espectro Autista/diagnóstico , Trastorno del Espectro Autista/etnología , Trastorno del Espectro Autista/psicología , Trastorno del Espectro Autista/terapia , Disparidades en Atención de Salud , Hispánicos o Latinos/psicología , Padres/psicología , Pediatras/psicología , Accesibilidad a los Servicios de Salud/estadística & datos numéricos , Juicio , Miedo , Responsabilidad Parental/etnología , Responsabilidad Parental/psicología , Investigación Cualitativa , Terapias Complementarias/métodos , Terapias Complementarias/psicología , Relaciones Médico-Paciente
4.
J Autism Dev Disord ; 53(8): 3133-3143, 2023 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-35596829

RESUMEN

Studies have proposed that individuals with autism spectrum disorder (ASD) can be divided into several subtypes depending on their sensory features. However, consideration of social communication features is also crucial for configuring ASD subtypes, because social and sensory features are tightly interrelated. In this study, we asked Japanese individuals with ASD to answer the Short Sensory Profile (SSP) and the Social Responsiveness Scale, Second Edition (SRS-2), which measure sensory and social aspects, respectively. Consequent latent profile analysis demonstrated that the participants could be divided into five subgroups: two groups exhibited opposite or inconsistent patterns between the SSP and SRS-2 scores, while the other groups exhibited consistent patterns. Our findings indicate the existence of diverse phenotypes in individuals with ASD.


Asunto(s)
Trastorno del Espectro Autista , Humanos , Trastorno del Espectro Autista/clasificación , Trastorno del Espectro Autista/etnología , Comunicación , Pueblos del Este de Asia , Fenotipo
5.
Autism ; 26(4): 988-994, 2022 05.
Artículo en Inglés | MEDLINE | ID: mdl-34533064

RESUMEN

LAY ABSTRACT: Black autistic people experience anti-Black racism when interacting with service systems and the clinicians in those systems. In this article, we describe the various steps families take to get services and how anti-Black racism makes that process even harder. We discuss research that shows the negative effects of anti-Black racism in autism assessment, treatment, and quality of care. We then provide five recommendations that clinicians should follow to reduce anti-Black racism in the autism field: (1) find Black autistic people and listen to their opinions about your organization, (2) always keep learning about how your profession promotes anti-Black racism, (3) recognize that the process of a clinician learning to be culturally humble takes time and is never "complete," (4) pay attention to all of the steps that families must take to receive autism services and how these steps are even harder for Black individuals, and (5) advocate for your organization to make systems-level changes in their policies and procedures.


Asunto(s)
Trastorno del Espectro Autista/etnología , Racismo , Trastorno del Espectro Autista/diagnóstico , Trastorno del Espectro Autista/terapia , Trastorno Autístico/diagnóstico , Trastorno Autístico/etnología , Trastorno Autístico/terapia , Humanos , Racismo/prevención & control
6.
Psicol. Estud. (Online) ; 27: e58929, 2022.
Artículo en Español | LILACS, Index Psicología - Revistas | ID: biblio-1376060

RESUMEN

RESUMEN En el presente artículo, escrito en el contexto de la pandemia 2020-2021 y en el marco del cumplimento del Aislamiento Social Preventivo y Obligatorio (ASPO), analizamos dos experiencias comunitarias vinculadas al cuidado de las infancias y adolescencias que se desarrollan en las provincias de Neuquén y Río Negro (Patagonia Argentina). Dicho análisis es resultado de una investigación cualitativa realizada desde la perspectiva de la Psicología Social Crítica y las Políticas Públicas en la que buscamos recuperar los saberes sociales que estas iniciativas comunitarias pueden aportar al diseño y reformulación de las políticas públicas de cuidado. Específicamente, las experiencias que aquí presentamos son: la Asociación Civil GAIA-Nueva Crianza, conformada por familias de niñes y adolescentes trans; y la Asociación Civil Lazos Azules, integrada por familias de niños y adolescentes con TEA (Trastorno del Espectro Autista). Si bien las dos asociaciones son muy diferentes entre sí, ambas coinciden en estar protagonizadas por familias que, a partir de haber escuchado y prestado atención a las necesidades de sus hijo/a/es, se organizaron colectivamente para visibilizar la realidad de sus niño/a/es y adolescentes generando distintas acciones. Dichas acciones tienden no sólo a hacer efectivos los derechos de las infancias y adolescencias, especialmente aquellos vinculados a la identidad, la educación y la salud, sino que están orientadas a incidir en las políticas públicas de cuidado a nivel local desde lo que Boaventura de Sousa Santos denomina la sociología de las emergencias y desde lo que Rita Segato designa como una politicidad en clave femenina anfibia.


RESUMO. Neste artigo, escrito no contexto da pandemia 2020-2021 e no quadro do cumprimento do Isolamento Social Preventivo e Obrigatório (ASPO), analisamos duas experiências comunitárias relacionadas com o cuidado de crianças e adolescentes que ocorrem nas províncias de Neuquén e Río Negro (Patagônia Argentina). Esta análise é resultado de uma pesquisa qualitativa realizada na perspectiva da Psicologia Social Crítica e das Políticas Públicas, na qual buscamos resgatar o conhecimento social de que essas iniciativas comunitárias podem contribuir para o desenho e reformulação das políticas públicas de atenção. Especificamente, as experiências que aqui apresentamos são: a Associação Civil GAIA-Nueva Crianza, formada por famílias de crianças e adolescentes trans; e a Associação Civil Lazos Azules, formada por famílias de crianças e adolescentes com TEA (Transtorno do Espectro do Autismo). Embora as duas associações sejam muito diferentes entre si, ambas coincidem no fato de serem lideradas por famílias que, depois de ouvir e atentar para as necessidades dos filhos, se organizam coletivamente para tornar visível a realidade dos filhos. a / es e adolescentes gerando diferentes ações. Essas ações tendem não só a efetivar os direitos da criança e do adolescente, especialmente aqueles vinculados à identidade, educação e saúde, mas visam influenciar as políticas públicas de atenção em nível local a partir do que Boaventura de Sousa Santos denomina a sociologia das emergências e do que Rita Segato designa como feminilidade anfíbia chave de politicidade.


ABSTRACT In this article, written in the context of the 2020-2021 pandemic and in compliance with the Preventive and Compulsory Social Isolation (ASPO), we analyze two community experiences related to the care of children and adolescents that take place in the provinces of Neuquén and Río Negro (Argentinian Patagonia). This analysis is the result of a qualitative study carried out from the perspective of Critical Social Psychology and Public Policy, in which we seek to recover the social knowledge that these community initiatives can contribute to the design and reformulation of public care policies. Specifically, the experiences we present here are the GAIA-Nueva Crianza Civil Association, made up of families of trans children and adolescents; and the Lazos Azules civil association, made up of families of children and adolescents with ASD (autism spectrum disorder). Although the two associations are very different from each other, they both coincide in being led by families who, after having listened and paid attention to the needs of their children, they organized collectively to make visible the reality of their children and adolescents by generating different actions. These actions tend not only to make effective the rights of children and adolescents, especially those linked to identity, education and health, but are also aimed at influencing public care policies at the local level, from what Boaventura de Sousa Santos calls the sociology of emergencies and from what Rita Segato designates amphibious feminine key politicity.


Asunto(s)
Humanos , Masculino , Femenino , Niño , Adolescente , Psicología Social/educación , Política Pública , Protección a la Infancia/psicología , Educación , Aislamiento Social/psicología , Cuidado del Niño/psicología , Trastorno del Espectro Autista/etnología , Diversidad de Género , Identidad de Género , Antropología Cultural/educación
7.
MMWR Surveill Summ ; 70(11): 1-16, 2021 12 03.
Artículo en Inglés | MEDLINE | ID: mdl-34855725

RESUMEN

PROBLEM/CONDITION: Autism spectrum disorder (ASD). PERIOD COVERED: 2018. DESCRIPTION OF SYSTEM: The Autism and Developmental Disabilities Monitoring (ADDM) Network conducts active surveillance of ASD. This report focuses on the prevalence and characteristics of ASD among children aged 8 years in 2018 whose parents or guardians lived in 11 ADDM Network sites in the United States (Arizona, Arkansas, California, Georgia, Maryland, Minnesota, Missouri, New Jersey, Tennessee, Utah, and Wisconsin). To ascertain ASD among children aged 8 years, ADDM Network staff review and abstract developmental evaluations and records from community medical and educational service providers. In 2018, children met the case definition if their records documented 1) an ASD diagnostic statement in an evaluation (diagnosis), 2) a special education classification of ASD (eligibility), or 3) an ASD International Classification of Diseases (ICD) code. RESULTS: For 2018, across all 11 ADDM sites, ASD prevalence per 1,000 children aged 8 years ranged from 16.5 in Missouri to 38.9 in California. The overall ASD prevalence was 23.0 per 1,000 (one in 44) children aged 8 years, and ASD was 4.2 times as prevalent among boys as among girls. Overall ASD prevalence was similar across racial and ethnic groups, except American Indian/Alaska Native children had higher ASD prevalence than non-Hispanic White (White) children (29.0 versus 21.2 per 1,000 children aged 8 years). At multiple sites, Hispanic children had lower ASD prevalence than White children (Arizona, Arkansas, Georgia, and Utah), and non-Hispanic Black (Black) children (Georgia and Minnesota). The associations between ASD prevalence and neighborhood-level median household income varied by site. Among the 5,058 children who met the ASD case definition, 75.8% had a diagnostic statement of ASD in an evaluation, 18.8% had an ASD special education classification or eligibility and no ASD diagnostic statement, and 5.4% had an ASD ICD code only. ASD prevalence per 1,000 children aged 8 years that was based exclusively on documented ASD diagnostic statements was 17.4 overall (range: 11.2 in Maryland to 29.9 in California). The median age of earliest known ASD diagnosis ranged from 36 months in California to 63 months in Minnesota. Among the 3,007 children with ASD and data on cognitive ability, 35.2% were classified as having an intelligence quotient (IQ) score ≤70. The percentages of children with ASD with IQ scores ≤70 were 49.8%, 33.1%, and 29.7% among Black, Hispanic, and White children, respectively. Overall, children with ASD and IQ scores ≤70 had earlier median ages of ASD diagnosis than children with ASD and IQ scores >70 (44 versus 53 months). INTERPRETATION: In 2018, one in 44 children aged 8 years was estimated to have ASD, and prevalence and median age of identification varied widely across sites. Whereas overall ASD prevalence was similar by race and ethnicity, at certain sites Hispanic children were less likely to be identified as having ASD than White or Black children. The higher proportion of Black children compared with White and Hispanic children classified as having intellectual disability was consistent with previous findings. PUBLIC HEALTH ACTION: The variability in ASD prevalence and community ASD identification practices among children with different racial, ethnic, and geographical characteristics highlights the importance of research into the causes of that variability and strategies to provide equitable access to developmental evaluations and services. These findings also underscore the need for enhanced infrastructure for diagnostic, treatment, and support services to meet the needs of all children.


Asunto(s)
Trastorno del Espectro Autista/epidemiología , Disparidades en el Estado de Salud , Vigilancia de la Población , Trastorno del Espectro Autista/etnología , Niño , Monitoreo Epidemiológico , Etnicidad/estadística & datos numéricos , Femenino , Geografía , Humanos , Masculino , Prevalencia , Factores Raciales , Grupos Raciales/estadística & datos numéricos , Estados Unidos/epidemiología
9.
J Pediatr ; 237: 258-266.e5, 2021 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-34144030

RESUMEN

OBJECTIVES: To compare mealtime behaviors and diet quality in Chinese preschoolers with autism spectrum disorder (ASD) and typically developing preschoolers in Hong Kong. STUDY DESIGN: This case-control study included a community sample of 65 families with preschoolers with ASD aged 3-6 years and 65 families with typically developing preschoolers matched for age and sex. Preschoolers' eating behaviors were assessed using the Brief Autism Mealtime Behaviour Inventory and the Preschoolers' Eating Behaviour Questionnaire (CPEBQ). Preschoolers' usual diet and nutrient intake were assessed using a validated food frequency questionnaire. Diet quality and diversity were generated using the Chinese Children Dietary Index total score and diet variety score. Between-group differences in various scales and dietary variables were examined using multivariate linear or logistics regression models adjusting for baseline demographic differences. RESULTS: Compared with the typically developing group, the ASD group had greater scores in the Brief Autism Mealtime Behaviour Inventory food refusal domain (P < .001), the CPEBQ food fussiness (P = .001) and eating habit (P = .001) domains, and lower CPEBQ exogenous eating score (P = .003) and initiative eating score (P < .001). The Chinese Children Dietary Index total score (P = .001) and diet variety score (P = .005) and intake of soy and soy products (P = .001) were lower in the ASD group compared with the typically developing group. CONCLUSIONS: Preschoolers with ASD showed more eating and mealtime problems, and lower diet quality and diversity than their typically developing counterparts. Our findings highlight the need for regular monitor and early identification of mealtime behavioral and nutrition problems among preschoolers with ASD.


Asunto(s)
Pueblo Asiatico/psicología , Trastorno del Espectro Autista/psicología , Dieta/etnología , Conducta Alimentaria/etnología , Conducta Alimentaria/psicología , Trastorno del Espectro Autista/etnología , Estudios de Casos y Controles , Preescolar , Femenino , Hong Kong , Humanos , Masculino , Factores Socioeconómicos , Encuestas y Cuestionarios
10.
JAMA Pediatr ; 175(6): e210054, 2021 06 01.
Artículo en Inglés | MEDLINE | ID: mdl-33779707

RESUMEN

Importance: The global prevalence of autism spectrum disorder (ASD) has been reported to be between 1% and 2% of the population, with little research in Black, Asian, and other racial/ethnic minority groups. Accurate estimates of ASD prevalence are vital to planning diagnostic, educational, health, and social care services and may detect possible access barriers to diagnostic pathways and services and inequalities based on social determinants of health. Objective: To evaluate whether socioeconomic disadvantage is associated with ASD prevalence and the likelihood of accessing ASD services in racial/ethnic minority and disadvantaged groups in England. Design, Setting, and Participants: This case-control prevalence cohort study used the Spring School Census 2017 from the Pupil Level Annual Schools Census of the National Pupil Database, which is a total population sample that includes all English children, adolescents, and young adults aged 2 to 21 years in state-funded education. Data were collected on January 17, 2017, and analyzed from August 2, 2018, to January 28, 2020. Exposures: Age and sex were treated as a priori confounders while assessing correlates of ASD status according to (1) race/ethnicity, (2) social disadvantage, (3) first language spoken, (4) Education, Health and Care Plan or ASD Special Educational Needs and Disability support status, and (5) mediation analysis to assess how social disadvantage and language might affect ASD status. Main Outcomes and Measures: Sex- and age-standardized ASD prevalence by race/ethnicity and 326 English local authority districts in pupils aged 5 to 19 years. Results: The final population sample consisted of 7 047 238 pupils (50.99% male; mean [SD] age, 10.18 [3.47] years) and included 119 821 pupils with ASD, of whom 21 660 also had learning difficulties (18.08%). The standardized prevalence of ASD was 1.76% (95% CI, 1.75%-1.77%), with male pupils showing a prevalence of 2.81% (95% CI, 2.79%-2.83%) and female pupils a prevalence of 0.65% (95% CI, 0.64%-0.66%), for a male-to-female ratio (MFR) of 4.32:1. Standardized prevalence was highest in Black pupils (2.11% [95% CI, 2.06%-2.16%]; MFR, 4.68:1) and lowest in Roma/Irish Travelers (0.85% [95% CI, 0.67%-1.03%]; MFR, 2.84:1). Pupils with ASD were more likely to face social disadvantage (adjusted prevalence ratio, 1.61; 95% CI, 1.59-1.63) and to speak English as an additional language (adjusted prevalence ratio, 0.64; 95% CI, 0.63-0.65). The effect of race/ethnicity on ASD status was mediated mostly through social disadvantage, with Black pupils having the largest effect (standardized mediation coefficient, 0.018; P < .001) and 12.41% of indirect effects through this way. Conclusions and Relevance: These findings suggest that significant differences in ASD prevalence exist across racial/ethnic groups and geographic areas and local authority districts, indicating possible differential phenotypic prevalence or differences in detection or referral for racial/ethnic minority groups.


Asunto(s)
Trastorno del Espectro Autista/etnología , Trastorno del Espectro Autista/epidemiología , Pobreza , Determinantes Sociales de la Salud , Adolescente , Estudios de Casos y Controles , Niño , Preescolar , Inglaterra/epidemiología , Femenino , Humanos , Lactante , Masculino , Prevalencia , Sistema de Registros , Adulto Joven
12.
Am J Epidemiol ; 190(2): 265-276, 2021 02 01.
Artículo en Inglés | MEDLINE | ID: mdl-33524118

RESUMEN

Polyunsaturated fatty acids (PUFAs) are critical for brain development and have been linked with neurodevelopmental outcomes. We conducted a population-based case-control study in California to examine the association between PUFAs measured in midpregnancy serum samples and autism spectrum disorder (ASD) in offspring. ASD cases (n = 499) were identified through the California Department of Developmental Services and matched to live-birth population controls (n = 502) on birth month, year (2010 or 2011), and sex. Logistic regression models were used to examine crude and adjusted associations. In secondary analyses, we examined ASD with and without co-occurring intellectual disability (ID; n = 67 and n = 432, respectively) and effect modification by sex and ethnicity. No clear patterns emerged, though there was a modest inverse association with the top quartile of linoleic acid level (highest quartile vs. lowest: adjusted odds ratio = 0.74, 95% confidence interval: 0.49, 1.11; P for trend = 0.10). Lower levels of total and ω-3 PUFAs were associated with ASD with ID (lowest decile of total PUFAs vs. deciles 4-7: adjusted odds ratio = 2.78, 95% confidence interval: 1.13, 6.82) but not ASD without ID. We did not observe evidence of effect modification by the factors examined. These findings do not suggest a strong association between midpregnancy PUFA levels and ASD. In further work, researchers should consider associations with ASD with ID and in other time windows.


Asunto(s)
Trastorno del Espectro Autista/epidemiología , Ácidos Grasos Insaturados/sangre , Discapacidad Intelectual/epidemiología , Segundo Trimestre del Embarazo/sangre , Trastorno del Espectro Autista/etnología , Peso al Nacer , California/epidemiología , Estudios de Casos y Controles , Niño , Preescolar , Femenino , Edad Gestacional , Humanos , Discapacidad Intelectual/etnología , Masculino , Oportunidad Relativa , Embarazo , Factores Sexuales , Factores Socioeconómicos
13.
J Autism Dev Disord ; 51(2): 538-549, 2021 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-32533384

RESUMEN

This study examines the prevalence of autism spectrum disorder (ASD) in preschool children in an immigrant population. Possible risk factors for ASD and individual needs for the children and their families are described, as well as implications for health care. The estimated minimum prevalence for ASD in the area was 3.66% for children aged 2-5 years. Multiple risk factors and extensive individual needs for the children and their families were observed. The high prevalence of ASD and the plethora of needs in immigrant communities pose challenges for health care. A coordinated health care system is necessary to meet the many and individual needs.


Asunto(s)
Trastorno del Espectro Autista/etnología , Trastorno del Espectro Autista/psicología , Atención a la Salud/etnología , Emigrantes e Inmigrantes/psicología , Vigilancia de la Población , Adolescente , Adulto , Preescolar , Atención a la Salud/tendencias , Femenino , Humanos , Masculino , Persona de Mediana Edad , Vigilancia de la Población/métodos , Prevalencia , Suecia/etnología , Adulto Joven
14.
J Autism Dev Disord ; 51(3): 868-883, 2021 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-32144605

RESUMEN

Health disparities in ASD detection affect children's access to subsequent interventions. We examined potential disparities in implementation of a multi-stage ASD screening and diagnostic evaluation protocol in Part C Early Intervention with 4943 children ages 14-36 months (mean 22.0 months; 62.9% boys, 73.3% children of color, 34.9% non-English-primary language, 64.5% publicly-insured). Participation and follow-through were high (64.9% and 65.3% at first- and second-stage screening, respectively, 84.6% at diagnostic evaluation). Logistic regressions identified predictors of screening participation and outcomes at each stage; demographic differences (race, language, public insurance) were observed only at first-stage screening and reflected higher participation for children of color and higher positive screens for publicly-insured children. Results suggest the multi-stage screening protocol shows promise in addressing disparities in early diagnosis.


Asunto(s)
Trastorno del Espectro Autista/diagnóstico , Trastorno del Espectro Autista/etnología , Servicios de Salud Comunitaria/métodos , Intervención Educativa Precoz/métodos , Disparidades en Atención de Salud/etnología , Tamizaje Masivo/métodos , Trastorno del Espectro Autista/terapia , Preescolar , Servicios de Salud Comunitaria/normas , Diagnóstico Precoz , Intervención Educativa Precoz/normas , Femenino , Disparidades en Atención de Salud/normas , Humanos , Lactante , Masculino , Tamizaje Masivo/normas
15.
J Autism Dev Disord ; 51(3): 769-777, 2021 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-31201577

RESUMEN

Early diagnosis of autism spectrum disorder (ASD) in children enables earlier access to services and better ability to predict subsequent development. A vast body of literature consistently shows discrepancies in the age of diagnosis between children from varying socio-economic levels, cultural and ethnic backgrounds. The present study examines the effect of sociodemographic factors on age of ASD diagnosis among the three primary ethnic sectors in Jerusalem region: secular and modern religious Jews, ultra-Orthodox Jews and Arabs. Findings indicate minimal differences in age of diagnosis prior to the age of six, although Arab children of this age were largely minimally verbal. After age six, no Arab children were referred for an evaluation.


Asunto(s)
Trastorno del Espectro Autista/diagnóstico , Trastorno del Espectro Autista/etnología , Árabes , Niño , Preescolar , Demografía , Femenino , Humanos , Israel , Judíos , Masculino
16.
Pediatrics ; 147(1)2021 01.
Artículo en Inglés | MEDLINE | ID: mdl-33303635

RESUMEN

BACKGROUND: Persistent disparities exist in early identification of autism spectrum disorder (ASD) among children from low-income families who are racial and/or ethnic minorities and where English is not the primary language. Parental literacy and level of maternal education may contribute to disparities. The Developmental Check-In (DCI) is a visually based ASD screening tool created to reduce literacy demands and to be easily administered and scored across settings. In a previous study, the DCI showed acceptable discriminative ability between ASD versus non-ASD in a young, underserved sample at high-risk for ASD. In this study, we tested the DCI among an unselected, general sample of young underserved children. METHODS: Six hundred twenty-four children ages 24 to 60 months were recruited through Head Start and Early Head Start. Parents completed the DCI, Modified Checklist for Autism in Toddlers, Revised with Follow-Up, and Social Communication Questionnaire. Children scoring positive on any measure received evaluation for ASD. Those screening negative on both Modified Checklist for Autism in Toddlers, Revised with Follow-Up and Social Communication Questionnaire were considered non-ASD. RESULTS: Parents were primarily Hispanic, reported high school education or less, and had public or no insurance. The DCI demonstrated good discriminative power (area under the curve = 0.80), performing well across all age groups, genders, levels of maternal education, primary language, and included ethnic and racial groups. Item-level analyses indicated that 24 of 26 DCI items discriminated ASD from non-ASD. CONCLUSIONS: The DCI is a promising ASD screening tool for young, underserved children and may be of particular value in screening for ASD for those with low literacy levels or with limited English proficiency.


Asunto(s)
Trastorno del Espectro Autista/diagnóstico , Lista de Verificación , Barreras de Comunicación , Etnicidad , Alfabetización , Grupos Minoritarios , Encuestas y Cuestionarios , Trastorno del Espectro Autista/etnología , Preescolar , Diagnóstico Precoz , Intervención Educativa Precoz , Escolaridad , Femenino , Disparidades en Atención de Salud , Humanos , Masculino , Tamizaje Masivo , New Jersey , Pobreza , Poblaciones Vulnerables
17.
J Autism Dev Disord ; 51(7): 2392-2401, 2021 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-32975665

RESUMEN

This study explored the physical and clinical phenotype of Bangladeshi children with autism spectrum disorder (ASD). A totally of 283 children who were referred for screening and administered Module 1 of the Autism Diagnostic Observation Schedule (ADOS) were included. Overall, 209 met the ADOS algorithmic cutoff for ASD. A trend for greater weight and head circumference was observed in children with ASD versus non-ASD. Head circumference was significantly (p < 0.03) larger in ASD males compared with non-ASD males. A trend was also observed for symptom severity, higher in females than males (p = 0.068), with further analyses demonstrating that social reciprocity (p < 0.014) and functional play (p < 0.03) were significantly more impaired in ASD females than males. The findings help understand sex differences in ASD.


Asunto(s)
Trastorno del Espectro Autista/etnología , Trastorno del Espectro Autista/patología , Factores Sexuales , Adolescente , Bangladesh/etnología , Peso Corporal , Cefalometría , Niño , Preescolar , Femenino , Cabeza/patología , Humanos , Masculino , Fenotipo , Examen Físico , Índice de Severidad de la Enfermedad , Conducta Social
18.
Rev. Nutr. (Online) ; 34: e200254, 2021.
Artículo en Inglés | LILACS | ID: biblio-1365431

RESUMEN

ABSTRACT Objective his study analyzed collective activities, involving eating with autistic children and adolescents, their families and professionals and included walks to street-food markets, picnics and participating in Festa Junina, aiming at investigating feeding in the perspective of commensality. Methods Ethnographic research carried out, based on participant observation during a walk to the street-food market, picnic and Festa Junina, conducted with 19 children and 13 adolescents of an Institution for autistic people. The data recorded were analyzed within the phenomenology framework. Results The activities showed the interaction of autistic children/adolescents with space, people and food, revealing the way autistic people relate, belong and position themselves. The investigators highlighted commensality, emphasizing food as a mediator of relationships, considering a scenario that may present contradictions and power relationships, and allows new possibilities of being together with this audience, outside home and beyond therapeutic care. Conclusion Staying and eating in a group influences the autistic child/adolescent and the activities were configured as an invitation to shared meals, with unexpected behaviors that went beyond institutional therapeutic purposes.


RESUMO Objetivo Este estudo analisou as atividades coletivas envolvendo o comer com crianças e adolescentes autistas, familiares e profissionais (passeio à feira livre, piquenique e Festa Junina), com vistas a explorar a alimentação na perspectiva da comensalidade. Métodos Pesquisa etnográfica, a partir da observação participante de um passeio à feira livre, piquenique e Festa Junina, realizados com 19 crianças e 13 adolescentes em Instituição que atende autistas. Os dados produzidos foram analisados segundo referencial da fenomenologia. Resultados As atividades evidenciaram a interação da criança/adolescente autista com o espaço, pessoas e alimentos, apontando formas de se relacionar, pertencer e se posicionar. Destacaram a comensalidade, enfatizando o alimento como mediador das relações, a partir de um cenário que pode apresentar contradições e relações de poder, e permitiram novas possibilidades de ser e estar junto a este público, para além dos cuidados domiciliares e terapêuticos. Conclusão O estar e comer em grupo influenciam a alimentação da criança/adolescente autista e as atividades configuraram-se em um convite às refeições compartilhadas, com comportamentos inesperados e que vão além dos propósitos terapêuticos institucionais.


Asunto(s)
Humanos , Masculino , Femenino , Preescolar , Niño , Adolescente , Niño , Adolescente , Ingestión de Alimentos , Trastorno del Espectro Autista/etnología , Conducta , Alimentos
20.
Yonsei Med J ; 61(11): 909-922, 2020 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-33107234

RESUMEN

Through this meta-analysis, we sought to examine the prevalence of, risks for, and factors associated with bullying involvement (victimization, perpetration, perpetration-victimization) among students with autism spectrum disorder (ASD). Additionally, we attempted to examine sources of variance in the prevalence and effect sizes of bullying in students with ASD across studies. Systematic database and literature review identified 34 relevant studies (31 for Western countries, three for Eastern countries). Pooled prevalence estimates for victimization, perpetration, and perpetration-victimization in general were 67%, 29%, and 14%, respectively. The risk of victimization in students with ASD was significantly higher than that in typically developing students and students with other disabilities. Further, deficits in social interaction and communication, externalizing symptoms, internalizing symptoms, and integrated inclusive school settings were related to higher victimization, and externalizing symptoms were related to higher perpetration. Finally, moderation analyses revealed significant variations in the pooled prevalences thereof depending on culture, age, school settings, and methodological quality and in the pooled effect sizes according to publication year and methodological quality. Our results highlight needs for bullying intervention for students with ASD, especially those who are younger, are in an inclusive school setting, and have higher social difficulties and externalizing/internalizing symptoms; for intensive research of bullying experiences among students with ASD in Eastern countries; and for efforts to improve the methodological quality of such research.


Asunto(s)
Trastorno del Espectro Autista/diagnóstico , Acoso Escolar/estadística & datos numéricos , Víctimas de Crimen/estadística & datos numéricos , Comparación Transcultural , Estudiantes/psicología , Adolescente , Trastorno del Espectro Autista/etnología , Trastorno del Espectro Autista/psicología , Acoso Escolar/psicología , Niño , Preescolar , Víctimas de Crimen/psicología , Femenino , Humanos , Relaciones Interpersonales , Masculino , Prevalencia , Estudiantes/estadística & datos numéricos , Adulto Joven
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