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1.
Wiad Lek ; 73(1): 107-112, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-32124818

RESUMEN

OBJECTIVE: The aim of our study was to determine features of social and emotional intelligence in family caregivers of patients with endogenous mental disorders as a basis for communicative resource formation in family where a patient lives. PATIENTS AND METHODS: Materials and methods: A total of 273 family caregivers of patients with paranoid schizophrenia and bipolar disorder were involved into this survey under informed consent conditions. Control group included 55 mentally healthy respondents, in whose families there is no mentally sick family member. Emotional intelligence of family caregivers was measured using the psychodiagnostic test "EQ" by N. Hall. To assess level of social intelligence the J. Gilford and M. Sullivan test (in adaptation done by Mikhailova E.S.) was used. Values of p <0.05 were considered significant. RESULTS: Results: The study revealed that family caregivers of patients with schizophrenia and affective disorders demonstrate a decrease in emotional and social intelligence indicators, which creates significant obstacles for effective interpersonal family communication and for the harmonious functioning of a family, in which a mentally sick patient lives, in general. Difficulties of emotional regulation, emotional management, recognition of emotional states of other participants of communication related to the level of emotional and social intelligence of FC are factors, that complicate interpersonal relations in families of patients and reduce possibilities for psychosocial adaptation of all family members. CONCLUSION: Conclusions: Revealed features should be taken into consideration when creating appropriate psycho-educational and psycho-corrective programs for family caregivers of patients with endogenous mental disorders.


Asunto(s)
Cuidadores , Inteligencia Emocional , Trastornos Mentales , Comunicación , Familia , Humanos , Trastornos del Humor
2.
Lancet ; 395(10225): 660, 2020 02 29.
Artículo en Inglés | MEDLINE | ID: mdl-32113489
3.
Rev Med Suisse ; 16(686): 539-542, 2020 Mar 18.
Artículo en Francés | MEDLINE | ID: mdl-32186799

RESUMEN

HIV affection affects sexual function, sexual health and relationships as well as mental health and quality of life. Due to the importance of sexual health for each individual and in order to ensure optimal and quality care, we have assessed the demand for sexual health and advise not only among HIV patients but also among professionals in this area and nursing staff. The results showed that sexuality was important both for patients and caregivers. Also, we did find out that carers want to create a better professional network with the aim of redirecting patients to specialists according to their specific needs. Carers have also expressed a desire to have relevant training in sexology and sexual health to achieve this.


Asunto(s)
Infecciones por VIH/psicología , Infecciones por VIH/terapia , Conducta Sexual/psicología , Salud Sexual , Sexualidad/psicología , Cuidadores , Infecciones por VIH/enfermería , Humanos , Calidad de Vida
4.
JAMA ; 323(8): 764-785, 2020 02 25.
Artículo en Inglés | MEDLINE | ID: mdl-32096857

RESUMEN

Importance: Early identification of cognitive impairment may improve patient and caregiver health outcomes. Objective: To systematically review the test accuracy of cognitive screening instruments and benefits and harms of interventions to treat cognitive impairment in older adults (≥65 years) to inform the US Preventive Services Task Force. Data Sources: MEDLINE, PubMed, PsycINFO, and Cochrane Central Register of Controlled Trials through January 2019, with literature surveillance through November 22, 2019. Study Selection: Fair- to good-quality English-language studies of cognitive impairment screening instruments, and pharmacologic and nonpharmacologic treatments aimed at persons with mild cognitive impairment (MCI), mild to moderate dementia, or their caregivers. Data Extraction and Synthesis: Independent critical appraisal and data abstraction; random-effects meta-analyses and qualitative synthesis. Main Outcomes and Measures: Sensitivity, specificity; patient, caregiver, and clinician decision-making; patient function, quality of life, and neuropsychiatric symptoms; caregiver burden and well-being. Results: The review included 287 studies with more than 280 000 older adults. One randomized clinical trial (RCT) (n = 4005) examined the direct effect of screening for cognitive impairment on patient outcomes, including potential harms, finding no significant differences in health-related quality of life at 12 months (effect size, 0.009 [95% CI, -0.063 to 0.080]). Fifty-nine studies (n = 38 531) addressed the accuracy of 49 screening instruments to detect cognitive impairment. The Mini-Mental State Examination was the most-studied instrument, with a pooled sensitivity of 0.89 (95% CI, 0.85 to 0.92) and specificity of 0.89 (95% CI, 0.85 to 0.93) to detect dementia using a cutoff of 23 or less or 24 or less (15 studies, n = 12 796). Two hundred twenty-four RCTs and 3 observational studies including more than 240 000 patients or caregivers addressed the treatment of MCI or mild to moderate dementia. None of the treatment trials were linked with a screening program; in all cases, participants were persons with known cognitive impairment. Medications approved to treat Alzheimer disease (donepezil, galantamine, rivastigmine, and memantine) improved scores on the ADAS-Cog 11 by 1 to 2.5 points over 3 months to 3 years. Psychoeducation interventions for caregivers resulted in a small benefit for caregiver burden (standardized mean difference, -0.24 [95% CI, -0.36 to -0.13) over 3 to 12 months. Intervention benefits were small and of uncertain clinical importance. Conclusions and Relevance: Screening instruments can adequately detect cognitive impairment. There is no empirical evidence, however, that screening for cognitive impairment improves patient or caregiver outcomes or causes harm. It remains unclear whether interventions for patients or caregivers provide clinically important benefits for older adults with earlier detected cognitive impairment or their caregivers.


Asunto(s)
Disfunción Cognitiva/diagnóstico , Demencia/diagnóstico , Tamizaje Masivo , Anciano , Cuidadores , Disfunción Cognitiva/terapia , Demencia/tratamiento farmacológico , Diagnóstico Precoz , Humanos , Vida Independiente , Tamizaje Masivo/efectos adversos , Pruebas Neuropsicológicas , Guías de Práctica Clínica como Asunto , Sensibilidad y Especificidad
5.
MMWR Morb Mortal Wkly Rep ; 69(7): 183-188, 2020 Feb 21.
Artículo en Inglés | MEDLINE | ID: mdl-32078592

RESUMEN

In 2015, an estimated 17.7 million U.S. persons were informal caregivers who provided substantial services through in-home, unpaid assistance to their family members and friends (1). Caregiving can have many benefits, such as enhancing the bond between caregiver and recipient, but it can also place an emotional and physical strain on caregivers, leading to higher rates of depression, lower quality of life, and poorer overall health (2). As the U.S. population continues to age (3), the need for informal caregivers will likely increase. However, little nationally representative information on prevalence of caregivers is available. This study examined demographic characteristics and health status of informal caregivers from 44 states,* the District of Columbia (DC), and Puerto Rico, based on data from the Behavioral Risk Factor Surveillance System (BRFSS) collected during 2015-2017. Overall, approximately one in five adults reported that they had provided care to a family member or friend in the preceding 30 days. Fifty-eight percent of caregivers were women, and a majority were non-Hispanic white, with at least some college education, and married or living with a partner. Across all states, 19.2% of caregivers reported being in fair or poor health, although significant state-to-state variation occurred. Caregivers provide important support to family members, friends, and the health care system and might compromise their own health to provide this support (1,2). Better understanding of caregivers and the challenges they face could inform implementation of improvements in support systems that could enhance not only the health of the caregiver, but that of the care recipient as well. For example, additional data regarding demographics at the state level might aid in more effective planning and support of caregivers with evidence-based programs and assistance (https://www.cdc.gov/aging/publications/features/caring-for-yourself.html).


Asunto(s)
Cuidadores/estadística & datos numéricos , Estado de Salud , Adulto , Anciano , Sistema de Vigilancia de Factor de Riesgo Conductual , District of Columbia , Femenino , Humanos , Masculino , Persona de Mediana Edad , Puerto Rico , Estados Unidos
6.
Medicine (Baltimore) ; 99(8): e19237, 2020 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-32080126

RESUMEN

The current study aimed to evaluate the status of anxiety among caregivers of children with epilepsy and examine the associated factors.A cross-sectional study was conducted in western China, which consecutively recruited children with epilepsy in 2018. The self-rating anxiety scale (SAS) was used to assess the status of anxiety among caregivers of children with epilepsy. We collected information about aspects of sociodemographic data, disease status, attitude of caregivers towards the disease and family conditions as independent variables, using multiple linear regression to analyze factors related to the status of anxiety among caregivers.A total of 334 participants were included in the study with a response rate of 95.4% (334/350). The mean age of children with epilepsy was 6.05 ±â€Š4.11 years. 7.2% (24/334) of patients were newly diagnosed and 55.4% (185/334) of patients presented with generalized epilepsy. A total of 25.7% (86/334) of caregivers among children with epilepsy presented the symptom of anxiety, with the scores of SAS 44.31 ±â€Š10.558. SAS scores were negatively correlated with the children's age (B = -0.141; standard error = 0.135; P = .008), attitude towards seizures (B = -0.153; standard error = 1.192; P = .004) and medical expenses payment (B = -0.169; standard error = 1.703; P = .002).Symptoms of anxiety are common among caregivers of children with epilepsy in western China. Healthcare providers should pay more attention to caregivers with younger children, difficult financial situation, and greater fear of seizures. Exploring mental health interventions for caregivers is important.


Asunto(s)
Ansiedad/epidemiología , Cuidadores/psicología , Epilepsia/epidemiología , Factores de Edad , Ansiedad/psicología , Niño , Preescolar , China/epidemiología , Estudios Transversales , Epilepsia/psicología , Femenino , Humanos , Modelos Lineales , Masculino
7.
Pediatr Dent ; 42(1): 16-21, 2020 Jan 15.
Artículo en Inglés | MEDLINE | ID: mdl-32075705

RESUMEN

Purpose: This cross-sectional study evaluated the acceptability and demand for therapy dog support in pediatric dentistry (TDSPD). Methods: Caregiver surveys measured acceptability and demand for TDSPD using a five-point Likert scale (one equals "not at all", five equals "very much"). Provider surveys measured acceptability for TDSPD using a five-point Likert scale. Scores of four or five were regarded as positive. Surveys were administered in the pediatric dental clinic at Case Western Reserve University, Cleveland, Ohio. Results: The mean±SD of acceptability and demand from the caregiver survey was 4.67±0.96 and 3.86±1.61, respectively. Ninety percent (n equals 174) of caregivers indicated acceptability for TDSPD to support their child. Sixty-eight percent (n equals 130) of caregivers indicated demand for TDSPD. The mean±SD of acceptability from the provider survey was 3.63±1.50. Sixty-two percent (n equals 47) of provider survey respondents accepted the overall integration of therapy dogs to support patients. Thematic analysis of the qualitative provider responses yielded concerns for risk of accident (36 percent), infection control (50 percent), and clinic efficiency (33 percent). Caregiver survey qualitative responses were positive (68 percent), with respondents also sharing concerns for efficiency and zoonosis. Conclusions: Responses support the acceptability of and demand for therapy dog support in pediatric dentistry.


Asunto(s)
Terapia Asistida por Animales , Cuidadores , Odontología Pediátrica , Animales , Niño , Estudios Transversales , Perros , Humanos , Ohio , Encuestas y Cuestionarios
8.
Invest. educ. enferm ; 38(1): [E10], febrero 15 2020.
Artículo en Inglés | LILACS, COLNAL | ID: biblio-1052013

RESUMEN

This work comes from the interest and need to understand the problems arising from the activity of caring for dependent people, in the world and particularly in the European region. Altogether, it seeks to understand the consequences of informal care on the caregiver adding to the debate a gender perspective. Through a multidisciplinary bibliographic review, the current care crisis becomes clear. The demographic and socio-cultural changes in recent years are causing dependency to increase dramatically, while putting at risk the availability of informal caregivers. Several studies have shown that women are the ones on whom the burden of care mainly falls. Therefore, under the gender perspective, it becomes clear that the consequences of caregiver burden increase gender inequalities worldwide. The study analyzes the current situation and underlines the need to promote alternatives and opportunities so that care is shared and does not fall only on the female gender. Solutions need to be included in public and community health interventions and policies, and to this respect, nurses play an important role in changing the care paradigm.


Este trabajo nace del interés y la necesidad de entender la problemática del cuidado informal en el mundo y en particular en Europa. Además, busca entender las consecuencias del cuidado informal sobre la persona cuidadora desde una perspectiva de género. A partir de una amplia revisión bibliográfica multidisciplinar, se pone de manifiesto la actual crisis de los cuidados. Los cambios demográficos y socio-culturales de los últimos años hacen que aumente cada vez más la dependencia. Esto conlleva una mayor necesidad de cuidado. Es evidente que la mayoría de cuidadores son mujeres y además que las consecuencias del cuidado aumentan las desigualdades de género en nuestra sociedad. Este trabajo destaca la necesidad de promover alternativas y nuevas oportunidades para que el cuidado se comparta y no recaiga sólo sobre una persona, principalmente en la mujer. Las respuestas a estas necesidades deben incluirse en las políticas e intervenciones en el ámbito sanitario y en este contexto las enfermeras juegan un rol crucial para promover estos cambios.


Este trabalho decorre do interesse e da necessidade de entender o problema dos cuidados informais globalmente e, em particular, na Europa. Além disso, busca entender as consequências do cuidado informal sobre o cuidador na perspectiva de gênero. Através de uma extensa revisão bibliográfica multidisciplinar, a atual crise de atendimento é revelada. As mudanças demográficas e socioculturais dos últimos anos aumentam a dependência cada vez mais. Isso leva a uma maior necessidade de cuidados. Vimos que a maioria dos cuidadores são mulheres e também que as consequências do cuidado aumentam as desigualdades de gênero em nossa sociedade. Este trabalho destaca a necessidade de promover alternativas e novas oportunidades de compartilhamento de cuidados e não apenas de uma pessoa. As respostas a essas necessidades devem ser incluídas nas políticas e intervenções em saúde e, nesse contexto, os enfermeiros desempenham um papel crucial na promoção dessas mudanças.


Asunto(s)
Humanos , Cuidadores , Género y Salud , Atención al Paciente
9.
Med Clin North Am ; 104(2): 327-343, 2020 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-32035572

RESUMEN

Aging-associated anatomic and physiologic decline begins during the fourth decade of life and progresses over the ensuing decades sometimes to a state of frailty, with the decline amplified when there is deconditioning. Aging-related gait and balance disorders leading to an increased risk of falling can be compensated for with the use of exercise interventions, durable medical equipment, and environmental modifications. Caregiver training is an essential component of geriatric rehabilitation.


Asunto(s)
Accidentes por Caídas/prevención & control , Evaluación Geriátrica/métodos , Enfermedad de Parkinson , Velocidad al Caminar , Anciano , Cuidadores/educación , Humanos , Enfermedad de Parkinson/diagnóstico , Enfermedad de Parkinson/fisiopatología , Enfermedad de Parkinson/rehabilitación
10.
Nephrol Nurs J ; 47(1): 11-20, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-32083433

RESUMEN

Patients living with end stage renal disease (ESRD) who are undergoing hemodialysis experience frequent hospitalizations associated with complications of care and exacerbations of illness. Efforts to reduce hospitalizations have had limited success. The purpose of this study was to explore why hospitalizations occur from the perspectives of patients undergoing hemodialysis treatment, their caregivers, and health care providers. Semi-structured interviews and focus groups were conducted with 21 patients living with ESRD, 10 caregivers, and three focus groups with health care professionals. Findings are discussed under four main themes: Graft site/Catheter/Access issues, "My resistance is low," "I could not breathe,"" and "The perfect storm." Results highlight the complexity of care and vulnerability of patients with ESRD. Further interprofessional research is needed to improve transitional care and care delivery for patient populations receiving hemodialysis.


Asunto(s)
Hospitalización/estadística & datos numéricos , Fallo Renal Crónico/terapia , Diálisis Renal , Cuidadores/psicología , Grupos Focales , Humanos , Factores de Riesgo , Participación de los Interesados
11.
Nephrol Nurs J ; 47(1): 23-34, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-32083434

RESUMEN

In this qualitative phenomenological study using a purposive sample, six caregivers of patients on hemodialysis were interviewed about their experiences of caring for a family member who uses hemodialysis. Six major themes and 12 subthemes were identified. Perceptions of caregivers are that caregiving is hard work and stressful; however, caregivers found the experience to be meaningful, even though the stress may interfere with their own health status. Study limitations include a small sample that may not represent the entirety of caregivers' perspectives. Implications for practice include developing informal and formal support systems and exercise programs that help this population manage the stress associated with caregiving for family members using hemodialysis.


Asunto(s)
Cuidadores/psicología , Diálisis Renal , Humanos , Investigación Cualitativa
12.
Artículo en Alemán | MEDLINE | ID: mdl-31915864

RESUMEN

In March 2019 the Ethics Conference of the German Center for Neurodegenerative Diseases (DZNE) was held for the fifth time. It was organized by the DZNE Rostock/Greifswald site and chaired by Prof. Wolfgang Hoffmann. The conference provided scientists, physicians, representatives of the German Alzheimer Society, (informal) caregivers of people with dementia (PwD), and other interested people with the opportunity to talk about the opportunities and limitations of research on and for PwD.Nationally and internationally recognized experts on healthcare services research, clinical research, nursing research, (geriatric) psychiatry, interdisciplinary ageing research, economic law, and psychotherapy discussed the pros and cons of a multitude of topics like self-determination, research participant decree, informed consent, and participation of PwD in research. The aim of the event was to reconcile the view of practice pleading for an ethically correct, human treatment of PwD and respecting their autonomy with participation in (clinical) studies. Experts controversially discussed and consolidated different points of view of practice and research.


Asunto(s)
Demencia , Enfermedades Neurodegenerativas , Autonomía Personal , Anciano , Cuidadores , Demencia/psicología , Demencia/terapia , Alemania , Humanos , Enfermedades Neurodegenerativas/psicología , Enfermedades Neurodegenerativas/terapia
14.
Health Qual Life Outcomes ; 18(1): 5, 2020 Jan 06.
Artículo en Inglés | MEDLINE | ID: mdl-31907046

RESUMEN

BACKGROUND: The evidence regarding patient related outcomes in children with infrequent congenital heart defects (I-CHD) is very limited. We sought to measure quality of life (QoL) in children with I-CHD, and secondarily, to describe QoL changes after one-year of follow-up, self-reported by children and through their caregivers' perspective. METHODS: We assembled a cohort of children diagnosed with an I-CHD in a cardiovascular referral center in Colombia, between August 2016 and September 2018. At baseline and at one-year follow-up, a clinical psychology assessment was performed to establish perception of QoL. The Pediatric Quality of Life Inventory (PedsQL) 4.0 scale was used in both general and cardiac modules for patients and for their caregivers. We used a Mann-Whitney U test to compare scores for general and cardiac modules between patients and caregivers, while a Wilcoxon test was used to compared patients' and caregivers' baseline and follow-up scores. Results are presented as median and interquartile range. RESULTS: To date, QoL evaluation at one-year follow-up has been achieved in 112/157 patients (71%). Self-reported scores in general and cardiac modules were higher than the QoL perceived through their caregivers, both at baseline and after one-year of follow-up. When compared, there was no statistically significant difference in general module scores at baseline between patients (median = 74.4, IQR = 64.1-80.4) and caregivers scores (median = 68.4, IQR = 59.6-83.7), p = 0.296. On the contrary, there was a statistical difference in baseline scores in the cardiac module between patients (median = 79.6, IQR = 69.7-87.4) and caregivers (median = 73.6, IQR = 62.6-84.3), p = 0.019. At one-year of follow-up, scores for the general module between patients (median = 72.8, IQR = 59.2-85.9) and caregivers (median = 69.9, IQR = 58.1-83.7) were not statistically different (p = 0.332). Finally, a significant difference was found for cardiac module scores between patient (median = 75.0, IQR = 67.1-87.1) and caregivers (median = 73.1, IQR = 59.5-83.8), p = 0.034. CONCLUSIONS: QoL in children with I-CHD can be compromised. However, children have a better perception of their QoL when compared with their caregivers' assessments. To provide high-quality care, besides a thorough clinical evaluation, QoL directly elicited by the child should be an essential aspect in the integral management of I-CHD.


Asunto(s)
Cardiopatías Congénitas/psicología , Calidad de Vida/psicología , Cuidadores/psicología , Niño , Preescolar , Colombia , Femenino , Estudios de Seguimiento , Humanos , Masculino , Autoinforme
15.
BMC Public Health ; 20(1): 18, 2020 Jan 07.
Artículo en Inglés | MEDLINE | ID: mdl-31910840

RESUMEN

BACKGROUND: The health-related quality of life (HRQoL) of adolescents with CP in low and middle-income countries is often poor, as is the case in Bangladesh. This exploratory study examined what factors predict the proxy-reported HRQoL of adolescents with CP in rural Bangladesh, a typical low- and middle-income country (LMIC). METHODS: Adolescents with CP (10 to 18y) were identified using the Bangladesh Cerebral Palsy Register. HRQoL was assessed using the Cerebral Palsy Quality of Life-Teens proxy-report questionnaire (CPQoL-Teens), adolescent mental health using the Strengths and Difficulty Questionnaire (SDQ) and caregiver mental health using the Depression, Anxiety and Stress Scale (DASS-21). Theoretical and statistical interests (i.e. bivariate analysis, p < 0.05) identified potential predictors which were entered into hierarchical multiple linear regression (HMLR) models in order of clinical significance; HMLR related adolescent clinical characteristics, adolescent and caregiver mental health and proxies of socioeconomic status to CPQoL-Teens dimensions. RESULTS: One hundred fifty-four adolescents with CP (mean age 15y 1mo, SD 1y 8mo, female 31.2%) participated in this study. Twenty-four factors were identified to explore for relationship to adolescent proxy-reported HRQoL. Fifteen of the factors correlated to one or more CPQoL-Teens dimension; strongest correlation was between 'feelings about functioning' and motor impairment (r = 0.545). Nine were predictive of CPQoL-Teens dimensions; adolescent sex, school attendance, severity of motor impairment, hearing and speech impairment, mother's education, primary caregiver depression and stress, and having a sanitary latrine at home resulting in score changes of between 0.79 (95% CI 0.24 to 1.35) to 35.1 (95% CI 6.03 to 64.22). CONCLUSIONS: Many of the factors predicting the proxy-reported HRQoL of adolescents with CP are amenable to intervention, and have the potential to improve adolescent wellbeing. Several determinants are priorities of the sustainable development goals (SDGs); these findings should inform resource prioritization to improve the wellbeing of adolescents with CP in Bangladesh and other LMICs.


Asunto(s)
Cuidadores/psicología , Parálisis Cerebral/psicología , Áreas de Pobreza , Calidad de Vida/psicología , Población Rural/estadística & datos numéricos , Adolescente , Bangladesh , Femenino , Humanos , Masculino , Análisis Multivariante , Encuestas y Cuestionarios
16.
Z Gerontol Geriatr ; 53(2): 123-128, 2020 Mar.
Artículo en Alemán | MEDLINE | ID: mdl-31965285

RESUMEN

BACKGROUND AND OBJECTIVE: The aim of the study was to evaluate a specific treatment concept for patients suffering from dementia in a geriatric day clinic with respect to improvement of dementia-related behavioral abnormalities and effects on distress of the caring relatives. MATERIAL AND METHODS: Designed as a naturalistic study with a sample of 34 dementia patients (average age 83 years, 62% female, 82% mild dementia, 18% moderate dementia) surveyed at three time points, the dementia-related behavioral symptoms and the relatives' distress were measured using the neuropsychiatric inventory. A waiting time before treatment was implemented as a control condition. RESULTS: Compared with waiting time, a significant improvement of dementia-related behavioral abnormalities was found after treatment, especially in patients suffering from moderate dementia. The distress of caring relatives was clearly reduced. CONCLUSION: The interprofessional treatment of patients with dementia using a specific program in a geriatric day clinic leads to a clear improvement in behavioral symptoms and positively influences the distress of caring relatives.


Asunto(s)
Síntomas Conductuales/complicaciones , Cuidadores/psicología , Demencia/terapia , Servicios de Salud para Ancianos/estadística & datos numéricos , Anciano , Anciano de 80 o más Años , Síntomas Conductuales/terapia , Demencia/diagnóstico , Demencia/psicología , Femenino , Humanos , Masculino , Resultado del Tratamiento
17.
Health Qual Life Outcomes ; 18(1): 8, 2020 Jan 07.
Artículo en Inglés | MEDLINE | ID: mdl-31910863

RESUMEN

BACKGROUND: Acute leukemia (AL) not only impairs the quality of life (QOL) of patients, but also affects that of their family caregivers (FCs). Studies on QOL of AL patients and their FCs are limited. This study aimed to evaluate the QOL of AL patients and their FCs, and to explore the factors associated with QOL of patients and of FCs. METHODS: A multicenter cross-sectional study was conducted. The QOL of 196 patient-FC dyads was assessed. The Functional Assessment of Cancer Therapy-Leukemia (FACT-Leu) was used for patients, and the 36-item Short-Form Health Survey (SF-36) was used for FCs. Independent-samples t-tests or one-way analysis of variance were used to compare QOL subscale scores between groups with different sociodemographic/clinical characteristics. Multiple regression analysis was conducted to identify the factors associated with QOL of AL patients and their FCs. RESULTS: The total FACT-Leu score for AL patients was 76.80 ± 16.44, and the physical component summary (PCS) and mental component summary (MCS) scores for FCs were 64.67 ± 15.44 and 52.50 ± 13.49, respectively. All QOL subscales for patients (t = 12.96-34.73, p < 0.001) and FCs (t = 2.55-14.36, p < 0.05), except role emotional (t = - 0.01, p = 0.993), were lower than those reported in previous studies. Sex, employment, and chemotherapy were significantly associated with total FACT-Leu score in AL patients (p < 0.05). Age, sex, marital status, education, employment, and relationship to patients were significantly associated with SF-36 PCS or MCS (p < 0.05). CONCLUSIONS: AL patients and their FCs both have lower QOL than the population in previous studies. These findings suggest that not only AL patients' physical and mental health but also overall family QOL should be assessed. Interventions supporting patient-FC dyads should be developed to improve their QOL.


Asunto(s)
Cuidadores/psicología , Leucemia Mieloide Aguda/psicología , Calidad de Vida , Adulto , Anciano , China , Estudios Transversales , Femenino , Humanos , Masculino , Persona de Mediana Edad , Análisis de Regresión , Encuestas y Cuestionarios
18.
Z Gerontol Geriatr ; 53(1): 17-21, 2020 Feb.
Artículo en Alemán | MEDLINE | ID: mdl-31673769

RESUMEN

BACKGROUND: Partners are one of the largest groups of caring relatives in Germany and are therefore very important for the maintenance of the German care system. For this reason, this article deals with coping with care situations in partnerships as well as with resources and ambivalences. OBJECTIVE: The background to this article is the project "Care in the neighborhood" (PiQ). This study investigated the question of how the various home care settings of older people are organized and what problems and needs become visible in the process. This article focuses on caregiving for partners. MATERIAL AND METHODS: Based on a case contrastive evaluation of guideline-supported individual and couple interviews, strategies of the couples for coping with the care situation were reconstructed. In addition to the interviews the analysis of egocentric network cards showed the problem areas and resources of the couples RESULTS: The caring partners in this sample showed different strategies for maintaining the relationship. In addition, there were ambivalences with respect to assumed and often exclusively positively connoted resources of the support network. CONCLUSION: This article highlights the special situation of caring partners. Based on the findings implications for the practice and (local) care policy are derived for improving the situation of older caregiving partners and thus their respective living conditions.


Asunto(s)
Cuidadores , Servicios de Atención de Salud a Domicilio , Apoyo Social , Adaptación Psicológica , Anciano , Anciano de 80 o más Años , Alemania , Humanos
19.
Artículo en Inglés | MEDLINE | ID: mdl-31802154

RESUMEN

Vaccination saves millions of lives, and the World Health Organization (WHO) European Region celebrated record high coverage in 2018. Still, national or sub-national coverage is insufficient to stop the spread of vaccine-preventable diseases. Health authorities are increasingly aware of the need to prioritize the "demand" side of vaccination. Achieving high and equitable vaccination uptake in all population groups is not a quick-fix; it requires long-term investment in multifaceted interventions, informed by research with the target groups. The WHO focuses on both individual and context determinants of vaccination behaviours. Individual determinants include risk perceptions, (dis)trust and perceived constraints; insights from psychology help us understand these. Context determinants include social norms, socioeconomic status and education level, and the way health systems are designed, operate and are financed. The WHO recommends using a proven theoretical model to understand vaccination behaviours and has adapted the "COM­B model" for their Tailoring Immunization Programmes (TIP) approach. This adapted model is described in the article. Informed by insights into the factors affecting vaccination behaviours, interventions and policies can be planned to increase vaccination uptake. Some evidence exists on proven methods to do this. At the individual level, some interventions have been seen to increase vaccination uptake, and experimental studies have assessed how certain messages or actions affect vaccination perceptions. At the context level, there is more documentation for effective strategies, including those that focus on making vaccination the easy, convenient and default behaviour and that focus on the interaction between caregivers and health workers.


Asunto(s)
Vacunas , Cuidadores , Alemania , Personal de Salud , Humanos , Aceptación de la Atención de Salud , Vacunación
20.
Z Gerontol Geriatr ; 53(1): 10-16, 2020 Feb.
Artículo en Alemán | MEDLINE | ID: mdl-31802211

RESUMEN

BACKGROUND: Analysis of the health of informal caregivers is gaining in importance. Research has shown negative effects of caregiving on mental health but the results regarding physical health were ambiguous. It remains unclear whether this can be traced back to the use of different health indicators. OBJECTIVE: Do the results on the relationship between informal caregiving and health vary depending on the care setting (domestic or external) and the outcome measure? MATERIAL AND METHODS: The relationship between informal caregiving inside and outside the domestic setting and the health of the caregiver was modelled using data from the Survey of Health, Ageing and Retirement in Europe (SHARE, waves 1, 2, 4-6). The direction and strength of the relationship between informal caregiving and eight indicators of physical and mental health were compared both cross-sectionally and longitudinally. RESULTS: For most health indicators and in the cross-sectional as well as longitudinal models, negative health effects could be observed. While caregivers in the domestic setting reported worse health than non-caregivers, the opposite was true for caregivers outside the household. The longitudinal model revealed that both negative and positive health changes during informal caregiving were evident depending on the health indicator used. CONCLUSION: The results confirmed health differences between caregivers inside and caregivers outside the domestic setting. For caregivers outside the household different health outcomes of caregiving were found depending on the chosen health indicator. This underlines that the chosen health indicator as well as the care population under study substantially affect the results of the analysis and the subsequent conclusions.


Asunto(s)
Cuidadores , Indicadores de Salud , Salud Mental , Estudios Transversales , Europa (Continente) , Humanos , Encuestas y Cuestionarios
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