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1.
Br J Sports Med ; 54(5): 272-278, 2020 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-30728127

RESUMEN

OBJECTIVE: To assess whether aerobic exercise was superior to usual care in alleviating depressive symptoms in patients living with a major non-communicable disease. DATA SOURCES: Data were obtained from online databases (PubMed, PsycINFO and SPORTDiscus) as well as from reference lists. The search and collection of eligible studies was conducted up to 18 October 2018 (PROSPERO registration number CRD42017069089). STUDY SELECTION: We included interventions that compared aerobic exercise with usual care in adults who reported depressive symptoms (ie, not necessarily the clinical diagnosis of depression) and were living with a major non-communicable disease. RESULTS: Twenty-four studies were included in the meta-analysis (4111 patients). Aerobic exercise alleviated depressive symptoms better than did usual care (standardised mean difference (SMD)=0.50; 95% CI 0.25 to 0.76; Grading of Recommendations Assessment, Development and Evaluation: low quality). Aerobic exercise was particularly effective in alleviating depressive symptoms in cardiac patients (SMD=0.67; 95% CI 0.35 to 0.99). CONCLUSION: Aerobic exercise alleviated depressive symptoms in patients living with a major non-communicable disease, particularly in cardiac populations. Whether aerobic exercise treats clinically diagnosed depression was outside the scope of this study.


Asunto(s)
Enfermedad Crónica/psicología , Depresión/prevención & control , Ejercicio , Depresión/etiología , Terapia por Ejercicio , Humanos
2.
Hu Li Za Zhi ; 66(6): 20-26, 2019 Dec.
Artículo en Chino | MEDLINE | ID: mdl-31802451

RESUMEN

Chronic diseases often impact the quality of life of the patient, causing complications and increased mortality and medical costs. The World Health Organization proposed applying mindfulness as an important strategy to help transform the situation faced by chronic disease cases and to promote their mental flexibility and adaptability. The author reviewed the related literature on mindfulness and introduces the "SMILE" strategy in this article. This strategy includes several stages, including 1) Starting where I am, 2) Motivating patients to become self-aware of the experience of self and internal and external environment interactions, 3) Developing individual health beliefs, 4) Learning mindfulness-based health-promotion behaviors, 5) Evaluating the efficacy of mindfulness-based health-promotion behaviors and self-regulation. SMILE is a powerful strategy with the potential to promote patient wellbeing, acceptance of the need to coexist with chronic disease, and freedom. Mindfulness is an abstract concept. This article provides a reference on mindfulness intervention for healthcare providers.


Asunto(s)
Enfermedad Crónica/psicología , Promoción de la Salud/métodos , Atención Plena , Humanos
3.
Ann Agric Environ Med ; 26(4): 630-635, 2019 Dec 19.
Artículo en Inglés | MEDLINE | ID: mdl-31885238

RESUMEN

INTRODUCTION: The way of functioning in everyday life and the style of coping with the challenges encountered, including the situations of financial difficulties, are shaped by various adaptation mechanisms conditioned by the state of psychophysical health, as well as social and cultural factors. They are related to the intrapsychic features, among which the personality plays a key role. MATERIAL AND METHODS: The research sample consisted of 2 groups - 50 patients with mobility impairment resulting from chronic pathologies of the locomotor system hospitalized in the Department of General and Neuro Rehabilitation, Institute of Rural Health in Lublin, and 50 healthy people. The research was carried out using the NEO-FFI Personality Inventory, Perceived Stress Scale, Self-Esteem Scale, General Self-Efficacy Scale, Impulsiveness Inventory and the APSZ Questionnaire. RESULTS: In the group of patients with impaired mobility resulting from chronic pathologies of the locomotor system, the leading correlate of the tendency to seek help in the situation of indebtedness was extraversion. In the healthy group, the leading correlates of the tendency to undertake this type of activity were the intensity of perceived stress, neuroticism, self-esteem, self- efficacy and empathy. CONCLUSIONS: In the group of patients with impaired mobility resulting from chronic diseases of the locomotor system, extroversion was the factor conducive to seeking help in the situation of indebtedness. In the group of healthy people, self-esteem, self- efficacy and empathy were the factors conducive to taking such actions, whereas intensity of perceived stress and neuroticism were the risk factors.


Asunto(s)
Enfermedad Crónica/psicología , Conducta de Búsqueda de Ayuda , Adulto , Anciano , Femenino , Estado de Salud , Humanos , Locomoción , Masculino , Persona de Mediana Edad , Limitación de la Movilidad , Neuroticismo , Personalidad , Proyectos Piloto , Autoimagen , Encuestas y Cuestionarios
4.
Rev. salud pública Parag ; 9(2): [P9-P15], Dic 2019.
Artículo en Español | LILACS, BDNPAR | ID: biblio-1047044

RESUMEN

Introducción: La Diabetes Mellitus tipo 2 es una enfermedad metabólica muy frecuente, siendo una de las principales causas de mortalidad en nuestro país. El enfoque integral, individual, familiar y comunitario de la Atención Primaria de Salud a través de las Unidades de Salud de la Familia permite identificar síntomas de depresión que pueden aparecer durante el curso de la enfermedad. Objetivo: Determinar los niveles de depresión según la cronicidad de la Diabetes Mellitus tipo 2 y sus comorbilidades en pacientes de las Unidades de Salud del distrito de Encarnación en el año 2018. Metodología: Estudio con diseño observacional, analítico de corte transversal sobre 228 pacientes con Diabetes Mellitus tipo 2 entrevistados durante el año 2018. Se aplicó un formulario validado con el test de Kuder- Richardson y la Escala de Hamilton para la depresión. Los datos fueron procesados en EpiInfo v. 7. Resultados: Se detectó depresión en el 66,7 % (152) de las personas incluidas en el estudio, siendo más frecuente la depresión ligera presente en el 32, 9 % (75) de los casos, seguido de depresión moderada y grave. Se encontró asociación estadísticamente significativa entre depresión y años de evolución de Diabetes Mellitus tipo 2 (p = 0.029), hipertensión (p = 0.0024); neuropatía (p = 0.0003). Conclusión: El nivel de depresión más frecuente fue la ligera y la presencia de síntomas de depresión en pacientes con Diabetes Mellitus tipo 2 fue alta, asociada significativamente con años de evolución de la diabetes, hipertensión y neuropatía. Palabras clave: Diabetes mellitus, Depresión, Atención Primaria de Salud.


Introduction: Type 2 Diabetes Mellitus is a very frequent metabolic disease, being one of the main causes of mortality in our country. The integral, individual, family and community approach of Primary Health Care through the Family Health Units allows to identify symptoms of depression that may appear during the course of the disease. Objective: To determine the levels of depression according to the chronicity of Type 2 Diabetes Mellitus and its comorbidities in patients of the Health Units of the district of Encarnación in the year 2018. Methodology: Study with observational, analytical cross-sectional design on 228 patients with Type 2 Diabetes Mellitus interviewed during 2018. A validated form was applied with the Kuder-Richardson test and the Hamilton Scale for depression. The data was processed in EpiInfo v. 7. Results: Depression was detected in 66.7% (152) of the people included in the study, with mild depression being more frequent in 32.9% (75) of the cases, followed by moderate and severe depression. A statistically significant association was found between depression and years of evolution of Type 2 Diabetes Mellitus (p = 0.029), hypertension (p = 0.0024); neuropathy (p = 0.0003). Conclusion: The most frequent level of depression was mild and the presence of depression symptoms in patients with Type 2 Diabetes Mellitus was high, significantly associated with years of evolution of diabetes, hypertension and neuropathy. Keywords: Diabetes mellitus, Depression, Primary Health Care.


Asunto(s)
Humanos , Masculino , Femenino , Atención Primaria de Salud , Depresión , Diabetes Mellitus/psicología , Enfermedad Crónica/psicología
5.
BMC Public Health ; 19(1): 1468, 2019 Nov 06.
Artículo en Inglés | MEDLINE | ID: mdl-31694606

RESUMEN

BACKGROUND: It has been suggested that poor health has influenced vote for Brexit and the US presidential election. No such research has been published regarding the 2017 French presidential election. METHODS: We performed a cross-sectional analysis using a comprehensive set of socioeconomic and health indicators, to be compared with voting outcome at the first round of the 2017 French presidential election. The 95 French departments were selected as the unit of analysis. Data were obtained from publicly available sources. The linear model was used for both univariate and multivariate analysis to investigate the relation between voting patterns and predictors. Sensitivity analyses were done using the elastic-net regularisation. RESULTS: Emmanuel Macron and Marine Le Pen arrived ahead. When projected on the first factorial plane (~ 60% of the total inertia), Emmanuel Macron and Marine Le Pen tended to be in opposite directions regarding both socioeconomic and health factors. In the respective multivariate analyses of the two candidates, both socio-economic and health variables were significantly associated with voting patterns, with wealthier and healthier departments more likely to vote for Emmanuel Macron, and opposite departments more likely to vote for Marine Le Pen. Mortality (p = 0.03), severe chronic conditions (p = 0.014), and diabetes mellitus (p < 0.0001) were among the strongest predictors of voting pattern for Marine Le Pen. Sensitivity analyses did not substantially change those findings. CONCLUSIONS: We found that areas associated with poorer health status were significantly more likely to vote for the far-right candidate at the French presidential election, even after adjustment on socioeconomic criteria.


Asunto(s)
Enfermedad Crónica/psicología , Gobierno Federal/historia , Indicadores de Salud , Estado de Salud , Política , Adulto , Estudios Transversales , Femenino , Francia , Historia del Siglo XXI , Humanos , Modelos Lineales , Masculino , Persona de Mediana Edad , Análisis Multivariante , Adulto Joven
6.
BMC Public Health ; 19(1): 1486, 2019 Nov 08.
Artículo en Inglés | MEDLINE | ID: mdl-31703664

RESUMEN

BACKGROUND: Students living with a chronically ill family member may experience significant pressure, stress, and depression due to their caregiving situation. This may also lead to them delaying or dropping out of school when the combination of being a caregiver and their education program are too demanding. This survey study aims to explore the consequences for students of bachelor or vocational education programs when they are growing up with a chronically ill family member and the influence of various background characteristics and risk factors. METHODS: A survey was sent to 5997 students (aged 16-25 years) enrolled in bachelor or vocational education programs in the north of the Netherlands. The content of the survey was based on a literature study and consultation with experts. Descriptive statistics, Chi-square tests, and logistic regression analyses were performed. RESULTS: A total of 1237 students (21%) responded to the survey. A sub group of 237 (19%) students (mean age 21(2.2); 87% female) identified themselves as growing up with a chronically ill family member. More than half (54.9%) of these students indicated that they experienced negative consequences in daily life. A significant association (OR .42, p < .02) was found for these consequences and the level of education for which attending vocational education yields a higher risk. In addition, growing up with a mentally ill family member was associated with a 2.74 (p = .04) greater risk of experiencing negative consequences in daily life compared to students living with a family member with a physical disorder or multiple disorders. CONCLUSION: Since a substantial number of students growing up with a chronically ill family member indicate serious physical, mental, and social consequences as a result of this care situation, awareness for this specific age-group is needed. Students with a mentally ill family member and students undertaking vocational education appear to be especially at risk. Further research is required in order to gain insight that is more in-depth into the exact type of problems that these students encounter and the specific needs that they have regarding support.


Asunto(s)
Cuidadores/psicología , Hijo de Padres Discapacitados/psicología , Trastornos Mentales/psicología , Estudiantes/psicología , Adolescente , Adulto , Enfermedad Crónica/psicología , Depresión/epidemiología , Depresión/psicología , Familia/psicología , Femenino , Humanos , Masculino , Países Bajos/epidemiología , Factores de Riesgo , Instituciones Académicas , Encuestas y Cuestionarios , Educación Vocacional , Adulto Joven
7.
BMJ ; 367: l5922, 2019 11 05.
Artículo en Inglés | MEDLINE | ID: mdl-31690561

RESUMEN

OBJECTIVE: To investigate the clinical effectiveness and safety of stand alone and blended internet based vestibular rehabilitation (VR) in the management of chronic vestibular syndromes in general practice. DESIGN: Pragmatic, three armed, parallel group, individually randomised controlled trial. SETTING: 59 general practices in the Netherlands. PARTICIPANTS: 322 adults aged 50 and older with a chronic vestibular syndrome. INTERVENTIONS: Stand alone VR comprising a six week, internet based intervention with weekly online sessions and daily exercises (10-20 minutes a day). In the blended VR group, the same internet based intervention was supplemented by face-to-face physiotherapy support (home visits in weeks 1 and 3). Participants in the usual care group received standard care from a general practitioner, without any restrictions. MAIN OUTCOME MEASURES: The primary outcome was vestibular symptoms after six months as measured by the vertigo symptom scale-short form (VSS-SF range 0-60, clinically relevant difference ≥3 points). Secondary outcomes were dizziness related impairment, anxiety, depressive symptoms, subjective improvement of vestibular symptoms after three and six months, and adverse events. RESULTS: In the intention-to-treat analysis, participants in the stand alone and blended VR groups had lower VSS-SF scores at six months than participants in the usual care group (adjusted mean difference -4.1 points, 95% confidence interval -5.8 to -2.5; and -3.5 points, -5.1 to -1.9, respectively). Similar differences in VSS-SF scores were seen at three months follow-up. Participants in the stand alone and blended VR groups also experienced less dizziness related impairment, less anxiety, and more subjective improvement of vestibular symptoms at three and six months. No serious adverse events related to online VR occurred during the trial. CONCLUSION: Stand alone and blended internet based VR are clinically effective and safe interventions to treat adults aged 50 and older with a chronic vestibular syndrome. Online VR is an easily accessible form of treatment, with the potential to improve care for an undertreated group of patients in general practice. TRIAL REGISTRATION: Netherlands Trial Register NTR5712.


Asunto(s)
Medicina General/métodos , Modalidades de Fisioterapia , Calidad de Vida , Telemedicina/métodos , Enfermedades Vestibulares/rehabilitación , Anciano , Enfermedad Crónica/psicología , Enfermedad Crónica/rehabilitación , Femenino , Humanos , Internet , Masculino , Persona de Mediana Edad , Países Bajos , Síndrome , Resultado del Tratamiento , Enfermedades Vestibulares/diagnóstico , Enfermedades Vestibulares/psicología
8.
BMC Public Health ; 19(1): 1536, 2019 Nov 19.
Artículo en Inglés | MEDLINE | ID: mdl-31744483

RESUMEN

BACKGROUND: People with activity limitations participate less in society, which may be due to both societal barriers and personal factors. The aim of this study was to examine the role of one specific personal factor, namely the perceptions that people have of their health condition. We hypothesized that perceptions of more personal control and less negative consequences increase the likelihood of participation in social activities and of experiencing autonomy in participation. METHODS: Survey data of 1681 people with activity limitations participating in a Dutch nationwide panel-study were analyzed by means of logistic and linear regression analyses. Perceptions of the health condition were assessed with the revised Illness Perception Questionnaire (IPQ-R). Social participation was operationalized as doing volunteer work, participating in club activities and meeting friends. Two scales of the Impact on Participation and Autonomy questionnaire were used to assess experienced autonomy regarding participation. RESULTS: People who perceived more personal control over their health condition were more likely to participate in volunteer work (OR = 1.36) and club activities (OR = 1.35). People who believed their condition to be long-lasting were also more likely to do volunteer work (OR = 1.34), whereas people who reported a better understanding of their condition were more likely to frequently meet friends (OR = 1.19). Perceptions of the health condition explained 14% of the variance in experienced autonomy in participation, in addition to the severity of participants' activity limitations and their age, gender and education level. Especially a belief in more serious consequences, a perception of a long-lasting and less controllable condition, a perception of less understanding of the condition and a greater perceived impact on the emotional state were associated with experiencing less autonomy in participation. CONCLUSIONS: People with activity limitations who experience less control over their condition participate less in volunteer work and club activities than people who experience more control. Perceptions of the health condition are just as important to explain differences in participation as the severity of people's activity limitations and their socio-demographic characteristics. Health and social care professionals should pay attention to people's perceptions, to help people with activity limitations to participate according to their needs, circumstances, and preferences.


Asunto(s)
Enfermedad Crónica/psicología , Limitación de la Movilidad , Autonomía Personal , Participación Social , Adulto , Costo de Enfermedad , Femenino , Humanos , Modelos Logísticos , Masculino , Persona de Mediana Edad , Países Bajos , Percepción , Recreación/psicología , Encuestas y Cuestionarios , Voluntarios/psicología
9.
Clin Interv Aging ; 14: 1493-1501, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-31686794

RESUMEN

Purpose: The aim of this study was to investigate occupational stress, frailty, sleep quality, and motives for food choices as key factors affecting the perceived health status among elderly workers. Methods: A cross-sectional survey was conducted involving 175 participants at the Community Senior Club in an urban area. The data was collected from November to December 2018. Pearson's correlation analyses were performed for perceived health status, occupational stress, sleep quality, and motives for food choices. Multivariate linear regression was adjusted for general characteristics such as age, gender, level of education, living arrangements, and the number of illnesses. Results: Occupational stress (r=-0.195, p<0.001), frailty (r=-0.468, p<0.001), and sleep quality scores (r=-0.306, p<0.001) showed significant negative correlations with perceived health status. Conversely, 5 motives for food choices (health, weight control, price, sensory appeal, and mood) were positively correlated with perceived health status. Linear regression analysis showed that occupational stress (ß=-0.195, p<0.001), frailty (ß=-0.420, p<0.001), and motives for food choices based on sensory appeal (ß=0.240, p<0.001) were significant influencing factors for perceived health status. Conclusion: We found that occupational stress, frailty, and motives for food choices based on sensory appeal were significant factors for elderly worker health. This suggests that it is important to consider occupational stress, frailty, and motivation for food choices when examining the health of elderly workers. There is a need for more tailored health promotion interventions when considering these factors and the elderly population.


Asunto(s)
Actitud Frente a la Salud , Preferencias Alimentarias/psicología , Anciano Frágil/psicología , Estado de Salud , Motivación , Estrés Laboral/psicología , Sueño , Afecto , Anciano , Anciano de 80 o más Años , Enfermedad Crónica/psicología , Comorbilidad , Estudios Transversales , Escolaridad , Femenino , Humanos , Masculino , Persona de Mediana Edad , República de Corea , Encuestas y Cuestionarios
11.
Pediatr Phys Ther ; 31(4): 315-322, 2019 10.
Artículo en Inglés | MEDLINE | ID: mdl-31568372

RESUMEN

PURPOSE: The purpose of this systematic review is to identify quality-of-life issues that affect participation in age-appropriate activities in chronically ill children, as reported by the children and their families. SUMMARY OF KEY POINTS: Social and emotional functioning scores on the Pediatric Quality of Life Inventory (PedsQL) 4.0 were found to have the greatest frequency of poor agreement between parents and children in 4 of the 6 studies included in this review, suggesting parents and children have wide variation in their assessment in these areas of psychosocial function. CONCLUSIONS: Cumulative evidence appears to indicate that parents of children with chronic illness perceive their children as having a poorer quality of life than the children report for themselves. RECOMMENDATIONS FOR CLINICAL PRACTICE: Identifying differences and commonalities between these reports can guide health care practitioners to specific activities that should be the focus of caring for children; specifically, functional goal development can become more personalized and appropriate.


Asunto(s)
Enfermedad Crónica/psicología , Estado de Salud , Padres/psicología , Calidad de Vida , Niño , Femenino , Humanos , Masculino
12.
Int J Occup Med Environ Health ; 32(5): 695-721, 2019 Oct 16.
Artículo en Inglés | MEDLINE | ID: mdl-31584039

RESUMEN

OBJECTIVES: Current demographic trends, such as society aging, the spreading of chronic diseases, as well as early retirement choices, lead to the dwindling labor market population. Taking into consideration the foregoing tendencies and their consequences, the issue of the shrinking labor force resources seems to be the most important challenge for the labor market. In response to it, this paper identifies individual and institutional causes of withdrawal from the labor market, and explores the views of Polish stakeholders on existing strategies for the occupational re-integration of persons with chronic diseases (PwCDs). MATERIAL AND METHODS: Polish results of 2 European projects: "Participation to Healthy Workplaces and Inclusive Strategies in the Work Sector" (the PATHWAYS project) and "The Collaborative Research on Aging in Europe" (COURAGE in Europe) complemented each other. The cross-sectional population data and data from stakeholders' interviews were used. RESULTS: The authors identified several causes which could encourage people to withdraw from the labor market before attaining the official retirement age at 3 different levels: individual, occupational, and institutional. Although research has shown that the macro-level situation is crucial to staying occupationally active, in Poland stakeholders have reported the lack of effective coordination in the implementation of policies for the occupational re-integration of PwCDs. CONCLUSIONS: A decision to cease work prematurely reflects a combination of many different factors, such as individual determinates, work characteristics, personal convictions, and systemic solutions. The study demonstrated that, despite the awareness of the dwindling resources of labor force, the employment-related challenges faced by PwCDs as well as people who are close to the retirement age remain unaddressed. Int J Occup Med Environ Health. 2019;32(5):695-721.


Asunto(s)
Empleo , Jubilación/estadística & datos numéricos , Factores de Edad , Enfermedad Crónica/psicología , Enfermedad Crónica/rehabilitación , Estudios Transversales , Europa (Continente) , Femenino , Estado de Salud , Humanos , Masculino , Persona de Mediana Edad , Jubilación/psicología , Factores Socioeconómicos
13.
Rev Infirm ; 68(254): 27-28, 2019 Oct.
Artículo en Francés | MEDLINE | ID: mdl-31587847

RESUMEN

The doctor-patient relationship tends to reconfigure. The chronic patient is recognised for the ability to perform certain healthcare activities, but also for a type of expertise related to his or her personal experience with illness. However, what are the individual and collective benefits of this expertise? How is it enhanced by connected medical systems?


Asunto(s)
Enfermedad Crónica/terapia , Relaciones Médico-Paciente , Autocuidado/psicología , Enfermedad Crónica/psicología , Humanos
14.
World J Gastroenterol ; 25(36): 5423-5433, 2019 Sep 28.
Artículo en Inglés | MEDLINE | ID: mdl-31576090

RESUMEN

The impact of a chronic disease such as inflammatory bowel disease (IBD) on sexual functioning and body image can significantly impair the quality of life of patients. This review considers the sexual and fertility aspects of IBD patients and their daily management. Modern IBD healthcare management should include appropriate communication on sexuality and consider psychological, physiological, and biological issues. Patients with IBD have less children than the general population, and voluntary childlessness is frequent. The most influential factors reported by IBD patients who experience fertility alteration are psychological and surgery-related problems. Pregnancy is a major concern for patients, and any pregnancy for IBD patients should be closely followed-up to keep the chronic disease in a quiescent state. Preconceptional consultation is of great help.


Asunto(s)
Fertilidad/fisiología , Enfermedades Inflamatorias del Intestino/fisiopatología , Complicaciones del Embarazo/prevención & control , Disfunciones Sexuales Fisiológicas/fisiopatología , Salud Sexual , Enfermedad Crónica/psicología , Femenino , Humanos , Enfermedades Inflamatorias del Intestino/complicaciones , Enfermedades Inflamatorias del Intestino/psicología , Embarazo , Complicaciones del Embarazo/etiología , Complicaciones del Embarazo/fisiopatología , Calidad de Vida , Conducta Reproductiva/psicología , Disfunciones Sexuales Fisiológicas/etiología , Brote de los Síntomas
15.
Cien Saude Colet ; 24(10): 3651-3661, 2019.
Artículo en Portugués, Inglés | MEDLINE | ID: mdl-31576995

RESUMEN

Our subject is a dialogue with six literary works, understood in the publishing market as biographies that consider first and second person narratives on the relationship with situations of chronic, rare or complex disease. As a theoretical essay, we try to build an argument: these biographies are public forms of people's construction and presentation; they represent the possibility of assigning a place of visibility to moral experiences, of great public appeal, but which must be recognized in health care and training as political tools for reflection on practices. Thus, they become testimonies, providing less personal life histories and more biographical paths, with an interactionist dialogue among meanings, places, people, positions, stigma, right violations and discrimination.


Asunto(s)
Enfermedad Crónica/psicología , Enfermedades Raras/psicología , Humanos
16.
Cien Saude Colet ; 24(10): 3663-3672, 2019.
Artículo en Inglés | MEDLINE | ID: mdl-31576996

RESUMEN

This paper focuses on the life experiences of children with chronic disease, a group whose invisibility involves particular challenges in their relationship with professionals in important life contexts, such as family, school and hospital. The study includes two complementary phases: i) Phase 1, composed of 15 interviews with parents, education and health professionals and two focus group discussions with children, and children and their mothers; and ii) Phase 2, which included self-report questionnaires administered to parents (n = 152) and children with chronic disease (n = 176). Based on a mixed methodology, this study combines quantitative and qualitative methods assuming that plural approaches allow for a deeper understanding of the life conditions of children with chronic disease and their families. The results reinforce the reproduction of social stereotypes and the tendency to focus on the individual ability to solve problems, which still remain to be circumscribed to the people's chronic disease sphere. Moreover, this paper reveals the central role that inclusive contexts have on children's wellbeing.


Asunto(s)
Bienestar del Niño/psicología , Enfermedad Crónica/psicología , Padres/psicología , Derechos del Paciente , Adolescente , Niño , Femenino , Grupos Focales , Personal de Salud/estadística & datos numéricos , Humanos , Entrevistas como Asunto , Masculino , Encuestas y Cuestionarios
17.
Sichuan Da Xue Xue Bao Yi Xue Ban ; 50(4): 561-565, 2019 Jul.
Artículo en Chino | MEDLINE | ID: mdl-31642236

RESUMEN

OBJECTIVE: To understand the effects of social capital on depressive symptoms of elderly patients with chronic diseases in urbanized communities, and to explore preventive measures to promote their mental health. METHODS: A multi-stage stratified cluster sampling method was used to extract 740 elderly patients with chronic diseases in the urbanized communities in Chengdu and Kunming. The questionnaire survey was conducted by using the center of depression rating scale (CES-D) and the self-made social capital scale. Multivariate unconditional logistic regression was used to analyze the impact of urbanized residents' social capital on depressive symptoms. RESULTS: The self-made social capital scale has good reliability and validity. The incidence of depressive symptoms in this study was 24.9%. The incidence of depressive symptoms in elderly females with chronic diseases was higher (P < 0.05); the residents with high "sense of social trust and security" had lower risk of incidence of depressive symptoms 〔odds ratio (OR)=0.489〕; the residents with higher "community belonging" had a lower risk of incidence of depressive symptoms (OR=0.570), and the residents with higher "social support" scores had a lower risk of incidence of depressive symptoms (OR=0.233). CONCLUSION: Targeted measures should be taken to intervene in the social capital factors affecting the depressive symptoms of elderly patients with chronic diseases in urbanized communities to improve their mental health.


Asunto(s)
Enfermedad Crónica/psicología , Depresión/epidemiología , Capital Social , Anciano , China , Femenino , Humanos , Modelos Logísticos , Masculino , Reproducibilidad de los Resultados , Apoyo Social , Encuestas y Cuestionarios , Población Urbana
18.
Qual Life Res ; 28(12): 3153-3161, 2019 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-31531840

RESUMEN

PURPOSE: Chronic diseases are associated with impaired health-related quality of life (HRQoL) outcomes. Comparison of HRQoL outcomes between different diseases and with the general population is of major importance to health economists, epidemiologists, clinicians, and policy makers. The aim of this systematic literature review was to develop a catalogue with EQ-5D scores in chronic non-communicable diseases, and to compare these scores with reference values from the general population. METHODS: MEDLINE, Embase, and Web of Science were systematically searched independently by two reviewers. Studies were included if they reported mean EQ-5D index values for the adult population and if these scores were compared with the general population. The QualSyst tool for quantitative research was used for quality appraisal. RESULTS: Two hundred and seven articles met the inclusion criteria. An extensive catalogue summarizes the EQ-5D scores in a wide variety of chronic diseases. Mean EQ-5D index values ranged between - 0.20 and 1. Lower EQ-5D scores are reported in chronic diseases compared to the general population, specifically in neurological disorders. Most of the diseases demonstrate a substantial disutility, although a minority of diseases have equal or even higher index scores than the general population. CONCLUSION: A comprehensive, international catalogue has been developed to provide EQ-5D index scores for diverse chronic diseases compared with reference values based on the available literature. The catalogue gives a clear overview of the existing EQ-5D scores and can be rapidly accessed by researchers worldwide for different applications such as health economic evaluations, decision making, resource allocation, and other policy objectives. Future studies should focus on unexamined diseases and specific patient groups to expand the evidence base on HRQoL in chronic diseases.


Asunto(s)
Enfermedad Crónica/psicología , Estado de Salud , Calidad de Vida/psicología , Adulto , Análisis Costo-Beneficio , Toma de Decisiones , Femenino , Humanos , MEDLINE , Masculino , Persona de Mediana Edad , Grupos Minoritarios , Encuestas y Cuestionarios
19.
Prim Health Care Res Dev ; 20: e130, 2019 09 12.
Artículo en Inglés | MEDLINE | ID: mdl-31511115

RESUMEN

AIM: The objectives of this study were to validate the Patient Empowerment Strategies Questionnaire (PES-Q) in a Greek sample and to study its psychometric properties in a sample of patients diagnosed with chronic insomnia. BACKGROUND: This is a validation of the PES-Q in Attikon General Hospital, School of Medicine, National and Kapodistrian University of Athens. The questionnaire was administered to 93 subjects aged between 18 and 85 years (mean age ± SD: 54.7 ± 15.2, 28% males). METHODS: The criterion validity of the questionnaire was tested with the use of four specific criteria: the Athens Insomnia Scale, the Pittsburg questionnaire (Pittsburg Sleep Quality Index), the Depression, Anxiety and Stress Scale, and the Self-Esteem Scale. FINDINGS: According to factor analysis results, the structure of the original scale was confirmed by the presence of one main factor in the Greek sample, explaining 40.1% of the variance of PES-Q queries. The questionnaire showed satisfactory reliability (Cronbach's α = 0.887). The results of the current study suggest that the PES-Q may be used as an accurate psychometric instrument for the purposes of chronic insomnia. Future research should examine the psychometric qualities of the PES-Q Greek version in a larger sample.


Asunto(s)
Enfermedad Crónica/psicología , Pacientes/psicología , Psicometría , Trastornos del Inicio y del Mantenimiento del Sueño/psicología , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Grecia , Humanos , Masculino , Persona de Mediana Edad , Proyectos Piloto , Reproducibilidad de los Resultados , Encuestas y Cuestionarios , Traducciones , Adulto Joven
20.
J Drugs Dermatol ; 18(9): 950, 2019 Sep 01.
Artículo en Inglés | MEDLINE | ID: mdl-31524995

RESUMEN

Psoriasis is a common, chronic inflammatory skin disease that can affect any part of the body. It is a highly visible condition with symptoms that include the appearance of red, thick, scaly patches on the arms, legs, trunk, soles of the feet, palms, and nails, but most commonly on the elbows, knees, and scalp.


Asunto(s)
Emociones , Psoriasis/psicología , Calidad de Vida , Salud de la Mujer , Enfermedad Crónica/psicología , Estética , Femenino , Humanos , Psoriasis/diagnóstico , Índice de Severidad de la Enfermedad
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