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1.
Online braz. j. nurs. (Online) ; 19(4)dez. 2020. ilus
Artículo en Inglés, Español, Portugués | LILACS, BDENF - Enfermería | ID: biblio-1151441

RESUMEN

OBJETIVOS: identificar sob a ótica do enfermeiro o cuidado ao idoso com Doença de Alzheimer e qual o principal desafio para sua realização. MÉTODO: estudo descritivo-exploratório, qualitativo, realizado no período de agosto e setembro de 2017, com 15 enfermeiros atuantes na clínica médica masculina e feminina de um Hospital Escola localizado em um município do estado da Paraíba. Os dados foram coletados por meio de entrevistas e registros em notas de campo, tendo sido submetidos à Análise de Conteúdo. RESULTADOS: emergiram quatro categorias temáticas: Compreensão dos enfermeiros sobre a Doença de Alzheimer; Assistência ao idoso e à família; Ausência de capacitação; e Rejeição dos familiares diante do diagnóstico. CONCLUSÃO: os enfermeiros possuem um conhecimento limitado quanto ao cuidado do idoso com Alzheimer. Esse déficit de conhecimentos pode trazer consequências na assistência ao idoso com Alzheimer, assim como para os seus familiares.


OBJECTIVES: to identify from the perspective of the nurse the care provided to older adults with Alzheimer's Disease and what the main challenge for its realization is. METHOD: a descriptive-exploratory and qualitative study, conducted in August and September 2017, with 15 nurses working in the male and female medical clinic of a Teaching Hospital located in a municipality in the state of Paraíba. Data was collected through interviews and records in field notes, and were subjected to Content Analysis. RESULTS: four thematic categories emerged: Nurses' understanding of Alzheimer's Disease; Assistance to the older adult and the family; Lack of training; and Rejection of family members in the face of diagnosis. CONCLUSION: nurses have limited knowledge about the care of older adults with Alzheimer's Disease. This knowledge deficit can have consequences in the care of older adults with Alzheimer's Disease, as well as for their family members.


OBJETIVOS: identificar, desde la perspectiva del enfermero, la atención al adulto mayor con enfermedad de Alzheimer y cuál es el principal desafío para su implementación. MÉTODO: se trata de estudio cualitativo, descriptivo-exploratorio, realizado entre agosto y septiembre de 2017, con 15 enfermeros que trabajan en la clínica médica masculina y femenina de un Hospital Escuela ubicado en un municipio del estado de Paraíba. Los datos fueron recolectados a través de entrevistas y registros en notas de campo, y fueron sometidos a Análisis de Contenido. RESULTADOS: surgieron cuatro categorías temáticas: conocimiento de los enfermeros sobre la Enfermedad de Alzheimer; Atención al adulto mayor y a la familia; Falta de capacitación; y Rechazo de los familiares ante el diagnóstico. CONCLUSIÓN: los enfermeros tienen un conocimiento limitado sobre la atención al adulto mayor con Alzheimer. Este desconocimiento puede tener consecuencias para la atención de las personas mayores con Alzheimer, así como para sus familias.


Asunto(s)
Humanos , Masculino , Femenino , Anciano , Salud del Anciano , Atención Integral de Salud , Enfermedad de Alzheimer/enfermería , Atención al Paciente , Enfermeras y Enfermeros , Familia , Investigación Cualitativa , Capacitación Profesional , Hospitales de Enseñanza
2.
J Cross Cult Gerontol ; 35(4): 479-492, 2020 Dec.
Artículo en Inglés | MEDLINE | ID: mdl-32821996

RESUMEN

Caring for a family member with Alzheimer's disease (AD) or a related dementia is stressful, and this may especially be the case for racial/ethnic minority caregivers. This study examined the feasibility and acceptability of a pilot intervention for Vietnamese American dementia caregivers. A secondary, exploratory aim was to examine post-intervention effects on AD knowledge and psychosocial outcomes. Of the 87 individuals contacted, 32 met inclusion criteria. Of this number, 14 enrolled in the study with 11 caregivers completing the intervention, and 10 of the 11 completing 3-month follow-up data. Caregivers provided positive feedback on the intervention and had higher scores on AD knowledge and self-efficacy in seeking support services post-intervention, with the effect on self-efficacy maintained at 3-month follow-up. Recruitment for the intervention was difficult; however, once caregivers came to the first session, they were engaged and found the classes informative. Recommendations for a future intervention are discussed.


Asunto(s)
Enfermedad de Alzheimer/enfermería , Americanos Asiáticos/educación , Cuidadores/educación , Anciano , Anciano de 80 o más Años , Americanos Asiáticos/psicología , Cuidadores/psicología , Costo de Enfermedad , Demencia/enfermería , Estudios de Factibilidad , Femenino , Conocimientos, Actitudes y Práctica en Salud , Humanos , Masculino , Persona de Mediana Edad , Proyectos Piloto
3.
Artículo en Inglés | MEDLINE | ID: mdl-32575455

RESUMEN

Background: The population aging together with an increased incidence of Alzheimer's disease (AD) should also be accompanied by a growing interest in healthcare research. Therefore, this study examines the nature of the caregiver's work, its mental and physical demands, experience and questions, and the relationship between the person with AD, the caregiver, and family members. Methods: As social media has become the place where people share family situations, a Facebook private discussion group of caregivers was chosen as the analytical data source. The study documented the daily-life situations of one-hundred dyads based on 2110 posts published during a six-month or longer period. A content analysis classified communication into 35 categories of basic, instrumental, and extended activities of daily livings (ADLs) and newly designed caregiver's daily issues (CDIs). Results: The frequently discussed topics were related to exhaustion and feelings of "giving up" by caregivers and interpersonal communication and help from family members. The highest support was found for the topics of aging and dying and family events. Conclusion: The communications of caregivers were diverse and rather associated with co-occupational ADLs and CDIs than basic or instrumental ADLs. The support of the group was mainly provided in coping with fundamental life changes.


Asunto(s)
Enfermedad de Alzheimer , Cuidadores , Medios de Comunicación Sociales , Adaptación Psicológica , Enfermedad de Alzheimer/enfermería , Diterpenos , Familia , Humanos
4.
Br J Nurs ; 29(8): 460-469, 2020 Apr 23.
Artículo en Inglés | MEDLINE | ID: mdl-32324452

RESUMEN

A multidisciplinary advisory group of health professionals involved in dementia care assessed the current evidence base regarding modifiable risk factors (MRFs) for early Alzheimer's disease and mild cognitive impairment. Based on evidence from the published literature and clinical experience, MRFs in four areas were identified where there is evidence to support interventions that may help delay cognitive decline or reduce the risk of developing Alzheimer's disease: medical (eg cardiovascular risk factors), psychosocial (eg depression, anxiety, social isolation), lifestyle (eg lack of physical activity, smoking) and nutrition (eg poor diet, lack of micronutrients). Practical guidance on how health professionals, but in particular nurses, may actively seek to address these MRFs in clinical practice was also developed. Nurses are at the forefront of patient care and, as such, are ideally placed to offer advice to patients that may proactively help mitigate the risks of cognitive decline and the development of Alzheimer's disease.


Asunto(s)
Enfermedad de Alzheimer/enfermería , Disfunción Cognitiva/enfermería , Rol de la Enfermera , Humanos , Estilo de Vida , Factores de Riesgo
5.
J Cross Cult Gerontol ; 35(2): 217-234, 2020 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-32112183

RESUMEN

Family members provide the majority of caregiving to individuals living with Alzheimer's disease (AD) and related dementias. Asian American families are disproportionately impacted by the burden of caregiving due to limited knowledge about the disease in this community. This study explored how Vietnamese American caregivers understand AD and provide care to family members with AD. Twenty caregivers who have provided care to a family member with AD participated in a semi-structured qualitative interview. Data were analyzed using thematic analysis. Several themes were identified in the caregivers' understanding of AD: (a) "Now I know:" the disruptions, shocks and surprises leading up to the initial diagnosis; (b) The frustrations of managing family members' cognitive impairments; (c)"Going with the flow:" challenges in managing personality and behavioral changes; (d) The exhaustion of around-the-clock caregiving; (e)"Taking it day by day" in the face of progressively worsening symptoms. Underlining the participants' descriptions of AD was a shared understanding of the progressively worsening, complex and unpredictable nature of the disease that makes it challenging for family caregivers on a daily basis. Findings provide important implications for healthcare workers' outreach to Vietnamese American families to ease the caregiving experience through culturally-responsive education, thereby enhancing the families' ability to recognize the early symptoms and seek appropriate help.


Asunto(s)
Enfermedad de Alzheimer/enfermería , Americanos Asiáticos/psicología , Cuidadores/psicología , Conocimientos, Actitudes y Práctica en Salud/etnología , Adaptación Psicológica , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Masculino , Persona de Mediana Edad , Investigación Cualitativa , Estrés Psicológico/etnología , Estados Unidos/etnología , Vietnam
7.
Gerokomos (Madr., Ed. impr.) ; 31(1): 26-31, mar. 2020. tab, graf
Artículo en Español | IBECS | ID: ibc-192209

RESUMEN

OBJETIVO: Analizar las evidencias sobre la eficacia de la práctica regular de ejercicio físico para retrasar la progresión de la enfermedad de Alzheimer. METODOLOGÍA: Revisión narrativa a través de la búsqueda bibliográfica en diferentes bases de datos como la Biblioteca Virtual Cochrane, PubMed, CINHAL, CUIDEN Y LILACS. Se aplicaron criterios de inclusión y exclusión para perfeccionar la búsqueda y la selección de los artículos. RESULTADOS: Se analizaron 20 artículos que destacaban que una terapia basada en ejercicio físico afecta positivamente a distintos aspectos de la vida del paciente, ya sea a nivel físico, mental o social. Se han comprobado los efectos beneficiosos que tiene la práctica de ejercicio aeróbico combinado con ejercicios de fuerza, equilibrio y movilidad, en la cognición global del paciente y síntomas psíquicos, en su habilidad para desempeñar las actividades cotidianas y en disminuir la carga del cuidador, todo ello relacionado a su vez con respetar las sesiones programadas estimulando la motivación de los pacientes. CONCLUSIONES: Dada la alta incidencia de la enfermedad de Alzheimer, sería conveniente concienciar a los profesionales de la salud, en especial a las enfermeras, para introducir la práctica del ejercicio físico en el cuidado de estos pacientes


OBJECTIVE: Analyze evidence about the efficacy of regular physical exercise to slower decline in Alzheimer's disease. METHOD: Narrative review by a bibliographic research in different databases like Cochrane Library, PubMed, CINHAL, CUIDEN and LILACS. It applies inclusion and exclusion standards to improve the research and selection of articles. RESULTS: 20 articles were selected for its analysis; they conclude a therapy based in physical exercise affects positively different areas of patient's life, in physical, mental and social levels. It has proved the beneficial effects that exercise has. Aerobic exercise, strength, balance and mobility exercises have an impact on global cognition, psychical symptoms; ability to perform activities in daily basis activities and to decrease care burden. Everything is related to respect programmed sessions to stimulate the patient`s motivation. CONCLUSIONS: Due to high influence of Alzheimer's disease, it would be advisable to raise awareness within the health professionals, especially nurses, in order to implement an exercise program for these patients


Asunto(s)
Humanos , Enfermedad de Alzheimer/prevención & control , Ejercicio Físico/fisiología , Progresión de la Enfermedad , Calidad de Vida , Enfermedad de Alzheimer/enfermería , Cognición/fisiología , Plasticidad Neuronal/fisiología , Actividades Cotidianas
9.
Hu Li Za Zhi ; 67(1): 98-105, 2020 Feb.
Artículo en Chino | MEDLINE | ID: mdl-31960401

RESUMEN

Alzheimer's disease (AD) is one of the most common diseases in older populations. Its main clinical features include cognitive dysfunction, affective disorder, and abnormal mental behavior. Due to the lack of therapeutic drugs, professional care has become an important diagnostic and therapeutic strategy for Alzheimer's disease patients. At present, most Alzheimer's disease patients are cared for at home by relatives or caregivers, and less than l0% of city-based patients receive care in old-age institutions. Due to mixed treatment regimens in the hospital, care services do not necessarily match patient care needs and thus Alzheimer's disease patients do not receive adequate treatment. Developed countries have a mature care system for the elderly, but no graded care model for the elderly with Alzheimer's disease currently exists in China. In this paper, the author draws on the experience of developed countries to construct an index system for the graded care of Alzheimer's disease patients that is suited to conditions in China. This article addresses the burden faced by the elderly with Alzheimer's disease and the current standard of care for the elderly at home and abroad. After explaining the necessity of constructing a care model for the elderly with Alzheimer's disease, the author then explains the practicability of the care system proposed in this study in order to provide a whole-course care model for the mentally impaired elderly in China.


Asunto(s)
Enfermedad de Alzheimer/enfermería , Modelos de Enfermería , Garantía de la Calidad de Atención de Salud/métodos , Anciano , China , Humanos , Investigación en Evaluación de Enfermería
10.
J Geriatr Psychiatry Neurol ; 33(4): 185-194, 2020 07.
Artículo en Inglés | MEDLINE | ID: mdl-31510848

RESUMEN

OBJECTIVE: We aimed to identify sources of caregiver burden in middle-aged and older Latino caregivers of people with Alzheimer disease and related dementia (ADRD). METHODS: Participants were recruited through an agreement with the Rush Alzheimer's Disease Center Clinic Data Repository. We conducted semistructured interviews with 16 middle-aged and older Latinos who were the primary caregiver for a family member diagnosed with ADRD. The interview guide consisted of questions and probes to capture participants' perceptions of family caregiving. Direct content analysis was performed. RESULTS: Participants were aged 50 to 75 years (n = 16) and a majority female (n = 12). The sources of burden identified were (1) caregiver responsibilities, (2) caregiving-related health decline, (3) lack of support, (4) financial status, (5) vigilance, and (6) concerns about the future. CONCLUSIONS: The influence of gender roles seemed to play a role in caregivers' perceptions of sources of burden, especially on caregiver responsibilities and perceptions of lack of support. Latinos cultural values such as familismo and marianismo likely reinforced gender disparities in family caregiving.


Asunto(s)
Adaptación Psicológica , Enfermedad de Alzheimer/enfermería , Cuidadores/psicología , Costo de Enfermedad , Hispanoamericanos/psicología , Anciano , Femenino , Hispanoamericanos/estadística & datos numéricos , Humanos , Masculino , Persona de Mediana Edad
13.
Gerontologist ; 60(3): 483-493, 2020 04 02.
Artículo en Inglés | MEDLINE | ID: mdl-31425586

RESUMEN

BACKGROUND AND OBJECTIVES: The purpose of this study was to identify risk and protective factors for abusive and neglectful behavior in the context of daily caregiving. RESEARCH DESIGN AND METHODS: Family caregivers who co-reside with a care recipient with Alzheimer's disease and related dementia, recruited from social media, completed 21-days of diaries. Multilevel modeling with days (n = 831) nested within caregivers (N = 50) was used to evaluate relationships between hypothesized risk and protective factors and the odds of an abusive or neglectful behavior on a given day. RESULTS: Disruptions in the daily routine and stress of the caregiver related to behavioral symptoms of the care recipient are significant risk factors for abusive and neglectful behavior. Participating in a meaningful activity with the care recipient when it occurs twice in a day is a significant protective factor against use of a neglect behavior (OR = 0.19; CI 0.06-0.64; p = .01), but not for abusive behavior. Hypotheses that spending the full day together would increase risk, and that receipt of instrumental support and caregiver participation in self-care would decrease risk, were not supported. DISCUSSION AND IMPLICATIONS: Findings demonstrate that risk of an abusive or neglectful behavior varies from day-to-day in the presence and absence of contextual factors, and that the majority of the variance in the odds an abusive or neglectful behavior occurring is related to day-level factors. Findings demonstrate that diary surveys are critical to identifying ecologically valid modifiable risk and protective factors for abusive and neglectful behaviors that can be targeted in future interventions.


Asunto(s)
Cuidadores/psicología , Demencia/enfermería , Maltrato al Anciano/estadística & datos numéricos , Actividades Cotidianas , Adulto , Anciano , Agresión , Enfermedad de Alzheimer/enfermería , Diarios como Asunto , Femenino , Humanos , Masculino , Persona de Mediana Edad , Factores de Riesgo , Autocuidado , Encuestas y Cuestionarios
14.
Gerontol Geriatr Educ ; 41(1): 121-132, 2020.
Artículo en Inglés | MEDLINE | ID: mdl-31451093

RESUMEN

The In-Home Supportive Services (IHSS) program in California provides direct care for low-income seniors and people with disabilities. Yet, the vast majority of these workers receive little to no training in caring for consumers, especially those with Alzheimer's disease and related dementias (ADRD). We developed and implemented a competency-based training program for IHSS caregivers who provide care for persons with ADRD. The 10-week, 35-hour program consisted of training modules with topics ranging from roles and rights of the care recipient to assisting with personal hygiene, with a focus on managing ADRD-related behaviors. The in-person training was delivered in English and Spanish to two cohorts of 30 IHSS workers each. Fifty-seven participants completed the training program; the majority in both trainings were female (79%) and self-identified as Latina (70%). There were statistically significant gains post-intervention in overall confidence in caregiving skills and knowledge among all participants.


Asunto(s)
Enfermedad de Alzheimer/enfermería , Cuidadores/educación , Servicios de Atención de Salud a Domicilio , Adulto , California , Femenino , Humanos , Masculino , Persona de Mediana Edad , Adulto Joven
15.
Dementia (London) ; 19(2): 453-460, 2020 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-28027651

RESUMEN

A purposive sample of African American Senior Companions (N = 23) participated in a 5-day, 20-hour psychoeducational training designed to address the unique cultural needs of African American dementia caregivers. Previous studies have not utilized lay caregiver volunteers such as Senior Companions in dementia research in the United States. Pre- and post-tests were administered to determine whether African American Senior Companions increased their knowledge of Alzheimer's disease after participating in the Senior Companion Program Plus. Results from both the quantitative and qualitative data suggest that participants improved their understanding of Alzheimer's disease. Findings from the Senior Companion Program Plus pilot warrant further study for its potential as cost effective, culturally tailored training for Senior Companions who serve persons with dementia and their family caregivers.


Asunto(s)
Afroamericanos , Enfermedad de Alzheimer/enfermería , Cuidadores/educación , Educación en Salud , Conocimientos, Actitudes y Práctica en Salud , Atención Domiciliaria de Salud/educación , Cultura , Femenino , Humanos , Masculino , Persona de Mediana Edad , Proyectos Piloto , Estados Unidos
16.
Dementia (London) ; 19(2): 461-463, 2020 Feb.
Artículo en Inglés | MEDLINE | ID: mdl-28201931

RESUMEN

Bruxism (teeth grinding) is an under-recognized cause of caregiver concern in patients with Alzheimer's disease. We report two cases of Alzheimer's disease with bruxism that caused significant distress to the caregivers. Patient data were collected from the case records of our hospital. One patient presented with early Alzheimer's disease and another with advanced Alzheimer's disease had bruxism causing significant caregiver distress. One patient was treated with botulinum toxin type A with complete relief of the symptom. Bruxism in Alzheimer's disease patients can be a cause of caregiver distress. It can be successfully treated with botulinum toxin. Whether bruxism is rare in Alzheimer's disease or is under-reported is to be evaluated in future studies.


Asunto(s)
Enfermedad de Alzheimer/enfermería , Bruxismo/tratamiento farmacológico , Cuidadores , Fármacos Neuromusculares/uso terapéutico , Estrés Laboral , Adulto , Anciano , Anciano de 80 o más Años , Enfermedad de Alzheimer/complicaciones , Toxinas Botulínicas Tipo A/uso terapéutico , Bruxismo/etiología , Femenino , Hábitos , Humanos , Masculino , Persona de Mediana Edad
17.
J Clin Nurs ; 29(11-12): 1774-1787, 2020 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-31342582

RESUMEN

A person living with Alzheimer's disease (PA) can experience difficulty during bodily care and therefore may show resistance to care behaviours (RTCBs). Nurses must take a clinical approach to planning care that meets the person's needs. Therefore, it is necessary to identify training strategies for bedside nurses and nursing students. AIMS AND OBJECTIVES: To describe and discuss how the FOC practice process (FOC-PP) can help nurses understand PAs who show RTCBs during bodily care. BACKGROUND: Resistance to care behaviour phenomenon and the importance of bodily care as fundamental care are described. The FOC-PP enables nurses to apply the FOC framework in their practice. DESIGN: This discursive paper is based on the literature of the FOC framework and PP. METHOD: A clinical scenario that develops through the five stages of the FOC-PP. RESULTS: The scenario centres on Mrs. Emily Morgan, 81, who lives in a nursing home and is not receiving the bodily care that she needs. Camille, a nursing student, and her supervisor Florence collaborate with Mrs. Morgan's family to improve the quality of her care. Three particular aspects of nursing practice based on the FOC-PP are described: the critical thinking process, relational process and pedagogical process. CONCLUSION: The FOC-PP promotes holistic care centred on the person and his or her needs and encourages the nurse to use his or her skills and knowledge. All these dimensions are fundamental for high-quality nursing care. RELEVANCE TO CLINICAL PRACTICE: Mrs. Morgan's scenario enables us to perceive that the FOC-PP is very useful for nursing students and bedside nurses. However, given the amount of specific and diverse knowledge required by the FOC-PP, it is necessary to identify avenues for teaching them. Using clinical scenarios could facilitate the integration of the FOC-PP, with taking into account the specific characteristics of individual clients.


Asunto(s)
Relaciones Enfermero-Paciente , Investigación Metodológica en Enfermería , Proceso de Enfermería/normas , Cooperación del Paciente , Estudiantes de Enfermería/psicología , Anciano de 80 o más Años , Enfermedad de Alzheimer/enfermería , Baños/enfermería , Femenino , Enfermería Holística/educación , Humanos
18.
J Gerontol B Psychol Sci Soc Sci ; 75(1): 125-136, 2020 01 01.
Artículo en Inglés | MEDLINE | ID: mdl-29304203

RESUMEN

OBJECTIVES: Caregiving to individuals affected by Alzheimer's disease and related dementia (ADRD) is a family-systems process where tasks are distributed between multiple caregivers in a network. We evaluate the extent to which multiple network members nominate one another as filling primary caregiver (PCG) roles and factors associated with nomination. METHOD: Data come from the Caregiving Roles and Expectations Networks project, which aimed to characterize the caregiving networks of families affected by ADRD. All persons affected by ADRD were either full-time residents in residential care facilities or community-dwelling adult day-care participants. Generalized Poisson regression was used to model the count of incoming PCG nominations of each network member. RESULTS: On average, there were multiple network members identified as PCGs across different network contexts. Network members who were perceived to perform essential caregiving tasks, such as making decisions on behalf of and spending time with the care recipient, received more primary caregiving nominations from their network peers, adjusting for personal attributes, and the context of care. DISCUSSION: Having multiple PCGs in a network may result in lack of consensus in who fills those roles, potentially putting families at risk for interpersonal conflicts. Future work aimed at intervention development should fully assess the social contexts surrounding caregiving processes in order to better understand how network composition might impact outcomes.


Asunto(s)
Cuidadores/estadística & datos numéricos , Demencia/enfermería , Familia , Red Social , Adulto , Centros de Día para Mayores , Cuidados Posteriores , Anciano , Anciano de 80 o más Años , Enfermedad de Alzheimer/enfermería , Instituciones de Vida Asistida , Femenino , Humanos , Masculino , Persona de Mediana Edad
19.
Rev. Pesqui. (Univ. Fed. Estado Rio J., Online) ; 12: 1274-1282, jan.-dez. 2020. ilus
Artículo en Inglés, Portugués | LILACS, BDENF - Enfermería | ID: biblio-1121985

RESUMEN

Objective: This study meant to analyze the main challenges and the care provided by nursing teams during the process of caring for elderly people bearing Alzheimer's disease and their family caregivers. Methods: It is an integrative literature review that was performed through article searching in the Scientific Electronic Library Online (SciELO) and the Literatura Latino-americana e do Caribe em Ciências da Saúde (LILACS) [Latin-American and Caribbean Literature in Health Sciences]. There were obtained 783 studies, of which only 13 met the inclusion criteria. Results: Care strategies associated to Alzheimer-related forms of behavior were proposed, namely, forgetfulness, denial of bathing, and the acceptance of the disease by the family. The lack of training and knowledge by some nursing professionals was evidenced as a challenging element vis-à-vis the relationship with elderly people and their family caregivers. Conclusion: It is important that public policies pursue to guarantee caring practices for elderly people bearing Alzheimer's disease, approaching the real needs experienced by such population, as well as family caregivers and health professionals


Objetivo: Analisar os principais desafios e cuidados despendidos pela equipe de enfermagem durante o processo do cuidar de idosos que vivem com Alzheimer e ao seu cuidador familiar. Métodos: Trata-se de uma Revisão Integrativa desenvolvida a partir da busca de artigos nas bases Scientific Eletronic Library Online e Literatura Latino-Americana em Ciências da Saúde. Obtiveram-se 783 estudos, dos quais apenas 13 atendiam aos critérios de inclusão. Resultados: Foram propostas estratégias de cuidados referentes a formas de agir relacionadas ao Alzheimer. Entre elas o esquecimento, negação do banho, aceitação da doença pela família. A falta de capacitação e conhecimento por parte de alguns profissionais da enfermagem foram evidenciados como elemento dificultador na relação com o idoso e seu familiar cuidador. Conclusão: É importante que as políticas públicas possam garantir a assistência ao idoso com Alzheimer, aproximando-se das reais necessidades vivenciadas pelos idosos, cuidadores familiares e profissionais da saúde


Objetivo: Analizar los principales desafíos y cuidados que el equipo de enfermería durante el proceso de cuidar a los ancianos que viven con Alzheimer y su cuidador familiar. Métodos: Se trata de una Revisión Integrativa desarrollada a partir de la búsqueda de artículos en las bases Scientific Eletronic Library Online y Literatura Latinoamericana en Ciencias de la Salud. Se obtuvieron 783 estudios, de los cuales sólo atendían a los criterios de inclusión. Resultados: Se han propuesto estrategias de atención a las formas de actuar relacionadas con el Alzheimer, entre ellas el olvido, la negación del baño, la aceptación de la enfermedad por parte de la familia. La falta de capacitación y conocimiento por parte de algunos profesionales de la enfermería fueron evidenciados como elemento dificultador en la relación con el anciano y su familiar cuidador. Conclusión: Es importante que las políticas públicas puedan garantizar la asistencia al anciano con Alzheimer, aproximándose a las reales necesidades vivenciadas por los ancianos, cuidadores familiares y profesionales de la salud


Asunto(s)
Humanos , Masculino , Femenino , Adulto , Persona de Mediana Edad , Anciano , Anciano de 80 o más Años , Cuidadores/educación , Enfermedad de Alzheimer/enfermería , Grupo de Enfermería , Política Pública , Familia/psicología , Salud del Anciano , Necesidades y Demandas de Servicios de Salud , Atención de Enfermería
20.
Esc. Anna Nery Rev. Enferm ; 24(1): e20190083, 2020.
Artículo en Inglés | LILACS, BDENF - Enfermería | ID: biblio-1056130

RESUMEN

ABSTRACT Objective: to reflect on the integration of Leininger's Transcultural and Heller's daily life theories in the support of the care of the elderly with Alzheimer's disease. Method: reflection study guided by the researchers' perceptions, when understanding, in the development of actions, the convergence between the theories. As the procedures, studies about the theme in the fields of nursing and social work were analyzed. Results: text organized in two parts: "Cultural Care of the elderly with Alzheimer's Disease" and "The Daily Care of the elderly with Alzheimer's Disease". The respect for cultural aspects and immediate problems resolution of the elderly with Alzheimer's Disease are interdisciplinary actions integrated in the context of care, from the assumptions of Leininger and Heller, in this scenario used as a foundation for improving the care of patients. Conclusions and Implications for practice: the interdisciplinarity of care in Heller and Leininger is explained by the approximation to the social context, with common elements. Together, these theories provide the best response in promoting the well-being of the elderly with Alzheimer's Disease and its related surrounding. The theories congruence implies an integral and solid care, involves concrete action, based on different assumptions, which strengthen when they come together, benefiting patient and caregivers, with an individualized and differentiated care.


Resumen Objetivo: reflexionar sobre la integración de las teorías Transcultural de Leininger y la del Cotidiano de Heller, en el soporte a la atención a ancianos con enfermedad de Alzheimer. Método: estudio de reflexión, guiado a partir de las percepciones de las investigadoras, al comprender, en el desarrollo de acciones, la convergencia entre las teorías. Como resultados, fueron analizados estudios sobre el tema, en las áreas de enfermería y del servicio social. Resultados: texto organizado en dos partes: Atención Cultural en la enfermedad de Alzheimer y " Cotidianidad de la atención en la Enfermedad de Alzheimer. El respeto a los aspectos culturales y la inmediata resolución de los problemas del anciano con Enfermedad de Alzheimer son acciones interdisciplinares, integradas en el contexto de la atención, a partir de los presupuestos de Leininger y Heller, en este escenario utilizados como base para mejoras en la atención a pacientes. Conclusiones e Implicaciones para la práctica: la interdisciplinariedad de la atención en Heller y Leininger es explicada por la aproximación al contexto social, con elementos comunes. En conjunto, esas teorías proporcionan mejor respuesta para la promoción del bienestar del anciano con Enfermedad de Alzheimer y su entorno. La congruencia de las teorías depende de atención integral, sólida, envuelve acciones concretas, basadas en diferentes presupuestos que se fortalecen cuando se juntan, beneficiando al paciente y cuidadores, con atención individualizada y diferenciada.


RESUMO Objetivo: refletir sobre a integração das Teorias Transcultural de Leininger e a do Cotidiano de Heller, no suporte ao cuidado a idosos com Doença de Alzheimer. Método: estudo de reflexão, guiado a partir das percepções das pesquisadoras, ao compreenderem, no desenvolvimento de ações, a congruência entre as teorias. Como procedimentos, foram analisados estudos sobre o tema, nos campos da enfermagem e do serviço social. Resultados: texto organizado em duas partes: Cuidado Cultural a idosos com Doença de Alzheimer e Cotidianidade do Cuidado a idosos com Doença de Alzheimer. O respeito aos aspectos culturais e a imediata resolução dos problemas de idosos com Doença de Alzheimer são ações interdisciplinares integradas no contexto do cuidado, a partir dos pressupostos de Leininger e Heller, neste cenário, utilizadas como alicerce para melhorias da assistência a pacientes. Conclusões e Implicações para a prática: a interdisciplinaridade do cuidado em Heller e Leininger é explicada pela aproximação ao contexto social, com elementos comuns. Juntas, as teorias proporcionam melhor resposta à promoção do bem-estar de idosos com Doença de Alzheimer e respectivos entornos. A congruência das teorias implica cuidado integral, sólido, envolve ações concretas, baseadas em pressupostos diferentes, que se fortalecem quando se juntam, beneficiando pacientes e cuidadores, com cuidado individualizado e diferenciado.


Asunto(s)
Humanos , Anciano , Teoría de Enfermería , Enfermedad de Alzheimer/enfermería , Atención de Enfermería , Servicio Social , Familia , Enfermería Transcultural
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